How To Make It Matter

Today I was thinking about these petty things I struggle with. They’re a joke.

I’m in the midst of another virtual game of jenga with my trashcan. I stuff it as much as it can hold and then some, and then some. I have to stomp it down with my foot sometimes. I stack cups and cardboard things on top over and over until small towers emerge and a fragile city of trash balances on top. I avoid the alternative, which is to just take out the stupid trash, stupid. It’s a small walk–probably 45 seconds all in all. It’s funny how devastatingly huge the task becomes in my mind. I spend more time arranging the trash inside than just taking it out. 

Netflix has become a problem and the reason is very simple: I would always rather pay a dollar than have to go somewhere. Thus, I end up buying virtually every movie that was only supposed to be a buck. Also, I’ve made a few questionable decisions in my movie selections. This is because when someone gets in line behind me I kind of unravel. I begin to sweat and all the movie titles start to blur together. I panic and get Coneheads and naturally never return it. Now I own Coneheads.

 

I won’t get into correspondence and sending letters in the mail, but I definitely have a couple of letters in stamped envelopes over a year old that have never made it to the mailbox. Disgraceful. Anyway, I was considering these petty struggles which are just a few among many. Life is full of small and mediocre “things to do” that I often dread or put off until I can’t anymore. I realize that the only reasons these tasks are anything more than tasks is that my mind has labeled them bad, annoying, a pain in the ass. When really they are just a few things in a string of a million things we will all do and then cross off our list. They’re all the same, it’s only our attitude that redefines them. A Zen Master described the essence of Zen as Doing one thing at a time. Tolle explains this as “Being total in what you do, to give it your complete attention. This is surrendered action- empowered action.” So I’m working on what I let take up space in my mind, on being conscious before I complain about something that is necessary and also just not that bad–Especially when I pay attention to the world beyond me, where actual struggles exist.

Like many people, I’ve been watching the events unfold in countries that feel very far off to me. I realize my life is somewhat sheltered here, and when I confront the news I feel a distant hopelessness. I remember hearing about the 300 kidnapped Nigerian school girls taken in the night. I felt angry and sad and followed the story for a while. But exposure to the story faded, and it seems my regard for it did too. A few months later, 219 of the girls are still missing, with low probability for their return. I haven’t thought about them in a while. Now there are other tragedies unfolding. I see the destabilizing of Ukraine at the hand of Pootie Poots (what my brother calls Putin) and the rising emergence and activity of terrorist groups over there. I feel awful watching it. But also I feel removed from it. I watch the news then eat spaghetti. Something feels off about that. In a few months I’ll see new tragedies, and maybe Ukraine like the Nigerian girls will fade. Or the world will end. Either way, I wonder what someone like me and my small life can do for the darkness unfolding. How can I bring any sort of light there? Especially when I’m trying to carve out time to return a Netflix movie here? That is a joke.

I’m reminded of a continual theme in Tolle’s teachings, which is that separateness is an illusion. We are all made up of the same billion-year-old stardust. We operate under the “Same in-dwelling consciousness.” So while our bodies and geography separate us, our lives unfold to one pulse. I imagine this is why we feel concern when we see a stranger cry, or why we’re happy for the good fortune of another. Somewhere in the depth of our unconsciousness, we’re feeling it too. Otherwise, why would we care? Technically it’s just strangers, and their pain or death won’t interfere with our afternoon in any way. But these teachings that connect the human spirit have always resonated with me. Many of the “dark” things I’ve witnessed in my own life seem to stem from people not recognizing themselves in another. I’ve done this plenty. When witnessing the sufferings and tragedies over there, first I must remind myself that their sufferings are mine too. Whether their effects are immediate or obvious doesn’t change their imprint on us.

That being said, I am not a soldier. I can’t help fight the good fight. Today I’m too weak to take a shower for instance, so the military is out. I’m not a war correspondent or a politician who can influence change. I am who I am, having a small sickly experience here in Louisiana with my dog. But I refuse to think I’m useless in all this–mostly because that take on life truly lacks creativity. My life is different from those I witness, here and there. But I think the way to have any positive influence on the world is through growing my own consciousness. It sounds selfish but at the root it is not. It means being honest with myself and making good of the strengths I do have; they exist for a reason. It means loving more, showing more compassion, opening up more, writing more, seeking truth more. Tolle’s teaching along with Joseph Campbell’s and a slew of others is that if my life can become more conscious, it adds to the collective consciousness of the world. That is how we can make our experience matter. Because I have to remember that my experience is theirs too, just the same. So if I seek and obtain light in my life, it can spread far beyond me. I continue to think and pray about the darkness in the world and how I can help it. Most answers say to begin with inner-me. So that is the start. And it’s aligned with something I’ve felt for a while– that there is no life too small to matter.

The same stream of life
that runs through the world
runs through my veins

-Tagore

Health, Happiness, Coneheads

10 Campaign Slogans Up For Grabs in 2014

1. Rape is bad and I am against it and that is my opinion on rape.

2. I’ve never sent a dick pic in my life. Ever!

nodickpics!

3. Let’s Go Green in 2014!

You
You May Lighten Your Stance On Pot Once I Tax the Shit Out of It and Save Our Economy in About 3 Days Time.

4. Remember Books? I’M BRINGING BOOKS BACK!

5. I Love Black People!

6. Let ALL the Gays Marry Already!

Because Every American Should Have the Right to Be Miserable!
Because Every American Deserves the Right to Be Miserable If They So Choose.

7. When I Smoked In College, I Inhaled. AND I LIKED IT.

8. OUT With ObamaCare and IN With *AWESOMECARE!

9. A Gun In Every Closet!

Kill Baby Kill!
Kill Baby Kill!

10. I Believe In An America WITHOUT Yellow Starbursts. WE DESERVE BETTER!

Any interested politicians, shoot me an email. There’s no way these could fail! 

Love and Politics,

Mary

**Truthfully they’re the same thing, but it sounds a lot better doesn’t it?

The Great Indoors

I’ve spent most of this last week in bed, or in and out of sleep on respective furniture that I turn into a bed. But mostly in bed. During crash periods I have a lot of time to sit around and think and do nothing. And while “doing nothing” sounds a little worthless and at least a little depressing, I’ve gotten pretty good at feeling bad. That is, I’ve found ways not to succumb to complete boredom while spending my days and nights in the supine position. But I have to be decisive and proactive when it comes to mental stimulation. It’s easy to do nothing and think nothing and waste away hours watching cats on the internet. I’ve done a lot of that too.

fartheraway
.

Currently I’m reading “Further Away”– a book of essays by author Jonathan Franzen. It was given to me by my brother Nick, who wrote on the note inside to add it to our virtual book club. Nick and I don’t live in the same city and considering how poorly I keep in social contact even with people I care most about, we don’t talk so often. But we have similar taste in things and it’s true that I trust any literature from him will be enjoyable. Like the others this one doesn’t disappoint. I gave him the book “Why Does the Universe Exist?” and said it might be a good starter for the club. Nick is a full-time professor of architecture with multiple side projects and is a husband and father. I’ll be impressed if he has the time to finish it. I have nothing but time but in retrospect, I can think of at least three books in the last year I’ve simply left unfinished with less than 100 pages left. For whatever reason– It might be a commitment problem on my end. Because oddly enough I enjoyed the books I left undone. (Except 50 Shades of Grey. I just couldn’t do that one, even from a humorous standpoint. It was just so bad.) At any rate, I like that we’re trying. I know I need to read more and it is truly one thing, a gift even, that I can do whether or not I’m sick. I could read for hours and feel somehow refreshed at the end. TV and the internet are bottomless. I could be dead tired but watch more, click more, disengage more. It’s far too easy to fall in and at the end I never feel great. I’m like where am I? What time is it? How long have I been watching Tosh.0? I don’t know how many times I’ve watched the Kardashians and rolled my eyes thinking to myself that it’s the stupidest show on TV. And yet when it shows up on the guide, I almost unconsciously go straight to the channel. It’s like mindless auto-pilot in the way of my brain. I think it’s their hair that keeps me coming back. It’s just so pretty.

Speaking of the Kardashians, did you see the photo of baby North West? I think she’s cute. Wait, why do I know what their baby looks like? Because if you watched TV or were on the internet yesterday, it was everywhere. As well as mass hysteria about Ben Affleck becoming Batman. Maybe that says something about the places where I get information. But it also says something about the things that gain momentum and attention and a dialogue. Meanwhile, my state is sinking. I don’t totally understand the nature of a sinkhole. Except that I’m pretty sure it’s unnatural.  And it’s a problem when entire trees are being swallowed whole. Something about salt domes? But why take the more effort-requiring time to find out when I could just look at a tumblr that makes fun of what Kanye’s baby looks like? It’s so easy to just lay back and look at what’s easy to look at and make fun of what’s easy to make fun of. But it’s not very wise for someone like me to do too much of that. I constantly have to remind myself to be careful with how I spend my time. I truly have a lot of it.

Anyway, maybe by the next post I’ll be much more knowledgeable about sinkholes. Or I’ll have a lot more photos of baby Nori. Anyway, I’ll continue my quest to be at least a half-way informed citizen and spend my horizontal time wisely. I love being outside but on weeks like this one, I’ve mostly been inside which can be wearing too. But don’t get me wrong, I’ll still watch internet cat videos because come on, that stuff is funny. And laughter is important. And if we spent all our days indulging in bad news we could succumb to despondency and boredom just as much as if we watched TV and internet videos nonstop. It’s all a balance and I’m always in search of the middle. So far, 29 has been just fine.

Health, Happiness, and Wouldn’t You Think Sinkhole Would Be Two Words? Me too.

You’ll Forget. And So Will They.

There is one component of this illness and autoimmune diseases in general which exacerbates the whole experience. The invisibility factor. You can’t see it. Many times when it shows its ugly head, no one is around to bear witness. People see us when we’re out and about and well, or faking it. I’ve lost count of the number of times I hear “But you don’t look sick!” People have a notion of what sick looks like, and this doesn’t fit the bill. One day you’re normal and the next day your plagued with something worse than a flu, or a hangover, but you didn’t do any drinking. It’s just such an enigma on so many levels, besides keeping up appearances, that it’s no surprise people just plain forget you’re sick. And it’s understandable. Because honestly, you forget too.

To this day I find myself committing to things as though I am normal, as though I have boundless energy, as though I don’t spend days in bed sometimes for no real reason at all. My circumstances aren’t normal. And some days I have to remind myself by the hour of my limits. Many times I fail to recognize them and I pay the price. So it’s no surprise that the people we love, the people we’re closest to-friends, lovers, family- they’ll forget too. And it’s easy to see why, but it will make you defensive. You’ll tell yourself they just don’t get it and they’ll never understand! And you’re right, they don’t. It’s impossible to know unless you’ve got it yourself. But don’t let that separate and isolate you more. You’ve got enough boundaries. When someone doesn’t believe you, when someone criticizes you, judges you, or doesn’t give the sympathy you’re looking for, let it go. Meet their disbelief with love and understanding. Because the truth is, if you weren’t sick with this, would you understand it? I know it’d be hard for me. I was young when I became ill but I remember distinctly things coming easy to me. Being a good gymnast. Getting good grades. Good family and friends. A 9-year-old with everything! I had no real reason for pause. I often consider what my life would be like had I not gotten sick and in general it’s with the notion that I’d be a better person living a better life. I really wonder about that now. Being sick and at the mercy of others help and kindness, I’ve learned remarkable lessons in humility and compassion, and those are just scratching the surface. I can’t say who I’d be without illness. But like my mom said once “Who knows? Maybe we if we hadn’t gotten sick we’d just be two capable assholes.”

The point is, when I still my mind and consider all the parts of this, I can understand the doubt, the skepticism, the misunderstanding from others. This is not a well understood disease, even for us sick ones. (But I know that one day it will be. I know that.) I remember once last year, I woke up with a pounding migraine. I was in one of my awful cycles. The first dose of medicine didn’t work so I took two, among my other cocktail of meds. I got out of bed around 1:30, hazy, tired, and the hint of my migraine still masquerading around my head. My boyfriend at the time saw me and said “You’re up! Hey, do you want to go shoot guns today?” At that moment I thought of 647 other things I would rather do than shoot a gun. The mere thought of shooting a gun made my headache perk up like what? huh? guns? Here I come!!! Even the suggestion of that activity made me mad. I felt really misunderstood and alone and thinking what I so often think: if they could only feel what I am feeling, they would understand. And it’s true. I think if most people felt the symptoms of CFS even for ten minutes, they’d have such a better grasp of what we are dealing with on a day-to-day basis. But that’s not possible. So it is up to us to communicate with love to those who don’t know. What we’re dealing with is basically invisible, and getting defensive and trying to prove it will exhaust us even more.

Besides my mom, who is also sick with this, I think about the one person who has been by my side throughout all of this, and has required the least amount of explaining. The answer is Monty. I realize that sounds juvenile. Oh Mary, you crazy dog lady..maybe you should talk to some PEOPLE. And truthfully I probably should. But I think about the number of beds Monty has slept at the foot of. Patiently he waits until I get up. Some days it’s only a minute..we don’t play and he doesn’t seem to mind. He follows me into the bathroom, he follows me out. When I go back to bed, he does to. And this is a very energetic and active dog. He could go all day, literally. But it truly feels like he picks up on sick days. When I wake up in the morning, he always takes some deep breaths really close to my face. It’s like he can tell by smell whether I’m going to get up or not. Sometimes he sniffs and hops out of bed ready to go. Other times he sniffs and goes back to bed. It really is like he knows.

The thing is, Monty doesn’t understand all the weird components to the illness. He doesn’t know what chronic fatigue syndrome is. He doesn’t understand why some days we play and other days we don’t leave the bed. Sometimes for a few days at a time. But he doesn’t even require an explanation or a defense, because what he is exemplifying so beautifully is living in the present. When it’s time to play, we play hard. When it’s time to sleep, we sleep like it’s nobody’s business. Whatever he does, he does fully. He shows up wholly to every moment. And it’s a truly impressive thing to witness. One of my favorite things is to watch Monty when he gets up in the morning. I open the door for him and he walks outside, stops, and sniffs the air for about 15 seconds. It’s like he’s taking in everything from the night and everything that the day will bring. I like watching it because it’s reflective, and we live such busy, fast lives, we constantly neglect reflection. I think it’s fair to say that it’s required for a happy life. We have to stop sometimes. We have to take things in. We have to feel our feelings. (Smell the roses, if you will.)And we don’t need to say it all on Facebook. Some things we should hold inside near our heart. Or whisper it to someone we love.

I am reading a book called Everyday Grace by Marianne Williamson which is incredibly poignant and really well-written. I find myself underlining entire pages. It’s always been a goal of mine to have a book club but of course I’ve never gotten it together and am bad at keeping commitments. So for now the blog will be it. And I invite all of you to read and share your thoughts on these books. I have about twenty more pages and will have a review/summary/dialogue next time. But if you’re looking for a book as a companion..this is a good one. It’s been seeing me through sleepless nights and reading it when I wake up in the morning gives me a happy way to begin the day. One of my favorite lines near the beginning is “We don’t need to push life so much as we need to experience it more elegantly, to be motivated more by inspiration than by ambition.” I like that idea. When I’m not in bed I let my instincts and inspiration guide me…even it’s just sitting on the porch swing and looking at the flowers, which I do a lot. Monty makes me throw a ball and swims laps in the pool. See?

Please just throw the ball.
Please just throw the ball.

 

Anyway, I am working on living a reflective life. I try to take in every moment truly, and feel it genuinely. Even if the moment is sad or fearful. I know that not feeling things through leads to trouble later on. I’ve been there before. For now, I feel happy. The sun is out and the porch swing is calling.

Health, Happiness, Smelling the Roses

Art!!!!!!!

Since my genuine exposure to the “old times” has been either black and white photos or black and white film, these color photographs that have emerged of life in the 30’s and 40’s have found their way into every corner of the intweb and are a real gem. Every time I look at them I feel like I am glimpsing a reality that I’ve never truly felt connected with. The olden days have been described to me by my grandparents and in magazine articles and I’ve laughed at the way actors speak in old movies and their gay, wordy advertisements– but for some reason it’s just always seemed like a story. It never quite felt personal. I know it was real, because my grandpa used to tell me war stories and I’ve sat through history class since 3rd grade, never truly appreciating that there really was life before me. So it’s funny to me that something as simple as color could bring something so distant to life for me, but these really do that. It’s like looking at thousands of paintings of Jesus and then being handed a headshot.

A Man Named Jack and His Family, October 1940
A Man Named Jack and His Family, October 1940

Basically, the disconnect between then and now was broken, and I dove right in. The prints were taken on Kodachrome by the Farm Security Administration and Office of War Information throughout the 30’s and 40’s respectively. They were then released by the Library of Congress in 2006 for an exhibition called Bound For Glory; America in Color. I don’t know why the element of color has upped the real factor to such a high degree, but I never get tired of looking at them. I have to remind myself constantly that they aren’t actors and  they aren’t in costume.

Homesteaders Faro and Doris, Pie Town New Mexico, 1940
Homesteaders “Faro and Doris” Pie Town, New Mexico 1940
Woman Aircraft Worker- Burbank,  California 1942
Woman Aircraft Worker- Burbank, California 1942
Bayou Borbeau Plantation- Natchitoches, Louisiana 1940
Bayou Borbeau Plantation- Natchitoches, Louisiana 1940

For as long ago as the “old days” have always felt to me, something about these color prints remind me it really wasn’t that long ago. Can you imagine showing the people in these photos an iphone? Or trying to explain the premise of Facebook? (Kind of makes me feel disdain for the times we’re living in) So much has changed and yet inside, I don’t feel we’re as far apart as we think. Then again when I looked at Facebook a few minutes ago, I may have changed my mind.

I think a lot about the “records” we’re leaving behind for the generations who will come after us. Looking for clues as to what life was like in our day, for the strands of humanity that tie us all together no matter how many years have passed. Will there be Facebook 100 years? How will our grandchildren study us? It hit me a few days ago that this blog is somewhat of a record itself- a sick girls life and her dog and yada yada. It then occurred to me that if I die tomorrow..the blog would live on. It has its own shelf life now. Unless I leave someone in charge to disassemble it once I’ve gone on. But I think I’m fine with it living without me. It’s turned into a community of sorts and that’s something I hope will live…forever? But my Facebook page– Maybe somebody should kill that.

So it was cloudy and California’s version of cold today and since it was one of those days that a normal person might go to a gallery..I brought the gallery to me and started looking at art online and some of this stuff was just too good not to share. It made me wish I was an artist. But the only art I’ve made lately is this drawing of Mario Lopez  from December.

Pen on Paper. $50,000 or best offer.
Pen on Paper. $50,000 “Or best offer”

Maybe I should stick to writing. Or sharing actual artists work in this case. Here’s what really stuck with me today.

Price Tags
Price Tags

So this conceptual artist Rachel Perry Welty uses everyday items in sequence or on repeat per se to construe American “middle class minertia” as she puts it. In her show “Lost in My Life” she uses the byproducts of her domestic life to make for some unusual and beautiful prints. I couldn’t get over the stunning visuals and patterns brought on by tiny objects I see all the time.

Bread Tags
Bread Tags
Twisty Ties
Twisty Ties

I love how she never shows her face and how the small pieces become part of her apparel. Awesome stuff! You can read more about her and her exhibition here or here. For me the most inspiring part to hear was that she didn’t even enter the world of art until she was 36, and her work and ideas emerged out of lack of materials and time as she was a full-time working mother when she began. Word.

OK and then there’s this:

Chairs.
Chairs, Istanbul 2003

How effing cool is this? Artist Doris Salcedo filled a gap between two buildings in Central Istanbul with roughly 1,550 chairs and her intent was to create a “topography of war” embedded in everyday life. Whatever you deduce from it, you can’t deny that visually it’s just spectacular and the simplicity of materials with such a complex and poignant result is surprising, not to mention its impressive scale.

Lower view
Lower view

You can read more about the artist here or here.

OK last and not least I discovered a poem today that I found so incredibly enjoyable that I realized poetry can be fun and good modern poetry does exist. My friend Giselle, a ceramic artist, hates poetry mostly and I understand why, and a lot of the time I hate it too. (It doesn’t stop me from writing it or reading others) But this poem today, well it just really stuck with me and reminded me how much fun an often sad art form can be. It’s a little lengthy so click here to read it. It’s called Tap Water and is written by Mathew Yaeger. Job well done dude! A few favorite lines are:

What good is it
polishing to a shine the pile of dimes on which your life
has turned. You feel blessed or you feel regrets.

and also

When a woman has entered your life and then
left it you are changed and while you may change
forward into something resembling what you once were
you most certainly do not change back.

So, I guess that’s enough art for our cloudy cold Tuesday. Monty is bored. I’ll see you next time.

Health, Happiness, Art Gallery Day

Believe in Miracles? Believe This.

Good News! I woke up yesterday totally healed. I have loads of energy and no pain at all. I threw out all my pills and I’ve signed up for a marathon and begin full-time work next week! Haha. Just kidding. But that would be cool wouldn’t it? I’d write my final blog post: “Well, I’m all better now. Peace suckers!!!!”

Last week I put out a call to the master of the Universe with a very modern hope that he reads blogs, and specifically mine. Well it appears, he does. Or he did. After a really tough couple of weeks with bone crushing fatigue and other relentless symptoms, I woke up on Monday…lighter. My weakness seemed to have lifted overnight and I felt energy that I hadn’t felt in a long time. It was bizarre. I didn’t think too hard about it fearing if I did it would somehow leave. On good days you just count your blessings and then you get a few things done that have gone undone and overdue while you were busy sleeping, living under a rock. Or covers. You get it.

I was surprised and deeply moved when I looked at the blog on Monday to see so many people had rallied in my corner, sending positive thoughts and prayers. Many of them perfect strangers. My mom had also written an email to family and friends asking for some divine help, as nothing on “this side” was really working. I was again taken back when I signed onto Facebook to see people gathering troops in prayer groups and the like to pray for me…a sick girl who asked for a little relief. My cousin Cindy asked her “prayer warriors” to come together and see if they couldn’t “lighten her load.” On Monday that is exactly what it felt like physically; like my load had been lightened. That heaviness I had been carrying around, gone. Once again, perfect strangers wrote to say they had been praying for me, many of them offering beautiful and supportive encouragement, assuring me I would get through this. People emailed my mom back all with truly inspiring and beautiful things to say, some as succinct as “Hang on, you’ll get through it.”  As I read I cried, overcome by gratitude. But more importantly I believed what people said. I was assured I’d see the other side. With each message I felt a swelling warmth in my chest. Suddenly it struck me that the miracle was not that I woke up basically symptom free on Monday. It was how quickly humanity had come together-friends, family and strangers–with powerful intentions, love, support, and healing thoughts for a girl who some had never even met. It reminded me that we are in this together. We are not each one life, but an interconnected string of lives, and that when we assemble for good cause we are capable of incredible things. When one of us is pain, we all feel it somehow. When one of us overcomes, we all win. And maybe most importantly, when one of us strengthens and expands her consciousness, all the worlds consciousness is raised. We all evolve.

I laugh because in my blog I asked God for one day. Just one day of relief. Well, I was given two. By Tuesday night I felt the heaviness start to come back. My  muscles weakened and my familiar sick disposition descended on me. I know that on the outside it seems unfair. Why give her two days? Why not give her the rest of her life? And if God were a genie and life were a two-hour movie, that’s probably how it would work. But we are living in the midst of eternity here–our lifetimes in that context are a flash, but each one brings an invaluable meaning to the whole. The lessons we learn often take a whole lifetime to get perfect, but each contributes a small piece to the universal puzzle. Anyway, in my blog I sadly theorized that maybe I was forgotten about. My symtom-free two days reminded me ever so gently that no, I was not forgotten. This is just the work I have to do right now. A lot of it from bed. Seemingly on the outskirts of the high-paced world, the 9-5 jobs, security or fortune or fame. But just because you live a lot of your life in solitude does not mean you’re alone. Just because you don’t wear fancy dresses and attend important events doesn’t make your life’s work or contribution any less important. We all have very individual paths and under closer examination the design reveals itself as perfect. When I consider that my passion is and has always been writing, something that was absolutely untouched by the illness except that it gave me my platform to begin, there’s no question that there is a higher intelligence who’s job isn’t easy either. I doubt the creator likes to see his masterpieces suffer, but that’s the difference between us and him; he can see the finish line and we can’t.

To keep living takes a massive amount of trust on our part, especially in the midst of pain and hardship. But it’s that solid trust inside me that tells me to keep going. That’s what the voice is grounded in; trust in the grand design. That this is the work I have to do right now in order to become whole, to evolve, and to find inner peace. I often fantasize about a life that I don’t have. One where I wear pretty dresses and attend charity dinners and I charm people with gracefully told jokes and stories. “Tell us another one Mary! You’re the greatest story-teller ever!” they all yell.

That Mary Is One Hell of a Story Teller!!
That Mary Is One Hell of a Story Teller!!

Haha. I have no idea why that’s what I fantasize about, but it is. And maybe one day I will dress up and I will do those things at a party–but for now I need to be where I am and remember it won’t always be this way. Remind myself that I still have access to life’s greatest treasures whether I’m in my grandpa’s pajamas or in a dress at a fancy party: Love, passion, friendship, community, creativity and hope–they’re all still there. I am still young relatively and I’m still figuring it all out. I don’t know exactly what I believe in, I just know that after last week, I believe.

And I hope you do too, because you were very much a part of it.

Health, Happiness, Miracles.

White Girls on Facebook: Part 2.

1. Write the name of an alcoholic beverage and a question mark followed by “Don’t Mind If I Do!”

Ahhh much needed.
Ahhh much needed.

2. Talk about how INSANELY busy they are and the massive amount of things they have to do! So much so they spend the next two hours on Facebook talking about it!!

3. Use “LOL” questionably and in an overabundance. “I have cancer lol” “Me too lol”

4. Some version of this picture, allll up in your biz.

My legs enjoying the beach.
The bottom half of my body enjoying the beach.

4. Talk about preparation for tomorrows workout, take a picture of today’s workout, or reflect on the burn from yesterdays workout.

5. Delve into the recent cold they caught, list all the corresponding symptoms of said cold, then tag a photo of Dayquil and Hot Tea. Potential Caption: Yucky sniffles AND a sore throat! :(

6. Take a picture of herself scandalously dressed and tag it with this caption: “Hey you.”

And by you I mean me.
And by you I mean me.

7. “Today I am thankful for gratitude lists.”

8. Attempt a really inspiring, self-written life quote. “Never take advantage of anyone. Life is short but regret is forever. Always thank your lucky stars and never forget to dance. Even in hard times, the sun will shine through the night.”

9. Talk some major smack about football and/or their fantasy team. Then talk some major smack about The Bachelor.

10. Take a picture of basically anything and caption with: LOVE. <3 <3 <3

LOVE.

12. Girls Night Out!! Prepare for pictures, captions and a play-by-play before the night is halfway over.

11. Something borderline horribly offensive followed by “Just Sayin.”

13. Picture of the hubs taking a nap with the baby!

LOVE.
LOVE.

14. Vent a frustration beginning with WOW. “Wow, I was under the impression that a STOP SIGN MEANS STOP.”

15. Duckface. Forever and Ever and Always.

Yall come to the party I'm having by myself in the bathroom!
Yall come to the party I’m having by myself in the bathroom!

Health. Happiness. Facebook. GIRLS.  <3

My Post Election Facebook Prediction

 

 

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I’m going to briefly talk about two things I love to hate: Facebook and Politics. Bear with me.

Apparently, there’s an election going on. Like right now. You most likely knew that because you’re not an idiot. And you also probably knew that because if you’ve visited Facebook for even a millisecond in the last few months, you’ve seen it–the political outrage, the emotional pleading, angry outbursts, passionate opinions, and my favorite; quoting of the constitution. I have long thought that Facebook and politics go together about as well as pizza and peanut butter. But, we’re still figuring it out. This is the first generation of Facebookers. There’s no precedent. Which is why when Facebook opened the flood gates and allowed anyone to join, college kids ducked in horror as their parents and sometimes even grand-parents had access to a microscope highlighting all of their activity (legal and illegal) for the last year or so. They also laughed as Baby Boomers slowly learned what a poke meant and how to effectively comment on photos and walls. There’s no written etiquette for Facebook  We’re all just a bunch on neophytes figuring it out as we go and hoping not to ruin ourselves in the process. Undoubtedly, the consequences of Facebook activity can be huge, regardless of their intent. There have school expulsions, job firings, missed job opportunities, and countless breakups over this enigmatic social network. But hey, there are pros too. Keeping up with family members and long-lost friends, stalking your ex, knowing what your neighbor from grade school ate for breakfast this morning and that your high school boyfriend and his girlfriend are expecting a baby boy! But I’m getting off topic. There is an election going on. And if you spend any time on Facebook right now, you cannot escape that fact, opinions about that fact, and the ensuing written diatribes about that fact.

Sadly, I admit I have engaged in political debates on Facebook. They were miserable, dirty, and useless. No one walked away with their minds changed or cleared or any more informed than when they began. To be fair, verbal arguments can sometimes be just as messy and ineffective. But a verbal argument seems more tangible and more accountable. It’s much easier to write nasty things than to say it to someones face. There isn’t much accountability on the internet. Facebookers and bloggers have a lot power but not necessarily a lot of accountability.  It’s easy to type what you feel many times anonymously, without being liable for what you submit. On the Internet, we’re all just a bunch of small boxes with a face (or sometimes a picture of a car or a sonogram) and a name, but we seem to lose a large part of our humanness.

As miserable as Facebook political warfare is, we seem to be addicted to it. It’s hard to keep your mouth shut, (or your fingers idle) when you see someone post something you deem ridiculous. And truthfully, Facebook is where a lot of people make their voices heard. So it makes sense that it is on this platform where people express themselves politically. I don’t wonder why politics comes out on Facebook. It’s clear. I only wonder if it’s ever meaningful. It reminds me of a bumper sticker. It’s a tiny little snapshop of your views, but rarely does it encourage an intelligent dialogue or seem to persuade the other side. For all the engaging and speculating on Facebook I’ve done, I have never once witnessed a meaningful political conversation. Inevitably, someone will type something like “Hey screw you you dirty liberal!” or “You conservatives are a bunch of assclowns!” The people who agree with you are already convinced, and the people who don’t will tell you to go Eff yourself.  And then most likely send you a FB invite to their birthday party.

All that being said, my prediction is that we’ll see a large backlash on Facebook  November 7th, regardless of who wins the 2012 presidential election. (Duh) Democrats and Republicans alike are enthused, passionate, and each seem to use a disproportionate amount of explanation points. Here is my prediction:

IF OBAMA WINS:
(Warning of the apocalypse)

Everyone ready for the Socialist States of America?

God is good. God is great. Romney lost. We’ll suffer our fate!

Awesome! Another four more years of bullshit! Can’t wait!!!!

I’m moving to Canada. Eff you America!

Four more years of assclowns to run the White House. GREAT!

IF ROMNEY WINS:
(Emotional Depression Sweeps the Nation)

It’s a sad day for America. I really thought we had this one.

Wahhh. How will I afford my birth control?!?!

God is good. God is great. Obama lost. I wanna shoot myself in the head.

I can’t believe I won’t get healthcare and I’ll be in a binder!

Woah, Romney won. Does anyone wanna get frozen yogurt?

When you sign up for Facebook, you sign up to see and hear a lot of things about about your Facebook friends, which is mostly everyone you have ever known. Sometimes you’ll like it and sometimes you won’t. I always wonder how Facebook will evolve and how its users will change. Regardless of who wins, the world will keep on spinning, (according to most) and Facebook will keep on status-ing all over the place. Whether you like what you see or not, it is great to live in a country where you can say it all. But just because you can, doesn’t mean you should. Most of my recent Facebook activity that deals with the election is linked to The Onion–a satirical newspaper. Because I don’t find that political views on Facebook do very much except attract those who disagree. Which is fine. Maybe that’s even the point. Ranting and bickering can be fun, I guess. But from my seat, it never seems to goes well or end well. If we are to examine our intent, what is it exactly? To change minds? To be heard? To inform? I wonder if Facebook is really the place to do it. I think there may actually be a place for politics on Facebook, somewhere. I just don’t think we’ve found it yet. It is however, the best place for pictures of cats and babies and suggestions for cold remedies. No question.

Maybe it won’t always be that way. Like people, Facebook has continued to grow and change throughout the years. Most would probably not even recognize the user interface of Facebook 1.0. And it will be interesting to see what it will look like in the 2016 election and how people will interact then. My prediction: Still a lot of cats. Still a lot of political warfare.

The world spins on.

Health, Happiness, Politics.

Meanwhile, on Facebook…

A few of my close friends have taken the plunge off of Facebook. I’d like to show those friends what they’ve been missing. You’re welcome!

At first I was like Woah, too much information. But then I was like what, no pictures?
Thank God!!!!!!!
Yeah!! Wait, I never signed anything.
Thank God for hard hitting local news.
Let’s talk about the definition of ‘literally’…
Totally agree.
Like this status or the kitten gets it!!!!
Thanks!!!
Kids, don’t eat the peeps.
He’ll appreciate this when he’s 20.
I don’t trust this, bro.
Totally. Wait what?
Talking about milk is fun!!!
Something happened to my friend Noah.
This sounds serious.
Health and Happiness.

You Can Make Your Own Cheese?

Good morning world! Guess who’s up at 7 am?! I haven’t been up this early and actually felt alive in a long time. I woke up in pain but I wasn’t weak like I’ve been and the best part was this; I woke up just in time for the sunrise. It’s funny that such a phenomenal event like that happens every, single, day, and how seldom we actually see it. Or stop to watch it. My immobility in the last few weeks has left me observing the worlds tiny gifts that I didn’t used to see before. Like yesterday I watched a spider web glisten in the sun and was like whoa, that’s beautiful dude! Because my life has become so contained, I’ve been seeing the small things surrounding me, and suddenly they seem just as big as the things I used to strive for- independence, health, conquering the world. Those kinds of things. It reminded me of something Mark Nepo said in an interview that I wrote in my notebook. He was talking about finding “the special” in everyday life and how important that is to happiness. “Become easily pleased. Find what’s special in everything. Everything glows. There are more distractions and distortions now than ever. The challenge is how do we balance–how do we hold at bay all the voices that are forever crowding in, and hear the voice of own soul.” The answer, he said, lies in stillness, reflection, and “spiritual aerobics.” I liked hearing that. And I find the special little things often outside when I’m on a walk with Monty. A fallen birds nest or a bright red door or marshmallow clouds, a little kid with a suitcase or an old man with grocery bags. Whatever it is, it’s easy to miss. But I notice that when I’m quiet I am surrounded by extraordinary things. You don’t have to travel across the world to see incredible things. It’s more about a change in perception than location. We have a tendency to think happiness is “just over there,” beyond the next hurdle, over the fence. I keep hearing that happiness is something already within you and I see now, it’s just about accessing it, activating it. It’s gettin deep in here yall!

This week marked the beginning of a new project: GOOD NEWS IN PLAID! Woo woo. This project started pretty unorganized and is still coming together. But I have to say, I feel better after I report good news. I like hearing other people’s good news. And I enjoy avoiding politics, terrorism, disease, and murder. Who knew? In the beginning I was like why am I doing this? I don’t even feel like moving! But then I was like, wait, I have nothing else to do. I might as well report good news. And it’s something I can do from bed, or the floor, or the couch. So I’ve been recording myself (and Monty) everyday reporting a few pieces of positive news from my own life and other people’s. Yesterday, 32 people left comments reporting their good news on Facebook, so I recorded myself reading everyone’s little bits of good news..without reading through them first. Then I showed it to my sister and realized it was a 10 minute long video and one of the more awkward things you’ve ever seen in your life. So she recommended I edit it down to like 5 bits of good news instead which is probably a better idea. I try to disregard the ridiculous parts of the video where I look and sound like a moron–like when I ask “You can make your own cheese??” (You’ll see) My sister laughed for a good ten minutes at me for that one. But it’s just about positive energy and good news, so I’m sticking with it. It’s also really hard to find the music you want on YouTube, so this video ends super cheesy and the music sounds like something that would come at the end of that movie Precious or on a Cadillac commercial. But anyway, Keep the good news coming…I love hearing it and reporting it, and I think everyone agrees that the world could always use more good news. Below is segment 2 and 4. You can see all the videos at goodnewsinplaid.wordpress.com. I’ll continue to post 1 a day.

In other news, I started seeing two new doctors. One is a Chinese doctor who practices traditional Chinese medicine and is the most delightful man you’ve ever met in your life. Doctor Xu (pronounced Sue)It’s a whole different approach to health, but a lot of it makes sense to me. It seems to work with your body instead of just supplementing pills for symptomatic relief. And since this illness manifests itself in entire body system malfunctions, it feels like a good approach to take. After looking at my tongue and nails and asking a few questions he said “OK, I fix you. Two or three months. I fix you.” He makes his own chinese herbs and creates a tea out of them based on getting your body back in balance and “lighting your internal flame.” Haha. Whatever that means, I’m up for it. He also helped my sister out a lot when she was experiencing chronic migraines and often sick after college. So now he gets to try to heal her sister. His Chinese herb teas taste like what I imagine a bird’s nest ground up in a blender with some carrots thrown in would taste like. But if it means getting better, I’ll try anything. He also does acupuncture which I really like and cupping which feels awesome. But it leaves you looking like you’ve been attacked by a circle monster. See?

I know, it looks gross. 

The other doctor I am seeing is a Russian woman who practices naturpathic medicine. She believes that I didn’t get rid of the lyme disease on the first go-round and so I am still fighting that with “co-infections” and that’s most likely why I feel like I’m dying. :) Anyway, she has a plan, and Dr. Xu has a plan, and I’m trying it all. Open to anything. Maybe with a combination of Western, Eastern, and Russian Naturpathic medicine, I will get to feeling like a human being again. As my mom says, “All the kings horses and all the kings men will put Humptey Dumptey back together again.” It all sounds good to me.

Health, Happiness, Humpty Dumpty

What Type of Facebooker Are You?

1.The Advice Seeker of things that seem relatively obvious. Does anyone know where I can find groceries? I’m looking for things like broccoli, milk, poultry, cereal and juice. Looking for good prices but also quality food. Any suggestions?

Message me with any info. Thanks!

2. The incredibly angry but mostly uninformed Political Posting Tyrant. Taxes are such bullshit!! Why can’t everything just be free? I wish the morons running this country would ask themselves that. Now I’m going to quote the constitution for you. 

3. The Horrifically Offensive Facebooker that doesn’t seem to know it. Is it just me or are pregnant people gross and disgusting? 

4. The ball-busting Debbie Downer. (AKA, the person that ends every status with UGH!!!!)  Wow, after being stuck in traffic for 2 hours, I come home and step in dog shit. No, I don’t have a dog, my neighbors do. So I wrote them a letter explaining that I’d really appreciate it if they picked up after their dog, that is part of YOUR responsibility as a dog owner, not MINE as your neighbor. UGH!!!!!

5. The Emo Kid Facebooker, dense with cryptic statuses. Yes, I can forgive you, but that doesn’t mean I’ll forget. 

6.  The Check In Everywhere You Go Facebooker. Mary was at Albertson’s with Who Gives a Shit

7. The Stay on Facebook MomYep, Tommy just shit in the toilet all on his own. Then he asked me to wipe his butt for him. I have never had so much fun wiping someones ass or been more proud to do it!! Just love him!!!! 

8. The judgmental Passive Spectator: Has very little facebook activity– mostly just sits back and watches the horror of facebook unfold while worrying about the state of the world.

We’re fucked.

9. The Workout Obsessed Facebooker. Feelin the burn!!! Gonna be so sore tomorrow!! Will write a status about it at that time!

10. The over-eager Bearer of Bad News Facebooker. Just saw a car that was filled with puppies tumble off the road and burst into flames. Will be thinking about them tonight. 

.

Health, Happiness, Facebooooooook.

15 Fights Every Couple Has

1. The “You Spend Too Much Time With Your Friends and Not Enough Time With Me” Fight. It’s not that I hate your friends, I just think they’re stupid and don’t really want them around. 

2. The “You’re Terrible With Money” Fight. Did we really need these $20,000 life-size Rock ‘Em Sock ‘Em robots?

Yes, yes we did.

3. The “I’m Allowed to Talk Shit About My Family but YOU BETTER NOT” Fight. Excuse me, nobody calls my sister a slut but me.

4. The “You Drink Too Much/Smoke Too Much/Work Too Much/Play Video Games Too Much/Sleep Too Much” Fight. You do all the wrong stuff, too too much.

5. The “ANYTHING Regarding Facebook” Fight.

Who’s that slut who wrote on your wall?

Why haven’t you changed your relationship status?

Why aren’t I in your profile picture?

Why are you still friends with that person?

Why won’t your dad accept my friend request?

Who is Brittny and why did she poke you 2 years ago? Defriend her. NOW. 

6. The “You’re Always Tired When It’s Time for Sex But Wide Awake When the Kardashians Come On” Fight. Come on, you know you love Scott.

Nuff said.

7. The “You Give Terrible Presents” Fight.  Awesome. Another candle. Thanks babe. 

8. The Failure to Agree on a Show You Both Like So You End Up Watching Stuff Neither of You Really Likes Fight. Oh look, No Reservations is on again. 

9. The “I Shouldn’t Have to Ask You To” Fight. Because you should be able to read my mind by now. 

10. The “You Have Terrible Phone Etiquette” Fight. There’s this thing. Called a phone. Try it out…

11. The “If You Like It You Better Put a Ring On It” Fight. Because nothing sets the mood for an engagement like the threat of a breakup. Or physical harm. 

Whoa Oh Oh Uh Oh Oh Oh

12. The “I Was Lying When I Told You I Didn’t Want Anything for My Birthday and You Should Have Known That” Fight. You could have at least gotten me a card. God. 

13. The “You’re Nicer to the Dog Than You Are To Me” Fight. Well he’s a better listener!

Tell me. Everything.

14. The “I Went Through All Your Shit and Found Something That Makes Me Not Trust You Anymore” Fight.  You never told me you ran track in high school.

15. The “If I Didn’t Pick Up After You, Our Apartment Would End Up on Hoarders” Fight.  Why do you put your clothes next to the laundry hamper?

Health, Happiness, Coupledom

10 Things to Avoid (and Embrace) When You’re Depressed.

10 Things to Avoid…

1. F

2. A

3. C

4. E

5. B

6. O

7. O

8. K

9. Ok 8 things.

10. Oh yeah, and Wal-Mart.

Here is the truth; you’re not missing out on anything if you don’t get on Facebook today. I’ll fill you in: Someone got engaged. Someone had a baby. Someone is angry at Obama. Someone cooked spaghetti. And someone is hung-over after going out big last night. But if you spend the day on Facebook, you’re missing out on all the rest. You know, like on life. So now here’s 10 things you can do instead of get on Facebook, that might actually make you feel better.

1. Forgive somebody. There is probably someone or something from your past that needs to be let go of, moved on from, and it might even be you. Letting go of things in the past opens up room for good stuff in the future. Go!

2. Appreciate who and what ya got. Having a gratitude journal sounds super cheesy I know, but once you start writing down everything you’re thankful for everyday, you’ll see very subtly your whole perception change for the better.

3. Create. Make art! Or a sweater! Or music.Or dinner! You’ll be surprised at what you end up making. And have someone in mind when you create. The best gifts are home-made.

I made you this sweater for your dog!

4.Exercise. Even if it’s just a walk outside or 15 minutes of yoga… exercise releases serotonin and adds years to your life. Imagine if you did 10 sit-ups/push-ups for every 10 minutes you spent on Facebook. Everyone would be all muscley and stuff.

5. Bake a cake for someone. Anyone. Just because you love em. It’ll make their day! Let us eat cake.

Because You’re You and I’m Me

6.Organize your closet, dresser, room, or junk drawer. Cleaning things out just feels good, it’s free, and the end result will make you breathe easier.

Aaah.

7. Occupy Wal-Street. Just kidding. Couldn’t think of a good O verb. Uh, organize your second closet!

8. Kidnap someone and bring them on an awesome adventure. Dont actually blindfold them and throw them in the backseat of your car or anything..just bring them to lunch or something. And then maybe antiquing.

9. Read a book. Remember books? Instead of getting lost in an anonymous persons wedding album on Facebook, (ahem, yeah that’s me) get lost  in a book. It’s such an awesome feeling. And you don’t feel like a creeper by the end.

10. Write and send a letter. Not an email, not a text. A real letter, written in your own special handwriting. Old school mail dude, it’s the best! (May take 2 weeks to arrive though. The post office has had a rough year.)

Health, Happiness, Lifebook. (See what I did there?)

If I Was a Horse, They’d Shoot Me

Maybe that title is a little extreme, but sometimes when I’m counting out my pills in the morning and filling up my coffee mug for the third time, I wonder about my existence. Not in the depressing suicidal way, but more in terms of how such a weak physical specimen as myself has made it this far, it being survival of the fittest and all. I’m far from fit, but I guess I am surviving. But when I see people on facebook climbing mountains and shit I think crap, I can’t even stand the thought of standing in line without needing to faint. What am I doing here?! Then I get off facebook because I’m really starting to believe it is the demise of human beings. I think I’ll post that thought on facebook.

After visiting with the doc in Miami and changing around a few doses of things, we agreed upon my next round of treatment; which is two anti-biotics for the next two years. Woo! Yeah! Apparently, all my liminess isn’t gone, and the 6 month run on those overly priced horse pills didn’t do the trick. SO. Round two. To be honest, I’m fine with this decision. I mean, my pill bag has just enough room for two more bottles, so I’m cool with it spatially. I could look at it and be like waahhh two years of more pills. Or I could look at it as; In two years from now I presume I’ll be alive anyway, so would I like to be full or free of lyme disease? It’s my patriotic duty to choose freedom. And anti-biotics. So here’s to more pills! We’re waiting on the blood work still to finalize decisions but it’s looking like I’m in it for the long haul. Which is fine because, you know, I have the time.

So I’ve been reading A New Earth and it’s really awesome even though I’ve read it before. I think it’s one of those books you could continue to read your whole life and never fall short of gaining incredible meaning. The only other book that has done that for me is The Giving Tree by Shel Silverstein. I love that book.

Aaah Childhood.

So anyway there’s this part in A New Earth where Tolle is talking about human evolution. It reminded me of my first day of my college anthropology class. The teacher brought up evolution and began to talk about the timeline for the semester and then started to give his personal viewpoint on evolution so the class would have a clear direction. Then he asked if there were any questions and a student raised his hand and asked “But if evolution exists, then why have humans stopped evolving?” The teacher smiled big and shouted “Great Question and THANK YOU for asking!” (This was his enthusiastic response to any question a student decided to ask during class.) Then he put his hands together under his chin and answered with “That’s the good news. We haven’t!” He went on to explain that evolution are adapted changes made over a long period of time, and that if we compared modern humans with our counterparts 10,000 years ago, there would be numerous differences. I at least know that in terms of communication even in the last ten years there have been an incredible amount of changes that will forever change the ways humans interact with one another. I’d love to show a caveman Facebook.

Wait why don’t I just actually poke her?

Anyway, back to the book. Soo Tolle is talking about humans and how we’ve evolved and that one of the biggest fundamental differences between human beings and the rest of the animal world is that we are conscious of our consciousness. This kind of awareness is what drives the fundamental questions like “Who Am I?” and “What Is My Purpose Here?” Although these are the kinds of questions that can be terrifying or seemingly impossible to answer, they are what make us uniquely human and for that they should be celebrated! And pursued, too. What he also says is that “The next step in human evolution (enlightenment) is not inevitable, but for the first time in the history of our planet, it can be a conscious choice.” Cool dude!

Along those same lines, I watched a lecture that Deepak Chopra gave a few days ago, and much of what he spoke about correlated with this very concept. (Synchronicity, Yeah!) He talked about the mind, the body, and the soul, but he began by expounding on the intelligence of our human bodies independent of our human minds. For example, our bodies are made up of 100 trillion cells, which is more than all the stars in the Milky Way Galaxy. Each cell is performing roughly 100,000 activities every second and every cell instantly knows what the other cells are doing and correlates its activities respectively. This is how we are capable of thinking, talking, digesting food, playing piano, killing germs and removing toxins all at the same time. “This is the inner intelligence inside of you that mirrors the wisdom of the Universe,” he says. It was cool to hear him speak about this because so many times I’ve laid in bed with my hand on my heart, listening and feeling my heartbeat and thinking “Who’s making it beat?” I guess the answer wasn’t a who, but a what. Or a who-what.

Then he broke down human intelligence into four levels. He said that the highest form of human intelligence is State of Being. He describes this as the ability to observe yourself without judging yourself. The Second highest form is Feeling- our ability to feel compassion, joy, empathy. The 3rd highest form is Reflective Thinking- Who Am I? What Do I want? What will my contribution be? What inspires me? And the 4th highest form is Doing- the ability to create happiness. He also provided a pretty simple but profound definition of the soul- the space between your thoughts. Think about it.

Anyway seeing as how sometimes I’m a worthless physical specimen that doesn’t “do” a whole lot, I liked how doing was last on the list. :) But it was his last thought that was most reassuring to me, since it had been a very sick week and I was feeling a lot like a horse needing to be shot. “The next state of evolution is consciousness. It will be survival of the wisest, not the fittest.”

Health, Happiness, Horses.

Let’s Talk About Death. Yeah!

Once again it is nighttime and everyone is sleeping, but me. This is often how I spend this time of night; listening to the in and out breaths of humans and/or dogs around me, and thinking about how everyone including me and including my dog, without hesitation, is going to die. I can never figure out why this thought drowns me at times. But sometimes it’s so incredibly real that I have to talk myself out of thinking about it. Like eternity. Like time and space. Sometimes it’s too much.

And other times, also mostly at night, I think about what an elephant in the room it is; that we’re all going to die, and nobody is talking about it. And if you try to talk about it, you’re either morbid or misunderstood, or both. And that doesn’t make the infringing feeling of The End feel any better. I think about death in many capacities, but mostly I think of it in my own terms. How will I die? How old will I be? How does my story end? These are all silly meaningless questions that I can’t know the answers to. So why are my dreams filled with me or Monty dying all the time? And why do I always stop at the obituaries section of the newspaper? I’m pretty sure that means I am morbid, and that’s been something I’ve insisted I’m not. Crap.

You know what happens when there’s an elephant in the room that nobody talks about? Well actually, I’ve never heard the answer to the proverbial question, but I think it goes something like: Eventually the elephant poops and everyone at the cocktail party is like “Hey!! There’s elephant poop in the middle of the living room!” and everyone freaks out and screams and before you  know it your guests have ruined their shoes and saying “We should have seen it coming.”  If they just would have  talked about the elephant in the first place, it wouldn’t be such a surprise coming across elephant poop in the living room! Get it? Human Death is the elephant poop in this analogy. Did I make that clear? I’m not very good at this. AM I. Anyway, I use that analogy because when someone hears about someone dying, it’s exceptionally hard to grasp the idea. It is sad. It is tragic. But no one ever says “Mary died today, and this was supposed to happen.” I hope someone says that on the day that I die. But what we say is “You’re kidding! It’s not right! It’s not fair!” As if we were ever promised to live forever. As if dying wasn’t a part of the deal the whole time. Funny how we act about that.

Maybe all this death talk is because I’ve been feeling so deathly lately. I was on a pretty good streak for a while there, I’d been doing better than normal. My energy level was up and my pain tolerable. As a result, I pushed myself a little bit over the edge so today when I softly blinked my eyes open around 7 AM my head was like GOOD MORNING YOU HAVE A MIGRAINE TODAY. And I was like, “Loud and clear. Thanks, head.” Not the best way to wake up, but once again modern medicine rescued me. Now I am migraine free, but wide awake and wondering if I should sketch out my funeral plans. OK, sorry, I’ll stop with the morbidity. But I’d like to let it be known, it doesn’t depress me to talk about death. In fact, it excites me. I don’t think you should sit around sulking all day. But I don’t think it should be avoided like it is. Once my brother Nick and I were talking about it, and he said “I mean, it’s gotta be a cool experience, right?” And I totally agree with that. Death has to be cool. But most people don’t wanna talk death with me. They wanna talk about birth control or facebook or Mitt Romney and sometimes while people are talking, the words “We’re all going to end up dead,” are circling around in my mind in one of those cartoon bubbles.  And I say these words with joy! I swear. It doesn’t make me sad. It’s just such an incredible mystery. Why aren’t we talking about it?! Can’t a girl just get a cup of coffee and have a light hearted conversation about life and dying and tentative funeral plans? Good grief.

I guess I am still working out my death issues. This is the part where I wish I saw an analyst so I could say “My analyst seems to believe I am going through a minor existential crisis as I confront my own mortality and begin to humbly accept that this life, while precious, is temporary.” But I don’t. Analysts are expensive. And my mom is pretty good in these areas. Anyway she says the death dreams are just my subconscious fears playing themselves out. I suppose it’s your basic fear of the unknown. Plus, its not like I’ve been able to ask any of the people I know who are dead to tell me about the whole dying thing. Wait, that is a really good idea. Why haven’t I asked all the dead people I know how the whole dying experience is?! Duh, I have so many sources! I’m going to say a little prayer tonight, ask for some answers, and hopefully stop thinking about the things that I cannot control and that I can’t know now. Everything in due time. Everything.

Health, Happiness, Elephant Poop.

 

Camp Quiet.

There is so much noise in the world. There are a million distractions. Even our human conversations are half the time interrupted by a person who isn’t there– by the noise of a cell phone. So many times, hanging out with friends turns into a group of people in a room, glued to their phones, playing a game called “Hanging With Friends.”  Oh, the virtual irony of it all! Sometimes I look across a dinner table and see all the tops to peoples heads, faces down, and no physical engagement. The restaurant I used to waitress at had four year-olds on ipads or iphones while the adults would eat and talk. It wasn’t so much that the children were well behaved, they were simply well distracted. And half the time the adults were just as pre-occupied. I watched couples sit in silence, one or both engaging with a gadget, missing out on each other.

It’s easy to see how this has come to pass. There are more reasons than ever to be looking down at something, than actually at someone. There’s email and texting and facebook and twitter and gaming and music and foursquare and youtube and pinterest and stumble and the blogosphere! Woo hoo! All of these things make a lot of noise and take up a lot of space, but there isn’t necessarily much substance there. You can’t stay engaged in a virtual world forever. We are warmblooded, social animals afterall, we require the warmth of another body and the sound of anothers voice. We simply do.

We’ve taken what started out as means to enhance communication, and almost gone the other direction. We’ve replaced calls with texts and jokes with smiley faces and flirting with poking. And no I don’t mean physical poking. I mean on facebook, you ‘poke’ someone, (meaning someone get’s a notification which reads intimately ‘You’ve been poked’) and if they like you, they ‘virtually’ poke you back. I can just see my grandparents trying to learn the nuances of social networking– simply turning around and saying, What the fuck? Don’t people talk anymore?

And we do. Of course we do. But I’d argue we’re digressing a little bit. So many times, we’re talking about facebook, or what we saw on Twitter. We’re fighting with our significant others about their profile picture or what some girl commented about on their wall. This is not what we should be arguing about. Couples need to fight. It’s a necessity, but not about this. This just feels…wasteful. There’s no winning the argument. And the other half of the time I call someone, I’m crossing my fingers that I get their voicemail! What’s that about? Well it’s no secret, I’m socially lazy and have never been the proactive friend. But I see these trends among everyone I know, including yours truly. Just a few weeks ago I yelled at Gabe for his profile picture, only to realize in silence later, I was acting like a complete douche. But these kinds of networking seem to encourage childish behavior like this, because the activity on it is almost childlike itself, and most of it is so unauthentic. Do you ever notice how cool most people seem on facebook? Like everyone has this awesome life and is beautiful and happy and living the dream? Knock knock knock…if you’re living the dream, you’re not busy uploading photos about it. You’re just living it!

I know it sounds like I’m spitting a lot of hatoraide on social networking when in truth I should praise it. Facebook, afterall, is the reason my blog went viral and I actively participate in most of the networks I’ve mentioned. There is an inherent need in all of us to share our experiences with one another. It’s how we bond and form closeness and facebook enables us to do that. Helllllo, I’m the girl that texts photos of my dog to people and devoted an entire page of my blog to him. Imagine how I’ll be with children! But the point is this; moderation. Everything in moderation, even moderation in moderation. And that is not where we are. We are in excess. It’s why we list our meaningless errands on facebook, ‘check in’ at a grocery store and boast 3,000 friends and only know about 20 of them. It’s also why we plan our entire weddings on pinterest (significant other or not) and why Justin Bieber has more than 18 million followers on Twitter. There are perks, of course, and these things are meant to be fun, which they are. But let’s just call it exactly what it is. Facebook is a bunch of faces, circulating in the web abyss, just attracting onlookers. Doesn’t seem like we should take it at face value. Notice the format has changed from having your profile as the main page, (the part that attempts to describe who you are) to having a wall and photos be the main page–Much quicker and easier to gauge someone this way. And we like things quick and easy, don’t we?

I often wonder what the effect of all these distractions are on everyone. Certainly our social habits have changed, and our conversations have changed. More than anything, I think we’ve cancelled the quiet. We are very rarely without our phones. Have you ever watched someone who’s phone battery has died? It’s like a natural disaster has struck. “Do you have a phone charger? I’m freaking out.” Most of us feel naked or vulnerable when we aren’t connected, when we’re off the grid. But what we should feel is alive. We should love those moments when no one can reach us, when the only voice we can hear is our inner voice, something we probably don’t listen to enough. I think my generation is missing something very basic that every generation before us has had: silence. We are always on. Always reachable. Always plugged in. Rarely do we listen to what silence or stillness has to say to us. And both these things have vital things to say, we’re just not accustomed to listening that way.

My time in Florida has had a lot of quiet, which I needed. I’ve done a lot of reading here and just listened outside to the sounds that the things which reside here make. (Side note, the tropical birds here make some freaky deaky sounds, fo real.) Timothy Leary told his generation in 1966 to Turn on, Tune in, and Drop Out. Even though his slogan was widely misinterpreted to mean ‘Get stoned and abandon all constructive activity’ what he really tried to convey was a life of examination, involvement, and autonomy.  I’d argue his slogan is just as applicable today. (Or maybe the opposite, maybe we all just need to get stoned and abandon our work, man.) Mostly, I recommend we look each other in the eye and enjoy each others human-ness. When you ask someone how they are, mean it, and listen to what they have to say. At dinner, eat dinner, and talk to who you’re sharing it with!  And if your phone dies, let it die. Just try staying shut off for a few minutes. I promise you, the voicemails, texts, and emails will all be waiting for you when you get back. Maybe even that cute boy you like will have poked you.

Health, Happiness, and Shhhh, Quiet.

 

Sounds.

If there’s one thing I love listening to, it’s the idle conversations between couples. That casually themed chatter is sometimes the most revealing and genuine to witness between a couple and I love hearing it. I spent so much time in our office last year. It being attached to the kitchen and me being attached to the couch put me in prime eavesdropping territory. My eyes were often closed and for a little while each day, I experienced life purely through sounds and every once in a while, through smells. That became some kind of fun for me. The game changes when you’re couch bound. You come up with new ways to pass the time. And your attention pays itself to things you never noticed before.

My step-dad is usually whistling when he enters the kitchen, and the last note always has a strong bravado, which is impressive, because not everybody can do it. If it’s first thing in the morning he empties the ice maker into the sink that is inevitably clogged and frozen over from the night before. It’s been broken for a while now, but it will most likely be some ungodly amount to fix it, so we haven’t yet. If anyone is in the kitchen then you can bet on Monty being in the kitchen, too, his paws lightly stepping just behind whoever’s in there… Just waiting for something edible to drop. And no matter who it is out of all three of us, we all say “Hi buddy!” when we see him, in a usually very high pitched voice. I can almost hear his tail wag back.

My mom is a softer walker than my step-dad. Her feet “slide” on the hard wood floor and I notice mine do the same thing. Maybe it’s the fibro. Too weak to pick up our own stupid feet. Marc walks with purpose. My mom sortof glides; her feet swish between steps. Sometimes she walks in a room, looks around and then squints her eyes and says out loud “Now what did I come in here for?” From my lifeless position on the couch, sometimes I try to guess. “Reading glasses. Kool Aid. Drugs.” I hardly ever get it right.

My favorite sound from the kitchen is the sound of coffee being made, but that’s mostly because I love the sound that the cannisters which hold the coffee grounds make when you open and shut them. They’re those flip-up air tight stainless steel containters, and something about the sound eases me. Then the filling of water, the pouring of water, the spoon from the drawer, and the grunting burp the machine makes as the first few drops peep their way out. I like the sounds of the whole method. And the finale; the cup clinks on the marble counter, the pouring into the cup and the topping off with cream. It’s a nice process to listen to and I never get tired of it.

But back to these idle conversations. I’m not sure precisely when I started to become so fond of them, but I really do love to hear them. Usually it’s about groceries or about who called that day or talk of how his clients are doing and how one says to say hi, says to feel better. And its usually against a backdrop of dishes being loaded or soup being made or ice being dumped or something equally mundane, but there’s something reassuring about it. Something very real about it that makes me feel like everything is OK. Maybe it’s because there’s been enough heavy stuff in life so these moments where my mom is rearranging items in the fridge and we’re talking about whether we want homemade chicken noodle soup or vegetable beef soup is something to relish. Because those are simple and pleasurable decisions to make. Ones I will never get tired of making, or listening to.

I find that it’s a habit I’ve carried with me. Now I sit in one room and listen to all the sounds unfold in another. I still love listening to couples talk about nothing. I like hearing how they greet each other first thing in the morning. I especially like when I hear a couple laugh, just the two of them. I even like to hear them argue! But the harmless kindof arguing, not the arguments that stem from not loving well. I realize this makes me a bit of a creeper, but we’ve discussed this. I put it all out in the open about my creepy tendencies when I wrote about stalking girls wedding albums on facebook that I wasn’t even friends with. Creep. er.

Anyway, I’m not writing from the office these days, from my couch that I was essentially physically attached to for so long. I’m a bit more mobile now. But I still think about for how long I layed in that room, quiet, and listened to what life sounded like. It’s funny that sometimes even listening to idle talk about soup and groceries still somehow managed to make me feel like I was part of the conversation–that I wasn’t so far from life. I still lie in rooms listening to parties or whathaveyou in the next one over. Last night I was listening to friends playing Catch Phrase, and I knew one of the answers and couldn’t keep it to myself so I belted it out. I knew the next answer too, so I belted that one as well. I heard them cheer, so finally, I got up, and joined the game like a normal human being. You can only listen to the next room for so long. At some point, you gotta crawl out of the cave. It’s something I’m working on.

Health, Happiness, Noise!

15 Things We Should Consider Not Posting On Facebook Anymore

1. How many centimeters dilated you are. Although it’s been fun following every day of your pregnancy, this is something we never need to know. Ever. EVER. Hang on I just started my period I’ll be right back.

2. You’re moving out so you’re giving away free shit. It’s nice and everything, but most likely  no one will want your shit stained area rug or couch, even if it is free.

We're giving this couch away for free yall!

3. Picture of your baby in front of raisins. Picture of your baby picking up the raisins. Picture of your baby putting the raisins in his mouth. Picture of your baby chewing the raisins. Picture of your baby in front of a plate that used to have all the raisins he ate on it.

4. How much studying you have to do and how busy you are. You sure? Cause you’ve been commenting on my albums from 3 years ago for like, a few hours now.

5. Extensive details about your workout and the 10K you’re prepping for. I can play that game too! Walked to the bathroom. Walked to the living room. Pressed power button on computer. Typed on keys quickly without taking any breaks. I’m up to 75 words per minute baby!

6. A picture of the flowers your boyfriend gave you. Why are you thanking us? We didn’t give you the flowers.

Sorry ladies, he's taken.

7. Checking in at a place and tagging all of the people you’re with. Why don’t you just…talk to the people you’re with? Or play an actual game of tag?

8.Telling everyone how drunk you are or are going to get tonight. Don’t worry, we’ll be able to tell by the pictures you post tomorrow.

9. Stop having public Facebook birthdays. It makes stalking you sooo much less interesting.

10. Your weird urban-infused engagement photos. Although I’m totally addicted to looking at them, I don’t know when or why it became trendy to dress really nice and take photos in gutters.

"Love the background in this one! So artsy!!!"

11. A picture of yourself, taken by you, liked by you, and commented on by you. That’s so narcissistic. Facebook is supposed to be about…wait never mind that’s totally appropriate.

12. Another post shit-talking the Kardashians. You watch ’em? You love ’em.

13. Status updates about how sick you are. No one cares about your stupid chronic illness!

Ugh, my fibromyalgia is acting up.

14.  Pictures of inanimate objects with your hipstamatic photo app. Yeah we get it, even a picture of a lamp will look cool under that filter. But it’s still just a lamp bro!

Congrats on getting stoned and deciding you're a photographer now.

15. Any variation of this phrase: “Today is the day that I marry my best friend.” Shouldn’t you be like, preparing to lose your V card?!

 

Health, Happiness, and Glorious Glorious Facebook.

 

 

Photocredits:

Weird Urban Engagement Photos: greenweddingshoes.com

Shit Stained Couch: uglyhousephotos.com

 

A Snails Pace

I’ve been as productive as a sloth the last few days. Not sure why, but my pain has been worse than normal and energy has been low. Way low. Like non-existent low. Thus I’ve turned into a slow-moving snail, crawling from room to room wrapped in a blanket and moaning a lot. I’m sure I’m a real treat to be around. It may be recovery from the Holidays or the weather or the moon or it may just be that, hey, this illness doesn’t need a reason for you to feel bad. Even when you’re doing everything right, you’ll have poopy fart days. Luckily, I am jobless, so I let those days come and pass and rest until recovered. I still wonder what it would be like if I had my old job, and had to work an 8 hour day through feeling this way. I remember those days all too well. Then I get really nauseous at the thought and watch another episode of Frasier.

(For those of you out there still working with this illness, hang tough. I know what those days feel like. We’ll get there)

On days like yesterday, I have no desire to see or talk to anyone. My phone rings and I just can’t bring myself to answer. The feeling is rough because I am a social animal after all and love my friends and family a lot. But there are some things you just can’t fake. And when I’m feeling that way, there’s no faking enthusiasm. I’ve tried it and failed enough times that now I just don’t answer. The person on the other end would have a better conversation with Monty than me. Maybe I’ll pass the phone to him next time. I realize that this makes me, at times, a shitty friend, sister, grand-daughter, aunt. But I know how the conversation would go.

Hello? Hey Mary!! Hey. How are you!? Awesome. You don’t sound awesome. You got me. What’s wrong? Feel like death.What’s bothering you? Just really tired? Yeah, just really tired. Did you try those South African JuJu Beans I sent you? They’re supposed to be good for energy! No, too tired to stir the mixture. Bye.

South African JuJu Beans. P.S. I made this up.

See? Worthless conversation. And explaining my symptoms to people over the phone doesn’t help either, not to mention it makes me the Debbie Downer of the Century. I’d rather just hibernate until I don’t feel so lifeless. Whoever’s still around when I emerge from the cave are the people I call friends. Anyway yesterday was the National Championship and I was supposed to go to a party to watch it but since I was half dead I didn’t show up. Coincidentally the Tigers didn’t show up either. (BURN!) I watched it in PJ’s on the couch with Monty while icing my legs because they’ve been cramped for days. Then I scoured Facebook and laughed at the angriest statuses I’ve ever seen. “Completely Embarrassed.” “Time to FIRE LES MILES!” “Worst LSU game EVER!!!” “If we run the option again I’m going to MURDER MYSELF!!!” I don’t know why angry statuses humor me. They just do. Don’t hurt me.

Anyway, I’ve been receiving a lot of emails lately from people who are seeking help in getting diagnosed or who think they may be mis-diagnosed. I wish I were more an expert on CFIDS so I could offer real help but in the end I’m just a sick kid with two anatomy classes under my belt. (My mom on the other hand has a medical background and has suffered with the illness for over 20 years. I’ll get to that later) The most important thing I can tell you is there seems to be a key difference between Chronic Fatigue Syndrome and Fibromyalgia regarding exercise. It’s complicated since there is not one diagnostic test for either, but a main difference is that exercise seems to be helpful/relieve pain for many people with fibromyalgia. On the other hand, exercise can be extremely detrimental to those with CFS. An easy way to tell is just to pay attention to how you feel the day after you exercise. Having sore muscles is a normal reaction. If you are completely crashed, as in, feel like you’ve been hit by a truck and have trouble getting out of bed, you most likely have CFS, or the component which causes “Post-Exertional Malaise.” Trying to push through this ‘crash’ will only set you back and make you worse. It basically comes down to this. Do you feel like this the day after exercise?

Then Stop.

Or do you feel like this after you exercise?

Then continue!

There is so much misinformation out there that I truly am surprised I was effectively diagnosed and treated. But this took years and didn’t happen until my mom found a specialist: Dr. Nancy Klimas. There’s also a lot of people trying to sell things that won’t help you. So be wise. Currently, there is no cure for CFIDS/Fibro. So be wary if someone offers you the cure-all. I’m going to attach some helpful links for those interested in reading further on the illnesses for now. BUT, I am ALSO going to collaborate with my mom on one of my next posts and try to clear the air about some things regarding ME/CFIDS/ and Fibro. I am also going to try to get my doctor in on the conversation because I know she holds a lot of vital information that is scarce and hard to find but would help a lot of people out. So stay tuned.

I’ve also received some emails that read “Hey, I’m tired all the time. Do you think I have CFS? How do I get diagnosed?” This question is kind of like the equivalent of asking “Hey, I gained some weight in my midsection. Do you think I’m pregnant?” For one thing, calling it ‘tired’ is like calling the atomic bomb a fire cracker. It’s hard to give it a word or name people can understand, but tired definitely falls short. Think more along the lines of bones-crushing fatigue. Anyway, while feeling like you could sleep for days and being extremely exhausted are key symptoms, they are far from the only symptoms. CFIDS is an autoimmune disorder, meaning every autonomic process in your body is basically haywire. Thus, you feel like death. And chances are you look like it too! Anyway, the links are below. But I promise to devote space in the future dedicated to debunking some myths and trying to spread accurate awareness about these illnesses. In the meantime, guess what? I’m tired.

Health, Happiness, and Hang In There.

http://phoenixrising.me/

http://www.cfids.org/about-cfids/do-i-have-cfids.asp

http://www.pandoranet.info/

AboutMECFS.org