Happy Stuff: Making a Bad Day Better.

Yesterday was a tough day. It was one of those days that you sit in a room by yourself in silence and then out of nowhere this question makes itself known; Who am I and what am I doing?

This isn’t such a rare thought for me to sit on, but spend too much time sitting on it and you’ll be no one and do nothing. The question arose in me because this week has been rough for me health-wise. And when it’s your fourth day in pajamas- no matter how awesome your pajama pants are- it makes you consider your existence in that essential kind of way. I’m like, dude, why am I here? And feeling like a human wasteland is just not a good feeling. But also, it’s more a thought derived from our egos and it is mostly untrue. In a clearer head I know that my existence matters and everyone who is alive matters. That is true. One of the shitty goals of the ego is to make you feel separate– from earth, from society, and from God. The truth is that we’re connected to all of these things and that our existence matters.

So there I was feeling all down on myself and I’m like you know what? This is crap. I’m not going to sit here and feel sorry for myself. I’m going to do something happy. And strangely I felt this weird desire to run. Strange because mostly I hate running. But if I had energy, I would have put on those professional looking running clothes that my sister and brother wear when they go jogging and feel the wind in my face. But the truth is, I’d probably tire myself out getting dressed before even getting out the door. Plus it’s so hilly here, I’d probably vomit after the first hill. My fatigue level has been rough this week, which I think contributes to those existential crisis moments of Who Am I and What Am I Doing and Am I Going to Live on my Siblings Couches Forever? But you have to cut life into slices. Sometimes you take it by the week. Sometimes by the day. And yesterday, by the hour.

Sometimes you have to reach out for help, so I texted Gabe “Life is hard!” and he texted back, “Yeah, it is!” And I remembered, oh yeah, everyone’s life is hard. Haha. Then I was like, OK, I need to bring some happy energy into this room. And the quickest way I know how to do that is through music. So I started looking for energetic happy music to start. I was g-chatting with my friend Emily and I was like ‘Dude, I need some good music. Happy stuff. What movie has a great soundtrack?” And Emily responded “Beauty and the Beast.” Which made me 1. Laugh out loud. 2. Play that song “There must be more than this provincial life! and 3. Remember why I love Emily so much. So then I was like OK, more music. And I kept listening to different things and put together a playlist of upbeat stuff. And I don’t know how, but somehow Tom Jones “It’s Not Unusual” made its way onto the playlist, and if you can imagine a scrawny girl in her pajamas blaring the one and only Tom Jones and dancing like an idiot to that weirdly catchy tune, well then, maybe I’ve made you smile. Because soon I was laughing at myself and what a hilariously tragic day it was.

Next, I took out my favorite sharpie pen and decided to do arts and crafts, because it’s fun and, well that’s the only reason. The thing is, I’m pretty terrible at drawing and painting. But, I enjoy the process of creating. And in the last two years there is one thing I discovered I’m decent at; drawing straight lines. So I have all these pictures at my mom’s house, a few in frames and a few in a folder, of white paper with black vertical lines. Mostly because it’s all I can do and also it requires focus and patience and time, not unlike actual good artwork. And there’s something fulfilling about it. The more lines you draw, the more disorienting it becomes on the page as you continue. Like the lines in your peripheral vision become blurry and then start to move on their own. It’s weird. And fun. I show you.

First You Draw a Couple Lines
Then You Draw a Couple More
Then You Draw Them Till You Feel It’s Done

And that is the art of drawing straight lines. If you’re thinking ‘What is this hippie shit?” I hear that. It’s mostly meaningless. But I like how long it takes. And that it’s simple and looks that way but also requires patience and focus and something about it makes me usually feel a little better. SO LAY OFF ME AND MY LINES OKAY?! Jokes. This one is for sale for 1 dollar and is titled “Welcome to America.”

After that, I received an email from a stranger who told me she reads my blog and that it makes her laugh and she felt the need to reach out and tell me that. I was like dude, the Universe works quickly! I was doubting myself and then this stranger writes me and tells me to keep it up? Cray cray. Thank you for that email Annie wherever you are. Whatever convinced you to write me, pay attention to it, because that just happened to be something I needed to hear at the time that you sent it. Yay for serendipitous universal connections!

And then after that, I came across a video of a rather large dog riding a bicycle and I was like, holy cow, dogs are incredible. And if this doesn’t make you smile you may want to check yourself because there is a very real possibility that you are a robot. Not that there’s anything wrong with that, it’s just good information to know about yourself. Just watch.

A Dog Riding a Bicycle

And if that didn’t do it for you, then maybe you’ll appreciate this dog that dances better than you.

And if THAT didn’t make you smile, maybe this picture of a really cute baby I know will.

Dude, just look at her feet.

Something about this photo just makes me happy every time I look at it and I’m pretty sure it’s her feet. But who can say. Anyway, after the drawing, and Tom Jonesing, and dog cycling and baby photos, I felt a little better. Then I thought of the many ways this day could have unfolded; it’s very easy to fall into a sad day and stay that way. It has happened to me countless times. But I am realizing just how big our role is in the outcome of our days. I had a friend in high school say to me once: “Do you the know the difference between a good day and a bad day? ATTITUDE!” And I remember wanting to punch something when I heard that, but also, it’s kind of true isn’t it? Perception plays a huge role in our lives. If we look at life as against us, we’ll find opposition. If we look at life as for us, we’ll find peace. There will be good and bad days for the rest of our lives. There will be reasons to laugh and reasons to cry. But when given the choice on mediocre days, and we do have a choice, choose the laughter. It’s more fun that way. And most importantly, pay attention! The universe gives us signs and symbols all the time. It is up to us to piece it all together.

Health, Happiness, and More Happiness.

Chronic Fatigue Syndrome; The Game!

When someone asks me what Chronic Fatigue Syndrome (or Fibro) is, I never really know how to put it. I usually want to ask “How much time do you have?” I remember once while being crashed on our couch at home, my mom read off a list of CFS symptoms and 5 minutes went by and she was still reading them off. It was almost laughable. I ran out of fingers and toes marking the ones I had. Since I’ve got the time, I’m going to put the long list here. You can make a game out of it; every time you come across a symptom that you have, take a pill! See? Being sick can be fun. I’m going to keep this list in my back pocket, then it will be accessible whenever I need help explaining the effects of the condition. Feel free to do the same. Ready? Go.

Pain●generalized muscle pain ●new onset headaches ●aching, burning shooting pains anywhere in the body  ●arthragia without joint swelling ● frequent and intense pain in upper spine and neck area ●abdominal pain. Post-Exertional Malaise and Fatigue●Flu-like or hangover feeling following minimal physical or mental exertion, sometimes immediate, sometimes delayed several hours or a day or more and associated with immune activation, with sore throat, tender lymph glands, general malaise, increased pain and cognitive symptoms ●Feeling worse after exercise, rather than better ●Taking a prolonged time to return to pre-exertional function level ●Lack of endurance. Autonomic Manifestations Orthostatic Intolerance:●Neurally mediated hypotension (NMH) i.e. problems with regulation of blood pressure and pulse, especially when standing still; with symptoms of dizziness, light-headedness, slow response to verbal stimuli; an urgency to lie down ●Postural orthostatic tachycardia syndrome (POTS) i.e. Excessive heart rate during 10 minutes of standing still; blood pressure drop upon standing; light-headedness, dizziness, nausea, fatigue, irregular breathing, visual changes sweating, headaches. ●Delayed postural hypotension i.e. blood pressure drop after many minutes of standing, rather than upon standing ●tilt table test abnormalities Other autonomic manifestations: ●Palpitations with or without cardiac arrhythmias ●24-hour Holter monitor results with oscillating T- wave inversions and/or flat T-wave ●breathing dysregulation ●shortness of breath ●intestinal irregularities ●irritable bowel syndrome ●diarrhea ●constipation ●alternating diarrhea and constipation ●abdominal cramps ●bloating ●nausea ●anorexia ●urinary frequency ●painful urination ●excessive urination at night ●pain in lower abdomen. Immune Dysfunction●A general Ill or flu-like feeling, more frequent in the acute onset stage of the illness, less frequent in the chronic stages, most notably post-exertionally ●tender lymph nodes ●recurrent sore throat ●new food sensitivities ●new chemical sensitivities ●hyper-sensitivity to medications and their side- effects ●allergies. Sleep Dysfunction●frequent awakenings ●nightmares or agitated dreams ●non-restorative sleep ●variations in sleepiness and energy throughout the day ●hypersomnia (excessive sleeping) ●Restless legs syndrome ●periodic limb movement disorder (jerking or twitching during sleep). Neurological/Cognitive Symptoms●Easily confused ●Slow information processing ●Difficulty retrieving words●Occasional slurred speech ●Occasional dyslexia ●Difficulty with mathematics ●Easily distracted ●Forgetfulness (primarily short-term) ●Attention deficit ●Inability to focus vision and attention ●Inability to cope with fast-paced tasks ●Overall feeling of “spaciness” or “brainfog” Motor Disturbances:●Loss of muscular coordination ●Muscle weakness ●Muscle twitching ●Loss of balance and clumsiness Overload phenomena: ●hypersiensitivites to light, sound motion, odors ●Inability to block out background noise and focus on conversation●Informational overload with inability to multi-task ●Motor overload, with staggaring and weakness ●dizziness ●numbness●tinnitus (ringing in the ears) ●nausea ●shooting pain ●Overload may cause temporary immobilization. Neuroendocrine Manifestations ●loss of thermostatic stability (fluctuations in body temperature; fluctuations of cold and hot in different parts of the body; intolerance to extremes in air temperature; low body temperature) ●night sweats or other sweating episodes ●weight change, with loss of appetite in some patients or abnormal weight gain in others ●loss of adaptation to situations of overload ●anxiety●worsening of symptoms under increased stress (physical or emotional).

In other words: No, I don’t think that taking a magnesium supplement will make me all better. But thank you anyway. :)

Health, Happiness, Game On.

Night Life.

Once again, I’ve been up all night unable to fall asleep. Restlessness, achy legs and a moving mind have kept me up. But you know what the best remedy for insomnia is? Waking up! So I’ve been up reading poetry by Rumi and writing a little most the night. Here’s one.

A Still Heart

I have a friend
who closed shop on love.
When asking her what led her here
She placed one hand on her heart
And the stronger hand on her head.
“My memories,” she said. “My protection.”

She couldn’t forget
All the hurt
That broke her
Times before.
So she made up her mind
–eliminated risk,
Climbed in a benign box.

I grabbed her hand
The one on her head
and looked into her
with my third eye.

I have seen what love can do
It had killed me a few times, too.
But what she considers protection
In other light was a prison.
Hadn’t she heard?
The heart will continue to break
Until it breaks open.

All her memories
can do for her now
Is make her heart stand still.
And living things–
they die this way–
We are meant to move.

Health

Happiness

Insomnia.

California Problems.

I’ve been trying to put my finger on what makes California so…well, I guess I’m still trying to put my finger on it, so I’ll begin with a photo. The other day I was driving my sisters Gun-metal Grey Prius–which starts by pushing a button and appears to run off rubber bands–when I took a left turn and saw “THE HILL” to my right. I will randomly pass THE HILL while battling car sickness from the backseat or talking on my cell phone so I’ve never been able to capture a photo of it. But this time, I was all alone. I wasn’t on my cell phone,  and we all know I don’t have a real job so I have ample time to pull over and sneak through bushes to take pictures of things that I find noteworthy. THE HILL seems to embody almost everything I feel about California so we’ll begin there. Alas, I introduce to you: THE HILL.

Does this song pop in your head? Little boxes..on the hillside..little BOXES MADE OF TICKY TACKY! Me too.

Here it is close-up.

Boxes.

There are a few things about the photo that effectively sum up some general truths about California. Let’s start with number 1. The weather is basically perfect here. While there is a term called “June Gloom” which refers to a cloudy, overcast weather pattern occurring mostly in late Spring, it’s pretty much paradise the rest of the time, with a dusty cloud now and then and the average annual temperature right at 75.4 degrees. I’ve heard people complain that they miss not having four seasons here, which I get. I happen to love rain and we all know how much girls love sweater weather. However, there’s something to be said for never having to shovel a driveway or scrape away ice off your windshield with a credit card. (I lived in Colorado for 10 years; snapped one license and one library card in half.) It’s also comforting to know that if the air conditioner breaks in your car, you’ll survive. You’ll thrive even. Whereas if this scenario were to occur in New Orleans, not only would you literally vomit and die of heat exhaustion, you’d most likely be in a really shitty mood for the last few moments of your life. Having been here a few weeks, I’ve encountered the June gloom a couple of days; it’s tolerable. And it doesn’t last. The real problem is attire. It’s not quite cold enough to wear a real jacket but it’s too cool for short sleeves. These are called California problems, and they’re not real problems. You stock your closet full of every color cardigan, and you bring one with you wherever you go. It’s called cardigan weather people. You’ll get used to it.

Now let’s talk about outer beauty. A place that feels this good must look like trash, yes? It couldn’t have it all could it? Hahaha. The first time I stepped off of the plane in Orange County, I felt like I was in Never Never Land. A rainbow cast its arc over the airport and that song “I’m Walkin’ On Sunshine, Whoa-Oh, and Don’t It Feel Good?!” was playing on repeat from what must have been underground speakers placed strategically around OC. I remember thinking how beautiful the Ritz Carlton looked as we drove by and then noticing at the last second that it was actually a Walgreens. I couldn’t believe it. I kept rubbing my eyes and pinching myself. If this was all real, why in God’s name would you live anywhere else? “Holy shit. Is that a Burger King?” I asked, pointing to a beautiful stucco building with neon lights and palm trees out in front of the entrance. “The palm trees aren’t indigenous,” my sister reminded me. Which is kind of like showing a dude your boobs and then saying “They’re implants. Is that OK?” Sometimes it’s so nice I wonder if things like hangovers even exist here. It’s like this place was a movie set built in the 80’s that they never tore down and people just kept moving here so they said Ah screw it, we’ll just make this a town.

Speaking of Walgreens, (you know I gots to talk about Walgreens) let’s talk about overly conversational vendors. When you walk into the Walgreens on St. Charles avenue in New Orleans, you pass the same dude asking for money for food out front. It’s now understood that when you give the guy money, he’s going to buy drugs, not food. (I know because he didn’t accept food when I offered it. Cash only baby!) So I give the dude a buck or two, which I’m told only perpetuates the problem and I ought to be ashamed of myself but it’s what feels right so I do it anyway and enter Walgreens to get drugs of my own. Once inside, I’m lucky if I can find someone working there. There’s usually an obnoxiously long line with the clerk mysteriously nowhere to be found and a fire alarm going off in the back, which seems to alarm no one. In Orange County, you walk into Walgreens and are immediately greeted by a smiling vendor and asked if you need help finding anything today. “Uh, I’m fine, thank you.” But I say this with a little bit of scepticism because why are these people being so nice? Do they work on commission? As I get distracted by the “As Seen on TV” aisle and am considering whether or not I should buy Pajama Jeans, I see the same blue vested employee in my peripheral. “Find everything you’re looking for?” “Oh, uh..yeah, yes. Yes, thank you.” I’m nervous because I’m not used to being approached by smiling Walgreens employees and I’m wondering if he’s about to go postal up in here. “What are you up to today?” he asks and I feel like it’s a trick so I mutter something about living on my sisters couch and cautiously make my way over to the Indigestion aisle and look for the bottle of Pepto Bismol that is most economical. I peek around a shelf of “Snuggies” and see the blue-vested employee asking an old woman about her family and is ushering her slowly to the diabetic aisle. I thought the Walgreens commercial said “Perfect” didn’t exist? I pinch myself and get out of there fast.

What about topography? Well let’s see. You have the ocean on one side, the dessert on the other, hilly landscapes in-between and the outline of mountains in the distance. This means you can effectively surf, snowboard, rock-climb and camp all in one weekend. It’s like it’s never heard of the phrase Do one thing and do it well. California’s like Hey, Let’s Do Everything, and Let’s Do it All Perfectly.

There are a few questions I have about California which I have yet to find the answer to. For one thing, where are all the poor people? Like, is it illegal here? Something tells me that dude that I give money to outside the Walgreens on St. Charles Avenue wouldn’t linger here for long. But I don’t exactly know why. It’s like there’s no problems here! Or there’s no appearance of them anyway. Did you know they have scented dog shit bags here? I’ve also never seen a natural piece of litter here. One of the only dirty things I’ve seen since arriving is this:

Grime.

This is my brother-in-law next to a pool at a bank-owned foreclosed home that he and my sister were being shown by their realtor. (Note the June gloom in the background) But surprise, there were one too many problems with it. So far, it’s the only real glimpse of dirt or grime I’ve encountered. So once again, I took a picture. Here are some more photos of California I’ve taken.

Beverages.
The Waves Are Droppin Off At The Wedge Bro!
My Stupid Friend Jess, Trying and Failing To Fit In In SoCal

Most people are willing to tolerate general sameness, (the same weather, the same houses, the same freaking nice people) for the payoff of perfect in virtually every other category. But there’s also this grade school mentality I feel sometimes that I’m too much of a mess to fit in here. Like I’m under-dressed for a party, or that feeling you get when you’re peeing in a bathroom and you know people in the outside room can hear you. It’s hard to explain, but there’s something about “perfect” that’s rough to compete with. Something that makes you feel more spectator than participator. When My Stupid Friend Jess and I were on my brother-in-laws boat and we had just literally played in a pod of dolphins, we were laughing at how amazing everything about California is. Our conclusion was this: There’s nothing left to contemplate in California. It’s perfect here.

Health, Happiness, SoCal.

I Know I Know. Don’t Freak Out.

You’re in the right place. This is still the blog about fibro, pills, humor and attempted awesomeness. I gave the blog a little makeover and I’ve been putting it off  for a while now, but the time has come my people. First, I shortened the address from 25pillsday.wordpress.com to just 25pillsaday.com so we can all breathe easier knowing we have 9 less characters to type. Also as someone who’s 5.3 feet proud, I always argue that shorter is better. Secondly, all the crap that used to be at the bottom of the page is now easily accessible at the top. See?  Right over there. >>>>>>>>>  And that old picture of all those drugs that were the colors of library furniture have been replaced by bright neon cascading pills in the background. It’s all so magical. It’s funny that I would even consider so heavily the design or lack thereof of something that makes me no money  and is in most people’s eyes just a hobby. But truthfully, it’s my baby. I care a lot about it. And in recent nights I’ve woken up like Wait, should I put the links on THE LEFT SIDE?? Then I’m like OK there are wars going on and the location of links and font color is not so big a deal. I just needed to pull the trigger. So bang. I’m also reminded of the time I spent an hour picking out a dog collar for Monty and I guess it makes sense I’d take so much time with this. If you don’t like it, just give it a few days. If you still don’t like it, feel free to email me with only these words: YOU BLEW IT! I’ll know then what I’ve done. There will be some new additions to the blog but I thought I’d ease into those slowly. We’ll start just with cosmetics.

What else? I’ve spent the last two weeks in California at my sister and brother-in-law’s house in Orange County, California. (Side note: I recently realized my life is whole lot like Rob Kardashians, and that makes me have quiet moments of extreme discomfort.) It’s funny, because both my sister Amelie and my brother-in-law Keegan work full-time jobs, like most normal people. So in the morning they’re getting ready for work and I’m laying on the couch lifeless, half conscious. Sometimes I don’t even wake up to them scrambling around because I think my sleep schedule is so incredibly screwy that I’m in my REM cycle at 8:30 a.m., but that’s something different altogether. Last week Amelie was putting the final touches to her work attire in the bedroom and Keegan was getting ready to walk out the door. I was fumbling through pills on the couch. Before he walked out Keegan asked “Are you sure you don’t want me to leave the car here for you? Like are you going to get restless?” Amelie and I answered in a monotone voice in unison: “No.”  “You’re not going to get bored?” Again, from both of us. “No.” Then we kind of all laughed, maybe for different reasons, and the functioning people went to work and I opened my book.

I am reading two books. I must admit, after I finished reading Freedom I felt like there was this new hole where something solid used to be. The way it feels after you lose a tooth. Then when I was in New York, my brother told me Strong Motion written also by Franzen competed heavily with Freedom so I brought it with me and have been enjoying that one too. It’s written in true Franzenian form and I once again feel like I’m getting a literary/science education just by reading the work, so it’s fun. But I don’t know that anything can top Freedom. OK I’ll stop talking about that now. Except wait I have one more thing. On NPR people with cool voices were all telling Jonathan Franzen he needs to keep an eye on Nell Freudenberger and there was all this jabber about the book The Newlyweds and so I decided to give it a try. So far it’s really good. She isn’t as inventive with the prose as he is but her writing is clean and the storyline has me going; a mail order bride from Bangladesh marries a 30 something engineer dude in upstate New York and there are hints of secrets and controversy and all the good stuff that makes good books good.

The other book that I just finished is The Seat of the Soul by Gary Zukav and it was really, really incredible. Not as dense as A New Earth but just as enlightening and really reassuring, especially if you fear death. And for a while I think I became a little too obsessed with this idea that I was going to die. In the sense that I would actually start to wonder, maybe I just won’t die. Like maybe I’m exempt? But duh, I’m not. And it’s cool, because he says all this stuff that makes so much sense and I basically underlined the entire book. I feel like I’ll just keep it at my bedside forever now. Until I..you know, die.

OK, that’s all the housekeeping for today. Or should I say book-keeping. Get it? Health-wise I’ve been managing pretty well. This morning was my first migraine I’ve had since leaving NYC two weeks ago. That’s a long time for me! Good stuff. Maybe I just need to be by the ocean for the rest of my life. California is awesome, but weird. I’ll talk about that next time. Cliffhanger!!

Health, Happiness, and Give It a Few Days.

How To Forgive.

The topic of forgiveness has been making its way into many conversations I’ve been having among friends and family lately. It’s also shown up in my books and things I’ve been watching, and I don’t take signs lightly. I’ve been thinking a lot about forgiveness and also about resentment. These are incredibly strong feelings to hold on to. Whether you know it or not, your willingness to forgive has more to do with you than anyone who has wronged you. The concept is simple; forgive those who have wronged you and free yourself, or stay angry and chain yourself to the past. I can tell you from personal experience that the latter makes life incredibly heavy and mostly uphill. The premise of this idea of forgiveness is one you don’t hear often but as I’ve been confronting this new definition, makes an incredible amount of sense to me albeit at odds with our typical definition in the realm of apologies. Ready? It is this: It is not our job to judge other human beings. Maybe you feel one or both of your parents did a less than adequate job raising you. Maybe you were wronged by a romantic partner or betrayed by a friend. Don’t you think it’s interesting that the wrongdoing could have happened something like 10 years ago, and yet you still feel the pain, hurt or anger as though the wound were made yesterday? This is the ego hanging on for dear life. The ego wants to see the person who wronged you suffer. They want to see them ‘pay’ for their crime. But as many people will tell you, or what you may have experienced yourself, is vengeance is often so exhausting that when you see your perpetrator pay for his crime, you often don’t feel any better. That is because your higher self doesn’t like to see fellow human beings suffer. Your ego does.

What I’ve gathered from recent material, is that forgiveness granted to others is a gift you give yourself. It does not exonerate what the other person did. It does not excuse them from their wrongdoing and it is not a symbol of weakness on your part. It is quite the opposite. If someone has wronged you, they will have to face those demons, the consequences of their actions, on their own. And you have to trust that they will eventually have to confront their behavior. It’s how energy and karma work. But whether you forgive them or not does not determine whether they will have to come face to face with their wrongdoing. It is impossible that they won’t. This is good news for us. This means we don’t have to hold on to what was done to us, we don’t have to take on the task of seeing perpetrators pay, and we don’t even have to wait for them to apologize in order to forgive them. The universe and karma will take care of these things for us. It is only our job to work towards consciousness and becoming a whole human being. And you can become neither of these things if your clawing away at a crime done unto you whether it be yesterday or 10 years ago. The resentment will infect all parts of your life, because it is such a negatively charged emotion, besides draining your positive energy and keeping you halfway in the past. It is impossible to become conscious and live fully in the present if you have one foot in your childhood wagging your finger at your dad. Here is the most relieving and powerful definition of resentment that I heard recently; “Having resentment for someone is like drinking poison and expecting your enemy to die.” Nelson Mandela said that. And I think it’s safe to say that guy has good reason to hang onto resentment, and yet he let it all go. So can we.

So, of course, this is all easier said than done. How do we let go of the past? For one thing, look at the anger or hurt that you are hanging onto. Where is it coming from? First you need to ‘bring it to light’ as they say. Chances are you’re holding onto pain and haven’t even fully acknowledged it. But it’s there. Maybe you are drinking it away, smoking it away, sexing it away, manipulating it away, or betting it away. But once you stop, (try stillness, that is when many answers arise) you will feel those inner parts that are hurting. The next thing to remember is that by letting go of the pain, forgiving what was done to you, you are not excusing wrongdoing. You are freeing yourself. You are feeling the hurt of what was done, maybe even one last time, and then releasing it. You’re saying that you aren’t going to live with the pain, anger, hurt, sadness, exhaustion or judgement anymore. (Keep in mind, the person who needs forgiving may even be yourself.) I know that the word surrender seems to have a weak stigma attached to it, but it is the opposite. Surrender is the brave acceptance of what is and also of what was. Whether you accept the things that have happened in your life or not, the truth remains the same. Your anger at the past won’t change it, so it is time to let it go.

I’ve thought heavily the last few days of what sort of pain I’ve been carrying around with me. After a year and four months, I feel like I have forgiven whoever or whatever I was mad at that I am sick. In fact, I turned that emotion around into gratitude. Of course, I wouldn’t have chosen this. But since when do I know what’s best for me in the context of eternity? I don’t. But intelligent divinity does, and I’ve finally begun to trust that. Last night I tapped into a moment that my deceased step-dad and I shared on New Years Eve one night. He had been in a terrible mood for three days. He would stomp around the house angrily, slam cabinet doors, sigh heavily at small things. Finally he blew up. It was over this: a dryer sheet. There was a dryer sheet on the floor of our laundry room, and it put him over the edge. He reacted, threw his hands in the air, yelled something about respect and consideration and grew red and heated in the face. It was an obvious overreaction and clear to my mom and I that he was dealing with the hurt of something else. How could a dryer sheet make someone so mad? Those things smell awesome! My mom stayed very calm and told him his behavior wasn’t acceptable, and the two of us left for a few hours and allowed him to get his head straight. When we returned, the two of them spoke in our office for a few hours, and I got ready to celebrate the New Year. When I walked into the kitchen, Roger called me into the office where he and my mom were sitting. He was weeping. He told me “I can’t be who your dad was. And I’m sorry.” I remember holding his hand and saying “I don’t need you to be my dad. I just need you to be you.” We looked at each other and for the first time in a long while, I felt that we really saw each other. Each for exactly who the other one was, not who we wished them to be. It was a freeing moment. I learned then the power of forgiveness, and have since (over 8 years ago) tried to constantly look past the external reactions of people, and into what is real. People don’t act in poor ways for no reason. They just don’t.

I’ll leave you with one last quote about forgiveness. It was said by Iyanla Vanzant, a spiritual teacher and author. (Life Class anyone?) Here it is:

Until you heal the wounds of your past, you will continue to bleed. You can bandage the bleeding with food, with alcohol, with drugs, with work, with cigarettes, with sex, but eventually, it will all ooze through and stain your life. You must find the strength to open the wounds, stick your hands inside, pull out the core of the pain that is holding you in your past, the memories, and make peace with them.”

Pretty powerful no? Since I am trying to break the pattern of holding onto pain, or holding onto judgement for others behavior, I find that having a replacement reaction makes it easier. (Sort of like supplementing a cigarette with a cup of tea.) Whenever I feel that judgment stir in me, I take out my gratitude journal, and find something about the person or situation which I find…crappy…to be grateful for. Maybe someone wronging you taught you how to have self worth, how to tell the truth, how to listen, how to set boundaries. There are any number of things. I just know that the people in your life that have caused you pain were not just sent here to mess with you. The universe is not a random kid playing games. Like Nepo says, It is our job to make sense out of pain; there is a lesson in everything. It’s not easy. It’s hard as shit. But the reward of compassion is far greater than the result of resentment. The time has come to free myself this way. I hope you’ll do the same.

Health, Happiness, Freedom.


Right Now O’Clock.

I bought a watch in the airport on my way to New York. The battery in my old watch stopped ticking not too long ago, but to be honest, it mostly served an ornamental purpose anyway. It’s not like I have a real job and am constantly under a time crunch. But after wearing one for a while, I realized how nice it was to flip my wrist and know the time, instead of wondering around the house to find my phone, which was usually dead, plugging it in, and waiting for the numbers to appear. (There are three clocks in our kitchen at home: The one on the stove. The one on the microwave. And an old clock that hangs on the wall. They tell three different times.) Anyway I found this store in the Atlanta airport where everything was ten dollars. This impressed me. It was the equivalent to The Dollar Store with a less than typical airport markup. So I found this basic orange watch and purchased it for $10, which in my opinion is the deal of the century. But now I’ve been doing all this reading and studying about the concept of time and how letting go of the past and future, even immediate pasts and futures, is an important step towards consciousness, presence. Of course the telling of time serves practical purposes. In my case, it helps me know that I am always ten minutes late for everything. Anyway, I was watching Oprah interview Deepak Chopra and he showed her his watch and you know what it had on the face of it? RIGHT NOW. I was like dude, that’s what I’m talking about! I thought about scribbling that on the face of my new watch with a sharpie. That would of course ruin it aesthetically, but hey, it was only 10 bucks. Bargains rock.

I have been practicing presence. Lucky for me, I am so conditioned in slipping out of the present moment that it has become seamless, so each day gives me plenty of practice. I catch myself becoming sad at feeling sick, disappointed in my productivity, jealous of others resilience, or irritated at not feeling understood. I say three words to get me back to the present: Here and Now. The best way to handle these scenarios is first, not to judge yourself for the feelings you have. Just recognizing when these feelings arise and acknowledging that they exist is the beginning of progress. (If I’m understanding what I’m reading correctly) The second step is to not react to these feelings. And that is the harder part. But as soon as you have created a gap, the tinniest of gaps, between your emotions and a typical reaction, be it yelling, throwing, saying something hurtful, manipulating etc., you’ve done it. You’ve conquered that moment. You’re far from done, because your life consists of a gazillion moments that you can accept with grace, or resist and pay the emotional or physical price; pain, in any number of forms. If you’ve done it once, you can do it again. Now the goal becomes to live in the gaps. As Gary Zukav so beautifully puts it: “Live your life like a feather on the breath of God.” Cool!

I have been thinking a lot about the new state of mind I am consciously trying to move toward. And I’ve been thinking about the illness and its role and whether my state of mind makes a difference. Truthfully, I am not incredibly better physically than I was this time last year. Certainly the first few months of 2011 were the worst. I remember before seeing the specialist in Miami, we had to take data a few weeks before going. One of the assignments was to stand for 10 minutes and then have my blood pressure taken. I remember finding this exceptionally difficult. For the last few minutes I had to lean against the couch because I felt too heavy, too weak to stay standing. We found later this was predominantly due to low blood volume among other things, but the point is, while I have made progress, every day is still somewhat of a battle. There are constant symptoms showing their faces, coming and going, almost as though they have a life of their own. As though they make up their minds to visit me, then leave. Like the last two weeks where I had a migraine every day for nine days. I was doing nothing different but my head seemed to… hate me. Anyway, I just try to deal with each day as it comes. But what has shifted more than anything is my personal assessment of where my life is. I’ve let go of a lot of anger and resentment. I had to go through the emotional work of it, grieve the loss of my old self. But in a strange way, I have come to see the illness as a gift; not a hindrance, not an enemy. It is what I needed in order to evolve. This has not resulted in me getting all better. There is a real possibility I could be sick the rest of my life. But that’s not the point. Although if that turns out to be the case, so be it. I’m learning it’s still entirely possible to live well, love well, and find peace–sick or not. It really isn’t up to me to judge these circumstances. It’s only up to me to persevere with what I have and what I am with grace and wisdom. The part of me that wants to call my set of circumstances unfair, unwise, unlucky, or stupid, is only pushing me further out into the ocean of despair. (Haha, ocean of despair. Yessss) I’ve never met a happy or successful person who was working against themselves, against the pulse of life. Everyone I’ve met who is joyous and successful has taken what they’ve been given, and put it to use, not tried to cast it away.

So that is how April 2012 is different from April 2011. In simpler metaphors, I’m like a crappy car. I have this somewhat dysfunctional body, but that is not so serious of an issue in terms of achieving my purpose. The soul is not heavily effected by external circumstances like these; the personality is. And making that distinction is important. Our bodies are just a vehicle. So, my body is like a car that can only go 10 miles at a time and frequently overheats and needs constant oil changes and runs out of gas quickly. But even 10 miles at a time, a car can still get to where it’s going.

We can’t all be Ferraris!

Health and Happiness, 10 Miles at a Time.

What Girls Say. What Girls Mean.

1. “I don’t care, I just think it’s funny.” I care. A lot. And it’s NOT funny.

2. “You’re like a big brother to me.” You’re nothing like a brother, you’re just someone I’ll never bang. 

3. “I could never pull that outfit off.” You look like a slut. 

4. “We need to hang out more often!” I’ll most likely see you in a year or two. 

5. “I just don’t want to see you get hurt.” You’re dating an asshole.

6. “I’m not even that drunk!” Hammered . 

7. “I need a girls night.” I have sex stories to tell. 

8. “You can come if you want to.” I don’t really want you to come. 

9. “Do you want to leave soon?” I am ready to leave now and don’t really care whether you are ready to or not.

10. “Who’s going to be there?” Your presence alone is not enough to get me to come. 

11. “You’re going to make a woman really happy one day.” I find you zero percent attractive.

12. “Not to be rude but…” I’m about to be really, fucking, rude. 

13. “I just want a nice guy.” I prefer criminals. 

14. “Politically speaking, I’m a moderate.” I don’t follow politics enough to engage in a discussion, but I love Michelle Obama’s arms. 

15. “I’m so tired of the drama.” I looooooove drama!

16. “Nothings wrong, I’m just tired.” Prepare. For. War. 

Health, Happiness, GIRLS!

Leggo My Ego

I hardly know where to begin in writing this post. It has been a tough weekend for me personally. I won’t get into the personal details, but I realize that out of conflict, pain, exhaustion and hurt, can come wisdom, understanding, and peace. The key is to be present to every moment and own the energy that you’re putting out into the world. This weekend has been an examination of my own ego, and there has been great pain in discovering it and the damage it has caused me (and others). But acknowledging this “darkness” is the first step on the way to real consciousness. This is what the spiritual masters talk about when they talk about enlightenment. If this sounds like mumbo jumbo psycho-babel crap, that’s fair. This is not something people talk openly a lot about. You don’t see the Kardashians gushing about their egos and unconsciousness and balance. Justin Beiber isn’t popular because he talks about a spiritual awakening! And yet, I bet even the Kardashians and Justin Bieber would have interest in what I found over the weekend, because most people will give you the same answer when you ask them what they’re looking for; and that is inner peace.

What I found over the weekend, was my ego. Dun. Dun. DUN. I have been reading spiritual books and teachings for a few years now. My mom has been an especially wise mentor for me because she has also devoted herself to the teachings of Carl Jung, Eckhart Tolle, Gary Zukav, Maya Angelou, Ken Willber, Wayne Dyer, and Caroline Myss among others. Whether she knows it or not, I’d enacted myself long ago as her protege, simply because she offered such a wealth of knowledge that always seemed to make sense and get to the root of issues quickly. To be honest, I wanted to know if I was handling a situation poorly. I wasn’t looking to be supported 100% by her or told that I’m right and whoever I’m up against is wrong. I simply want the truth, and she always seemed to have a way of finding it. So I have treasured her as a teacher. Since becoming too ill to work last year, I’ve begun reading texts on my own and attempted simply, to figure life out. Ya know, just for shits. I am so often left bewildered. Especially after painful circumstances. I am always asking What is the meaning of this? And that’s not a bad thing. Half of finding the answer is asking the question. There are many mysteries of life that I don’t think we’re meant to know all at once. But one step at a time, one breath at a time, I am beginning to unravel the truth of my self. The first step in unraveling this truth, is identifying and defining the ego. My ego. This is what I found this weekend. It’s about to get real up in here!

There are many definitions of ego in the realm that I am referring to it. But for starters, I think simplicity is best. Tolle’s definition of ego is simple: identification with form. (I am what I have.)  It’s a new concept to grasp and we typically don’t learn about ego this way. I always thought ego was a good thing. I associated it with pride, with who I was. But that is the first fallacy in regards to the ego. You are not you’re ego. And even further, You are not your thoughts. You are not your emotions. You are not your mind. So, the question. If I’m not those things, what in the hell am I? Is there anything left? And yes! There is! That’s the good news. Underneath the ego, the noise of your mind, the negativity of your thoughts, the pain of your emotions (inward and outward) you are a conscious being, a lightness (some would call it the soul), that when you’ve let the ego go, will shine through and bring you joy. It is where compassion, peace, and love reside. It’s the part of you that doesn’t die. The only way to let go of the ego is through consciousness; being awake. Just like the only way out of darkness is light. Have you ever felt like you can’t control your thoughts or emotions? Have you ever blamed other people for making you feel bad? I’m ashamed to admit I have. But the good news is, you don’t have to be victim to your or anyone else’s unconsciousness. You have a choice in the matter. You are not your thoughts, you are not your feelings, and you are not what’s happened to you. You can stop telling yourself a sad story.

This weekend I did something that, come to think of it, I don’t think I have ever done before. I turned my phone off…voluntarily. There are a few reasons why, but mostly, because I was stuck in the “noise” of a situation that was going nowhere. I could feel myself getting lost in it, with the truth nowhere in sight. So I disengaged. At first I was going to turn it off for just a few hours to give myself some separation and clarity. But a few hours went by, and I had started to feel better, so I gave myself the whole night. I woke up the next morning and decided a few more hours couldn’t hurt. I sat outside in the sun with Monty and began reading The Power of Now by Eckhart Tolle. Time got away from me. I was underlining whole passages and pages. Before I knew it, it was nighttime and I was 3/4 done with the book. I left my phone off for another 24 hours. It was great.

Do you ever hear a story about someone being a shithead and think to yourself “Oh shit, I’ve done that.”? Well, that’s basically how I felt for the first 100 pages of this book. It wasn’t easy realizing the things I did, but it was certainly necessary if I’m going to get better mentally and physically. Simply put, I found some major truth. I found the precise reality to a cloudy truth I had always thought anyway; that no one is responsible for my happiness or my sadness except me. My first inclination in reading that was of course, to fight it. What about people who have wronged me? What about the hurtful things people have done? Blah blah blah noise noise noise. That is the ego talking. It does this a lot. The truth is, a totally conscious person can’t be hurt. That’s not to say they can’t feel pain. If there are unfortunate circumstances like someone dying, a divorce, a miscarriage, there is going to be sadness felt there. But a conscious being also accepts what is happening in the moment, and can acknowledge that it will pass. They can’t be hurt by other peoples egos, because other peoples egos can’t survive in their presence. Not for long anyway. “Darkness can’t survive in the presence of light.” An unconscious person resists the present and this makes a difference. Consciousness is all about here and now. Past and future don’t exist. Regret about yesterday is from the ego. Anxiety about tomorrow is from the ego. Pain, depression and anxiety etc. are not natural states. Even though most people you know experience them. And that’s because most people you know are unconscious.

One of the biggest and hardest concepts to grasp is that time is manmade. We created it for practical purposes, but it has somehow become a very different institution. We carry the pain of yesterday around with us or the sad stories of our past or what we had or didn’t have growing up. Or on the opposite end, we dread tomorrow, or, we fantasize about tomorrow, imagining that’s when we’ll be happy. What all of these things have in common is that they deny the present moment. And the present moment is the only real thing there is. Can you prove tomorrow? Can you get yesterday back? No. (I’m assuming you don’t have access to the delorean) So naturally, we have to let go of our concept of time if we’re to understand this. If you’re constantly using the present as just a means of getting to the future or somewhere else, you’re missing the moment. You’re not present. I do this constantly. I hear it in others too. I can’t wait for Friday. Or I can’t wait until I have my own place. Or I can’t wait until I have money. Or now that I have money I can’t wait until I have more. See the never-endingness of it all? If you are to become awake in this moment, we’re talking this very second, you see that you have everything you could ever need, right in front of you. And if there is something we consider ‘wrong’ about this moment, we will cope with it. “You can always cope with the now. But you can never cope with the future,” he says. Or to put it another way, “There is never a time when your life is not ‘this moment.’ Is this not a fact?” Yeah but this moment sucks! That’s what I felt myself say. And that was me resisting the moment. The conscious me would accept where I am and be reassured that what I’m going through is exactly what I need to be going through to learn what I need in order to carry out my calling. Sometimes it’s about something bigger than you being at work, and that is certainly something the ego doesn’t like to hear.

My favorite passage in regards to letting go of past and future and existing solely in the here and now is a reference to animals and nature. (If you’re looking for a model of presence, dogs are a great example. They are ego-free) If you were to go into the wild and ask an eagle or lion what time it is, they would tell you “It’s right now” –because there is nothing else. Nature doesn’t operate yesterday or tomorrow. When it’s raining it gets wet. When the sun shines it soaks it up. When it’s night it sleeps. Something I have really struggled with is indecisiveness. Sometimes it takes me days or weeks to make even small decisions. Then after I’ve arrived at a decision, I think about what I didn’t choose. I wonder about other outcomes. This is, basically, insane. And I know it. So reading that passage about time and nature really resonated with me. “Stress is caused by being here and wanting to be there,” Tolle says. Sing it sister! Or..brother. His most simple advice; wherever you are, be there totally. Or as Ron Swanson puts it…

And you know who’s a great model of that? Monty. If we’re playing fetch, his world is the game of fetch. If I’m sick and in bed, he’s sleeping peacefully. He’s not demanding we play or asking why we’re not doing other things. If it’s dinner time he’s eating contentedly. Not asking why he has to eat the same shit all the time! He completely immerses himself in the now. Everything is enough. And that’s where my life work is beginning. Right. Now.

Health, Happiness, Consciousness.

10 Signs He’s Not Into You Anymore.

1. When you look like shit he says “Hey! You look like shit!”

2. When you asked him to compare you to a celebrity, he said “Nancy Pelosi.”

What? She's really smart.

3. He tells everyone “I’m in a relationshit.”

4. When you asked him if he loves you, he farted, and insisted that was a response.

5. You gave him the silent treatment for 6 days. He didn’t notice.

6. Whenever you tell a joke, he makes this face:

Go On.

7. He says you look like your mother. He calls your mother a whore.

8. He gave you gonorrhea. You didn’t say thanks, but he said ‘You’re Welcome.’

9. He assigned you a Nickelback song for your ring tone.

10. Given the choice between a date with you and getting a colonoscopy, he chose the colonoscopy.

DISCLAIMER! *not about Gabe :)

For the Loved Ones of the Sick Ones

List of Characters:

Gabe: Boyfriend, Likes to be doing things, Going places, Shooting things.

Mary: Girlfriend, Likes to lay around, Drink coffee, Talk about death.

Monty: Dog, Drinks out of toilet, Plays hard, Sleeps Hard.

There’s something sick people tend to forget sometimes, and this is that being sick isn’t only a struggle for us, but also tends to be a struggle for the people around us, too. It’s nobodies fault really, it’s just the reality of these circumstances. Spending the last month with Gabe, I saw how the illness effected more than just me, and the trouble it can stir up in our everyday relationships.

Gabe seems to me, limitless. It’s like he never tires. He can go and go and go and then he can go some more. Sometimes I tire just watching him. I envy his energy and resilience. He can only sit around for so long before he starts to go stir crazy, and that’s a huge fundamental difference between us. I don’t feel the need to be going places and doing things, and Gabe, well, does. “Do you want to go drive bumper cars today? Do you want to go to the shooting range? Do you want to go hit golf balls for a while? Do you want to go camping tonight? Do you want to get it on? Do you want to go jet-skiing? Do you want to go to an amusement park?” All of these questions are usually answered with somewhere between a grunt and a moan, sometimes a staunch “No” and sometimes a yawn and a “Maybe” if I’m feeling dangerous. Poor guy. How he ever ended up with a girl who barely moves I’ll never know. It’s easy to see how how he’d become disheartened.

It’s depressing, I know. The fact that an “amusement” park sounds like everything except amusing is depressing. But I’m just so used to the consequence of me saying “yes” to the normal activities that normal people find fun- and that is, a crash–that it has become my conditioned response to say no. I can’t drink anymore. I can’t be on my feet for long like I used to. I can’t stay up late or get up early. Sometimes a trip to the grocery store puts me over the edge and I pay for it. When you’re barely keeping your head above water, the slightest activites can drown you. So I’ve become conditioned to say no to a lot of things, simply because I know what will happen when I say yes, and often it’s more than I can handle. Sometimes I say screw it, I go and do what I want, knowing somewhere deep down that I’ll pay for it later. Every now and then, it’s worth the price I pay. But it’s rare. More times than not, I’m kicking myself for saying yes.

But as tired as I get in saying “No,” I see that it’s just as waring on Gabe in hearing “No.”  I’m so used to thinking “He’ll never understand what its like to be sick all the time” that I never considered that I’ll never understand what it’s like being healthy and dating a sickley. Especially one that shoots down your ideas of fun and takes up ample couch space. The truth is, if you’re going to be with someone who has this illness, you have to be independent and comfortable with leaving your loved one behind and doing the fun things without them. I know it seems incredibly depressing, but what is harder for a sick person, is trying to keep up with a healthy person. It just doesn’t work.

What’s also hard is the desire not to disappoint people. I hate the feeling of letting someone down, canceling on plans, or suggesting activities that only a 90 year old would be enthused about (How about we play scrabble again for the 90th time?) The problem is, no one else will say no for me. No one will suggest we stop and rest every thirty minutes. No one will make sure I’ve taken all my pills. No one will play lifeguard and see that I’m waring down and suggest we cut off the fun and go home. Only I will do these things. Which sort of turns me into the negative nancy of fun and activities for others. It’s exceptionally difficult to suggest to young, energetic, tireless twenty somethings that we wind down the day and lay on the couch and talk about life and existential questions. Doesn’t that sound GREAT?!?! To most people, no, it doesn’t. And that’s where the trouble lies.

This illness has strained many of my relationships- intimate, friendly, and familial. I remember once my brother and I had a shouting match outside an NYC restaurant because Nick wanted to go on a walk to digest his meal, but I was feeling especially fatigued and didn’t want to go. “It’s just a brisk walk! It’s good for you!” And he honestly thought it was, but I knew it wasn’t. I was at my physical limit that day, and a 5 block walk was out of the question. He stormed off on his walk in frustration and I taxied it home with discouragement. But I hadn’t really educated him on just how sensitive this illness was. I was sort of still trying to live like a normal person back then, so when the sickness would come out and demand  I obey it, it left everyone in a state of confusion. We’ve come a long way since then. Now I hear him defending me to others, even suggesting we cab it home when I consider walking. We’ve both learned a thing or two.

One question I ask is: Where do you draw the line? If I keep saying no to everything, won’t I eventually turn into a hermit trapped in a dark house with zero friends and zero fun? Because that sounds especially awesome. Wait no, that sounds terrible. The lesson for me has been finding the middle. Finding the area of compromise which keeps me alive with the pulse of life but doesn’t land me crashed in bed for 3 days. There is a middle ground, and part of my education in the last few months has been finding it. I’m still learning, too. In truth, it’s painful saying no all the time, when what you want to say is yes. But again, I have to be the master of my own domain! My domain happens to tire out after about 30 minutes of doing almost anything..standing too long, sitting too long, walking for too long…it’s ridiuclous, but it’s reality. And it doesn’t mean you have to turn off the fun. You just have to get creative. It’s also sort of a “Pick Your Poison” kind of situation. Do you want to say no and momentarily suffer sadness? Or say yes, and physically suffer for at least the next day?

Gabe and I are never going to be on the same level physically. This is someone who chased down rabbits on foot and wrestled an alligator on our first date (hence his nickname Gator) and worked 12 hour shifts of manual labor on an oil rig. (I’ll get to these stories, soon.) I..um…showered yesterday. So, there’s a little space between us when it comes to physical capablilites. But, we’re learning. I’m learning how to say no but stay positive. He’s learning to do the things he wants without me, and somewhere, in the grey of life, the circle of compromise, in the middle..we meet. All we can do is try.

To all the loved ones of sick ones out there, I know us sickley’s are a pain in the ass. But we do appreciate even the effort to understand. I see now, I need to try and understand, too.

Health, Happiness, and Compromise.

Who I Used to Be.

I dreamt last night I was back to my old tricks in gymnastics. For those who don’t know, I used to be a badass gymnast. I say that with pride because there are so very few things I really excel at, so I don’t feel cocky in admitting the one thing that I was truly gifted with as a kid. It came easy to me. I loved it. I didn’t care that practice was four hours a day every day during competitive season. I was so incredibly driven then, and I was nine  years old. Looking back on it now, it’s like that was some other version of me from a parallel universe. Here I am in bed, wondering if I’ll have the energy to shower today. I can’t believe I used to do acrobatics on a four inch beam. And it was my favorite event, the balance beam. It required such devout focus, but I loved how everything would fade away to a colorless blur in the background while performing on it. All that existed was four inches of felt and a nine year olds concentration. It was almost holy being up there. And it was so unassuming to look at. It was literally just a beam; four feet off the ground, waiting around for anyone who felt worthy to mount it; one slip and it was all over. I’d always considered it the most difficult out of all four events, but immediately it was my favorite. I felt most myself up there. Most alive.

See? Don't I look alive?

I was at the top of my game (both in gymnastics and in school) when I came down with the flu one ordinary spring day. I skipped practice, which I never did. Days with the flu turned into weeks, and I wasn’t getting any better. I was getting worse. Suddenly I began having headaches everyday, like clockwork. My muscles started aching for no reason. Sometimes my skin hurt to touch. In line at the grocery store, I felt too tired, too weak to stay standing, so I’d sit, on the dirty grocery store floor, my head in my hands. My homework began taking me an unwarranted amount of time to complete. At that time in third grade, we were being taught how to tell time. I remember looking at the clocks on the worksheet and the numbers not seeming in order. The questions about what time it was looked like they were written backwards. I’d reread them and reread them, slower and slower. I used to be incredibly quick. Always the first one done with in-class assignments. I grasped concepts easily and fast. Now words were scrambled, and so in order to answer a question, I first had to rearrange the words in proper order because my brain for some reason, liked to put all the words in a jar, shake it up, and spit them out in whatever sequence they fell in. This took completing things three times as long. Not to mention my pounding head didn’t like to read things when it hurt. None of it made a lot of sense. Even looking back on it is a blur. But we went to a few different doctors who couldn’t find the answers. My mom said she was cringing in silence because I was showing all the symptoms that she had when first becoming ill in the 80’s. She didn’t say anything for a while, but after months of being sick and getting progressively worse, she knew it was what she feared.

I was basically home-schooled by my mom for the remainder of third grade. I spent a lot of time in bed. It was a strange time. But after four or five months of the “flu,” I slowly began to get better. I wanted so badly to get back to my routine. I wanted to be a kid again. But what I really wanted was to get back to gymnastics. Finally after a very very long hiatus, I slowly eased back into it. My teammates and coaches all welcomed me back and I was thrilled to be doing what I loved again. But, of course, things had changed. I still had all the skills in me that I’d acquired since age 5, but my body wasn’t as resilient as it used to be. I’d be unnecessarily sore for days. I tired out easily in the middle of practice. Out of nowhere, the back of my heels started delivering sharp pain when I walked. I thought it’d go away but didn’t. At the orthopedic doctor, I was diagnosed with calcaneal bursitis. Some big word for my ten year old mind that meant walking was going to be a bitch now. One day at practice, while jumping from the low bar to the high bar, my right hand slipped and I swung around, slamming my head into the metal beam which held up the bars. I knocked myself out for a few seconds and woke up on the floor with a few teammates and my favorite coach Steve crouched over me yelling my name and “What happened?! What happened?!” as though he were angry or something. Of course, he was just worried. The E.R. later diagnosed me with a concussion and told me to take it easy for a few days. I had an enormous goose egg on my head and a scab on my nose. I brought that goose egg to show-and-tell the next week. My friends were impressed.

One by one, the signs revealed themselves that I wouldn’t be able to continue gymnastics. I felt like John Elway when he cried during his retirement speech and uttered “I can’t do it physically anymore, and that’s hard for me to say.” It sucked, because I was good at gymnastics, and not much else. I ended up “retiring” at the ripe old age of 11 and it was a terrible decision to have to make. I tried other sports and hobbies that weren’t as physically demanding, but I mostly sucked at them, and none compared to what gymnastics offered me.

It’s funny to think where I’d be had I not gotten sick and stuck with gymnastics. I showed a lot of potential. My coach Steve even pulled me aside one day and said if I stayed on track, I had a shot at Olympic tryouts for Salt Lake. It was probably something like a 1 in a million shot, but still, just him believing in me meant everything. Who knows where I’d be. But once again, the illness was making decisions in my life that I wouldn’t have made on my own. Similar to last year when I retired from my work at the gallery. I wouldn’t have made that choice on my own either. But sometimes I wonder if I was given this illness because the great designer of my life knew I wouldn’t make those choices on my own. I would only choose them out of necessity. And these choices, will bring me to exactly where I’m supposed to be. We have a tendency to think only we know whats best for us. And that was the root of my anger back at age 11 and more recently last year when I felt I wasn’t being dealt a fair hand. Periodically, usually in stillness, I feel the wisdom of something else at work in my life. When I start to trust that wisdom, my life isn’t so much something I own as it is an energy, a cause; a vehicle that I simply need to ride in (and enjoy) the paths shown to me, not get angry at the ones that didn’t materialize. Tolle puts it this way:

To complain is always nonacceptance of what is. It invariably carries an unconscious negative charge. When you complain, you make yourself into a victim. When you speak out, you are in power. So change the situation by taking action or by speaking out if necessary or possible; leave the situation or accept it. All else is madness.

So there you have it. No more whining about who I was, what I had. I need to stay present to who I am now. What I have now. And right now, I have some embarrassingly ridiculous gymnastic photos for your viewing pleasure…Feel free to point and laugh.

Health, Happiness, and Awesome 90’s Photos.

From Bed.

It’s with a general heaviness, random panting, irregular heartbeats, in and out of focused vision, an incredibly determined migraine, and somewhere around 2-3% energy that I write todays post; pale faced and slow moving. I said I’d write good bad or ugly, so here’s sticking to goals. I’m sitting up in bed, with the computer propped up on a pillow and pill wrappers and bottles skewed about the room. If you didn’t know any better, it’d be anyones guess what’s wrong with me. Aids? Cancer? Recreational Pill User? I don’t even say the name anymore when people ask. “I have health problems.” It’s surprising that people don’t follow up after you spill that general type of information. They usually nod and that’s the end of that.

Poor Monty. I always feel bad for him on days like today. It’s beautiful here. Sunny, cloudless. I hear the neighbors who are sitting out on their docked boat- they must have an awesomely hilarious guest over today because they keep erupting in this uproar of laughter and somehow, it helps. I like hearing it, even though it doesn’t involve me. Monty is wondering why we are indoors when the weather is what it is. And yet somehow he knows. He doesn’t insistently paw at me and make the whiny strange sounds of a dog trying to speak a humans language in an attempt to get me outside. He sees the signs and lays down next to the bed. I left the door open so he can come in and out as he desires but he stays in here next to me. What a friend.

As usual, I try to connect the dots. This is the fourth migraine this week and my medicine is running dangerously low. Insurance only pays for 9 tabs a month of Frova, (it’s a new one I’m trying) and I used up all the maxalt already. I ask the pharmacist how much 9 tabs of Frova is out of pocket and she clicks away on the keys and I wait for the damage. “Two hundred and thirty dollars,” she finally gets out. I laugh and she, sympathetically, laughs too. “Sorry.” “It’s OK.” But we both know it’s not really OK. It’s strange that a company decides how much medicine they’ll cover for you in a month, almost arbitrarily. It’s strange that someone who needs the benefits of insurance the most is often denied. Strange that the cost of healthcare under an insurance policy is of an affordable, negotiated rate and yet if you aren’t covered those rates are 200% more. That’s one way of saying it. Strange. I count my three remaining pills and send a prayer to the universe to let up on these train wrecks of migraines I’m getting. Most likely, I’ll have to dig in out of pocket again and feel that scary, hopelessness of watching my parents savings go to pills. I cringe when I think how much of it has already gone to medical expenses. Too much.

But there’s no sense in fearing it, in having anxiety over it. It’s our livelihood we’re talking about. “What’s the alternative?” my mom asked as we were going over finances before my visit to the CFS clinic in Miami last year. “Sit around and suffer endlessly while holding onto our savings?” The truth is, we’ve been rich and we’ve been poor. We, like so many families, have felt the sting of the placid economy in the last two years. My mom and I are unable to work, so my step-dad has been the only one bringing in income. And his workload has been lower than he’d like, but you do what you can. Today, we’ve got a roof over our heads, food on the table, and we have our damned pills. So no stressing about when the money runs out. My dad told my mom never to worry about this sort of thing. That she and the kids would always be provided for. And so far, he’s been right.

I know this sounds like a sob story of a post, and I don’t want it to be confused with a cry for help or plea for sympathy. It simply is the reality of this illness and day-to-day life. There are so many people out there who don’t have a parent’s couch to crash on, who don’t have their parents to pay for medical needs, and are forced to work fulltime–through the pain, exhaustion, and ache of this, and most of the time it’s silently, because no one really gets it. Telling your boss or co-workers you have “Chronic Fatigue Syndrome” doesn’t seem to go very far. Many times it worsens the pain from the sting of not being believed. When I told the owner of the gallery what I had, he suggested yoga, and I contemplated shooting myself. But once again, my point, is that you don’t have to be believed. Don’t make that your cause. They will or they won’t believe you. Only you can know what your battle consists of, and we live among so many who are fighting quiet battles of their own. We aren’t the only ones; far from it. You can only do you, and you can only do today. All I can tell you, like my mom tells me, is that there is so much research going on right now–More than there ever has been, and there is this tangible feeling of hope that comes to me at night sometimes that there is an end in sight. We will get there. So hang on.

Probably the rest of today will be like spent like this, in bed. Luckily I’m reading an incredibly good book (Freedom by Jonathan Franzen; if you’re couch or bed bound these days, or simply looking for a great read, I highly recommend it.) so I’ll have that to carry me. My migraine has finally subsided enough to where I should be able to read sentences and actually comprehend thoughts without wanting to vomit. His writing is incredible. It’s more than just a wonderfully told story, it feels like a literary education in itself. I underline all the words I don’t know in blue. I’m in love. Anyway, it’s time to rest some more. Which will be followed by more resting. And then possibly I’ll conjure up some energy and brush my teeth! May even get dressed! If I’m feeling really adventurous, I may even braid my hair! Nah, who am I kidding. I’m just going to read.

Health, Happiness, Bed Bound.

Speaking of Death, Let’s Talk Birth.

Before I begin about birth, I have to share quickly a dream I had the other night, after I wrote the post about death. As I laid down to sleep, I sent a little prayer to the universe. A prayer to help me not be afraid of death or the unknown. Since I happen to know a lot of people on “the other side” I asked them to show me, give me a little hint of what dying was like, in hopes it would calm my fear about it. I fantasized about having a dream in which my dad took me through the stages of death and we ended up at the end, at the gates, where all I felt was love and happiness and I most defnitely did not feel pain or sorrow, and I would wake up reassured. Maybe he’d show me what it looked like. Maybe he’d even tell me how I’d go. And in my morbid little mind, that would be a fun dream. After dying so many ways in my dreams for years, I’ve become somewhat desensitized on the matter. Well that and experiencing death at such proximity at the age of 12. What I’m getting to, however, is that I did not have a dream like this. In fact, I hardly remembered any of my dreams from the night before, which for me is unusual. But there was one dream–if you can even call it that. It was more like a very short “scene” I was in. I was crouched down under some flat rocks. I don’t remember being alone but I don’t remember who accompanied me. Above us, over the flat rocks, was a stampede of rhinoceroses, running full force and I could hear the pitter patter of their feet and watched as little tiny rocks spilled into the hole in which I was huddled in. That’s it. I remember knowing in the dream that this was my answer from the other side, and sort of chuckling about it. I’ve never heard anyone relate death or the afterlife to a rhinoceros stampede, but the subconscious works in symbols, not plots. So I’ll have to get my mom to help analyze this one. It was still fun to at least feel like someone or something had heard that prayer I sent. Ask and you shall receive.

But enough about death for now. Today wasn’t filled with thoughts about death and the end and the sometimes mentally paralyzing mystery of life. Today, I thought about life and beginnings. Last night, I had a dream that my brother Nick sent me a text message which read “It’s miraculous. It’s real.” Somehow in the dream I knew that he meant his wife was going into labor. When my eyes opened this morning around 9:30 to yet another killer migraine, I picked up my phone to see a text message from Nick. “Estee’s water broke.” I smiled with relief. Finally, she was going to be here, and I was going to be an aunt for the second time. No more talking about the baby in future tense, no more guessing who’d she look like and whether she’d have Estees genes and be on time or Nick’s genes and be late for everything. She was going to be here in physical form now. She was going to be her own governing self.

As much as death mystifies me, the process of conception, pregnancy, and labor mystify me just the same, if not more. I remember learning in anatomy class many of the things that have to go right in order to conceive and carry a child. Once hearing them, the idea of it all sounds impossible. And yet, we do it. It is natural somehow. Nick’s text message in my dream is just how I feel about all of it; that it’s miraculous.

Welcome to the World.

At 6:41 this evening, I received the first photo of her. 8.2 pounds. “Say hello to Olive Marie Gelpi,” it said. I stared and became a little lost in the photo. She has these big cheeks and beautiful hair and looks excessively calm. Something about a new life inspires even old souls; looking at the photo I felt this strong sensation that humans are the most capable creatures on the planet. Here Olive is only a few hours old, and already her path is being built. The energy is changing. I’m not even her parent, but here I am gazing at this photo and thinking of all the things she can do. I want to tell her that too–that she can do anything, Like some cliche high school year book signature. Dear Olive, Reach for your dreams! You can do anything! But these were the feelings popping up in me. Mostly I just feel happy she made it. 10 fingers and 10 toes as they say. Baby and mom doing well as they also say. The most beautiful part of today, is that a child was brought into the world first to two parents who want her and love her, unconditionally. Just for showing up, they love her. This is a good start. And then to two sets of grandparents who love her and will inevitably spoil the crap out of her and show her that she matters. And then to three aunts and two uncles who will tease her to toughen her and help raise her in every way we know how. If it takes a village to raise a child, I’d say she has a pretty good start. Today I’m not thinking about sickness and death. Today I’m thinking of human possibility and what we’re capable of. And it suddenly feels like a lot.

Happy Birthday Miss Olive Marie. I can’t wait to see who you are and what you will do.

Health, Happiness, Possibility.

Let’s Talk About Death. Yeah!

Once again it is nighttime and everyone is sleeping, but me. This is often how I spend this time of night; listening to the in and out breaths of humans and/or dogs around me, and thinking about how everyone including me and including my dog, without hesitation, is going to die. I can never figure out why this thought drowns me at times. But sometimes it’s so incredibly real that I have to talk myself out of thinking about it. Like eternity. Like time and space. Sometimes it’s too much.

And other times, also mostly at night, I think about what an elephant in the room it is; that we’re all going to die, and nobody is talking about it. And if you try to talk about it, you’re either morbid or misunderstood, or both. And that doesn’t make the infringing feeling of The End feel any better. I think about death in many capacities, but mostly I think of it in my own terms. How will I die? How old will I be? How does my story end? These are all silly meaningless questions that I can’t know the answers to. So why are my dreams filled with me or Monty dying all the time? And why do I always stop at the obituaries section of the newspaper? I’m pretty sure that means I am morbid, and that’s been something I’ve insisted I’m not. Crap.

You know what happens when there’s an elephant in the room that nobody talks about? Well actually, I’ve never heard the answer to the proverbial question, but I think it goes something like: Eventually the elephant poops and everyone at the cocktail party is like “Hey!! There’s elephant poop in the middle of the living room!” and everyone freaks out and screams and before you  know it your guests have ruined their shoes and saying “We should have seen it coming.”  If they just would have  talked about the elephant in the first place, it wouldn’t be such a surprise coming across elephant poop in the living room! Get it? Human Death is the elephant poop in this analogy. Did I make that clear? I’m not very good at this. AM I. Anyway, I use that analogy because when someone hears about someone dying, it’s exceptionally hard to grasp the idea. It is sad. It is tragic. But no one ever says “Mary died today, and this was supposed to happen.” I hope someone says that on the day that I die. But what we say is “You’re kidding! It’s not right! It’s not fair!” As if we were ever promised to live forever. As if dying wasn’t a part of the deal the whole time. Funny how we act about that.

Maybe all this death talk is because I’ve been feeling so deathly lately. I was on a pretty good streak for a while there, I’d been doing better than normal. My energy level was up and my pain tolerable. As a result, I pushed myself a little bit over the edge so today when I softly blinked my eyes open around 7 AM my head was like GOOD MORNING YOU HAVE A MIGRAINE TODAY. And I was like, “Loud and clear. Thanks, head.” Not the best way to wake up, but once again modern medicine rescued me. Now I am migraine free, but wide awake and wondering if I should sketch out my funeral plans. OK, sorry, I’ll stop with the morbidity. But I’d like to let it be known, it doesn’t depress me to talk about death. In fact, it excites me. I don’t think you should sit around sulking all day. But I don’t think it should be avoided like it is. Once my brother Nick and I were talking about it, and he said “I mean, it’s gotta be a cool experience, right?” And I totally agree with that. Death has to be cool. But most people don’t wanna talk death with me. They wanna talk about birth control or facebook or Mitt Romney and sometimes while people are talking, the words “We’re all going to end up dead,” are circling around in my mind in one of those cartoon bubbles.  And I say these words with joy! I swear. It doesn’t make me sad. It’s just such an incredible mystery. Why aren’t we talking about it?! Can’t a girl just get a cup of coffee and have a light hearted conversation about life and dying and tentative funeral plans? Good grief.

I guess I am still working out my death issues. This is the part where I wish I saw an analyst so I could say “My analyst seems to believe I am going through a minor existential crisis as I confront my own mortality and begin to humbly accept that this life, while precious, is temporary.” But I don’t. Analysts are expensive. And my mom is pretty good in these areas. Anyway she says the death dreams are just my subconscious fears playing themselves out. I suppose it’s your basic fear of the unknown. Plus, its not like I’ve been able to ask any of the people I know who are dead to tell me about the whole dying thing. Wait, that is a really good idea. Why haven’t I asked all the dead people I know how the whole dying experience is?! Duh, I have so many sources! I’m going to say a little prayer tonight, ask for some answers, and hopefully stop thinking about the things that I cannot control and that I can’t know now. Everything in due time. Everything.

Health, Happiness, Elephant Poop.

 

Camp Quiet.

There is so much noise in the world. There are a million distractions. Even our human conversations are half the time interrupted by a person who isn’t there– by the noise of a cell phone. So many times, hanging out with friends turns into a group of people in a room, glued to their phones, playing a game called “Hanging With Friends.”  Oh, the virtual irony of it all! Sometimes I look across a dinner table and see all the tops to peoples heads, faces down, and no physical engagement. The restaurant I used to waitress at had four year-olds on ipads or iphones while the adults would eat and talk. It wasn’t so much that the children were well behaved, they were simply well distracted. And half the time the adults were just as pre-occupied. I watched couples sit in silence, one or both engaging with a gadget, missing out on each other.

It’s easy to see how this has come to pass. There are more reasons than ever to be looking down at something, than actually at someone. There’s email and texting and facebook and twitter and gaming and music and foursquare and youtube and pinterest and stumble and the blogosphere! Woo hoo! All of these things make a lot of noise and take up a lot of space, but there isn’t necessarily much substance there. You can’t stay engaged in a virtual world forever. We are warmblooded, social animals afterall, we require the warmth of another body and the sound of anothers voice. We simply do.

We’ve taken what started out as means to enhance communication, and almost gone the other direction. We’ve replaced calls with texts and jokes with smiley faces and flirting with poking. And no I don’t mean physical poking. I mean on facebook, you ‘poke’ someone, (meaning someone get’s a notification which reads intimately ‘You’ve been poked’) and if they like you, they ‘virtually’ poke you back. I can just see my grandparents trying to learn the nuances of social networking– simply turning around and saying, What the fuck? Don’t people talk anymore?

And we do. Of course we do. But I’d argue we’re digressing a little bit. So many times, we’re talking about facebook, or what we saw on Twitter. We’re fighting with our significant others about their profile picture or what some girl commented about on their wall. This is not what we should be arguing about. Couples need to fight. It’s a necessity, but not about this. This just feels…wasteful. There’s no winning the argument. And the other half of the time I call someone, I’m crossing my fingers that I get their voicemail! What’s that about? Well it’s no secret, I’m socially lazy and have never been the proactive friend. But I see these trends among everyone I know, including yours truly. Just a few weeks ago I yelled at Gabe for his profile picture, only to realize in silence later, I was acting like a complete douche. But these kinds of networking seem to encourage childish behavior like this, because the activity on it is almost childlike itself, and most of it is so unauthentic. Do you ever notice how cool most people seem on facebook? Like everyone has this awesome life and is beautiful and happy and living the dream? Knock knock knock…if you’re living the dream, you’re not busy uploading photos about it. You’re just living it!

I know it sounds like I’m spitting a lot of hatoraide on social networking when in truth I should praise it. Facebook, afterall, is the reason my blog went viral and I actively participate in most of the networks I’ve mentioned. There is an inherent need in all of us to share our experiences with one another. It’s how we bond and form closeness and facebook enables us to do that. Helllllo, I’m the girl that texts photos of my dog to people and devoted an entire page of my blog to him. Imagine how I’ll be with children! But the point is this; moderation. Everything in moderation, even moderation in moderation. And that is not where we are. We are in excess. It’s why we list our meaningless errands on facebook, ‘check in’ at a grocery store and boast 3,000 friends and only know about 20 of them. It’s also why we plan our entire weddings on pinterest (significant other or not) and why Justin Bieber has more than 18 million followers on Twitter. There are perks, of course, and these things are meant to be fun, which they are. But let’s just call it exactly what it is. Facebook is a bunch of faces, circulating in the web abyss, just attracting onlookers. Doesn’t seem like we should take it at face value. Notice the format has changed from having your profile as the main page, (the part that attempts to describe who you are) to having a wall and photos be the main page–Much quicker and easier to gauge someone this way. And we like things quick and easy, don’t we?

I often wonder what the effect of all these distractions are on everyone. Certainly our social habits have changed, and our conversations have changed. More than anything, I think we’ve cancelled the quiet. We are very rarely without our phones. Have you ever watched someone who’s phone battery has died? It’s like a natural disaster has struck. “Do you have a phone charger? I’m freaking out.” Most of us feel naked or vulnerable when we aren’t connected, when we’re off the grid. But what we should feel is alive. We should love those moments when no one can reach us, when the only voice we can hear is our inner voice, something we probably don’t listen to enough. I think my generation is missing something very basic that every generation before us has had: silence. We are always on. Always reachable. Always plugged in. Rarely do we listen to what silence or stillness has to say to us. And both these things have vital things to say, we’re just not accustomed to listening that way.

My time in Florida has had a lot of quiet, which I needed. I’ve done a lot of reading here and just listened outside to the sounds that the things which reside here make. (Side note, the tropical birds here make some freaky deaky sounds, fo real.) Timothy Leary told his generation in 1966 to Turn on, Tune in, and Drop Out. Even though his slogan was widely misinterpreted to mean ‘Get stoned and abandon all constructive activity’ what he really tried to convey was a life of examination, involvement, and autonomy.  I’d argue his slogan is just as applicable today. (Or maybe the opposite, maybe we all just need to get stoned and abandon our work, man.) Mostly, I recommend we look each other in the eye and enjoy each others human-ness. When you ask someone how they are, mean it, and listen to what they have to say. At dinner, eat dinner, and talk to who you’re sharing it with!  And if your phone dies, let it die. Just try staying shut off for a few minutes. I promise you, the voicemails, texts, and emails will all be waiting for you when you get back. Maybe even that cute boy you like will have poked you.

Health, Happiness, and Shhhh, Quiet.

 

Sounds.

If there’s one thing I love listening to, it’s the idle conversations between couples. That casually themed chatter is sometimes the most revealing and genuine to witness between a couple and I love hearing it. I spent so much time in our office last year. It being attached to the kitchen and me being attached to the couch put me in prime eavesdropping territory. My eyes were often closed and for a little while each day, I experienced life purely through sounds and every once in a while, through smells. That became some kind of fun for me. The game changes when you’re couch bound. You come up with new ways to pass the time. And your attention pays itself to things you never noticed before.

My step-dad is usually whistling when he enters the kitchen, and the last note always has a strong bravado, which is impressive, because not everybody can do it. If it’s first thing in the morning he empties the ice maker into the sink that is inevitably clogged and frozen over from the night before. It’s been broken for a while now, but it will most likely be some ungodly amount to fix it, so we haven’t yet. If anyone is in the kitchen then you can bet on Monty being in the kitchen, too, his paws lightly stepping just behind whoever’s in there… Just waiting for something edible to drop. And no matter who it is out of all three of us, we all say “Hi buddy!” when we see him, in a usually very high pitched voice. I can almost hear his tail wag back.

My mom is a softer walker than my step-dad. Her feet “slide” on the hard wood floor and I notice mine do the same thing. Maybe it’s the fibro. Too weak to pick up our own stupid feet. Marc walks with purpose. My mom sortof glides; her feet swish between steps. Sometimes she walks in a room, looks around and then squints her eyes and says out loud “Now what did I come in here for?” From my lifeless position on the couch, sometimes I try to guess. “Reading glasses. Kool Aid. Drugs.” I hardly ever get it right.

My favorite sound from the kitchen is the sound of coffee being made, but that’s mostly because I love the sound that the cannisters which hold the coffee grounds make when you open and shut them. They’re those flip-up air tight stainless steel containters, and something about the sound eases me. Then the filling of water, the pouring of water, the spoon from the drawer, and the grunting burp the machine makes as the first few drops peep their way out. I like the sounds of the whole method. And the finale; the cup clinks on the marble counter, the pouring into the cup and the topping off with cream. It’s a nice process to listen to and I never get tired of it.

But back to these idle conversations. I’m not sure precisely when I started to become so fond of them, but I really do love to hear them. Usually it’s about groceries or about who called that day or talk of how his clients are doing and how one says to say hi, says to feel better. And its usually against a backdrop of dishes being loaded or soup being made or ice being dumped or something equally mundane, but there’s something reassuring about it. Something very real about it that makes me feel like everything is OK. Maybe it’s because there’s been enough heavy stuff in life so these moments where my mom is rearranging items in the fridge and we’re talking about whether we want homemade chicken noodle soup or vegetable beef soup is something to relish. Because those are simple and pleasurable decisions to make. Ones I will never get tired of making, or listening to.

I find that it’s a habit I’ve carried with me. Now I sit in one room and listen to all the sounds unfold in another. I still love listening to couples talk about nothing. I like hearing how they greet each other first thing in the morning. I especially like when I hear a couple laugh, just the two of them. I even like to hear them argue! But the harmless kindof arguing, not the arguments that stem from not loving well. I realize this makes me a bit of a creeper, but we’ve discussed this. I put it all out in the open about my creepy tendencies when I wrote about stalking girls wedding albums on facebook that I wasn’t even friends with. Creep. er.

Anyway, I’m not writing from the office these days, from my couch that I was essentially physically attached to for so long. I’m a bit more mobile now. But I still think about for how long I layed in that room, quiet, and listened to what life sounded like. It’s funny that sometimes even listening to idle talk about soup and groceries still somehow managed to make me feel like I was part of the conversation–that I wasn’t so far from life. I still lie in rooms listening to parties or whathaveyou in the next one over. Last night I was listening to friends playing Catch Phrase, and I knew one of the answers and couldn’t keep it to myself so I belted it out. I knew the next answer too, so I belted that one as well. I heard them cheer, so finally, I got up, and joined the game like a normal human being. You can only listen to the next room for so long. At some point, you gotta crawl out of the cave. It’s something I’m working on.

Health, Happiness, Noise!

Couch Crashing.

There is something I’ve become pretty good at over the last year that I would’ve never really expected, being a sick kid and all, and that thing is adaptability. Since giving up my apartment last March, I haven’t had a real home that I consider all mine since. All mine: that’s a phrase we humans love. I have jumped from house to house, state to state, with a small bulky suitcase and a bag full of pills for a solid year now. I’ve turned into a professional couch crasher. I have found that I encounter home in many places. That studio apartment that was all mine was just one of them. I remember cramming the last of my remaining boxes into my corolla and turning in my key to the landlord last year. It was a terribly sad day. Currently I’m writing from Tampa, Florida, nearly a year since that day, and I am suddenly feeling the freedom of not owning anything anymore. For so long I was trying desperately to keep everything I had, like a squirrel stumbling around hanging on to too many acorns, because they were all small symbols to me that my life was together and I was together and I could do it on my own. But finally letting those attachments go (and accepting what was true) has opened up a new freedom. Basically everything I need I can fit into this green bag I bought a couple of years ago. Except Monty of course, he doesn’t fit. But he made the 10 hour drive to Tampa, and is an incredible teacher of what it means to be adaptable. See?

I think he likes it here.
See?

I don’t know how long I will be here or where I will go next. At some point I plan to go to Colorado and stay with my grandma for a while. And at another point I’ll make it to New York because my brother and sister-in-law will be having their baby in a few weeks. I don’t have a distinct plan. Which is very much my style because about 95% of the plans I make do I ever follow through with anyway. So in this new style of life, I just sort of go where the wind takes me, and on my own terms. I am lucky to have such loving and welcoming people in my life who have all said in their own way “Sure, I have a couch you can sleep on.” Of course they don’t mean permanently and I never intend to stay forever, but there is sort of an unspoken agreement between me and my hosts: Stay until it’s time to go. Last year I spent two months in New York at Nick and Estee’s. (The soon to be parents) Then I spent a month in California at my sister and brother-in-laws house. Then a little time in Miami for Nick and Estee’s wedding. Then it was back to my parents house, and floating around on couches in New Orleans, recovering, writing, and living a non-traditional nomadic life. I have finally grown accustomed to living unplanned, undecided, and out of a suitcase.

I still look forward to the day when things are settled down, when I finally have a home base, and when I can answer this question a little more easily: “And so what do you do, Mary?” I love that question. And by love I mean despise. How does someone like me begin to even remotely answer that question? Usually I say “Oh, I live with my parents and yell at the TV when they watch Bill O’Reilly. Sometimes I take showers. What do you do?” I think now I have a better answer. I’m a nomad. But instead of wondering in fields, I crash on couches. At this point, it actually does feel like my vocation. Like I’ve been called to wonder around the world for a while, and figure out how to live well even though I’m not. It’s certainly been a learning experience, but I know I still have a long way to go. Like my mom always says, Just do today. Today I’m in Tampa, it is sunny and warm and Monty is fetching sticks in the bay. Somehow after the journey here, I still haven’t crashed. I woke up with a pretty killer migraine this morning but the medicine took care of it and I don’t have that typical Feel-like-I’ve-Been-Hit-By-A-Truck-In-the-Face feeling. So I am grateful for that, and trying not to harp on it for long. Sometimes I fear if I think too much about it the good feeling will go. So I’m not questioning it, I am just grateful.

I think more than any physical place, my notebooks have been my home. Writing often reveals to me what is true and real before my own mind can recognize it in the world. I know that writing is a way for me to find truth and tell the truth. It might be why I get anxiety just before I sit down to write, but after I finish, I feel better. Lighter. And if I’ve written correctly, I always walk away with more clarity, more light in the room than before. So I won’t concern myself too much with what house I call mine for now. Maybe home is more an internal thing than anything else. For the time being, home is on paper, and deep within.

Health, Happiness and Nomadic Tendencies.

Trusting the Battle

I’ve received quite a number of emails over the months and read many responses from people who ask how I stay so positive, happy, and humorous among illness and all the things I’ve lost. It makes me smile to read emails like that because it’s sort of like “Oh, haha, these people think I’m happy and have my shit together.” The truth of the matter, is that happiness is something I work at, every day. I mean that. I’m not a naturally chipper person. Especially in the mornings. Most days I don’t feel incredibly alive until about 7 pm. I don’t have a ton of friends or a blooming social life. I am OK with that as I’ve always been someone who enjoys solitude. But I just don’t want to give the impression of “The grass is always greener” over here. I’ve gone through a lot of heartache and despair. I’ve just made it out on the other side. But I still struggle with optimism and simple joy. Writing here has enabled me to find the lessons that were hiding beneath the tears and sickness and loneliness. So sometimes it appears that I’ve got it all figured out and wake up whistling the tune to “Oh what a beautiful morning, oh what a beautiful day…” I don’t. I work to find the beauty and meaning of every day of my life. And many times, I fail.

I have been prone to periods of despair throughout my life, especially last year. One day in February, I cried almost the entire day. I kept thinking I would run out of tears, and I never did. As soon as I’d finish blowing my nose and wiping up my face, I’d sit down just to have the tears return and my heart go back to aching. That night, my mom brought in tomato soup to my room and made me eat even though I had no appetite. There I was at 26 years old, being spoon fed by my mom. It was humbling, but also a really beautiful moment to know that even in all of the isolation I felt, someone was still there to feed me, when I didn’t have the strength to feed myself. She talked me through the pain and the tears, many of which were falling in the orange liquid in the bowl and making little ripples like a rock in a pond. I remember how sad and hopeless I felt that night, distinctly. But, I made it through, with the help of my mom. It wouldn’t be the last day where I felt like I was drowning in the sadness of my own story. But each of those moments when I reflect on them now, were revealing something quieter, and not as easy to see. In my anger that I had to move back in with my parents, I missed the fact that I was lucky to have somewhere to go and have someone to take care of me. In the sadness of losing my job, I skimmed over the idea that staying there would’ve made me sicker, possibly to the point of no return. Last year revealed many moments that at times would suffocate me, if I looked only at those moments. But life isn’t isolated that way. In every moment of darkness, something else is revealing itself, if we choose to see the whole of it. A lot of times, I had to stop feeling sorry for myself and take an honest look at the way things were. This was not easy, and it still isn’t easy. It’s work. Like Nepo says “This is the trick to staying well isn’t it; to feel the sun, even in the dark.”

I still struggle today in finding the meaning of my life. But further than that, I struggle with general happiness. I sometimes slip and get stuck in a hole. At times it feels easier just to be depressed or angry. And momentarily I guess it’s OK to feel those things, I just know that the only times I’ve been able to move forward is when I choose to look honestly at my experience and try to see what it has to offer, not what it has taken away. Staying mad, staying sad, saying ‘It’s not fair’ just keeps me in the hole. And who wants to live in a hole? It’s dark down there!

Everyone is fighting their own battle, whether it shows on the outside or not. We often assume everyone else is happy, has an easy life, and could never understand our struggle. I often felt that way last year. But that thought is not only our ego trying to isolate us, it’s false. Peel back the layers of any person, and you’ll see the battles they’re undergoing and the scars they carry. I have mentioned this before, but it is something that has stuck with me for a while. Trust your battle. Trust that the life experience you were given is exactly what you need. The lessons you learn will become the whole worlds lessons. Wayne Dyer says to find the lesson, you have to actively ask each experience “What is this here to teach me?”

So that is what I’m working on; not only to seek the lessons of my experience, but to try and live each day happily and with ease. Again, it’s something I have to work at. Sometimes I get so wrapped up in the questions and mysteries of life, that I miss the simple pleasures. I could spend all day wondering and fearing whether the sun will rise tomorrow, and wrapped up in that anxiety, I miss the sunset. I’m going to try and trust my experience and my battle. I’m going to stop wishing for a life that isn’t mine. And I’m going to try whistling that tune “Oh what a beautiful morning, oh what a beautiful day…” every morning. Because my grandma always whistles that tune, and I’ve yet to meet anyone happier.

Health, Happiness, and Battles.

 

Some Lessons of Love on Valentines Day

I’m told that you learn how to love from your parents. So on this International day of love and cheap Walgreens chocolates, I’m going to share the lessons of someone whose influence has been huge and far reaching- My mom. Here is a part of her story.

My mom and dad met on a blind date set up by their two best friends. It was only meant to be “friendly” and an innocent night of fun. Neither my mom or dad were fully on board with the idea of it, but they were told “It’s just dinner. What’s the harm in that?.” What was promised to be just dinner, ended up being the first night of a journey that would lead to marriage and four kids. Bam! In 1993 my dad was diagnosed with cancer. There was a lump underneath his belly button which had been there a while. It hadn’t really grown or changed but to be on the safe side they went in and removed it. Upon opening him up, they saw that not only did he have cancer, but that is was so widespread they couldn’t even locate the origin. So we were never told he had “lung cancer” or “stomach cancer.” He had whole body cancer! He was given six months.

We were also told the cancer was too far spread for chemo or radiation treatments to be effective. My dad wasn’t thrilled with this prognosis, so he devoted himself to getting well through a hollistic approach. He cut out white sugar, white flower, meat, artificial everything, and drank so much homemade carrot juice that his palms turned orange. He lived in great health for three and a half more years to the surprise of all his doctors. But ultimately he lost the battle. After he died, I remember my mom saying “I could never love someone the way I loved your dad.” And it was pretty well understood and accepted that she wouldn’t marry again.

But four years later, she was set up on another blind date which she again resisted strongly and almost bailed out on minutes before. This time it was a different set of friends who set her up, but the promise was the same. “It’s just dinner. And we’ll be there the whole time.” Well wouldn’t you know it, sparks flew that night too with Roger. (We liked to call him Roger Dodger) And six months later, they married. I remember my mom saying, “When you get to be my age, you just know these things. There’s no reason to wait!” He had two kids from a previous marriage, so now altogether there were three boys and three girls. We were literally the Brady Bunch, just far more dysfunctional. But it was a really incredible thing to see my mom so re-energized again. Roger was very different from my dad, but it didn’t seem to matter. He brought her back to life.

Five years later, I was a junior in college at LSU. I remember this Tuesday morning distinctly. I was brushing my teeth and going over a case in my mind for my Media Law class that I was running late for. My cell phone started ringing and I saw it was my house. When I answered, I heard the horror in my moms voice. She could hardly get the words out, but she does. “Roger died last night.” He was in Florida on business and died in his sleep at his hotel room the night before. He was never late, so when he didn’t show up to work the next day, they knew something was up. The autopsy revealed it was a heart attack. I kind of gasped for air when I heard my moms words. In a moment it felt unreal and disgustingly real simultaneously. I was trying to process what she had told me as I packed a bag when it hit me- the icing on the cake of this surprising and sudden tragedy–my sister was getting married in two weeks. And here’s the cherry on top– they were getting married in the very same Hall that my mom and Roger were married in. As my sister Amelie so eloquently put it, Are you fucking kidding me?! It was unbelievable. I hopped in the car and made the hour and a half drive home, in shock. It felt like a 10 second drive.  Doug, Nick and Amelie were all in by that night as well. Roger’s kids were in the next day and we all put our heads together and began the “making arrangements” process. Sometimes I still look back at all that and think, did that really happen?

So we Gelpi’s do two things really well: Weddings and funerals. For one thing, we’ve had a lot of practice. We planned and executed the funeral, and then prepared for my sisters wedding a week later. Somehow, the funeral was beautiful and seemed just how Roger would’ve wanted it. A lot of people spoke, including his son who’s words were poised and beautiful. The service took place outside in the 3 acre garden he created. As depressing as it was, somehow it still felt right. The next weekend, it was time for my sisters wedding. And it was a blast. Still one of the best weddings I’ve been to! Everyone smiled, laughed, and danced, including my mom. Sometimes I think we should start a business where we plan both weddings and funerals. I must say, there’s not SUCH a difference. Each involve an absurd amount of flowers, a lot of drinking, and usually someone saying something inappropriate. There’s just more dancing at a wedding! Anyway, the next year involved a lot of cursing and yelling at God. A lot of questioning life and existence and the universe and a lot of crying and flipping off the sky. But in very quiet moments, in stillness, I felt reassurance. I could feel that this was not how the story would end. It wasn’t over; not yet.

Just over a year later, my mom was at a bar-b-que at some of our best friends house, the Pastoreks. Paul Pastorek was one of my dads best friends. They were the family we’d take ridiculous annual vacations with in the summers. We were extensions of each others families. Anyway, while at the bar-b-que, my mom met Paul’s brother, Marc. Somehow, in their more than 20 years of friendship, my mom had never once met Paul’s brother, until today. You can go ahead and guess where this is leading. Yep! They ended up falling in love, too. Just over a year later, they were married on a mountain in Colorado. We joked about who was crazier; my mom for taking another chance and marrying again. Or Marc, for taking a chance and marrying a woman with two dead husbands! The first song we danced to at the wedding was “Stayin’ Alive” by the Bee Gees. It was both irreverent and inappropriate, just like all of us. Once again, we danced all night. It was perfect.

Taking the plunge, part 3.

So now, the lesson. Only marry men with strong genes. Just kidding. I think the biggest lesson I have gathered from my moms story,  is that choosing to love someone involves incredible risk. There are no guarantees in life and certainly none in love. I think it would have been very easy for my mom to clam up after the first loss. And then to disengage completely after the second loss. Excuse my Jewelry commercial sappiness, but I think by keeping her heart open to even the idea of loving again, she was able to both give and receive it in spite of the track record. At Roger’s funeral, she stood up to speak to everyone’s surprise, including her own. But she said something came over her, and the first  thing she said was “To love is to be vulnerable to loss.” This is true for everyone. And that’s a scary thought if you harp on it too long. But the alternative, which is safety, bears no reward. And that doesn’t sound like much fun, at all. Most everyone I’ve talked to who has been in love, whether it worked out or not, says it was well worth it. A few nights after Roger died, a lot of people were over at our house. We were eating, drinking, and remembering, telling stories. At one point my mom was talking about their first date and how hesitant she was. At the end of the story she said “What can I say, given the chance, I’d do it all over again.” That’s what you call courage! I was in awe of her. And as I watched her marry a third time, change her name a third time, ‘do it all over again,’ take another plunge into the unknown, I knew I was bearing witness to a model for not only how to live, but how to love too. Get busy livin or get busy dyin! Am I right? So here’s to you mom, for doing it all over again, picking up the pieces and moving forward, and teaching everyone around you that love, while it is a gift, is not random. You have taught us well.

Health, Happiness and Love!