Category: being sick

Community College Dropout

Published on by Mary Gelpi27 Comments

It’s a beautiful thing to wake up and believe that you’re exactly in the place that you need to be. Even if it’s not the place you plan on staying. For me, figuring out where to go or what to pursue next has always heavily involved where not to go and what not to do next. I’ve made some decisions in the recent two months that go in a very opposite direction from what I had planned. You know what they say: Man Plans, God Laughs. I suppose this is my official (and late) letter of resignation to Delgado Community College. Unless of course the writing doesn’t work out, in which case I’ll need Anatomy and Physiology II in the Fall and in the afternoon, please.

Bye Bye Delgado. It's Been Real.

I’m often surprised how hard it is for me to admit that I am sick. All my friends would tell you differently because they’ve all heard me say a million times “Sorry can’t make it. Feel like death again,” or something similar and I operate an entire blog centered around my stupid health! But it hasn’t always been this way. And in my instances of pain I have no hesitation in admitting that I feel awful and to just go ahead and count me out of whatever activity they’re planning. But for some reason, in a larger context, in the long term, I’ve never really considered myself sick or disabled or incapable. That’s why when my best friend Jess and I talked about nursing school this summer, I jumped on board immediately. I was feeling better, (as in, I could walk with ease now) and I wanted to be working towards something. This was in July so I had been away from my job since February and was really feeling the void of not doing anything. I was writing, true, but no one takes a jobless “writer” seriously. I didn’t even take myself seriously! Everyone is writing a book. Everyone has a brother in a band.

Anyway, I have always had a passion for nursing. My mom was a nurse, and since I was young I would dress up in her lab coat, wear the stethoscope around my neck, and walk around the house pretending to conduct my highly important work of tending to the sick. I’d also beg people to let me give them an exam, which usually ended up in me asking my Grandma questions like “And how often do you take fiber?” and listening to our dog Bacchus’s heartbeat. When it came to choosing a major in college, I chose Journalism for two reasons. 1. I’m an inherently curious person and 2. It came easy. My writing classes were easy A’s for me. Math and science meant a lot more work on my part. So I chose what came natural, and that was the right decision.

But now this nursing idea was popping up again, so I jumped on board. It was something I had interest in anyway, and I only needed a few pre-reqs in order to be admitted, so I went for it. I signed up for 3 classes, passed the entrance exam, and decided to start a silly blog to accompany me on my sickly journey to nursedom. Oh how the tides would turn. Funny that I didn’t really stop and consider that the whole reason I even had time to consider going back to school was because I was sick and physically unable to keep up with the pace of the rest of the world. Nope..never thought of that…

Even after the blog went viral and other opportunities began presenting themselves, I finally sat down one morning and really thought about nursing school. I started thinking about how I handled my three classes at Community College. Usually, I went, so that was a start and my grades were fine. But nursing school is very intensive. Sometimes the hours are very long and I don’t think it’s one of those jobs that would be very forgiving about me calling in once a week or letting me come in late when I had a migraine. I know a few people attending nursing school now, and when I would see them after a full day and how tired they were, I knew deep down I wouldn’t be able to do it physically. Didn’t I know that before? And yet something made me go after it in August. Unfortunately I think it was ego. Something in me wanted to prove I could do what other people could do. I could be normal. And if I couldn’t make it through, I’d just give up. And that’s not really a responsible or wise decision on my part, but since it only began with 3 classes, I think those near and dear to me wished me luck and quietly thought ‘What the hell is that girl doing? She can’t even prepare her own meals!’ It was also not a wise decision because it was this kind of thinking that kept me at a job so long that I was incapable of keeping up with. It was ruining any shot at me getting better, and this would have done the same.

Luckily, I didn’t get far enough into nursing school to have to quit or give up halfway through. Three days before my last final, the blog went viral and new, more feasible opportunities presented themselves under the same heading: Writing. Remember? The thing you’re decent at and enjoy doing that comes naturally and doesn’t require you to use your feeble little body? DUH. Like Nepo says “When we stop struggling, we float.” Once I stopped trying to prove what I could do, I stopped having to try so hard, and was left with the gift I had all along.

What I’ve been considering lately is that my motive for going into nursing in the first place was very basic: to help sick people. And somehow, now, I am inadvertently given that same opportunity, just through different means; my words. I’ve received quite a number of emails from people with many types of health issues who say this site helps them feel less alone and less crazy, and makes them laugh, too. It’s a beautiful gift to be able to reach people that way. The internet rocks. It’s like I’m an internet nurse!

So I’d like to say thank you to everyone who has written, commented, or laughed, and to everyone who has found comfort, hope, or joy here. One of the biggest realizations I’ve had in all of this is that it’s entirely possible to be sick and still laugh, love, dance, and have a happy life. So don’t ever start becoming comfortable with the perspective that you’re sick and being sick sucks and thus, you’re life is going to suck. Being sick does suck, but you’re life doesn’t have to. Mine isn’t completely where I’d like it to be, but  it’s getting there, and I believe more than ever in the prospect of true happiness. This realization is of course coming after a year of a lot of mental and physical pain and breakdowns and loss and lessons. But hopefully it can offer some comfort to anyone out there without them having to go through a year of pain and breakdowns and loss. Tolle says this: “I am not what has happened to me, I am what I choose to become.” I think I know what I’m meant to do now.

Health, Happiness, and Mom I’ll Pay You Back for That Semester at Community College Soon I Promise.

Benefits With Friends.

Published on by Mary Gelpi14 Comments

Let me begin by saying that the title of this post has very little to do with the content of this post, but the name came to me last night before sleep and I thought ‘What an awesome title!’ What I will really use the name for, one day, is a benefit I will have in honor of sick people and underfunded, under-researched diseases that hopefully I will be capable of donating millions of dollars to. Then we’ll take those fancy photos that show up in the “Out and About” part of the newspaper with sparkly dresses and older men with younger women and really, really, white teeth. Maybe next year.

I am sitting in the office at my moms. Correction, laying. Sitting up is difficult at this point because I am in the middle of a full blown crash. Not sure if I overdid it in New York or what happened exactly but my body is angry at me. It’s like, giving me the silent treatment by not giving me strength to walk or shower and making all my muscles hurt; under my fingertips too. It’s a particular but non-specific pain when my body gets like this. Just a general “bone-aching” but I always know when it’s happening because underneath my fingertips hurt. Very weird. Anyway, I am lucky, because I am home and under the care of Doctor Mom and not having to worry about calling into work, fashioning an excuse that will translate to a boss who never took a sick day.

This morning I sludged from my room to the office, my wrists quivering at the weight of my computer and my eyes not quite in focus yet. I took my first set of pills and waited for the pain to ease and my brain to start functioning. Take pills and wait. If there were an instructional guide on How to be Mary Gelpi, those two steps would be peppered throughout. My mom is sharing with me the symbolism of boats and chocolate and pies because I told her about my dream last night, which involved the family and me getting in a boat accident, where no one died and the whole thing was surprisingly peaceful- and the night before where I dreamed that Nick, my mom and I were at a lake house and my mom and I were gathering golden apples to make pie and Nick was fishing, as usual. It was a nice departure from my typical high-anxiety dreams where either I’m dying or watching someone else, like Monty, die. These last few were calm, so she is helping me process them. One of the perks of living at home: Coffee ready when I wake up, and a personalized dream-interpreter on staff. Score.

I’ve had a to-do list for days now that I can’t wait to get started on, yet I’m just unable to begin. Yesterday I spent the entire day in bed. Every few hours I’d wake up drenched in sweat, in pain, re-dose the meds, and go back to sleep. It’s a funny way to spend your day like that. Because by the time I “woke up” it was dark outside and Monty came in from a day spent frolicking in our yard and playing soccer by himself. Poor thing. I owe him a few games when I perk up. But I barely saw the sun, which is depressing. But that’s how crash days go, and I remind myself that it won’t last. In a few days, after successfully doing nothing, I’ll start to feel better. The nice part is,  the sun will be waiting for me when I’m ready. Monty and the sun– they hold nothing against me. For that I am lucky!

I think the biggest teacher of this illness has been learning how to exist in the “chaos.” I’m often eager to jump into things…even boring things, like laundry. But I’ve had to learn how to let my toenail polish stayed chipped until I have energy to fix it. Let my laundry pile up until I have energy to do it. Let my phone ring without me answering it until I have energy to talk. There is something uncomfortable about letting things “go” that you want to tackle head on. For instance right now, I’d love to unpack my suitcase and do laundry. I’d also love to call my sister and catch up, write a few thank you notes and send them, clean my car, and oh yeah, SHOWER, but all of that will have to wait. And truthfully, many of the things we think can’t wait, can. No-one ever died from going one more day without showering. Well not that I know of. It’s a lesson I continually learn and relearn, but it’s valuable to see that, while I’d love to dive into these things, I cannot. They will simply have to wait. And I need to learn how to maintain in the grey of things–life between the trapeze swings. Just as the sun will be waiting for me, so will everything on the to-do list. Anyway, the computer needs to re-charge and so do I. I’m tired and weak and am going back to the underworld. I’ll see you when I re-emerge.

Health, Happiness, and Undone To-Do Lists

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An Experiment.

Published on by Mary Gelpi44 Comments

*Contrary to feeling like death right now, I’m going to try an experiment. Here goes. 

I woke up this morning and I felt great!! I had so much energy, I didn’t know what to do with myself. So I began by taking a six-mile run and watching the sun come up. It was beautiful! The birds were chirping and the sun coming up over the horizon allowed me to see the true beauty of nature in the world. By the sixth mile, even Monty could barely keep up with me! He’s so lazy sometimes. I need to get him into shape. I felt like I could’ve run forever.

When I got home I cooked up a great breakfast. Cage free scrambled eggs with soy milk, a fresh fruit salad, and a protein shake. It’s my favorite breakfast. I read the paper and shook my head at the state of the world. We really need to get our shit together. By the end of breakfast it was already 7:30! The day was really flying by. Monty took a nap and I told him he better shape up or ship out! No more doggie treats for him. He’s gained weight!

Next I organized three closets in my house. Boy did they need it! I color coded and alphabetized all the things I was giving to good will, and even sorted the things within the boxes into subcategories (kitchen appliances, tools, decorative things, shitty Christmas presents still in their packages, etc.) By the end of all that closet organizing, I found myself sneezing a lot. Ugh, so annoying. Allergies are the worst! But, I didn’t take ANY pills! You know what I did? Vacuumed my entire house. Then I went to the Sharper Image and bought one of those air purifiers. Since it was only 9 am the mall was virtually empty, so I did a little shopping for myself. A girl CAN’T have too many shoes, right? Girls out there, you know what I’m sayin’!

When I came home I took a wet rag and wiped down all the surfaces in my house, including furniture surfaces, baseboards, fan-tops, and counter tops. Then I made some herbal tea my best friend Sally gave me a while ago, which is supposed to help prevent cancer and is known to be good for allergies. By now it was 10:30.

Next I went outside and tended to my garden. I’m growing a bunch of root vegetables as well as tomatoes, squash, lettuce, and South African JuJu beans. I did some weed-eating and general maintenance. I even hand painted a sign out of some old wood in our shed that said “Mary’s Garden.” It looks great. Sometimes I think I should have been a painter. Next I went inside, hand-washed all the vegetables that were ripe from the garden, and made an incredible home-grown salad. But you know what’s even better than home-grown salads? Home-grown salads with friends!

DON'T worry. It's organic.

So I called up my besties, Sally, Cindy, SueSue and Peggy. Well, I know that’s only four, but I didn’t have enough veggies for ALL of my friends (too many to count) so I only invited those four. I love my friends. I have so many of them. And they all love home-grown salads! We talked about Chloe Kardashians new hair color (ew) and the crappy state of the world and how somebody really needs to do something about that. Sally and Cindy then had to go to their Jazzercise class but SueSue and Peggy were free so we all went to my favorite salon, got mani-pedis, and drank bubble tea! I’ve been feeling edgy lately so I painted my toenails dark purple. I’m so crazy sometimes!!!

By the afternoon I rode my bike to the farmers market to pick up fresh gluten-free bread and some other things that I can’t grow on my own. (One day!) I also bought some beautiful tulips that were being sold there. I decided they were too beautiful for any old vase, so I biked to a glass-blowing studio down the street to create my very own one-of-a-kind vase for them. Sorry, but none of the other vases would do! They’re sitting on my table now, and may I just say..DAMN. Pardon my french. Next it was time to make an appearance at an engagement party for one of my other besties and I wore my new 4 inch heels with my new dress. I also had the perfect set of hand-made earrings (made by yours truly) which couldn’t have matched any better. Not to toot my own horn, but, BEEP BEEP I was looking good! We drank wine, ate wonderful food, and it felt really good to stand around and talk to people about what they’re doing with their lives, tell them about mine, and then make tentative plans to get coffee and stay in better touch. It’s gonna be a busy social season guys, get ready!

Finally by 10:30 I was ready to leave.  Call me a dork, but I love to get in my jammies and watch reruns of the West Wing before bed! (Rob Lowe, so hot. Don’t get me started.) Anyway I finally made it home, saw the tulips on the table, and remembered how precious life is. I have a great life. But boy am I sleepy! Tomorrow I have Hot Yoga at 4 am, so I better get some rest. Can’t wait to see what tomorrow has in store!!

HEALTH, ENERGY, AND BUBBLE TEA!

Mare

**Just to reiterate, this was all made up. I’ve been crashed the last few days.  This was just an imaginative experiment in pretending. If I tried to go on an actual six-mile run I would vomit then die.

A Snails Pace

Published on by Mary Gelpi20 Comments

I’ve been as productive as a sloth the last few days. Not sure why, but my pain has been worse than normal and energy has been low. Way low. Like non-existent low. Thus I’ve turned into a slow-moving snail, crawling from room to room wrapped in a blanket and moaning a lot. I’m sure I’m a real treat to be around. It may be recovery from the Holidays or the weather or the moon or it may just be that, hey, this illness doesn’t need a reason for you to feel bad. Even when you’re doing everything right, you’ll have poopy fart days. Luckily, I am jobless, so I let those days come and pass and rest until recovered. I still wonder what it would be like if I had my old job, and had to work an 8 hour day through feeling this way. I remember those days all too well. Then I get really nauseous at the thought and watch another episode of Frasier.

(For those of you out there still working with this illness, hang tough. I know what those days feel like. We’ll get there)

On days like yesterday, I have no desire to see or talk to anyone. My phone rings and I just can’t bring myself to answer. The feeling is rough because I am a social animal after all and love my friends and family a lot. But there are some things you just can’t fake. And when I’m feeling that way, there’s no faking enthusiasm. I’ve tried it and failed enough times that now I just don’t answer. The person on the other end would have a better conversation with Monty than me. Maybe I’ll pass the phone to him next time. I realize that this makes me, at times, a shitty friend, sister, grand-daughter, aunt. But I know how the conversation would go.

Hello? Hey Mary!! Hey. How are you!? Awesome. You don’t sound awesome. You got me. What’s wrong? Feel like death.What’s bothering you? Just really tired? Yeah, just really tired. Did you try those South African JuJu Beans I sent you? They’re supposed to be good for energy! No, too tired to stir the mixture. Bye.

South African JuJu Beans. P.S. I made this up.

See? Worthless conversation. And explaining my symptoms to people over the phone doesn’t help either, not to mention it makes me the Debbie Downer of the Century. I’d rather just hibernate until I don’t feel so lifeless. Whoever’s still around when I emerge from the cave are the people I call friends. Anyway yesterday was the National Championship and I was supposed to go to a party to watch it but since I was half dead I didn’t show up. Coincidentally the Tigers didn’t show up either. (BURN!) I watched it in PJ’s on the couch with Monty while icing my legs because they’ve been cramped for days. Then I scoured Facebook and laughed at the angriest statuses I’ve ever seen. “Completely Embarrassed.” “Time to FIRE LES MILES!” “Worst LSU game EVER!!!” “If we run the option again I’m going to MURDER MYSELF!!!” I don’t know why angry statuses humor me. They just do. Don’t hurt me.

Anyway, I’ve been receiving a lot of emails lately from people who are seeking help in getting diagnosed or who think they may be mis-diagnosed. I wish I were more an expert on CFIDS so I could offer real help but in the end I’m just a sick kid with two anatomy classes under my belt. (My mom on the other hand has a medical background and has suffered with the illness for over 20 years. I’ll get to that later) The most important thing I can tell you is there seems to be a key difference between Chronic Fatigue Syndrome and Fibromyalgia regarding exercise. It’s complicated since there is not one diagnostic test for either, but a main difference is that exercise seems to be helpful/relieve pain for many people with fibromyalgia. On the other hand, exercise can be extremely detrimental to those with CFS. An easy way to tell is just to pay attention to how you feel the day after you exercise. Having sore muscles is a normal reaction. If you are completely crashed, as in, feel like you’ve been hit by a truck and have trouble getting out of bed, you most likely have CFS, or the component which causes “Post-Exertional Malaise.” Trying to push through this ‘crash’ will only set you back and make you worse. It basically comes down to this. Do you feel like this the day after exercise?

Then Stop.

Or do you feel like this after you exercise?

Then continue!

There is so much misinformation out there that I truly am surprised I was effectively diagnosed and treated. But this took years and didn’t happen until my mom found a specialist: Dr. Nancy Klimas. There’s also a lot of people trying to sell things that won’t help you. So be wise. Currently, there is no cure for CFIDS/Fibro. So be wary if someone offers you the cure-all. I’m going to attach some helpful links for those interested in reading further on the illnesses for now. BUT, I am ALSO going to collaborate with my mom on one of my next posts and try to clear the air about some things regarding ME/CFIDS/ and Fibro. I am also going to try to get my doctor in on the conversation because I know she holds a lot of vital information that is scarce and hard to find but would help a lot of people out. So stay tuned.

I’ve also received some emails that read “Hey, I’m tired all the time. Do you think I have CFS? How do I get diagnosed?” This question is kind of like the equivalent of asking “Hey, I gained some weight in my midsection. Do you think I’m pregnant?” For one thing, calling it ‘tired’ is like calling the atomic bomb a fire cracker. It’s hard to give it a word or name people can understand, but tired definitely falls short. Think more along the lines of bones-crushing fatigue. Anyway, while feeling like you could sleep for days and being extremely exhausted are key symptoms, they are far from the only symptoms. CFIDS is an autoimmune disorder, meaning every autonomic process in your body is basically haywire. Thus, you feel like death. And chances are you look like it too! Anyway, the links are below. But I promise to devote space in the future dedicated to debunking some myths and trying to spread accurate awareness about these illnesses. In the meantime, guess what? I’m tired.

Health, Happiness, and Hang In There.

http://phoenixrising.me/

http://www.cfids.org/about-cfids/do-i-have-cfids.asp

http://www.pandoranet.info/

AboutMECFS.org

Guess What? It Get’s Better.

Published on by Mary Gelpi38 Comments

It was on this day one year ago that everything changed. And the change began with everything falling apart. One by one, the “solids” in my life unraveled like lazy yarn. It all started on New Years Eve, 2010.

My body was in what I like to call “Fail Mode” and I was at my parents house, feeling isolated and crappy. I was convincing myself that by that night I would feel well enough to leave, join the world in the celebration of a New Year and maybe even drink some champagne. Hah. Did. Not. Happen. By 5 pm I was sending out a very familiar text: “Sorry dude, I feel terrible. Won’t be able to make it…” If I had a nickel for every time I’ve said that phrase, well, you know.

Happy New Year! Oh wait. My life sucks.

That night I finally had a bit of a mental breakdown. My parents stayed up until midnight. At 12 they kissed and I looked down and saw Monty, so I kissed him. My new years kiss was with my dog. GREAT. I kept reminding myself that it was only a night, it wouldn’t last. By tomorrow, the party I was missing would be over, and so would all of this. For some reason, my mom couldn’t sleep that night and neither could I. I walked out into the living room around 2 am, saw her watching TV, and lost my shit. Through the tears I finally admitted to her how worried I was about my life. I hardly had a social life anymore. I was barely making it to work every day. Traveling was too hard on me so I had basically stopped. It felt like all I did was work and sleep. I had nothing left for anything else. Nothing left for the ‘good parts.’ Nights and weekends were often spent in bed, catching up. I felt out of control. The illness was in control, and that scared me. My mom counseled me through it the way she would continue to do for the next year. She reminded me I was young, that this moment wasn’t forever, and there was still a lot of possibility if I could only hang on. She was right. But hanging on is the hardest thing to do. At times this year it felt like I was sinking, and couldn’t see the bottom or the top.

I felt like the "Help! I've Fallen and I Can't Get Up" lady

New Years Day I was no better. Everything hurt. I was heavy, dizzy, and nauseous. I would be stationary but feel carsick. Walking became hard. Too hard. I continued to get worse until Monday when I woke up and felt too fatigued to walk to the bathroom. That’s when I called the parents, they came to pick me up, and the gradual “move back in with the parents” began. Each day it became painfully more clear that I wouldn’t be able to live by myself anymore. It didn’t bother me so much at that point. I was too sick for pride.

I remember when my sister came to help out at the end of January and I told her I wished there was a fast forward button. “I just want it to be over.” She sat with me, said she wished for one too, but told me the truth. “It’s gonna be hard Mare, but we’ll get through it.” And now I look at the date and see, I made it. The crappiest year of my life, is about to be over. Hells yeah! Sometimes I wish I could bundle 2011 up in a big bowl of lint and burn it to nothing. The truth of the matter is it’s all theoretical anyway. January 1st is just the day after December 31st. It doesn’t mean anything, really. But our perspective changes. We make new plans, pledges, and goals in hopes for not a new life, but a better life. Even though it is just another year, and there’s a possibility it could be even worse than 2011, I am a romantic for the capability of change. And a new year holds great possibilities. It’s like buying a fresh new notebook. You don’t know what will fill the pages, but the prospect on the blankness excites you.

The truth is it’s about to be 2012 and my struggle is going to continue. I’m not all better. I am still jobless, still living with my parents, and struggling to maintain relationships. The challenges I faced in 2011 are still going to be there. My hope is though, that I’ve learned and suffered enough to manage what’s in front of me. Like my mom says, “Just do today.” I hope that I continue to grow, that I cherish what I have and not long for what I don’t. I’m looking at 2012 as the year of possibility. My only job is to stay open to it. And I think I can handle that. I think!

One of the best moments in 2011 occurred in a bathroom stall on my birthday. My friend Kaitlin and I walked to an ice cream shop on Magazine street. In the bathroom stall there were all kinds of scribblings and drawings on the wall, but my eyes went straight to a phrase written in green. Someone wrote this: “It gets better. I promise.” I immediately sensed my dad. Of course my dad didn’t write it. It was probably some stoner kid feeling wildly optimistic. But I think it was from him that I saw it. I felt it. And I felt better. I walked out holding on to the energy of the phrase. Because that’s what I felt from it; energy. It’s like the energy in saying “I’m going to die one day” or “I love you” for the first time. It’s wild. But it’s real.

Anyway, I wanted to share the dark times of this year but also the moments of relief. Because it wasn’t only grand gestures, it was also the very small things this year that carried me. Things as small as writing on a bathroom wall. In the moments where I was hanging on by a thread, I would grab hold of anything to get me out. Sometimes the only thing to concentrate on was my breath. So I’d start there. The most important thing to remember is that every moment passes. Today will be tomorrow soon. Tomorrow will be next month, and alas, the year will end. This year began with everything falling apart. The new year begins with everything reassembling itself. That’s the thing about things falling apart; they always get put back together, stronger than they once were.

Health, Happiness, and It Does Gets Better. I promise.

Happy New Year!

How to be Sick.

Published on by Mary Gelpi25 Comments

Merry Sickmas!

I was going to write Mary Sickmas, but sometimes an abundance of puns can be off putting if you know what I’m saying. Anyway, Merry Christmas! I am a little late. It’s been a chaotic week, and as I sit here writing this the chaos ensues. My brothers and sister and their significant others are currently on a search for the best Sazerac in New Orleans. (The official Nola Drink) This means that when we all meet up for dinner later everyone should be good and loaded and the meal should go nicely. I wanted to go on the hunt with them but my legs were starting to give up after breakfast so I took the old lady bus home. OK it wasn’t a bus. It was just a car with my 82 year old grandma and my mom, who weren’t in the mood to walk down Bourbon Street in search of alcohol. Maybe by 2012 my mom and I will be well enough for those types of adventures. Maybe even Grandma, too.

This year we did something a little different. Since our humble home can’t house all the DAMN KIDS comfortably and their significant others and my grandma AND Monty, the siblings rented a house on St. Charles Avenue for us all to crash in. It’s a beautiful house, built in the 1800’s with all the modern renovations you find in those interior decorating magazines. It’s nice. The street car passes in front of the dining room window. And every time it does my brother Nick raises his arms in the air and yells “STREEET CARRR!!” Somehow he hasn’t grown tired of doing it yet.

It’s been a really great Christmas mainly because all four siblings are in Nola to celebrate it. But the icing on the cake is that my grandma was able to make the trip down South from Colorado. She’s kind of a hot commodity in the family being that she has six kids, 15 grandkids, and I don’t know how many great-grandkids. I lost count. Her name is Mary too, and she is someone I really look up to for a variety of reasons. Namely, her optimism–which is something increasingly hard to find and at the same time it’s totally contagious. You find yourself smiling more at simple things when you’re with her, or taking note of scenes that typically you’d never stop to consider. If I were going to give her an award, it would be “The Most Pleasant Person on the Planet Award” because that’s what she is. Undoubtedly. On the way to dinner on Christmas Eve I asked what she wanted for Christmas this year. She closed her eyes and thought a moment and then said “Ya know, I can’t think of a thing. I have a perfectly happy life!” And she wasn’t just being sentimental. She says outrageously kind and positive things like this all of the time. I don’t think it strikes her that that type of thinking is rare. She’s always been that way.

Grandma Bell. She's wearing a nightie made in the 50's. No joke.

I loved her response though. How many times I am asked what I would change about my life, what I want, what I don’t want, and ideas fly out of my mouth like a verbal bulleted list. As though I’d been rehearsing what other life I may want. When asked what people want, whether it be for Christmas or just in life, seldom do people say “I don’t want anything.” And if they do say it, it often means “I definitely want SOMETHING, but I’m going to say I want nothing. But if you get me nothing, there will be Hell to pay!” I’ve been thinking about what being content really means. For so long after getting sick and losing so many things, I’d play over and over what I had lost, what it had cost me, what I wasn’t doing, where I wasn’t going. Like a rolladex of veritable “If only’s” the cycle would start, and that type of thinking is bad news. It’s also really hard to stop. It sortof self-propels itself. More recently I’ve been realizing that the idea of happiness is so much more simple than I pretend. It doesn’t have to be some far off dream. There are plenty of sick people who are happy. Plenty of poor people, plenty of people working mediocre jobs, and plenty of people who have lost in some way who are happy. That says to me: happiness is already available. The question is, are you accessing it? I don’t think this is an easy process. And I think I had to experience the pain and grief of the things I have lost this year. But at some point, the focus has to change, my energy has to change, and inevitably, I will change. Only I can do this, nobody can do it for me.

Sometimes I think the way to handle a big tragedy is the way in which you handle a small tragedy. For instance, when my grandma spilled some of her drink on her shirt at dinner, she said “Oh Fiddle Faddle!” Then she wiped it up, asked for another drink, and continued the conversation. It’s funny that sometimes even small episodes like this can ruin a dinner or a night just as much as locking yourself outside or finding out you have cancer! Obviously the consequence of one is more detrimental than the consequence of the other, and yet the way humans react to things, it’s hard to know sometimes whether someone spilled their drink or someone has died.

Last night as I went to sleep my thoughts took a noticeable shift. For so long I go to sleep thinking how to get better how to get better how to get better because the thinking is that when I am better is when I will be happy. But last night these words occurred to me: How to be sick. If I learn to master being sick, I can find happiness now, I don’t have to wait for it. It doesn’t have to be conditional. Of course I will continue to try to get better, to keep up with everything the doctors say, and make healthy decisions. But I don’t need to rely so heavily on potential change in order for me to start rocking right now. I think my grandma has encouraged this type of thinking, so I am very grateful she was here to spread some of her magic on us and New Orleans this Christmas. That lesson made a great gift.

Health, Happiness, and Merry Sickmas!

**Excuse the Dr. Phil tone of this post. I’ve been watching a lot of Oprah.