Trusting the Battle

I’ve received quite a number of emails over the months and read many responses from people who ask how I stay so positive, happy, and humorous among illness and all the things I’ve lost. It makes me smile to read emails like that because it’s sort of like “Oh, haha, these people think I’m happy and have my shit together.” The truth of the matter, is that happiness is something I work at, every day. I mean that. I’m not a naturally chipper person. Especially in the mornings. Most days I don’t feel incredibly alive until about 7 pm. I don’t have a ton of friends or a blooming social life. I am OK with that as I’ve always been someone who enjoys solitude. But I just don’t want to give the impression of “The grass is always greener” over here. I’ve gone through a lot of heartache and despair. I’ve just made it out on the other side. But I still struggle with optimism and simple joy. Writing here has enabled me to find the lessons that were hiding beneath the tears and sickness and loneliness. So sometimes it appears that I’ve got it all figured out and wake up whistling the tune to “Oh what a beautiful morning, oh what a beautiful day…” I don’t. I work to find the beauty and meaning of every day of my life. And many times, I fail.

I have been prone to periods of despair throughout my life, especially last year. One day in February, I cried almost the entire day. I kept thinking I would run out of tears, and I never did. As soon as I’d finish blowing my nose and wiping up my face, I’d sit down just to have the tears return and my heart go back to aching. That night, my mom brought in tomato soup to my room and made me eat even though I had no appetite. There I was at 26 years old, being spoon fed by my mom. It was humbling, but also a really beautiful moment to know that even in all of the isolation I felt, someone was still there to feed me, when I didn’t have the strength to feed myself. She talked me through the pain and the tears, many of which were falling in the orange liquid in the bowl and making little ripples like a rock in a pond. I remember how sad and hopeless I felt that night, distinctly. But, I made it through, with the help of my mom. It wouldn’t be the last day where I felt like I was drowning in the sadness of my own story. But each of those moments when I reflect on them now, were revealing something quieter, and not as easy to see. In my anger that I had to move back in with my parents, I missed the fact that I was lucky to have somewhere to go and have someone to take care of me. In the sadness of losing my job, I skimmed over the idea that staying there would’ve made me sicker, possibly to the point of no return. Last year revealed many moments that at times would suffocate me, if I looked only at those moments. But life isn’t isolated that way. In every moment of darkness, something else is revealing itself, if we choose to see the whole of it. A lot of times, I had to stop feeling sorry for myself and take an honest look at the way things were. This was not easy, and it still isn’t easy. It’s work. Like Nepo says “This is the trick to staying well isn’t it; to feel the sun, even in the dark.”

I still struggle today in finding the meaning of my life. But further than that, I struggle with general happiness. I sometimes slip and get stuck in a hole. At times it feels easier just to be depressed or angry. And momentarily I guess it’s OK to feel those things, I just know that the only times I’ve been able to move forward is when I choose to look honestly at my experience and try to see what it has to offer, not what it has taken away. Staying mad, staying sad, saying ‘It’s not fair’ just keeps me in the hole. And who wants to live in a hole? It’s dark down there!

Everyone is fighting their own battle, whether it shows on the outside or not. We often assume everyone else is happy, has an easy life, and could never understand our struggle. I often felt that way last year. But that thought is not only our ego trying to isolate us, it’s false. Peel back the layers of any person, and you’ll see the battles they’re undergoing and the scars they carry. I have mentioned this before, but it is something that has stuck with me for a while. Trust your battle. Trust that the life experience you were given is exactly what you need. The lessons you learn will become the whole worlds lessons. Wayne Dyer says to find the lesson, you have to actively ask each experience “What is this here to teach me?”

So that is what I’m working on; not only to seek the lessons of my experience, but to try and live each day happily and with ease. Again, it’s something I have to work at. Sometimes I get so wrapped up in the questions and mysteries of life, that I miss the simple pleasures. I could spend all day wondering and fearing whether the sun will rise tomorrow, and wrapped up in that anxiety, I miss the sunset. I’m going to try and trust my experience and my battle. I’m going to stop wishing for a life that isn’t mine. And I’m going to try whistling that tune “Oh what a beautiful morning, oh what a beautiful day…” every morning. Because my grandma always whistles that tune, and I’ve yet to meet anyone happier.

Health, Happiness, and Battles.

 

Some Lessons of Love on Valentines Day

I’m told that you learn how to love from your parents. So on this International day of love and cheap Walgreens chocolates, I’m going to share the lessons of someone whose influence has been huge and far reaching- My mom. Here is a part of her story.

My mom and dad met on a blind date set up by their two best friends. It was only meant to be “friendly” and an innocent night of fun. Neither my mom or dad were fully on board with the idea of it, but they were told “It’s just dinner. What’s the harm in that?.” What was promised to be just dinner, ended up being the first night of a journey that would lead to marriage and four kids. Bam! In 1993 my dad was diagnosed with cancer. There was a lump underneath his belly button which had been there a while. It hadn’t really grown or changed but to be on the safe side they went in and removed it. Upon opening him up, they saw that not only did he have cancer, but that is was so widespread they couldn’t even locate the origin. So we were never told he had “lung cancer” or “stomach cancer.” He had whole body cancer! He was given six months.

We were also told the cancer was too far spread for chemo or radiation treatments to be effective. My dad wasn’t thrilled with this prognosis, so he devoted himself to getting well through a hollistic approach. He cut out white sugar, white flower, meat, artificial everything, and drank so much homemade carrot juice that his palms turned orange. He lived in great health for three and a half more years to the surprise of all his doctors. But ultimately he lost the battle. After he died, I remember my mom saying “I could never love someone the way I loved your dad.” And it was pretty well understood and accepted that she wouldn’t marry again.

But four years later, she was set up on another blind date which she again resisted strongly and almost bailed out on minutes before. This time it was a different set of friends who set her up, but the promise was the same. “It’s just dinner. And we’ll be there the whole time.” Well wouldn’t you know it, sparks flew that night too with Roger. (We liked to call him Roger Dodger) And six months later, they married. I remember my mom saying, “When you get to be my age, you just know these things. There’s no reason to wait!” He had two kids from a previous marriage, so now altogether there were three boys and three girls. We were literally the Brady Bunch, just far more dysfunctional. But it was a really incredible thing to see my mom so re-energized again. Roger was very different from my dad, but it didn’t seem to matter. He brought her back to life.

Five years later, I was a junior in college at LSU. I remember this Tuesday morning distinctly. I was brushing my teeth and going over a case in my mind for my Media Law class that I was running late for. My cell phone started ringing and I saw it was my house. When I answered, I heard the horror in my moms voice. She could hardly get the words out, but she does. “Roger died last night.” He was in Florida on business and died in his sleep at his hotel room the night before. He was never late, so when he didn’t show up to work the next day, they knew something was up. The autopsy revealed it was a heart attack. I kind of gasped for air when I heard my moms words. In a moment it felt unreal and disgustingly real simultaneously. I was trying to process what she had told me as I packed a bag when it hit me- the icing on the cake of this surprising and sudden tragedy–my sister was getting married in two weeks. And here’s the cherry on top– they were getting married in the very same Hall that my mom and Roger were married in. As my sister Amelie so eloquently put it, Are you fucking kidding me?! It was unbelievable. I hopped in the car and made the hour and a half drive home, in shock. It felt like a 10 second drive.  Doug, Nick and Amelie were all in by that night as well. Roger’s kids were in the next day and we all put our heads together and began the “making arrangements” process. Sometimes I still look back at all that and think, did that really happen?

So we Gelpi’s do two things really well: Weddings and funerals. For one thing, we’ve had a lot of practice. We planned and executed the funeral, and then prepared for my sisters wedding a week later. Somehow, the funeral was beautiful and seemed just how Roger would’ve wanted it. A lot of people spoke, including his son who’s words were poised and beautiful. The service took place outside in the 3 acre garden he created. As depressing as it was, somehow it still felt right. The next weekend, it was time for my sisters wedding. And it was a blast. Still one of the best weddings I’ve been to! Everyone smiled, laughed, and danced, including my mom. Sometimes I think we should start a business where we plan both weddings and funerals. I must say, there’s not SUCH a difference. Each involve an absurd amount of flowers, a lot of drinking, and usually someone saying something inappropriate. There’s just more dancing at a wedding! Anyway, the next year involved a lot of cursing and yelling at God. A lot of questioning life and existence and the universe and a lot of crying and flipping off the sky. But in very quiet moments, in stillness, I felt reassurance. I could feel that this was not how the story would end. It wasn’t over; not yet.

Just over a year later, my mom was at a bar-b-que at some of our best friends house, the Pastoreks. Paul Pastorek was one of my dads best friends. They were the family we’d take ridiculous annual vacations with in the summers. We were extensions of each others families. Anyway, while at the bar-b-que, my mom met Paul’s brother, Marc. Somehow, in their more than 20 years of friendship, my mom had never once met Paul’s brother, until today. You can go ahead and guess where this is leading. Yep! They ended up falling in love, too. Just over a year later, they were married on a mountain in Colorado. We joked about who was crazier; my mom for taking another chance and marrying again. Or Marc, for taking a chance and marrying a woman with two dead husbands! The first song we danced to at the wedding was “Stayin’ Alive” by the Bee Gees. It was both irreverent and inappropriate, just like all of us. Once again, we danced all night. It was perfect.

Taking the plunge, part 3.

So now, the lesson. Only marry men with strong genes. Just kidding. I think the biggest lesson I have gathered from my moms story,  is that choosing to love someone involves incredible risk. There are no guarantees in life and certainly none in love. I think it would have been very easy for my mom to clam up after the first loss. And then to disengage completely after the second loss. Excuse my Jewelry commercial sappiness, but I think by keeping her heart open to even the idea of loving again, she was able to both give and receive it in spite of the track record. At Roger’s funeral, she stood up to speak to everyone’s surprise, including her own. But she said something came over her, and the first  thing she said was “To love is to be vulnerable to loss.” This is true for everyone. And that’s a scary thought if you harp on it too long. But the alternative, which is safety, bears no reward. And that doesn’t sound like much fun, at all. Most everyone I’ve talked to who has been in love, whether it worked out or not, says it was well worth it. A few nights after Roger died, a lot of people were over at our house. We were eating, drinking, and remembering, telling stories. At one point my mom was talking about their first date and how hesitant she was. At the end of the story she said “What can I say, given the chance, I’d do it all over again.” That’s what you call courage! I was in awe of her. And as I watched her marry a third time, change her name a third time, ‘do it all over again,’ take another plunge into the unknown, I knew I was bearing witness to a model for not only how to live, but how to love too. Get busy livin or get busy dyin! Am I right? So here’s to you mom, for doing it all over again, picking up the pieces and moving forward, and teaching everyone around you that love, while it is a gift, is not random. You have taught us well.

Health, Happiness and Love!

Me + World

Night is my other best friend. The darkness allows you to be alone, eat alone, and there are no silly questions about it. You’re allowed to sit in a room with no tv and no music and no electricity and nobody asks why. I like to lay with Monty at the end of my bed and think of everything that is alive. I start with me and move across the room, the street, the neighborhood, city, state, and then I move up. Out. I pan out and watch it all from above, see where I fit. Spot the breathing electricity out of windows. I do this for hours at night. I try not to get blindsided by some faulty thought that I am alone. Because that isn’t true. When I look through the lens properly, it’s clear that all the little beams of light coming through all the little windows connect us. And in dissillusioned visions that imply you’re alone, you find in kind silence, you’re not. That little list you’ve made of everything separating you- turn it upside down. Make a funny doodle of it. It’s a delusion gaining momentum. To position yourself away from the world and claim you’re alone is uncreative; as if this is your only life! You’re not. It isn’t. And all the energy you’re expending effects every little window you think you aren’t connected to. It dims the lights.

If you’re alone, then why do you feel sad when you see a stranger cry? Because you’ve held her pain before. Why do you feel bad for the prisoner, the killer? Because you’re capable of hate, too. And you gave money to him on the street, when you know just what he’ll buy with it. But he showed his gold teeth to you and you smiled back and didn’t let anybody see–You’ve been desperate, too. And you felt loss when you killed an ant and sad when you watched an elephant. You’ve been looked over before. If there’s only you, why do you smile when you see a dad playing with his kid and a grandma teaching someone to cook and a dog making someone laugh and old people holding hands? Because you’ve felt unconditional love, too. How even the thought of lemon makes your mouth water, you know just what that kind of love tastes like. Why when you’re all alone in bed does your mind flood with all the people of the world, the ones you’ll never see, and the open parts, the good parts that haven’t happened yet, and a deep warmth rises in you, that though your body is weak your spirit is strong and for a moment it will occur to you just how big a dent you can make. Because you are not alone.  Just as when the lights turn off, there is blackness and in the newness you think everything’s disappeared–Adjust. The chair is still there, where it always was. Now you see it when you look with right eyes.  You couldn’t be the only one here. You’re important, but not that important. You’re not everything. But you contain the energy and carry the weight of everything that ever was.

You embody every war won and every battle lost. Every kid that died and everyone that survived. Your fingers touched the cotton of every cotton quilt and your arms grew heavy from the labor all day long. You’re jaded from all the gold in the world not being enough and blind from an excess of things that left you empty. Your tears are made of theirs. Your laugh makes the same sound. Your heart is made of all the holes of infedelity and the solidity that binds it is made of  loyalty and kept promises. That’s why every heart is capable of breaking but can also be reassembled. Just as it can hurt, it can heal. Ask a child to love you and she’ll know what to do. That’s why when you cry, I cry too. And that’s why when you die, I’ll die too. When we see each other there, after having all this fun, we’ll laugh at the bad parts, rejoice at the good parts, and once again we’ll smile together.

Tell me again, how you think you’re alone? These aren’t bad things, friend, these are treasures we share.

Health, Happiness, Togetherness!

Sunday Funday

I wrote a thousand different things in the last few days. I don’t like any of it. So I tried my creativity in the medium of film. Enjoy…

 

 

Community College Dropout

It’s a beautiful thing to wake up and believe that you’re exactly in the place that you need to be. Even if it’s not the place you plan on staying. For me, figuring out where to go or what to pursue next has always heavily involved where not to go and what not to do next. I’ve made some decisions in the recent two months that go in a very opposite direction from what I had planned. You know what they say: Man Plans, God Laughs. I suppose this is my official (and late) letter of resignation to Delgado Community College. Unless of course the writing doesn’t work out, in which case I’ll need Anatomy and Physiology II in the Fall and in the afternoon, please.

Bye Bye Delgado. It's Been Real.

I’m often surprised how hard it is for me to admit that I am sick. All my friends would tell you differently because they’ve all heard me say a million times “Sorry can’t make it. Feel like death again,” or something similar and I operate an entire blog centered around my stupid health! But it hasn’t always been this way. And in my instances of pain I have no hesitation in admitting that I feel awful and to just go ahead and count me out of whatever activity they’re planning. But for some reason, in a larger context, in the long term, I’ve never really considered myself sick or disabled or incapable. That’s why when my best friend Jess and I talked about nursing school this summer, I jumped on board immediately. I was feeling better, (as in, I could walk with ease now) and I wanted to be working towards something. This was in July so I had been away from my job since February and was really feeling the void of not doing anything. I was writing, true, but no one takes a jobless “writer” seriously. I didn’t even take myself seriously! Everyone is writing a book. Everyone has a brother in a band.

Anyway, I have always had a passion for nursing. My mom was a nurse, and since I was young I would dress up in her lab coat, wear the stethoscope around my neck, and walk around the house pretending to conduct my highly important work of tending to the sick. I’d also beg people to let me give them an exam, which usually ended up in me asking my Grandma questions like “And how often do you take fiber?” and listening to our dog Bacchus’s heartbeat. When it came to choosing a major in college, I chose Journalism for two reasons. 1. I’m an inherently curious person and 2. It came easy. My writing classes were easy A’s for me. Math and science meant a lot more work on my part. So I chose what came natural, and that was the right decision.

But now this nursing idea was popping up again, so I jumped on board. It was something I had interest in anyway, and I only needed a few pre-reqs in order to be admitted, so I went for it. I signed up for 3 classes, passed the entrance exam, and decided to start a silly blog to accompany me on my sickly journey to nursedom. Oh how the tides would turn. Funny that I didn’t really stop and consider that the whole reason I even had time to consider going back to school was because I was sick and physically unable to keep up with the pace of the rest of the world. Nope..never thought of that…

Even after the blog went viral and other opportunities began presenting themselves, I finally sat down one morning and really thought about nursing school. I started thinking about how I handled my three classes at Community College. Usually, I went, so that was a start and my grades were fine. But nursing school is very intensive. Sometimes the hours are very long and I don’t think it’s one of those jobs that would be very forgiving about me calling in once a week or letting me come in late when I had a migraine. I know a few people attending nursing school now, and when I would see them after a full day and how tired they were, I knew deep down I wouldn’t be able to do it physically. Didn’t I know that before? And yet something made me go after it in August. Unfortunately I think it was ego. Something in me wanted to prove I could do what other people could do. I could be normal. And if I couldn’t make it through, I’d just give up. And that’s not really a responsible or wise decision on my part, but since it only began with 3 classes, I think those near and dear to me wished me luck and quietly thought ‘What the hell is that girl doing? She can’t even prepare her own meals!’ It was also not a wise decision because it was this kind of thinking that kept me at a job so long that I was incapable of keeping up with. It was ruining any shot at me getting better, and this would have done the same.

Luckily, I didn’t get far enough into nursing school to have to quit or give up halfway through. Three days before my last final, the blog went viral and new, more feasible opportunities presented themselves under the same heading: Writing. Remember? The thing you’re decent at and enjoy doing that comes naturally and doesn’t require you to use your feeble little body? DUH. Like Nepo says “When we stop struggling, we float.” Once I stopped trying to prove what I could do, I stopped having to try so hard, and was left with the gift I had all along.

What I’ve been considering lately is that my motive for going into nursing in the first place was very basic: to help sick people. And somehow, now, I am inadvertently given that same opportunity, just through different means; my words. I’ve received quite a number of emails from people with many types of health issues who say this site helps them feel less alone and less crazy, and makes them laugh, too. It’s a beautiful gift to be able to reach people that way. The internet rocks. It’s like I’m an internet nurse!

So I’d like to say thank you to everyone who has written, commented, or laughed, and to everyone who has found comfort, hope, or joy here. One of the biggest realizations I’ve had in all of this is that it’s entirely possible to be sick and still laugh, love, dance, and have a happy life. So don’t ever start becoming comfortable with the perspective that you’re sick and being sick sucks and thus, you’re life is going to suck. Being sick does suck, but you’re life doesn’t have to. Mine isn’t completely where I’d like it to be, but  it’s getting there, and I believe more than ever in the prospect of true happiness. This realization is of course coming after a year of a lot of mental and physical pain and breakdowns and loss and lessons. But hopefully it can offer some comfort to anyone out there without them having to go through a year of pain and breakdowns and loss. Tolle says this: “I am not what has happened to me, I am what I choose to become.” I think I know what I’m meant to do now.

Health, Happiness, and Mom I’ll Pay You Back for That Semester at Community College Soon I Promise.

It’s Snowing In New York.

It’s quiet because of the snow

Clear because of the quiet

And it snows because it’s empty.

There is room for it here,

In the box with all the questions.

*

The window across the street

Is reflecting the window next to me,

So I can see the neighbor kids

On tip toes, checking

When I see movement,

I check too.

As of yet it’s still a black sky turned orange

We wait, we’re patient.

*

I didn’t have it enough as a child

Never had to shovel it before school

So there’s no headache about it getting dirty

No bitterness of what it turns to

No worry of what it ruins

It’s a novelty to me

It’s what airplanes used to be.

*

I sit at a window, waiting

Most the days of my life.

I hold a box, open

That carries every question

I’ll ever have.

Tonight while I wait,

I thumb through curiosities

Laugh at old questions

And try not to let future uncertainties

Weigh the box down too much.

*

It’s a soft pink, satin ribbon

That holds the thing shut,

And when the snow starts

To fall tonight

I’ll open it

At the neighbor kids looking

At the clarity of it falling

At the quiet of it sticking

The couple laughing

The street lights changing

The flag that’s snapping

At the snow that’s falling

And I’ll catch all the little truths

That come with snow

And watch God fall

And then I’ll know.

Let’s Talk About Dancing.

I arrived in Miami on Friday to spend a few days here. This is partially the reason I’ve been so crashed. I never do exceptionally well when I travel, and this time was no exception. But it’s nice to be sick in a beautiful place. I mean if you’re gonna be a human waste-land, might as well be a human waste-land on a beautiful beach. My brother and sister-in-law had a baby shower this Saturday (she’s due in March)and we decided to make a Gelpi Power Hour weekend out of it. I am staying at a hotel on South Beach and I dreamt all night of heavy base techno music. Wait, that was not a dream. I was actually up all night listening to heavy base techno music ricocheting off the walls. At around 2 am I kid you not, Club Mango played that song “What is love? Baby don’thurt me…” and it was like a real-life Night at the Roxbury!

Mm hmm.

Truthfully it wasn’t the music keeping me up, though it didn’t help. My legs were on fire, cramped up and emitting heat like they do. So I read more of my book as the base and noise of drunk people bounced around below. At first I was agitated but then I grew to like the sounds. It added to the authenticity of my Miami stay. It reminded me of what the noise of being alive is like. Also they played a lot of Rihanna so, you know. That was cool.

Every now and then they’d play a song I liked and out of the corner of my eye I’d find my foot tapping to the beat of the song without knowing I was doing it. The interesting part of it was that as I noticed this, I started reading a chapter in Marc Nepo’s book called Questions Put to the Sick: When was the last time you danced? I think this is what Carl Jung would refer to as Synchronicity. But that’s another story.

Allow me to say some things about dancing. 1. I love to do it. 2. I’m kind of terrible at it. 3. I don’t care. 4. OK I kind of care. 5. After a few beers I don’t care anymore. And I’ve been told my skills have improved. Anyway, I love dancing. I actually crave dancing. If there is a span of time where I don’t dance, I get the dancing itch, and the only cure is to rock out somewhere with loud music and move my body in any deformed way it feels that communicates physically the fun I’m having in my brain. It can be alone in my car, or at a bar, in the shower, or a wedding. Ooooh weddings. Those are the best. I think that’s why Dane Cook’s standup about girls saying “I just need to dance,” rings so hilariously true to so many people. Sometimes I’ll feel ansy and I know it’s because I need to just dance it out. I swear I’ll wake up the next morning after dancing and feel better, as though it was a bug I had to get out of my system. I’d argue it’s just as important as your dentist appointment or annual colonoscopy. You just have to do it. You’ll feel better once you do.

I may or may not have been compared to Elaine in the past.

Or you’ll feel worse. Wah Wah. (Debbie Downer tone) Being sick and constantly walking a fine line between functioning and non-functioning, there’s always the possibility of over-doing it and paying a price. Like last year in March, I danced the Dougie way too hard one night and I was crashed the next day. All because of the Dougie. But I need to say this:  it was worth it. Sometimes you pay a price, and sometimes it’s worth your while. “What happened to Mary?” “She Dougie’d too hard last night.” “Poor thing. I’ll make us some sandwiches.”

Here’s what Nepo writes about dancing:

The ongoing effort to dance, to give gesture to what we feel and experience, is ultimately healing because, as riverbeds are continually shaped by the water that moves through them, living beings are continually shaped by the feelings and experiences that move through them. If there is no water moving through, the riverbed dries up and crumbles. Likewise, if there is no feeling moving through the body, the being at the center of that body will crumble.

More often though, there is too much to give gesture to, and we fail to move these feelings through our bodies. In truth, much of our inner sickness comes from the buildup and pressure of all that is kept in. The ongoing act of releasing that inner buildup is what spiritual practices call embodiment.  …Once unblocked, giving gesture to our inwardness not only frees us from becoming pressurized, but the gestures, once allowed out, teach us how to dance further into our own lives.”

Pretty cool right? I know some people think it’s just psycho-babel and the idea of someone shaking their ass in the club to Lil Wayne and calling it spiritual embodiment is just a joke. Understandable. But pay attention to the music you hear and the subconscious urge you feel to move. It’s not a calculated choice we make. Even babies and toddlers begin to dance (sometimes better than me) when music is played for them. Sometimes, we should be still, but sometimes we should MOVE BABY. And don’t let your thoughts get the best of you. Don’t try to analyze it or over think it. The best kind of dancing is unrestrained, uninhibited, belting at the top of your lungs-holding a pretend microphone-singing to a pretend audience, unrepressed, uncontrolled dancing. It doesn’t matter if you’re bad. If you’re having that much fun, you’re far from bad. You’re the best!

So the next time you’re out, or in, and you feel the hunger, satisfy it. It is actually good for you, for your body and your soul. If someone asks you why you’re dancing alone in the kitchen, tell them you’re moving your life experiences through your body so you can dance further into your existence. They’ll like that. Here’s one last anecdote about dancing. After my step-dad died in 2006 the house was oddly empty and the family was pretty down. My mom told me later she would turn on Ellen in the afternoons and dance along with her, by herself in the living room. Sometimes it was the only thing she achieved that day. But guess what? It made a difference. It changed the energy of the room. It changed her energy–Made her smile, even for 30 seconds. And in times like that, you’ll grab hold of anything to get you past the moment of pain. So I love that part of Ellen’s job is to get up every day and dance, and to get other people to dance along with her. I love that my mom got up and did it, even when she felt devastated and lost. These are small, small things that in the end can shape large parts of our lives. I haven’t danced in a while, so maybe I’ll give the Dougie another go tomorrow and just cut myself off a little earlier. For now, my legs are cramped and I’ll do some research on fatigue-friendly dance. Perhaps I’ll head down to the nursing home and see if there are any classes there. They’ll be more on my pace. Maybe I’ll even meet somebody special.

Health, Happiness, and DANCE!

Brothers and Sisters.

I am the youngest of four siblings. Doug and Nick are barely a year apart, followed by Amelie, then me. Sometimes I watch the four of us around the dinner table and wonder how we were each born from the same two parents. And then in rarer times, quieter times, I see the subtle thread that ties us; the binding, intangible something in our hearts that seeks greatness and loves easy. On many nights, like tonight, I wonder who I’d be without my siblings. And if I’m feeling extra philosophical, I wonder what the world would be like without them. I find them that important! There’s a strong energy about the four of us. We do OK on our own, but there’s this tangible vibrancy when we’re together. And this unintended dynamic of reverse reciprocals has formed among us. Where one is slow the other is fast. Where one is hard the other is soft. Where one yells the other soothes. Where one forgets the other remembers.

What has occurred to me recently is that each one of us carries a different piece of our dad around. And this is why I think there is such powerful and positive energy when the four of us are together; we’re putting together four pieces to revive a beautiful whole. Since each of our relationships with our dad was different, and we were all different ages when he died, we all carry something different. My brother Doug carries his Peace and Patience. Nick carries his thoughtfulness and social graces. Amelie carries his joyful “Burst of Sunshine” characteristic. And I carry his attentiveness to the voiceless. We ALL carry his sense of humor, his fearlessness in being weird, his desire to play meaningless pranks, and his simple talent of just being fun. At least, we all try.

Dad reading to the kids, Christmas '84 (click to enlarge)

Having the three of them in my life has been a true gift. And maybe while I’m prancing around in LaLa Land I should clear up that we are NOT The Brady Bunch over here. We  have plenty of dysfunctional to pass around. We yell at each other, make fun of each other, grow insanely impatient with one another, and sometimes we even wrestle. It isn’t uncommon for my brother to call me a turd sandwich or my sister to call Nick an asshole at least once every few days. When it happens, usually I’m acting like a turd sandwich and Nick is in fact acting like an asshole. Sometimes he calls Amelie a pain in the ass, which she can be. And we all yell at Doug for being the slowest human being on the planet. BUT. But, but, but. Behind any name-calling, shouting, mental or physical abuse, there is a deep and unbreakable love. It’s always been there. Even in my loneliest of times, there has been a quiet assurance in the back of my mind that I am not actually alone. I know in the that before I’m out under a bridge somewhere, I have three doors to knock on first, and each I know would open.

Whether in the form of a helping hand, money, food, shelter, an ear, a reality check, a pat on the back, or a cheering-up, we’ve all lent to one another different things at different times. And it’s a real treasure that we’re able to do that. You’ll have to excuse my notalgic sulking, I’m a little down in the dumps now that the house is quiet and there isn’t a cacophony of sibling rivalry bouncing off our walls. I always get sad after we make the last trip to the airport to bid the last family member adieu. Today we said good-bye to Nick, and all is finally quiet here. I’ve always loved the chaos of having them home. Ever since I was in 7th grade and Doug was first to go off to college, I always became exceedingly anxious around late November, because it meant everyone was coming home again. We’d finally all be together. Now I’m 27, and still the anxious kid around November, and sulky in early January, after everybody leaves. Anyway, I need to stop boo-hooing. Just thought I’d let Doug, Nick, and Amelie know, I love you. A lot. Even though you’re all turd sandwiches. Can’t wait till next year.

Health, Happiness, And A Quiet House Again.

Guess What? It Get’s Better.

It was on this day one year ago that everything changed. And the change began with everything falling apart. One by one, the “solids” in my life unraveled like lazy yarn. It all started on New Years Eve, 2010.

My body was in what I like to call “Fail Mode” and I was at my parents house, feeling isolated and crappy. I was convincing myself that by that night I would feel well enough to leave, join the world in the celebration of a New Year and maybe even drink some champagne. Hah. Did. Not. Happen. By 5 pm I was sending out a very familiar text: “Sorry dude, I feel terrible. Won’t be able to make it…” If I had a nickel for every time I’ve said that phrase, well, you know.

Happy New Year! Oh wait. My life sucks.

That night I finally had a bit of a mental breakdown. My parents stayed up until midnight. At 12 they kissed and I looked down and saw Monty, so I kissed him. My new years kiss was with my dog. GREAT. I kept reminding myself that it was only a night, it wouldn’t last. By tomorrow, the party I was missing would be over, and so would all of this. For some reason, my mom couldn’t sleep that night and neither could I. I walked out into the living room around 2 am, saw her watching TV, and lost my shit. Through the tears I finally admitted to her how worried I was about my life. I hardly had a social life anymore. I was barely making it to work every day. Traveling was too hard on me so I had basically stopped. It felt like all I did was work and sleep. I had nothing left for anything else. Nothing left for the ‘good parts.’ Nights and weekends were often spent in bed, catching up. I felt out of control. The illness was in control, and that scared me. My mom counseled me through it the way she would continue to do for the next year. She reminded me I was young, that this moment wasn’t forever, and there was still a lot of possibility if I could only hang on. She was right. But hanging on is the hardest thing to do. At times this year it felt like I was sinking, and couldn’t see the bottom or the top.

I felt like the "Help! I've Fallen and I Can't Get Up" lady

New Years Day I was no better. Everything hurt. I was heavy, dizzy, and nauseous. I would be stationary but feel carsick. Walking became hard. Too hard. I continued to get worse until Monday when I woke up and felt too fatigued to walk to the bathroom. That’s when I called the parents, they came to pick me up, and the gradual “move back in with the parents” began. Each day it became painfully more clear that I wouldn’t be able to live by myself anymore. It didn’t bother me so much at that point. I was too sick for pride.

I remember when my sister came to help out at the end of January and I told her I wished there was a fast forward button. “I just want it to be over.” She sat with me, said she wished for one too, but told me the truth. “It’s gonna be hard Mare, but we’ll get through it.” And now I look at the date and see, I made it. The crappiest year of my life, is about to be over. Hells yeah! Sometimes I wish I could bundle 2011 up in a big bowl of lint and burn it to nothing. The truth of the matter is it’s all theoretical anyway. January 1st is just the day after December 31st. It doesn’t mean anything, really. But our perspective changes. We make new plans, pledges, and goals in hopes for not a new life, but a better life. Even though it is just another year, and there’s a possibility it could be even worse than 2011, I am a romantic for the capability of change. And a new year holds great possibilities. It’s like buying a fresh new notebook. You don’t know what will fill the pages, but the prospect on the blankness excites you.

The truth is it’s about to be 2012 and my struggle is going to continue. I’m not all better. I am still jobless, still living with my parents, and struggling to maintain relationships. The challenges I faced in 2011 are still going to be there. My hope is though, that I’ve learned and suffered enough to manage what’s in front of me. Like my mom says, “Just do today.” I hope that I continue to grow, that I cherish what I have and not long for what I don’t. I’m looking at 2012 as the year of possibility. My only job is to stay open to it. And I think I can handle that. I think!

One of the best moments in 2011 occurred in a bathroom stall on my birthday. My friend Kaitlin and I walked to an ice cream shop on Magazine street. In the bathroom stall there were all kinds of scribblings and drawings on the wall, but my eyes went straight to a phrase written in green. Someone wrote this: “It gets better. I promise.” I immediately sensed my dad. Of course my dad didn’t write it. It was probably some stoner kid feeling wildly optimistic. But I think it was from him that I saw it. I felt it. And I felt better. I walked out holding on to the energy of the phrase. Because that’s what I felt from it; energy. It’s like the energy in saying “I’m going to die one day” or “I love you” for the first time. It’s wild. But it’s real.

Anyway, I wanted to share the dark times of this year but also the moments of relief. Because it wasn’t only grand gestures, it was also the very small things this year that carried me. Things as small as writing on a bathroom wall. In the moments where I was hanging on by a thread, I would grab hold of anything to get me out. Sometimes the only thing to concentrate on was my breath. So I’d start there. The most important thing to remember is that every moment passes. Today will be tomorrow soon. Tomorrow will be next month, and alas, the year will end. This year began with everything falling apart. The new year begins with everything reassembling itself. That’s the thing about things falling apart; they always get put back together, stronger than they once were.

Health, Happiness, and It Does Gets Better. I promise.

Happy New Year!

How to be Sick.

Merry Sickmas!

I was going to write Mary Sickmas, but sometimes an abundance of puns can be off putting if you know what I’m saying. Anyway, Merry Christmas! I am a little late. It’s been a chaotic week, and as I sit here writing this the chaos ensues. My brothers and sister and their significant others are currently on a search for the best Sazerac in New Orleans. (The official Nola Drink) This means that when we all meet up for dinner later everyone should be good and loaded and the meal should go nicely. I wanted to go on the hunt with them but my legs were starting to give up after breakfast so I took the old lady bus home. OK it wasn’t a bus. It was just a car with my 82 year old grandma and my mom, who weren’t in the mood to walk down Bourbon Street in search of alcohol. Maybe by 2012 my mom and I will be well enough for those types of adventures. Maybe even Grandma, too.

This year we did something a little different. Since our humble home can’t house all the DAMN KIDS comfortably and their significant others and my grandma AND Monty, the siblings rented a house on St. Charles Avenue for us all to crash in. It’s a beautiful house, built in the 1800’s with all the modern renovations you find in those interior decorating magazines. It’s nice. The street car passes in front of the dining room window. And every time it does my brother Nick raises his arms in the air and yells “STREEET CARRR!!” Somehow he hasn’t grown tired of doing it yet.

It’s been a really great Christmas mainly because all four siblings are in Nola to celebrate it. But the icing on the cake is that my grandma was able to make the trip down South from Colorado. She’s kind of a hot commodity in the family being that she has six kids, 15 grandkids, and I don’t know how many great-grandkids. I lost count. Her name is Mary too, and she is someone I really look up to for a variety of reasons. Namely, her optimism–which is something increasingly hard to find and at the same time it’s totally contagious. You find yourself smiling more at simple things when you’re with her, or taking note of scenes that typically you’d never stop to consider. If I were going to give her an award, it would be “The Most Pleasant Person on the Planet Award” because that’s what she is. Undoubtedly. On the way to dinner on Christmas Eve I asked what she wanted for Christmas this year. She closed her eyes and thought a moment and then said “Ya know, I can’t think of a thing. I have a perfectly happy life!” And she wasn’t just being sentimental. She says outrageously kind and positive things like this all of the time. I don’t think it strikes her that that type of thinking is rare. She’s always been that way.

Grandma Bell. She's wearing a nightie made in the 50's. No joke.

I loved her response though. How many times I am asked what I would change about my life, what I want, what I don’t want, and ideas fly out of my mouth like a verbal bulleted list. As though I’d been rehearsing what other life I may want. When asked what people want, whether it be for Christmas or just in life, seldom do people say “I don’t want anything.” And if they do say it, it often means “I definitely want SOMETHING, but I’m going to say I want nothing. But if you get me nothing, there will be Hell to pay!” I’ve been thinking about what being content really means. For so long after getting sick and losing so many things, I’d play over and over what I had lost, what it had cost me, what I wasn’t doing, where I wasn’t going. Like a rolladex of veritable “If only’s” the cycle would start, and that type of thinking is bad news. It’s also really hard to stop. It sortof self-propels itself. More recently I’ve been realizing that the idea of happiness is so much more simple than I pretend. It doesn’t have to be some far off dream. There are plenty of sick people who are happy. Plenty of poor people, plenty of people working mediocre jobs, and plenty of people who have lost in some way who are happy. That says to me: happiness is already available. The question is, are you accessing it? I don’t think this is an easy process. And I think I had to experience the pain and grief of the things I have lost this year. But at some point, the focus has to change, my energy has to change, and inevitably, I will change. Only I can do this, nobody can do it for me.

Sometimes I think the way to handle a big tragedy is the way in which you handle a small tragedy. For instance, when my grandma spilled some of her drink on her shirt at dinner, she said “Oh Fiddle Faddle!” Then she wiped it up, asked for another drink, and continued the conversation. It’s funny that sometimes even small episodes like this can ruin a dinner or a night just as much as locking yourself outside or finding out you have cancer! Obviously the consequence of one is more detrimental than the consequence of the other, and yet the way humans react to things, it’s hard to know sometimes whether someone spilled their drink or someone has died.

Last night as I went to sleep my thoughts took a noticeable shift. For so long I go to sleep thinking how to get better how to get better how to get better because the thinking is that when I am better is when I will be happy. But last night these words occurred to me: How to be sick. If I learn to master being sick, I can find happiness now, I don’t have to wait for it. It doesn’t have to be conditional. Of course I will continue to try to get better, to keep up with everything the doctors say, and make healthy decisions. But I don’t need to rely so heavily on potential change in order for me to start rocking right now. I think my grandma has encouraged this type of thinking, so I am very grateful she was here to spread some of her magic on us and New Orleans this Christmas. That lesson made a great gift.

Health, Happiness, and Merry Sickmas!

**Excuse the Dr. Phil tone of this post. I’ve been watching a lot of Oprah.