Category: brothers and sisters

I Have Many Stories To Tell About My Brothers–Most of Them Involving Farts

Published on by Mary Gelpi7 Comments

Allow me to introduce my brothers…

Don’t know which is better, the hats or the PJ’s. 1984. 

I’ve had the pleasure of spending a week in Miami with my two brothers, Doug and Nick. Though they are in their 30’s now and I’m in my late 20’s, I noticed during our time together that not much has changed since childhood. (And since this photo.) Doug and Nick are only a year apart in age, but couldn’t be more different. In fact all four kids in my family are incredibly different, so much so that I’m often wondering how we all came from the same two people. But, my parents were some dynamic people, and they produced, well, more dynamic people. From a young age, I took solace in the relationships with my siblings. But hanging out this last week with my brothers made me remember the insanity that ensues when more than two Gelpi kids are in a room together. Here’s an idea and photographic proof of the different ways it can go. These photos are from childhood, but I assure you nothing has changed.

Either everybody’s laughing…

.

Or just my brothers are laughing and someone else is crying… (like my sister, seen here)

Typical.

Since I was kind of a loser/loner growing up, my brothers, more specifically Nick “adopted” me into his social circle; not really concerned that I was 5 years younger. I remember smoking my first cigar at age 12 and staying up until 6 AM one morning playing a rugged game of monopoly. They all got drunk so I won! You’d think ‘Hey! That’s wrong! You can’t be letting a 13-year-old puff a cigar or let her pierce her upper ear!’ But truthfully, it was never dangerous or irresponsible. My brother kept close watch over me always, like a good sibling does.

One Halloween, when I was 11, my friends went trick or treating without me and I was at home all down and out. When Nick came upstairs and heard the story he said “Put on your roller blades! Lets go!” (Rollerblading. I miss that shit.) Anyway, even though he had plans with some friends, he instead drove his loser little sister to the neighborhood which always gave the best candy. He accompanied me until my bag was full, and didn’t laugh so hard when I tripped UP the stairs from my stupid roller blades getting caught as my second grade teacher opened the door mid-fall. (Seriously, true story.) Anyway, it was nice of him to do that. I always remember that gesture.

Then there was high school. My senior year, I was taking my boyfriend to the Sweetheart dance. I was kind of dating a nihilist but I was 17 so I just thought he was emo and cool. My brothers said they would chauffeur me and my date to the dance, which I thought was a fun idea! So imagine my gratefulness for them when we took a right turn onto my dates street, and they rolled down all of the windows in the car and blared the theme music from Star Wars as loud as it could possibly go. They slowed the car to a crawl so the whole neighborhood knew we had arrived. I begged them to turn it down, but it was just so damn funny, that I couldn’t be embarrassed, I just had to laugh; which happens a lot with them. Or crying. Either one. The nihilist and I broke up that night coincidentally.

So none of those stories involve farts, I know. But trust me, there are plenty. Like this one. I thought we’d take it one at a time.

One night after dinner on Rich People Island, the boys and I got on our golf cart to drive home. Nick was the driver, me in the front, Doug on the back. When we drove by the dock Nick saw something in the water that got his attention, so he stopped and parked the golf cart, got out, and went to check it out. Of course, like clock work, Doug jumped in the driver’s seat of the golf cart and floored it away from Nick, laughing and hollering the whole way. This is probably the 4th or 5th time Doug stole the golf cart from Nick. Anyway, we finally turn around and pull up beside Nick, and he’s like “Doug let me drive!” And Doug’s like “Fine!” So just before Doug gets out of the driver seat, he FARTS, really loud, and kind of leaves his own little “bubble” for Nick to enter. This of course, makes Doug begin to laugh as we drive away. But it’s late and quiet on Rich People Island and there are people eating outside at a nearby restaurant so Nick is trying to hush Doug up. But Doug’s ridiculous laughter is making me laugh, and every time I laugh, it makes Doug laugh harder, and louder. Which makes Nick hush him more, which begins the whole cycle over again. It reached an obnoxious point where Nick stops the golf cart and refuses to leave until everyone quiets down and stops laughing…which, you know, failed. Luckily, I had a camera with me and it seemed like such a Gelpi brothers moment, I decided to roll tape. -Enjoy.

I can’t explain it, but my brothers gas has always been a hot topic in our family–sometimes humorous and sometimes NOT– and I just don’t see it going away anytime soon. I’ll never understand what makes a fart so funny. Anyway, I hope that made you laugh, because when I feel down, I watch that video and I can’t HELP but laugh! That’s the best part of laughter–totally contagious. I guess I should note here that most of the time, we all get along. See?

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Health, Happiness, Brothers

Hard Knocks Island

Published on by Mary Gelpi13 Comments

If you’re like me, you’ve never heard of a place called Fisher Island. That was true until last January, when my mom found a CFIDS specialist with a clinic in Miami, and my brother happened to be engaged to someone who was from there. Without ever having met my mom or me, the soon-to-be in-laws invited us to stay with them when we came to the clinic for the first time. We would soon learn that they didn’t live in Miami exactly, they lived on Fisher Island; a private, man-made island only accessible by ferry or boat once your name has been added to a list and cleared by the guard. It’s like an exclusive night club but bigger and islandier and your money’s no good here. You buy everything through an account number. Your cash might as well be monopoly money.

It’s a real testament to my brother’s future in-laws that we were welcomed with such open arms. We could have been a bunch of crazies for all they knew. Hadn’t they met my brother? It was pretty immediately a Mi Casa Su Casa situation, accept it was more like My Island Your Island. It is exquisitely clean, beautiful and pristine here. There are pools galore though I never see anybody swimming in them. There is a private beach with a restaurant a few feet away. Theoretically you could effectively choose your own sushi menu right out of the ocean. That tuna there! I want that one! It’s something like Disney World meets the South of France. I’ve never seen or experienced anything like it. Whatever it is, of all the places to be sick, this one ranks in my top 3.

Before my first trip out here in 2011, I had spent most of the month of January in a horizontal position at my mom’s house. I was horribly depressed. I was watching everything familiar to me, all the things I defined myself by, slip slowly away with my health. It wasn’t easy watching or letting any of those things go. But I remember feeling the tiniest bit hopeful when my brother Nick called me the night before I was due to depart. “Dude are you ready for Miami?!” Sometimes even hearing the energy in someone elses voice could exhaust me in its own way. I groaned and said something about needing to pack but not having the energy to do the laundry. I remember he was so cheerful and said “All you need is a bathing suit. There’s a lot of sitting around and doing nothing on Fisher Island.”  I closed my eyes and let those words hang in the air. “Sounds perfect.”

As promised, we were welcomed with enthusiasm as soon as the ferry docked. I remember entering their home and feeling like Little Orphan Annie entering Daddy Warbucks house–which is funny because Estee’s dad slightly resembles Daddy Warbucks.  Every room was beautiful and had what I consider to be the most important detail in any room; large and bright windows–most with a view of the ocean. I suddenly felt really lucky to exist, and that glimmer of hope I had on the phone with Nick came back as I hugged the new members of our family and they insisted we eat dinner even though it was past 10. I remember my doctor’s appointment wasn’t until two days after we arrived, and thank God it wasn’t because most of the next day was spent in bed with a killer migraine and that ever so seductive hit-by-a-truck feeling. The only difference was, this time I woke up in a beautiful room with a breathtaking view. And to some extent, that did make a difference. It at least softened the blow of it all. I remember taking migraine medicine and going back to sleep. And when I did, something happened something that continues to happen. I fell asleep but could hear real life happening outside the door. I would try to yell or move to wake up but felt paralyzed and voiceless. This happens to me often when I take naps and I don’t know if it’s a part of the illness or something separate entirely, but it is unsettling. I finally escaped dream world to find that Nick and Estee brought lunch into my room on a tray and sat with me while I ate. Looking back on that time now, I can’t believe what a fog it was and how bad I felt. I remember Nick trying to convince me to read the book “Freedom” by Jonathan Franzen but any time I would try to begin reading, the words would fall out of chronological order and I’d have to keep re-reading them, or I’d start to feel car sick and put it down after just a few sentences. (Luckily that symptom has mostly passed and 2012 has been filled with books!) I went to bed that night wondering what Dr. Klimas would be like. I prayed hard for two things. I prayed that we would get answers, (real answers) and I prayed that I wouldn’t find out I was crazy. By that time, I really started to question my sanity. If enough people look at you sceptically, express disbelief, or tell you you’re experiencing something psychosomatic and not actual illness, you’re going to start to question yourself, no matter how bad you feel.

To make a long story short, my prayers seemed to have been heard. For one thing, only after Dr. Klimas ran extensive tests and blood work (my initial visit at the clinic lasted seven hours) did we finally get some answers that made sense. Finally, it was explained why I always felt like I was about to faint any time I stood up or any time I had to stay standing. I had Postural Orthostatic Hypotension due to low blood volume. This diagnosis was made in under 30 minutes using a tilt-table test. (You can request this from your doctor.) The best part is, it’s totally fixable. There’s a word we love. I take atenolol in the morning and try to consume 12 ounces of fluid containing electrolytes. Atenolol prevents your heart from jumping up to 140 bpm when standing upright and controls the severe fluctuation of blood pressure. This is what I mean about answers. When these symptoms were told to one of my other doctors he told me to drink more water. She also explained how the chronic migraines are typically a result of brain inflammation (a primary condition of CFS) and how dehydration is one of the biggest triggers for migraines. (And also that prescription migraine medicine tends to dehydrate you) So especially on travel days, you should double your liquids. And you can’t just drink water. You need electrolytes. Probably the biggest diagnosis that came from that first round of tests was news that I had Lyme Disease and we would start aggressive antibiotics to get it under control. But beyond the interview, the tests, the drawing of blood, the explanations in scientific and layman’s terms, stands out one particular moment between Dr. Klimas and me. She had just finished drawing blood when I admitted to her that I had been really worried that I was going to come to the clinic and be told that I was crazy. Then we both kind of laughed and she told me that in all her time working with this illness, there has been one patient who was certifiably crazy, and that was an extreme case. “People who come here aren’t crazy, they mostly just want their lives back.” I exhaled. Finally. Validation. I had never wanted to hug a doctor so much in my life.

I’m going back to Dr. Klimas on Friday, and in the meantime am enjoying Fisher Island with family and as always, working on staying present. You know what helps me stay present? Views like this:

And golf carts like this…

And this…

And babies that pose like this…

And smile like this…

All of those things help, at least a little. I’ll report on the doctors visit next. Until then…

Health, Happiness, and Cadillac Golf Carts.

Go Ahead, Cry It Out.

Published on by Mary Gelpi23 Comments
There there…

You know, you’d think as someone who takes 25 pills a day, I would have a pill for everything. And when it comes to aches and pains, muscle spasms, migraines, restless legs, or insomnia..it’s true. I’ve got a pill for most things. I carry around my pharmacy in a medium-sized black bag with birds on it. It’s like my second purse, but probably more important. But in the depths of that entire bag, among all the bottles of pills of every color and every shape, there is no pill for crying. Sometime’s life is really hard, and you just have to feel it. In two words; it sucks. It’s tiring and seemingly unrelenting and comes and goes in waves but just like everything else, it won’t last. It isn’t forever. And sometimes that’s the only thing to get you past the moment.

Sorry about being all depressing, but I’m going through some hardships right now and I told myself I’d write good, bad or ugly, so here’s sticking to goals. I won’t get into all the details but I am going through a breakup, thus the random waves of crying that come on like sudden nausea. It’s awful! It’s also funny, because truthfully, I was never much of a crier. If I felt the urge to cry I held it back, and I especially didn’t like to do it in front of people. I didn’t cry at my dads funeral. Maybe it’s because I was 12 or maybe it’s because seriously, his funeral was somehow a joyous occasion and I don’t really know how to explain that except that we sang happy music and felt proud that his life filled up an entire church. It wasn’t until my step-dad died, unexpectedly in the middle of college, that I turned into a crier. There was no holding it back anymore. It was tragic and it happened fast and left the family a little lost, especially my mom. It’s funny because my mom was never much of a crier either, but after Roger died, the same thing happened to her too. Sometimes we’d sit in the office, trying to tackle another post-death obstacle like canceling Roger’s phone (which somehow took FOUR MONTHS) and we’d sit there just sniffling and wiping tears away. Truthfully, there wasn’t always something wise to say. A quote about God’s plan or everything happening for a reason really falls short when you’re in the very raw place of grief. Sometimes all there is to do is cry or be a shoulder to cry on and remember that it won’t last. But what I’m trying to get at is this; it’s OK to cry.

I don’t know how our society or culture became this way, but it feels like somehow we view crying as a weakness. And when someone begins to cry our first impulse is to try to get them to stop. “Don’t cry,” we’ll say. Or “It’s OK” or some other vague comment that is usually untrue. The problem is crying makes other people uncomfortable–we’re a people of solutions, and crying means that someone is in pain or hurting some way, and we want them to stop. That’s the nice thing about dogs, they let you cry and cry and they don’t judge you for it. The thing is though, crying is not only natural, it’s good for you. It’s acknowledgment and acceptance that yes, this moment or time is rough. It’s challenging or painful. And the truth is, you just have to feel it. You have to exist in the grit of it. It hurts. But it also means you’re awake. I thought after 2011 that I would literally run out of tears. There was one day that I cried on and off most of the day and finally by 9 I thought wow, I think I’m all cried out! Then a commercial about abandoned dogs in New Orleans came on and I burst into tears. Nope, wasn’t all out after all!

My point is, that instead of telling someone to stop crying or to be strong or to move on, we should try the opposite. We should encourage them to cry. Tell them to go ahead and sob it out. Hold their hand or offer your shoulder or pass the whole stupid box of kleenex if that’s what it’s going to take. But don’t try to stop the process. Sometimes life is sad, and it’s OK to acknowledge that and it’s OK to cry about it. Babies do it. Women do it. Men do it. Even elephants do it. Just like laughter is an expression of something funny or entertaining, crying is an expression of sadness or loss, it is honest, and to repress it is only going to make it hurt more later. Simply put–let it out. Shakespeare said “To weep is to make less the depth of grief.” That being said…Waahhhhhhhh.

Kidding. I’m not crying right now. I’m watching the Golden Girls with Monty and accepting that this is a tough time but I’m going to survive. If I could recommend a new class for college it would be called Breaking Up 101. I have thought this for a long time, because breaking up is one of the hardest experiences and worst pains you can feel, even if it is the right thing to do. But we’re conditioned to think that if you feel this bad, then something’s not right–you shouldn’t do it. So then it follows, if you’re miserable from a breakup, then maybe you made the wrong decision? The truth is, there is never a good time to break up, it hurts like hell whenever it happens, and it’s going to screw with your life for a while. Aka…you might burst into tears while watching Say Yes to the Dress or you might suffer an identity crisis and start wearing brightly colored wigs like Kim Kardashian did. But that’s kind of how it goes. It’s tough, but it won’t last.

Anyway, that’s what’s going on in my life…how are you? Haha. I hope this doesn’t sound too tragic. Everything and everyone will be OK. I am assured. Mostly. But I still get waves of tears and random things that set them off, like an old photo from college or coming across my old business card from when I used to have a real job and my life was more..clear. Sometimes I feel like I’m floating on a raft in the middle of the ocean and am just drifting in no particular direction at all. It’s living in the “grey” of things. But it’s OK. I’m going to cry and then I’m going to stop and then I’m going to pick up the pieces and keep going. Because that’s the thing about life..it goes on.

Health, Happiness, and BOO HOO!

*Photo Credit: Jill Greenberg

California Problems.

Published on by Mary Gelpi8 Comments

I’ve been trying to put my finger on what makes California so…well, I guess I’m still trying to put my finger on it, so I’ll begin with a photo. The other day I was driving my sisters Gun-metal Grey Prius–which starts by pushing a button and appears to run off rubber bands–when I took a left turn and saw “THE HILL” to my right. I will randomly pass THE HILL while battling car sickness from the backseat or talking on my cell phone so I’ve never been able to capture a photo of it. But this time, I was all alone. I wasn’t on my cell phone,  and we all know I don’t have a real job so I have ample time to pull over and sneak through bushes to take pictures of things that I find noteworthy. THE HILL seems to embody almost everything I feel about California so we’ll begin there. Alas, I introduce to you: THE HILL.

Does this song pop in your head? Little boxes..on the hillside..little BOXES MADE OF TICKY TACKY! Me too.

Here it is close-up.

Boxes.

There are a few things about the photo that effectively sum up some general truths about California. Let’s start with number 1. The weather is basically perfect here. While there is a term called “June Gloom” which refers to a cloudy, overcast weather pattern occurring mostly in late Spring, it’s pretty much paradise the rest of the time, with a dusty cloud now and then and the average annual temperature right at 75.4 degrees. I’ve heard people complain that they miss not having four seasons here, which I get. I happen to love rain and we all know how much girls love sweater weather. However, there’s something to be said for never having to shovel a driveway or scrape away ice off your windshield with a credit card. (I lived in Colorado for 10 years; snapped one license and one library card in half.) It’s also comforting to know that if the air conditioner breaks in your car, you’ll survive. You’ll thrive even. Whereas if this scenario were to occur in New Orleans, not only would you literally vomit and die of heat exhaustion, you’d most likely be in a really shitty mood for the last few moments of your life. Having been here a few weeks, I’ve encountered the June gloom a couple of days; it’s tolerable. And it doesn’t last. The real problem is attire. It’s not quite cold enough to wear a real jacket but it’s too cool for short sleeves. These are called California problems, and they’re not real problems. You stock your closet full of every color cardigan, and you bring one with you wherever you go. It’s called cardigan weather people. You’ll get used to it.

Now let’s talk about outer beauty. A place that feels this good must look like trash, yes? It couldn’t have it all could it? Hahaha. The first time I stepped off of the plane in Orange County, I felt like I was in Never Never Land. A rainbow cast its arc over the airport and that song “I’m Walkin’ On Sunshine, Whoa-Oh, and Don’t It Feel Good?!” was playing on repeat from what must have been underground speakers placed strategically around OC. I remember thinking how beautiful the Ritz Carlton looked as we drove by and then noticing at the last second that it was actually a Walgreens. I couldn’t believe it. I kept rubbing my eyes and pinching myself. If this was all real, why in God’s name would you live anywhere else? “Holy shit. Is that a Burger King?” I asked, pointing to a beautiful stucco building with neon lights and palm trees out in front of the entrance. “The palm trees aren’t indigenous,” my sister reminded me. Which is kind of like showing a dude your boobs and then saying “They’re implants. Is that OK?” Sometimes it’s so nice I wonder if things like hangovers even exist here. It’s like this place was a movie set built in the 80’s that they never tore down and people just kept moving here so they said Ah screw it, we’ll just make this a town.

Speaking of Walgreens, (you know I gots to talk about Walgreens) let’s talk about overly conversational vendors. When you walk into the Walgreens on St. Charles avenue in New Orleans, you pass the same dude asking for money for food out front. It’s now understood that when you give the guy money, he’s going to buy drugs, not food. (I know because he didn’t accept food when I offered it. Cash only baby!) So I give the dude a buck or two, which I’m told only perpetuates the problem and I ought to be ashamed of myself but it’s what feels right so I do it anyway and enter Walgreens to get drugs of my own. Once inside, I’m lucky if I can find someone working there. There’s usually an obnoxiously long line with the clerk mysteriously nowhere to be found and a fire alarm going off in the back, which seems to alarm no one. In Orange County, you walk into Walgreens and are immediately greeted by a smiling vendor and asked if you need help finding anything today. “Uh, I’m fine, thank you.” But I say this with a little bit of scepticism because why are these people being so nice? Do they work on commission? As I get distracted by the “As Seen on TV” aisle and am considering whether or not I should buy Pajama Jeans, I see the same blue vested employee in my peripheral. “Find everything you’re looking for?” “Oh, uh..yeah, yes. Yes, thank you.” I’m nervous because I’m not used to being approached by smiling Walgreens employees and I’m wondering if he’s about to go postal up in here. “What are you up to today?” he asks and I feel like it’s a trick so I mutter something about living on my sisters couch and cautiously make my way over to the Indigestion aisle and look for the bottle of Pepto Bismol that is most economical. I peek around a shelf of “Snuggies” and see the blue-vested employee asking an old woman about her family and is ushering her slowly to the diabetic aisle. I thought the Walgreens commercial said “Perfect” didn’t exist? I pinch myself and get out of there fast.

What about topography? Well let’s see. You have the ocean on one side, the dessert on the other, hilly landscapes in-between and the outline of mountains in the distance. This means you can effectively surf, snowboard, rock-climb and camp all in one weekend. It’s like it’s never heard of the phrase Do one thing and do it well. California’s like Hey, Let’s Do Everything, and Let’s Do it All Perfectly.

There are a few questions I have about California which I have yet to find the answer to. For one thing, where are all the poor people? Like, is it illegal here? Something tells me that dude that I give money to outside the Walgreens on St. Charles Avenue wouldn’t linger here for long. But I don’t exactly know why. It’s like there’s no problems here! Or there’s no appearance of them anyway. Did you know they have scented dog shit bags here? I’ve also never seen a natural piece of litter here. One of the only dirty things I’ve seen since arriving is this:

Grime.

This is my brother-in-law next to a pool at a bank-owned foreclosed home that he and my sister were being shown by their realtor. (Note the June gloom in the background) But surprise, there were one too many problems with it. So far, it’s the only real glimpse of dirt or grime I’ve encountered. So once again, I took a picture. Here are some more photos of California I’ve taken.

Beverages.
The Waves Are Droppin Off At The Wedge Bro!
My Stupid Friend Jess, Trying and Failing To Fit In In SoCal

Most people are willing to tolerate general sameness, (the same weather, the same houses, the same freaking nice people) for the payoff of perfect in virtually every other category. But there’s also this grade school mentality I feel sometimes that I’m too much of a mess to fit in here. Like I’m under-dressed for a party, or that feeling you get when you’re peeing in a bathroom and you know people in the outside room can hear you. It’s hard to explain, but there’s something about “perfect” that’s rough to compete with. Something that makes you feel more spectator than participator. When My Stupid Friend Jess and I were on my brother-in-laws boat and we had just literally played in a pod of dolphins, we were laughing at how amazing everything about California is. Our conclusion was this: There’s nothing left to contemplate in California. It’s perfect here.

Health, Happiness, SoCal.

I Know I Know. Don’t Freak Out.

Published on by Mary Gelpi25 Comments

You’re in the right place. This is still the blog about fibro, pills, humor and attempted awesomeness. I gave the blog a little makeover and I’ve been putting it off  for a while now, but the time has come my people. First, I shortened the address from 25pillsday.wordpress.com to just 25pillsaday.com so we can all breathe easier knowing we have 9 less characters to type. Also as someone who’s 5.3 feet proud, I always argue that shorter is better. Secondly, all the crap that used to be at the bottom of the page is now easily accessible at the top. See?  Right over there. >>>>>>>>>  And that old picture of all those drugs that were the colors of library furniture have been replaced by bright neon cascading pills in the background. It’s all so magical. It’s funny that I would even consider so heavily the design or lack thereof of something that makes me no money  and is in most people’s eyes just a hobby. But truthfully, it’s my baby. I care a lot about it. And in recent nights I’ve woken up like Wait, should I put the links on THE LEFT SIDE?? Then I’m like OK there are wars going on and the location of links and font color is not so big a deal. I just needed to pull the trigger. So bang. I’m also reminded of the time I spent an hour picking out a dog collar for Monty and I guess it makes sense I’d take so much time with this. If you don’t like it, just give it a few days. If you still don’t like it, feel free to email me with only these words: YOU BLEW IT! I’ll know then what I’ve done. There will be some new additions to the blog but I thought I’d ease into those slowly. We’ll start just with cosmetics.

What else? I’ve spent the last two weeks in California at my sister and brother-in-law’s house in Orange County, California. (Side note: I recently realized my life is whole lot like Rob Kardashians, and that makes me have quiet moments of extreme discomfort.) It’s funny, because both my sister Amelie and my brother-in-law Keegan work full-time jobs, like most normal people. So in the morning they’re getting ready for work and I’m laying on the couch lifeless, half conscious. Sometimes I don’t even wake up to them scrambling around because I think my sleep schedule is so incredibly screwy that I’m in my REM cycle at 8:30 a.m., but that’s something different altogether. Last week Amelie was putting the final touches to her work attire in the bedroom and Keegan was getting ready to walk out the door. I was fumbling through pills on the couch. Before he walked out Keegan asked “Are you sure you don’t want me to leave the car here for you? Like are you going to get restless?” Amelie and I answered in a monotone voice in unison: “No.”  “You’re not going to get bored?” Again, from both of us. “No.” Then we kind of all laughed, maybe for different reasons, and the functioning people went to work and I opened my book.

I am reading two books. I must admit, after I finished reading Freedom I felt like there was this new hole where something solid used to be. The way it feels after you lose a tooth. Then when I was in New York, my brother told me Strong Motion written also by Franzen competed heavily with Freedom so I brought it with me and have been enjoying that one too. It’s written in true Franzenian form and I once again feel like I’m getting a literary/science education just by reading the work, so it’s fun. But I don’t know that anything can top Freedom. OK I’ll stop talking about that now. Except wait I have one more thing. On NPR people with cool voices were all telling Jonathan Franzen he needs to keep an eye on Nell Freudenberger and there was all this jabber about the book The Newlyweds and so I decided to give it a try. So far it’s really good. She isn’t as inventive with the prose as he is but her writing is clean and the storyline has me going; a mail order bride from Bangladesh marries a 30 something engineer dude in upstate New York and there are hints of secrets and controversy and all the good stuff that makes good books good.

The other book that I just finished is The Seat of the Soul by Gary Zukav and it was really, really incredible. Not as dense as A New Earth but just as enlightening and really reassuring, especially if you fear death. And for a while I think I became a little too obsessed with this idea that I was going to die. In the sense that I would actually start to wonder, maybe I just won’t die. Like maybe I’m exempt? But duh, I’m not. And it’s cool, because he says all this stuff that makes so much sense and I basically underlined the entire book. I feel like I’ll just keep it at my bedside forever now. Until I..you know, die.

OK, that’s all the housekeeping for today. Or should I say book-keeping. Get it? Health-wise I’ve been managing pretty well. This morning was my first migraine I’ve had since leaving NYC two weeks ago. That’s a long time for me! Good stuff. Maybe I just need to be by the ocean for the rest of my life. California is awesome, but weird. I’ll talk about that next time. Cliffhanger!!

Health, Happiness, and Give It a Few Days.

For the Loved Ones of the Sick Ones

Published on by Mary Gelpi17 Comments

List of Characters:

Gabe: Boyfriend, Likes to be doing things, Going places, Shooting things.

Mary: Girlfriend, Likes to lay around, Drink coffee, Talk about death.

Monty: Dog, Drinks out of toilet, Plays hard, Sleeps Hard.

There’s something sick people tend to forget sometimes, and this is that being sick isn’t only a struggle for us, but also tends to be a struggle for the people around us, too. It’s nobodies fault really, it’s just the reality of these circumstances. Spending the last month with Gabe, I saw how the illness effected more than just me, and the trouble it can stir up in our everyday relationships.

Gabe seems to me, limitless. It’s like he never tires. He can go and go and go and then he can go some more. Sometimes I tire just watching him. I envy his energy and resilience. He can only sit around for so long before he starts to go stir crazy, and that’s a huge fundamental difference between us. I don’t feel the need to be going places and doing things, and Gabe, well, does. “Do you want to go drive bumper cars today? Do you want to go to the shooting range? Do you want to go hit golf balls for a while? Do you want to go camping tonight? Do you want to get it on? Do you want to go jet-skiing? Do you want to go to an amusement park?” All of these questions are usually answered with somewhere between a grunt and a moan, sometimes a staunch “No” and sometimes a yawn and a “Maybe” if I’m feeling dangerous. Poor guy. How he ever ended up with a girl who barely moves I’ll never know. It’s easy to see how how he’d become disheartened.

It’s depressing, I know. The fact that an “amusement” park sounds like everything except amusing is depressing. But I’m just so used to the consequence of me saying “yes” to the normal activities that normal people find fun- and that is, a crash–that it has become my conditioned response to say no. I can’t drink anymore. I can’t be on my feet for long like I used to. I can’t stay up late or get up early. Sometimes a trip to the grocery store puts me over the edge and I pay for it. When you’re barely keeping your head above water, the slightest activites can drown you. So I’ve become conditioned to say no to a lot of things, simply because I know what will happen when I say yes, and often it’s more than I can handle. Sometimes I say screw it, I go and do what I want, knowing somewhere deep down that I’ll pay for it later. Every now and then, it’s worth the price I pay. But it’s rare. More times than not, I’m kicking myself for saying yes.

But as tired as I get in saying “No,” I see that it’s just as waring on Gabe in hearing “No.”  I’m so used to thinking “He’ll never understand what its like to be sick all the time” that I never considered that I’ll never understand what it’s like being healthy and dating a sickley. Especially one that shoots down your ideas of fun and takes up ample couch space. The truth is, if you’re going to be with someone who has this illness, you have to be independent and comfortable with leaving your loved one behind and doing the fun things without them. I know it seems incredibly depressing, but what is harder for a sick person, is trying to keep up with a healthy person. It just doesn’t work.

What’s also hard is the desire not to disappoint people. I hate the feeling of letting someone down, canceling on plans, or suggesting activities that only a 90 year old would be enthused about (How about we play scrabble again for the 90th time?) The problem is, no one else will say no for me. No one will suggest we stop and rest every thirty minutes. No one will make sure I’ve taken all my pills. No one will play lifeguard and see that I’m waring down and suggest we cut off the fun and go home. Only I will do these things. Which sort of turns me into the negative nancy of fun and activities for others. It’s exceptionally difficult to suggest to young, energetic, tireless twenty somethings that we wind down the day and lay on the couch and talk about life and existential questions. Doesn’t that sound GREAT?!?! To most people, no, it doesn’t. And that’s where the trouble lies.

This illness has strained many of my relationships- intimate, friendly, and familial. I remember once my brother and I had a shouting match outside an NYC restaurant because Nick wanted to go on a walk to digest his meal, but I was feeling especially fatigued and didn’t want to go. “It’s just a brisk walk! It’s good for you!” And he honestly thought it was, but I knew it wasn’t. I was at my physical limit that day, and a 5 block walk was out of the question. He stormed off on his walk in frustration and I taxied it home with discouragement. But I hadn’t really educated him on just how sensitive this illness was. I was sort of still trying to live like a normal person back then, so when the sickness would come out and demand  I obey it, it left everyone in a state of confusion. We’ve come a long way since then. Now I hear him defending me to others, even suggesting we cab it home when I consider walking. We’ve both learned a thing or two.

One question I ask is: Where do you draw the line? If I keep saying no to everything, won’t I eventually turn into a hermit trapped in a dark house with zero friends and zero fun? Because that sounds especially awesome. Wait no, that sounds terrible. The lesson for me has been finding the middle. Finding the area of compromise which keeps me alive with the pulse of life but doesn’t land me crashed in bed for 3 days. There is a middle ground, and part of my education in the last few months has been finding it. I’m still learning, too. In truth, it’s painful saying no all the time, when what you want to say is yes. But again, I have to be the master of my own domain! My domain happens to tire out after about 30 minutes of doing almost anything..standing too long, sitting too long, walking for too long…it’s ridiuclous, but it’s reality. And it doesn’t mean you have to turn off the fun. You just have to get creative. It’s also sort of a “Pick Your Poison” kind of situation. Do you want to say no and momentarily suffer sadness? Or say yes, and physically suffer for at least the next day?

Gabe and I are never going to be on the same level physically. This is someone who chased down rabbits on foot and wrestled an alligator on our first date (hence his nickname Gator) and worked 12 hour shifts of manual labor on an oil rig. (I’ll get to these stories, soon.) I..um…showered yesterday. So, there’s a little space between us when it comes to physical capablilites. But, we’re learning. I’m learning how to say no but stay positive. He’s learning to do the things he wants without me, and somewhere, in the grey of life, the circle of compromise, in the middle..we meet. All we can do is try.

To all the loved ones of sick ones out there, I know us sickley’s are a pain in the ass. But we do appreciate even the effort to understand. I see now, I need to try and understand, too.

Health, Happiness, and Compromise.

Speaking of Death, Let’s Talk Birth.

Published on by Mary Gelpi13 Comments

Before I begin about birth, I have to share quickly a dream I had the other night, after I wrote the post about death. As I laid down to sleep, I sent a little prayer to the universe. A prayer to help me not be afraid of death or the unknown. Since I happen to know a lot of people on “the other side” I asked them to show me, give me a little hint of what dying was like, in hopes it would calm my fear about it. I fantasized about having a dream in which my dad took me through the stages of death and we ended up at the end, at the gates, where all I felt was love and happiness and I most defnitely did not feel pain or sorrow, and I would wake up reassured. Maybe he’d show me what it looked like. Maybe he’d even tell me how I’d go. And in my morbid little mind, that would be a fun dream. After dying so many ways in my dreams for years, I’ve become somewhat desensitized on the matter. Well that and experiencing death at such proximity at the age of 12. What I’m getting to, however, is that I did not have a dream like this. In fact, I hardly remembered any of my dreams from the night before, which for me is unusual. But there was one dream–if you can even call it that. It was more like a very short “scene” I was in. I was crouched down under some flat rocks. I don’t remember being alone but I don’t remember who accompanied me. Above us, over the flat rocks, was a stampede of rhinoceroses, running full force and I could hear the pitter patter of their feet and watched as little tiny rocks spilled into the hole in which I was huddled in. That’s it. I remember knowing in the dream that this was my answer from the other side, and sort of chuckling about it. I’ve never heard anyone relate death or the afterlife to a rhinoceros stampede, but the subconscious works in symbols, not plots. So I’ll have to get my mom to help analyze this one. It was still fun to at least feel like someone or something had heard that prayer I sent. Ask and you shall receive.

But enough about death for now. Today wasn’t filled with thoughts about death and the end and the sometimes mentally paralyzing mystery of life. Today, I thought about life and beginnings. Last night, I had a dream that my brother Nick sent me a text message which read “It’s miraculous. It’s real.” Somehow in the dream I knew that he meant his wife was going into labor. When my eyes opened this morning around 9:30 to yet another killer migraine, I picked up my phone to see a text message from Nick. “Estee’s water broke.” I smiled with relief. Finally, she was going to be here, and I was going to be an aunt for the second time. No more talking about the baby in future tense, no more guessing who’d she look like and whether she’d have Estees genes and be on time or Nick’s genes and be late for everything. She was going to be here in physical form now. She was going to be her own governing self.

As much as death mystifies me, the process of conception, pregnancy, and labor mystify me just the same, if not more. I remember learning in anatomy class many of the things that have to go right in order to conceive and carry a child. Once hearing them, the idea of it all sounds impossible. And yet, we do it. It is natural somehow. Nick’s text message in my dream is just how I feel about all of it; that it’s miraculous.

Welcome to the World.

At 6:41 this evening, I received the first photo of her. 8.2 pounds. “Say hello to Olive Marie Gelpi,” it said. I stared and became a little lost in the photo. She has these big cheeks and beautiful hair and looks excessively calm. Something about a new life inspires even old souls; looking at the photo I felt this strong sensation that humans are the most capable creatures on the planet. Here Olive is only a few hours old, and already her path is being built. The energy is changing. I’m not even her parent, but here I am gazing at this photo and thinking of all the things she can do. I want to tell her that too–that she can do anything, Like some cliche high school year book signature. Dear Olive, Reach for your dreams! You can do anything! But these were the feelings popping up in me. Mostly I just feel happy she made it. 10 fingers and 10 toes as they say. Baby and mom doing well as they also say. The most beautiful part of today, is that a child was brought into the world first to two parents who want her and love her, unconditionally. Just for showing up, they love her. This is a good start. And then to two sets of grandparents who love her and will inevitably spoil the crap out of her and show her that she matters. And then to three aunts and two uncles who will tease her to toughen her and help raise her in every way we know how. If it takes a village to raise a child, I’d say she has a pretty good start. Today I’m not thinking about sickness and death. Today I’m thinking of human possibility and what we’re capable of. And it suddenly feels like a lot.

Happy Birthday Miss Olive Marie. I can’t wait to see who you are and what you will do.

Health, Happiness, Possibility.

Brothers and Sisters.

Published on by Mary Gelpi153 Comments

I am the youngest of four siblings. Doug and Nick are barely a year apart, followed by Amelie, then me. Sometimes I watch the four of us around the dinner table and wonder how we were each born from the same two parents. And then in rarer times, quieter times, I see the subtle thread that ties us; the binding, intangible something in our hearts that seeks greatness and loves easy. On many nights, like tonight, I wonder who I’d be without my siblings. And if I’m feeling extra philosophical, I wonder what the world would be like without them. I find them that important! There’s a strong energy about the four of us. We do OK on our own, but there’s this tangible vibrancy when we’re together. And this unintended dynamic of reverse reciprocals has formed among us. Where one is slow the other is fast. Where one is hard the other is soft. Where one yells the other soothes. Where one forgets the other remembers.

What has occurred to me recently is that each one of us carries a different piece of our dad around. And this is why I think there is such powerful and positive energy when the four of us are together; we’re putting together four pieces to revive a beautiful whole. Since each of our relationships with our dad was different, and we were all different ages when he died, we all carry something different. My brother Doug carries his Peace and Patience. Nick carries his thoughtfulness and social graces. Amelie carries his joyful “Burst of Sunshine” characteristic. And I carry his attentiveness to the voiceless. We ALL carry his sense of humor, his fearlessness in being weird, his desire to play meaningless pranks, and his simple talent of just being fun. At least, we all try.

Dad reading to the kids, Christmas '84 (click to enlarge)

Having the three of them in my life has been a true gift. And maybe while I’m prancing around in LaLa Land I should clear up that we are NOT The Brady Bunch over here. We  have plenty of dysfunctional to pass around. We yell at each other, make fun of each other, grow insanely impatient with one another, and sometimes we even wrestle. It isn’t uncommon for my brother to call me a turd sandwich or my sister to call Nick an asshole at least once every few days. When it happens, usually I’m acting like a turd sandwich and Nick is in fact acting like an asshole. Sometimes he calls Amelie a pain in the ass, which she can be. And we all yell at Doug for being the slowest human being on the planet. BUT. But, but, but. Behind any name-calling, shouting, mental or physical abuse, there is a deep and unbreakable love. It’s always been there. Even in my loneliest of times, there has been a quiet assurance in the back of my mind that I am not actually alone. I know in the that before I’m out under a bridge somewhere, I have three doors to knock on first, and each I know would open.

Whether in the form of a helping hand, money, food, shelter, an ear, a reality check, a pat on the back, or a cheering-up, we’ve all lent to one another different things at different times. And it’s a real treasure that we’re able to do that. You’ll have to excuse my notalgic sulking, I’m a little down in the dumps now that the house is quiet and there isn’t a cacophony of sibling rivalry bouncing off our walls. I always get sad after we make the last trip to the airport to bid the last family member adieu. Today we said good-bye to Nick, and all is finally quiet here. I’ve always loved the chaos of having them home. Ever since I was in 7th grade and Doug was first to go off to college, I always became exceedingly anxious around late November, because it meant everyone was coming home again. We’d finally all be together. Now I’m 27, and still the anxious kid around November, and sulky in early January, after everybody leaves. Anyway, I need to stop boo-hooing. Just thought I’d let Doug, Nick, and Amelie know, I love you. A lot. Even though you’re all turd sandwiches. Can’t wait till next year.

Health, Happiness, And A Quiet House Again.