Lost & Found

But First.. Lost

I don’t remember what I did for Fathers Day 2020. Or Memorial Day or Cinco De Mayo or my brothers birthday. Much of the first half of 2020 feels like one long blur. Like a panoramic photo taken with the camera in motion. This is mostly because I was living what felt like the same day, every day, over and over. Each morning and the fallout that followed felt like an impossibly perfect cutout of the day before.

I can remember specifically the day before Mother’s Day, because my mom, who insists every year that we buy her absolutely nothing (a request that, every year, we reliably ignore) actually asked for a present this time: that I take a shower. Not because you stink, she assured me, I just know how badly you want one.

We both had to laugh at the request. Despite it being a painstakingly long shower that required way more effort than it warranted, and left me out of breath, I delivered. I owed the poor woman at least that much.

For all I cannot remember, the discouraged, scary and exhaustive moments stick out like thorns in my mind. I remember just how much I wasn’t doing–which was a lot. I practically memorized the lines on the ceiling. I remember how much help I required and how much I hated asking for it. I remember the enormity of things to figure out on my plate, and how impossible it felt to get any of it done.

Every morning, I remember dizzily staggering to the door to let Monty out, just so I could turn around and clumsily zig-zag back to bed and collapse like lead onto my bed. That was about as much as I could muster that first hour of waking. Summoning the strength for the crawl I’d have to make up the stairs for a coveted cup of coffee required a mental and physical preparation that you’d give yourself before running a marathon.  Every morning was a marathon.

Once upstairs, I’d sit with my coffee, look at a sudoku puzzle in the paper and haphazardly scribble in a few numbers. Then the post morning crash would settle in like a fog. It seemed like I woke up just to begin a slow decline back to where I started.

Monty would loyally follow me back down the stairs. Back to bed, back to life from inside a window. He’d lay beside me and sleep, but was on all fours as soon as I started to gently kick the sheets off. I felt terrible for the life he wasn’t living, on account of me. I felt terrible in general, for all the things I wasn’t doing. But mostly, in a word, I was simply<em>lost. I felt as though I were floating in the middle of the ocean without a speck of land or answers in any direction. I can’t remember ever feeling so lost.

An exacerbated number of symptoms seemed to swallow me whole, and a new set emerged that we couldn’t completely explain: A strange and unprecedented struggle to take a full breath. To breathe without having to think about breathing. An ulcer that would cause extremely painful episodes— where I’d lay on my left side, eat a handful of Tums and say the Hail Mary until it’d finally subside. I’ve never eaten so many Tums in my life.

I felt so far away from actually living. I rarely knew what day it was, or cared. Tuesday, Saturday, Memorial Day, it all felt like the same stretch of time. It didn’t matter. Time lost its urgency and importance. Sometimes it felt like it hardly passed at all.

Other times I felt I could watch it fly right past me. As humans, of course, we can witness the literal time pass. I’d watch neighbors go for walks and mow their lawns, usually in awe. I watched family bolt up or down the stairs to retrieve something, without a second thought. My aunt Amy’s energy seemed supernatural. Holidays and birthdays would come and go, but I remained stagnant. I did my best to keep up with friends back home, but talking on the phone really exhausted me. There were signs and sounds of life all around me, but so little of it left inside. It’s hard to believe that was just one year ago.

On top of my excessively depleted state, we had moved to a new place–meaning I would require new, local doctors to continue treating me. It meant starting over, and having no idea where to begin when the doctor inevitably asked “So, what brings you here today?” That *task* alone was one of the most psychologically exhaustive and traumatic events in recent memory.

Every part of it was problematic, of course, because ME/CFS is a <em>multi-system </em>disease, meaning it requires a multitude of doctors to address the various issues it causes. It felt like failure, again and again, being rejected by doctors who wouldn’t even agree to see me. Can I blame them? Maybe not. One look at my health records and it’s understandable why the average doctor would scare off easy.

A few of them, including an overly-confident son-of-a-nutcracker, yelled at me. He said the doctors who had put me on pain medicine had actually put me in a Prison. I remember him pointing his finger accusingly straight at me, chastising me as though I were a child who’d done something terribly wrong. I walked to my car shamefully and lost it in the drivers seat for a good twenty minutes after that appointment. I was never going to convince these people to continue to regimen I was on. If that were the case, I was about to begin suffering a lot more than I already was. I felt so afraid of how much worse things could get without the appropriate care. The ulcer flared in response. A wind pushed me out further into the sea. Directionless.

The night after that appointment, I laid awake and replayed his words in my head. It struck me that the guy had it completely backwards. The pain was the prison. The pain caused immense suffering, left me at times incapacitated and unable to do simple things. It kept me indoors. The medicine is what freed me from some of that extremely restrictive pain. It allowed me some functionality and a semblance of livelihood.Some of my energy could restore itself once my body (and mind) weren’t consumed with fighting pain 24 hours a day. How could a pain doctor have such a concept so blatantly reversed?

The worst part was knowing that it didn’t matter. Whether I was right or the doctor was wrong, the battle wasn’t one I could win. He had the power, and my disagreeing with his professional opinion wouldn’t change the outcome. That’s a lot on a patients shoulders. If you’re unable to convince people of the help you need, most detrimentally doctors, you’re not going to get any. I was stuck. Lost again.

That doctor was adamant that a spinal chord stimulator was absolutely my best option—something that both of my doctors at home completely disagreed with. Wasn’t a piece of machinery inserted into my spine just as much of a prison, in the context of his metaphor, as oral medicine? It surprised me that someone who called himself a specialist couldn’t see any of this.

More and more the conditions of my life felt further out of control. I saw life around me, and I felt the tiny seed of my life that once was, but it was all totally buried by layers of circumstance beyond my fixing. The psychological damage was hardest to address, and I struggled to summon the energy it takes to keep your mental health in check.

This is where a little thing called support made such an immense difference in my life. While people around me helped in my search for answers–which on it’s own is encouraging itself–I was constantly offered a hand, a shoulder to cry on, an ear to listen, and extremely positive words. Not out of touch words, but reminders that I was not alone, and in the meantime while I tried to find my way out of the hole, family and friends and extended family were looking out for me. Even if I couldn’t see a way out, people like my mom would gently remind me that we’d always come through in the past, we’d always found our way out of the hole and we would do it again. Even if that meant one day at a time–which is basically the only way to go when you’re in survival mode.

I clung to those small whispers of hope and reminded myself I had emerged out of these hole before. I had to work hard to mentally process each day and not become buried by the story I told myself. It’s very easy to see the world as conspiring against you. I remembered the words of Paulo Coelho: “We warriors of light must be prepared to have patience in difficult times and to know the Universe is conspiring in our favor, even though we may not understand how.” Despite the strong tendency to mentally unravel, I had to believe those words and sentiments like them. I would see the other side of this, I just had entirely no clue how.

Then again, we rarely ever do.

It was sometime in early June when extremely promising news arrived, thanks to a gargantuan effort on my sisters part that finally materialized. She’d managed to get me an appointment at the Bateman/Horne Clinic in Salt Lake City. This clinic specializes in ME/CFS, meaning I was finally going to see a doctor who I didn’t have to prove myself to as though I were fighting for my life in front of a judge and jury. It meant getting the care I so desperately needed. “July 13th!” my sister enthusiastically beamed over the phone. “You’re in.” 

And just like that, I was found. I could see land again.

Could it be that simple? Well, It should come as no surprise, but it’s pretty incredible what a a doctor who specializes in the disease you have can do for a person. Imagine being diagnosed with breast cancer and being sent to dentist after dentist, each with conflicting advice but all sharing one thing in common: they simply don’t know how to help you. You’re in the wrong territory, and you can almost feel it as soon as you walk in the door. 

Securing that appointment with Dr. Yellman of Bateman/Horne is ultimately what and who is responsible for me being where I am now physically–alive and actually feeling alive. I cannot believe what the quality of my life was just a year ago, and how much progress I’ve been able to make. It only reinforced to me that so much of the suffering caused by ME/CFS is completely unnecessary, because a lot of it comes down simply to access to the right kind of help. Most people don’t have it, and the fact that I can count the number of ME specialists in America on one and a half hands is one big reason why. If the remaining doctors haven’t even heard of ME/CFS, or worse, have drawn the wrong conclusions about it, you might as well be a cancer patient seeing a dentist.

It’s no wonder millions of people are struggling, mentally as much as they are physically, because we’re simply lacking appropriate and accessible resources.

It doesn’t have to be that way, and it’s something I plan to work hard on fixing. To conclude, for now, I should emphasize I am not cured, by any means. It still takes a lot of medicine and methods and monitoring to keep Humpty Dumpty together again. I still crash, battle migraines and pain, and my energy envelope is still not in large supply. But a lot of my health feels like it’s in my hands again, and the rest of it lies in the hands of a doctor who I trust implicitly– not in the guessing-disguised-as certainty from doctors who simply don’t know better.

I will write more on the major things that helped bring me back to life in the follow up. But I just want anyone out there to know who is severely struggling right now, you may be by yourself, but you are not alone. You may be 36 and living in your parents basement (ahem) but your life can still be meaningful and happy. Sometimes it can be hard to keep up your willpower to live when you have to fight so hard for it, and ‘living’ isn’t giving you a whole lot to hang on to. I’m just here to say, hang on. Not only can things change, the way we see ourselves and what’s achievable in our lives can change. All of these things matter. I don’t pretend to cIaim they’re easy, only that they’re possible.

Keep on keepin’ on. We’ll get there.

Health, Happiness, Alive Again

P.S. This young old man says hi…

Hi

Colorado, Crashed, Covid, Catastrophe

It’s hard to know where to start. 

I kept thinking things would get better. I would get better, then I’d write. I’d take a shower first. I’d wait until this migraine subsided. I’d pack a box. I’d unpack a box. And then and then and then. And now…

Now, things are worse than ever! So much has happened since I wrote here last. Now I’m sitting in our living room in Colorado, soaking my infected toe in an Epsom salt bath. I’m icing my head because I’m still stuck in the migraine cycle. I’ve only eaten an apple with peanut butter for dinner because my stomach ulcer went from mild to angry in the last month and I don’t want to upset it. I am weak, heavy, and ridiculously short of breath. We having fun yet?!

I knew the move would be tough. Moving is hard, regardless. Moving when you’re sick is really hard. Moving followed by a severe crash and a world-wide, viral pandemic? Well, that’s just good ol’ fashioned fun.

Remember when we all thought 2019 was such a crap year? HAHAHA.

Matt and I packed up my moms Hyundai in March and drove from Louisiana to Colorado with Monty in the backseat and lots of road trip food. We took three days getting here and it was a pretty fun voyage, except for that part when we almost died on Red Mountain Pass because it’s an insane pass. Four days after arriving, the world turned upside down. 

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That Red Arrow is the Part Where You DIE

 

But things are such a mess on top of that, I barely even think of the damn Covid! No, that’s a total lie. I worry like hell about it, it’s just that the list of worries is extremely long right now. 

For starters, I am a walking catastrophe, it’s almost hilarious. Except that it’s pitiful. In fact I’m more of a sedentary disaster, a truly rare breed of human catastrophe usually only found in the state of Florida. Kidding. You get the idea, I’m about as useful as a trashcan lit on fire right now. A waste of oxygen! And there’s already so little of it in Colorado, as my Uncle Tom says, ‘It just don’t be right.’ 

On top of that there’s a lot of stress and exhaustion in trying to find doctors who will continue treating me, (so far a disaster), praying my toe doesn’t fall off (another day, another story), praying Monty’s toe doesn’t fall off (another day) regaining some functionality (I Just. Want. To SHOWER.) and finding a way to adjust to all this change without blowing a gasket. The move. The covid. The lack of rain in Colorado (Boohoo) I’m trying hard to trust it will all work out. I know so many people are trying to do the same. It ain’t easy.

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Twinjuries

I wish I could remember the last time it was this bad, that way I might recall some pointers on how in the hell to get through it. You always forget how debilitating this thing can get. But I know the answer, even if I can’t feel it intuitively. One foot in front of the other. Such a simple idea, so hard to implement. It’s *litrally* all I’m capable of for now. So it has to be enough, even if it feels insanely insufficient.

Suvival Mode–that’s how a crash goes. Feeling guilty about what I’m not capable of is no help. Just survive the day. Or the moment. And keep moving forward.

Lately much of my life has been reduced to one breath at a time, especially because so often I feel like I can’t even take a full one. The mind tease has been that all the worries condense and implode on my psyche and it’s too much. Too heavy. Feels impossible. This all becomes elevated when you’re too weak to brush your damn teeth. Inevitably, I lose it.

So I have to slow my brain down. Do something to break up the hardened cement of reality in my brain. Sometimes I say some Hail Mary’s, just to interrupt the cycle of overwhelming thoughts. I remind myself, I don’t have to solve every problem in this moment. In fact, that’s not even possible. 

I lift my weary head, and make the next move. This is where having a dog is truly therapeutic. Just going outside and throwing a ball for Monty can help dry up my mind when it’s under water like that. Sometimes it’s just a few steps to the sink to wipe my face. Other times to a book, or sudoku, or funny videos of animals or people falling down. Yesterday it was yelling at Covidiots on Instagram. Real helpful for everyone! Or I reach out for help when I can’t do it on my own. And I’m lucky as anything I have help to reach for.

As I was doing this the other night, (trying to calm my spinning brain) (and crying) I saw Eckhart Tolle on my nightstand. I remembered he would say that’s all there is anyway—this one breath, this very moment. I was stuck, anxiety-ridden, about a future I feared but didn’t exist yet. I opened up to a bookmarked page that said this:

There is always only this one step, and you give it your fullest attention. This doesn’t mean you don’t know where you’re going, it just means this step is primary, the destination secondary. 

Admittedly, I have no idea where I’m going, or how I’ll get there. But I know the only accessible piece of life is right now; the only place we have any power. So maybe all of this is just a supersized lesson in expanding my consciousness! Just great. But sometimes I think I could go on less conscious and that would be fine too. God? That would be fine.

Keep moving Mary. That’s what I tell myself. Even in the depths of despair or discouragement, I try to remember that I’ve been through insanely hard times before (Basically the whole year of 2006 comes to mind) and I can do it again. I remember that others have endured way more than me and emerged. I have to believe that all of this will unfold into something larger, better, and something that makes sense.

Most of all, I try to reassure myself that no matter how painful or difficult things may become, they’re still possible somehow. Frequently solutions arise I couldn’t have planned on or thought of. That’s the beauty of having been through such painful times in the past. They don’t become easier, you just know, by some means, you’ll find a way through this one too.

I mean that or you die–either way. JK. Do I have to keep saying JK? Probably not. 

Just keep moving forward. Every night before bed, I hug my mom goodnight, then Monty and I clunk down the stairs to my room and I think Another day down, we made it. One more shit-show crossed off the calendar with a Red X. It’s very hard to stay “present” during a time when there are so many unknowns. I realize we’re all facing our own personal uncertainties, anxieties and issues right now, within this larger…catastrophe. Yet all we can take is one step at a time.  

For me the quarantine hasn’t been so rough, because I’ve been living what feels like a quarantined life for a long time now. I’m a pro! Being stuck at home is nothing new for me (or most chronically ill people) except now I’m in a different state, and I live in my parents basement and there’s a lot more hand-washing. I realize just how excessively pathetic that sounds, and that’s because it is. But it’s also kind of funny, I think.   

LIVE! From My Parents Basement! That’s a show I plan on ‘producing’ soon. Soon, soon…

Anyway, it’s taken too long to write this. And there’s still so much more to say and catch up on. Stories about the move and the ridiculous drive Matt and I made here and quarantining with my 90-year old grandma! All in due time. There’s plenty of it, and we’ll get there. 

Besides, I know who you’re most curious about anyway. And I can assure you, he seems to be adjusting just fine…

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Hang tough yall. We may all be in different kinds of hardship soup right now, but we are in it together. 

Health, Happiness, Humanity  

*P.S. I dedicate this to my mom, my hero, a little late for Mothers Day, who has seen me through some of my toughest moments and hardest days lately. (Weak gift, I realize) You are a rock, and I know we’ll make it through this the way we’ve made it through everything else– One shit show at a time. Thank you for making me shower. Thank you for everything. Love you a LOT.

The Cusp

You know in those movies where the main character is down and out after shit hits the fan and they’re nearing rock bottom but then comes this pivotal moment, a complete momentum change where usually an offbeat sidekick character busts out the tough love and tells them only they can change the course of their lives and no one else can do it for them? Suddenly this head-boppy motivational song chimes in and so begins the montage where down-and-out becomes up and coming and bad choices are replaced with healthy ones followed by inspiring shots of her showing kindness to strangers and looking bright and happy and you know, you know, that everything is going to work out for her. Her life trajectory rockets into the stars where her potential is limitless.  And all the shit that hit the fan has settled and disappeared. It’s all going to be OK. It’s going to be good.

I find myself on the cusp of my own Hollywood game-change montage. In the movie of Mary, it’d start with me rolling out of bed… onto the floor.Then Monty enters, pulling me by my shirt collar into the kitchen, and scoots me a plate of pills with his nose across the floor. Then begins my momentum shift song, potentially this one by The Killers

…followed by shots of me lifting three-pound weights and flexing my “muscles” in the mirror. I’m drinking green frothy stuff and throwing away prescription bottle after bottle, high-fiving doctors and crossing off lifelong goals. Suddenly I’m the one waking Monty up to play, and I’m helping sick people and giving speeches in front of the president demanding  healthcare change for the chronically ill. Then the camera slowly fades in to me typing at the computer in the hazy blue of night; a question appears across the screen: Are you sure you want to change this URL? It asks. I click YES, only to reveal my new web address word by word: Zero.Pills.A.Day.Com BABY! (Scene) For some reason this hasn’t happened yet. So weird.

OK so yes this is more Hollywood than reality and there are a lot of flaws to the fantasy, like me “exercising” for one. And vitamins curing me, for two. But the other half contains actual hopes I have for my life. There are real changes that I can feel waking from dormancy, and ambitions I know I can achieve, all that’s required is that I jump off. Dig in. But when it comes time to leap, I feel hijacked by my own dumb brain. Maybe it’s more of a lump; a dense rock in my depths that thinks of a million other things to do besides the one thing that matters. Sometimes it’s a total jerk of a rock and suggests I’m incapable or unworthy, or that someone else could do it better. And the worst part is, I listen! I think yeah, I should definitely attack my nails and cuticles until they bleed instead of trying to change my life and others for the better and for forever. Smart, real smart.

When it comes to writing, I encounter the same consensus among writers, which is painfully simple: That writing every day is obnoxiously hard and often achingly lonely, but you just make yourself do it.   The writer Anne Patchett writes in The Getaway Car that the key to completing artistic endeavors is forgiveness. Before she begins, “I grieve for my own lack of talent and intelligence. …Forgiveness is key. I can’t write the book I want to write, but I can and will write the book I am capable of writing. Again and again I will forgive myself.” I’m working to keep this in mind, since so many words and pages I write on this computer end up in the trash bin. It’s hard to know whether I have a discerning eye for quality work, or if I just don’t trust myself enough. It’s beginning to feel like the constant editing is just another guise I’ve unconsciously created to keep me from the jump. Amy Poehler advised in her recent memoir that in order to write you have to symbolically remove your brain and put it in a drawer, then listen to it throw a tantrum until it wears itself out–meanwhile you get going on the real stuff. “The doing is the thing. Talking and worrying and thinking is not the thing. Writing the book is about writing the book.” See? Basically to achieve what you want, you just have to do it. Brilliant. When I’m not in denial and I’ve let go of excuses, I am well aware that the only thing in my way, holding me back, is me; and knowing that almost paralyzes me even more. But I also know that change starts with awareness, so I think it’s time I take out a hit on myself. At least on the part that’s so lost in thought it leads to stagnancy. I can’t believe the trouble thinking causes. Has Tolle taught me NOTHING!?

So many days I have no idea what I’m doing or where I’m going or what’s going to happen to me and it results in either laughter or becoming totally overwhelmed. Where I used to fear change in life, I guess when things were stable and I was happy, I’ll sense an aching fear that things won’t change. That I’ll live and die in my parents pool house, an unpaid blogger with 37 chronic conditions. I can’t grasp where my place is among the world. Furthermore I can’t decide whether our place is made or reserved. Do we discover it or carve it out all our own? I don’t know. I only know that most days I feel far from either. Other days I feel close to a major turn-around; like something huge is about to sweep me up and change all of this for the better. But by the next morning we’re back to the ordinary. I’m taking my pills and moaning and Monty is doing his best to get me out of bed. Often my life feels like a raft drifting in the ocean in no particular direction, and the wind in all its thoughtless surprise is steering the boat, not really taking me anywhere at all.

Guess we're going South. Cool.
Guess we’re going South. Cool.

Monty and I roam around this town I’ve historically hated more like tourists than anything else. No one knows us by name, besides the pharmacist of course. We spend a lot of time at this coffee shop with the angry barista where I’m writing from now.There are girls here wearing the same uniform I wore in high school. They look so young and cute in their plaid skirts and Mary Janes. They seem happy and untainted and I like the way they burst out laughing at hardly anything. I can’t remember looking that young, a sure sign I’m getting older. Since turning 30 last year, I wonder a lot whether I’m really growing up or just getting older every year. I am surprised to have found the first grey hairs on Monty’s snout this year and I feel like a mother watching her kid go to the prom.Where did the time go?! There’s all kinds of proof that time has moved forward and carried me with it.  And yet my life could easily fit the bill of a 17-year-old in many ways. Some days that’s exactly how it feels. As my friends are advancing their careers and getting married and having babies, I still bring my mom to doctors appointments and often shop at American Eagle.

I understand the circumstances of my life are different and I have to make peace with that every day. But I also want to make sure I’m growing through all of this and not just surviving it. I guess I thought there would be a day when I reached adulthood, as though it were some test you passed, like the BAR, and then were a certifiable adult. I definitely figured as a child that by age 30 I’d have it all figured it out. Of course, I was young and blissfully stupid then. I couldn’t know how obscenely larger and deeper reality would become. I feel like I know less than ever before. Every answer springs up ten more questions. I’m uncertain of mostly everything except for the aggressive love I have for my dog. In short I have no idea if I’m getting it right. And I can’t imagine the day when I’ll feel like an adult.

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Didn’t You Hear?!

However, I did notice something of note at Victoria’s Secret last week. It was a routine underwear buying trip and my spirits were high because there’s something weirdly exciting about getting new underwear. There I was at the 5 for $25 wrack; my go-to section for cute and economical briefs. But I found myself all disgruntled making frowney faces as I browsed the huge selection. They were all Lisa Frank colors or animal prints. But worse, there was writing across the butt. Things like “No Peaking” and “Shopping Burns Calories!” adorned their backsides. Dear. God. The colors were blinding and I felt out of my element. I then spotted the sophisticated 3 for $33 wrack out of the corner of my eye, where the colors are muted bronzy tones and the designs are laced in floral maturity. More expensive yes, but, as I held a silky pair in my hands, modest, pretty and free of TEXT on the ass, I felt at home. This is where I need to be. I bought my favorites and left smiling. So that counts for something. I think.

Forward!
Forward!

All these thoughts weigh heavy in my mind; stupidly, uselessly. But they can be thick and hard to control. So I take Monty to the river, where he is immediately in his element and I can catch my breath. Monty finds the largest stick in the vicinity and makes me throw it in the water again and again and again. His enthusiasm is contagious and I laugh out loud watching him put his whole head underwater to find the waterlogged sticks. Something about returning to the spot and seeing the river flow in the same direction it did last time we were here quiets my head. Watching Monty run full speed and splash clumsily reminds me to chill out. That life is supposed to be fun, and it only moves in one direction.( See above) Collapsing under the weight of those thoughts makes me feel dragged by the current instead of floating downstream. I don’t know exactly who I am, and maybe it’s something that grows and changes until the day you die. I only know that life and happiness aren’t somewhere over there, and I need to stop assigning them to a future I can’t know. Times will be hard and times will be easy, but there is peace to be found in all of it if I can just trust myself and forgive the experience. More than that there are dreams to be made! I just need to move out of my own way so I can finally jump off. Over the cliff–that’s where the magic happens. That’s where the Hollywood montage begins.

Health, Happiness, the Edge.

How To Come Home

I’ve just made it home. My suitcase is still lying in the center of the kitchen floor.

It’s crazy how good home feels after you’ve been away from it, even when you’ve completely enjoyed your time away. Somewhere between waiting in line barefoot among rookie fliers who somehow forgot about the jug of water in their carry-on and the captain shouting God knows what into that fuzzy speaker, I start to feel my humanity slip like some kind of sock with lazy elastic hovering at the ankle.

Once upon a time, flying made me feel like a celebrity. The whole experience was a novelty and a privilege.  And somewhere in my jaded depths I know that it still is. The mere idea of humans taking flight on a bus in mid-air is still mesmerizing and I’m lucky to have access to it. And yet somehow,  the only celebrity I ever feel like is Ben Stiller in Meet the Parents. I’m all eye rolls and discouraged sighs, which sometimes emerge as a laugh–the kind of laugh you let out when nothing is actually funny. I try to keep my moans of discontent in, even when the automatic toilet flushes while I’m still on it and I’m sprinkled with fresh public toilet water. I try to breathe through the frustration of then not getting that same toilet to flush when I actually want it to and there I am dancing like some kind of monkey on fire trying to activate the motion detector that says just wave your hand to activate. It lies. I exit, I don’t care. I hate the toilet now. All I want to do is wash the Ebola off my hands and possible STD’s off my thighs, but the faucet requires the motion. And the soap requires a motion. And the dryer requires a motion. And what happened to handles? If I went on Shark Tank I’d reintroduce handles to public bathrooms. Anyway there is more dancing. More erratic behavior from inanimate objects. More laughing when it’s not funny. It’s like the DMV in there; the threat level of a Stage 5 freakout is just one toilet flush away in any given stall. You can sense it.

But not everyone confronts the airport bathroom circus. The old lady next to me doesn’t seem to have problems with her soap. I bet she’s been spared from the toilet water too. What is your secret, old white lady in the brown velour pant suit? What am I doing wrong? But there’s no time for philosophizing, I have to get to my gate. Guess where my gate is? Guess if it’s nearby or at the very far edge of the airport as in it has a separate zip code and everything. Guess.

Is it the tragedy that is modern American air travel that makes home feel this good? Maybe. Probably. I guess this account of flying would suggest I’m a young, old curmudgeon who has lost sight to how lucky I am.  But it’s always temporary. I am either going somewhere great or coming home to relief and love, and it’s just the in-between antics that can get a girl down. Once home nobody shouts the temperature and the toilets flush WHEN YOU WANT THEM TO. Of course, an 80 pound furry beast running around you in circles then through your legs and back, shoving every toy in the box in your lap and wagging his tail with enough vigor to knock over small children and feeble adults, well, that helps too. That’s the best.

I celebrated Thanksgiving with my best friend big brother Nick and Company in Miami for a week. Mostly I felt like death, but I was excited to go and the change in scenery did me good. It’s been a rocky few months. My health declined from mediocre to poor without discernible reason, and that’s just the name of the game with illness like this. I can’t pretend I’m not discouraged by it or tired of feeling really shitty when I didn’t overdo it or change anything, as if a person deserves bad health anyway, but I’m trying not to wallow in it either. I saw the specialist in Miami and there are a few changes we are making, but we won’t know more until the results arrive from the copious amount of blood I gave to test. Aside from that, my progressive boyfriend and I broke up. Ew, breakups.

It’s interesting that a decision you’re sure of it’s the right one to make can be just as painful as the wrong ones you’ve made when you didn’t know any better. And by interesting I mean shitty. We did the adult thing and “called it” at the appropriate time. We saved ourselves the tragedy of letting it slowly burn and die until it ended in hatred. I guess ultimately, even an amicable breakup is still a breakup. It’s an end. You grieve for them and you grieve for who you were with them. I experienced a whole new pain this time around that stemmed from not being my whole self in the endeavor. I pretended and concealed when the truth was ugly or getting a less than desirable response. I don’t think Id ever done that In a relationship before, but I’ve never been under the circumstances I am now and had to introduce someone knew to a world that took so much explaining, and defending in some cases.

It’s weird, I actually wanted to keep my illness out of the whole thing. (I wanted to live in Neverland, is how that sentence should read.) I had this fear it would interfere with things before they ever had a shot to develop. I feared it would be difficult and unbecoming; It would suggest I was someone inferior. I was even afraid it might be the demise of the relationship. And then, it kind of was. The weight of it became too heavy, it’s unrelenting nature became too repetitive and it’s lack of a solution wore out the seams and we broke. There were other reasons, of course. But my being sick was up there, it messed with things, it was a big a part of the end. And for a while that was a really crushing thought. It made me feel small, made my life feel lesser. I push and work to live my life in spite of this invisible force trying to take it away, and yet sometimes, it still comes out on top. It wins.

But hiding it was like doing a monkey dance in a cramped bathroom stall. (Kind of) It was stupid on top of exhausting, and I don’t know how I expected anything authentically good to emerge when I wasn’t being true to myself. I am not my illness, I know that. But it’s there, it’s changed virtually everything in my life the last four years, and nothing good has ever come from denying or dismissing it; from pretending it’s not there. And yet, sometimes I can sense that people want me to pretend it’s not there. They want to hear that I’m better, and no one understands that fantasy more than me. But pretending makes me feel like I have to hide a part of my life that I can’t control, and that’s not a healthy place to be. I don’t want long conversations about my illness. Ive had enough of them for 20 lifetimes. But I do need an honest atmosphere that doesn’t require apology. I need to be able to be sick when I’m sick and well when I’m well and not judged inbetween. It will always take patience, compassion and effort in order for my life to be understood and loved from the outside. It will always be hard in my relationships. But hopefully if I am really seen, my external circumstances won’t take up so much space. And that was half the problem, I never really felt seen. Instead I felt sorry, and that’s because I betrayed myself. By not putting it all out there, I made it nearly impossible for my life to make sense.  I am not jobless and living in my parents pool house writing on a blog called Twenty Five Pills a Day because of lifestyle choices. And that’s an attitude I confront a lot. I’ll work like hell my whole life to turn lemons into lemonade, but I didn’t pick the lemons, so I don’t think I need to apologize for that anymore. The weird thing is that in glossing over and skirting around this small part of me, so much more of who I am was stifled. Good parts! Fun parts! It doesn’t feel good not to bring your whole self to a party. In fact, that hurt the worst, and I did it to myself. I had a need that wasn’t getting met, and instead of accepting that once I knew it was true, I tried to do away with the need. Surprise surprise, that didn’t work. It’s OK to have needs. Love enjoys needs.

Now I am Stella getting my groove back. I see my health in the distance: a ship in flames slowly sinking into the ocean. Haha. That image makes me laugh. But this will pass. I’ll get better. Or I’ll get worse, then I’ll get better. It doesn’t matter, because I’m going to keep trying. I’ll attempt to transform all of this– pain, pleasure, toilet water– into something useful. Something fun. Because despair is boring and I’m seeking a creative life. The world doesn’t need more sad stories so I will find the good ones. I’ll trust what I’ve been given and let it fuel all my endeavors. Mostly I’ll breathe easier because I am who I am and I’ve made it home. I’m back. And I have so much to do.

Stay tuned.

Health, Happiness, Home.

The Five Days It Took to Turn 30

On Thursday I awoke to the faint scent of change in the air, not unlike the first brisk breeze you feel in late September. But this was not Fall. This was something called ‘thirty’ and it awaited me, ready or not. I didn’t know how it would go down or exactly how I felt about it, only that behind mundane tasks and in the corners of rooms, there it was; stirring, growing, counting down. It caused nervousness, yes, as change often does, but it also caused excitement and irregular bursts of recklessness. At the Circle K I always frequent, I ignored regular intuition when I saw a snickers bar and desired it, but had not yet eaten dinner. I watched myself grab it as though it had always been mine and Circle K had taken it from me. I plop it on the counter feeling proud and dangerous. I’m turning 30 soon, I don’t give a shit.

On Friday, the upcoming change is no longer a scent in the air, but a big red X on the Calendar. I only have a few more days of my twenties and I need to make it count. I have an outdoor lunch with college friends. I keep the conversation fresh. When it hints at boring I steer it another way. We can’t be talking about strangers I don’t know or things I don’t care about at my birthday lunch! It’s so self-involved but I don’t care, I’m trying to get to the root of something. I ask my friends a lot of questions about the states of their lives, all of which appear far more together and grown up than mine. (Jobs, marriage, etc.)  But beyond that I’m trying to gather information. Something within me is trying to assess whether we’re happier now than we were five years ago. I guess I need to know that life gets better with age– a concept I’ve heard but don’t wholeheartedly buy yet. The conclusion is nearly impossible; there are too many variables. When one friend suggests mani/pedi’s I think YES. I need my nails to be in shape for this milestone. I struggle choosing a nail color that complements my mature new age but also suggests my daring nature. (Snickers) I pick a bright, corally orange color. It’s a risk. It’s no ‘soft rose’. But I’m turning 30 soon. Let’s do this ‘cajun shrimp’!

On Saturday, the softest sound of a ticking clock can be heard everywhere I go. Is it my ovaries? Is it the countdown of my ending youth? Hard to say. My body is tired from the muted angst of the last few days and the poor diet choices I’ve made on account of feeling ‘risky.’ I rest a few hours while second-guessing my nail color and making a mental list of people 30+ that are still rocking it. Oprah..Rob Lowe..Kanye.. Next I head to Magazine Street to find the outfit I wish to turn thirty in. I visit my favorite places, and when the sales girls hear I’m turning thirty tonight they say “Awwwwwww” as though I were a wet, lost puppy. They also become exceptionally helpful. Like Don’t you worry girl, we’re gonna get you through this. As I accrue a large ‘no’ pile in the fitting room, finally I’m brought a navy blue floral romper. In the mirror I think This is it. This is the one. Sophisticated print but youthful as a romper. Also my butt looks really good.

Tonight I will have drinks with a couple of friends at Cure, a snazzy bar where our close friend works. I shouldn’t drink. My body straight up rejects alcohol in the form of migraine and then general disintegration of entire body systems, but the cocktails here are good and of high quality. They’re made by mixologists! And at midnight I’ll leave my twenties forever, so gosh darn it, I’ll have a drink or two. A few friends retire early leaving behind my BFF Kaitlin (aka Matt Damon) and the progressive boy I’m dating. He doesn’t like this ‘ritzy’ bar. Something about everyone having on the same outfit. Our friend brings “shots” for the stroke of 12. When the iPhone flashes midnight, we yell and cheers and drink the shot, which tastes like youth mixed with jolly rancher. Kaitlin snags this gem of a photo which at least half conveys the mixed feelings I had.

I’m 30 and I don’t understand my feelings wahh

I am technically thirty now and I feel the burst of recklessness. Should we get forties and go to the park? Light some fireworks maybe? But the progressive boy I’m dating suggests I take it easy. We still have my actual birthday tomorrow. He’s right. We go home.

On Sunday the big day has arrived. I’m getting phone calls and texts while I lay in bed and I’m like God, I love birthdays so much. I didn’t even have to do anything and look at all this positive attention I’m getting! Thanks mom! I soaked in all that love pouring in. Then I realize the small get-together at my pool is supposedly starting in an hour. I am crazy late, it is raining, and the pool turned green overnight. With the help of friends we pull it together. The group trickles in and three different people give me flowers, which shoots me up higher over the moon than I already was. A few of the people at the party I’ve never even met before, and yet somehow almost immediately, a fun and comfortable dynamic forms. One of those perfectly random social events that could never emerge through planning. We swim and philosophize and do birthday things, including passing around my cake in a circle and taking large bites out of it face first. (Kind of what one-year-olds do on their first birthday) We play a very loud game of Scattergories and things turn competitive, quick. There was erratic dancing and a four-part belting of It’s All Coming Back to Me Now by Celine Dion. At one point we were gathered around watching Blue Planet in awe of the earth like Whoooooooa and Woooooooooow! Looking around in that moment I thought Dude, this is perfect. We stayed up late. I guess adults still do that.

On Monday I awake to the haze of a good-time had and party remnants littering the floor. My body hurts. The pool looks hungover. Even Monty is lethargic. I briefly assess the damage and ignore it, then eat a ginormous bowl of Kashi cereal and fall back asleep. When I re-awake, I attempt to “tidy up” but it’s useless. I’m moving like a true geriatric.  There is that Sunday type of melancholy lingering that comes after you’ve had a really amazing time with people and now you’re alone in the aftermath, remembering the fun. I plop on the couch trying to evade it and spot a large vase holding all the different flowers I was given. It’s cliche and sappy, but staring at it I feel a tinge of gratitude and then it explodes exponentially. I don’t feel old, I feel lucky to be alive and to know the people I do. I feel grateful that the people I like actually like me back. So many showed their love to me–In person, people from the past, strangers on the internet, my best friend from kindergarten on FB. It all just overwhelmed me for a minute. I’ve got a family that’s solid and friends who are true and a dog that jumps high and loves me endlessly. If I were a sap on Twitter I’d be like Feeling #blessed.

But I am not.

Turning thirty didn’t change much about me. I feel the same, my battles remain and I’ll continue to do my best. But unlike other birthdays, it finally took me outside of myself, even though it began the opposite. Among the cups and pizza boxes, I felt weirdly inspired thinking of the people in my life. It’s not that they love me, it’s that they love at all. That they’re out there with their own battles and they’re trying too. There’s no one way to do it and we’re all just learning as we go. But thinking of them made me want to try harder. And do better. Not because I’m 30 but because I’ve been shown such incredible ways to go about living and loving– It’d be a waste not to learn from such awesome people. And that’s why it was silly relying on others to prove to me that life gets better with age. Surround yourself by the right kind of people and they are the proof. Life gets better because we get better. We know ourselves more and just that knowing by itself makes so many things easier. For me I’m realizing it’s not about trying to know and understand everything but accepting that I can’t know it all. There will always be mystery to life and part of the deal is living here in the in-between. I think there’s a good time to be had in the middle. There certainly was last night. Anyway, it’s a simple concept I guess. It just took me twenty-nine years to make some sense out of it! Twenty nine years and five days, that is.

Thank you to everyone who helped me ring in 30. It was truly righteous.

Health, Happiness and The Five Days of Thirty

 

I Spy Something Monty

Think Where’s Waldo. Meets Dr. Seuss. Meets I Spy. Something Like That.

In the Bushes!
In Some Bushes

At the Beach!
At the beach!

On Some Stairs!
On Some Stairs

Fast Asleep

In the Ocean
In the Ocean

At the Park
At the Park

In the Light
In the Light

In the Dark
In the Dark

Waiting in Line
Waiting in Line

In a Ditch
In a Ditch

In the Bayou
Swimming the Bayou

smellingafish
Smelling a Fish!

On the Edge
On the Edge

In the Hedge
In a Hedge

In the Snow
In the Snow

WIth Eyes Aglow
With Eyes Aglow

In the Hills
In Creepy Hills :/

In Lake Ponchartrain
In Lake Ponchartrain

At the Table
At the Table

Playing a Game
Playing a Game!

In the Reflection
In the Reflection

Taking a Leak
Taking a Leak

In the Pond
In a Pond

Taking a Peak
Having a Peak

Health, Happiness, Monty the Great

Questions Answered.

Everything is weird. I’m still healthy. And that makes things weird. And also pretty great.

I’m enjoying the three-dimensionality of things. The multitudes of personalities I’m confronting. The sounds that one simply doesn’t here in a bed in Southern Louisiana. Everything is distinctly colorful. Of course the onslaught of spring and the prolific products of hers help. It’s a been a long time since my health has maintained in this way. I’m walking a thin internal line, trying not to delve too hard into the why but not altogether ignoring the possibility of its fleeting nature, just like the season. I’m simultaneously happy at this new disposition and also keeping a dark fear at bay. It could all end quickly– a few things. And being entirely reckless hasn’t served me in the past. So I’m keeping these things in mind of course. But trying not to fall down completely into the rabbit hole where incessant introspective thoughts about it all could trap you just as easy as any sickness could.

For the most part, it’s been fucking great. Sorry. F word only every now and then. But it really is nice being able to stand and walk without the typical interruptions and be social and see comedy and do what other young people are doing. I can’t deny I am simply just enjoying the hell out of all of it. Things feel carefree and almost weightless. Life outside of a window at my house, a window on my phone, is really pretty great. When I get worried about the future or have fear of losing it, my mom tells me the same thing; detach from the outcome. And it’s so, so true.

I’m thinking of so many things these days. I’m still trying to put it together. What purpose will I serve with this newfound health? What did I fulfill in sickness? How to matter and find meaning in all of it– the big stuff and the little stuff and the small bits in-between. I’ve been thinking in questions today. I’m going to write them out with my best shot at answers because it’s just the current of my thoughts lately and I’m not going to swim upstream.

What do you contribute the newfound health to?

It could be the physical therapy for my neck which has lessened that pain load considerably. Could be the prescription switch to Trazadone that has me actually sleeping through the night–never mind the night sweats. Another prescription switch from Neurontin to Lyrica seems to help with pain management in general and maybe the increase in energy. Also it’s Spring and I swear to God I’m always at least a little improved in nice weather and my migraines are less frequent. Also divine intervention. I don’t know. Maybe a little of it all.

What happened to sewing, weren’t you into sewing for a while?

Yeah, I was. And I got really excited about some sewing projects. I sat at the Singer Simple 3116 for hours and taught myself the ins and outs of it. I got carried away and excited with ideas. Then I began, and I jammed the bobbin. THAT DAMN BOBBIN. I took the bobbin apart, unjammed it, and put it back together. And now the bobbin is failing me hardcore. I need bobbin help. Anyone? Still, I’d like to get back to some sewing projects. I find it relaxing and I like learning skills that seem to be fading from my generation.

What’s Monty up to?

You know, same ol…

This.
This.

And this.
And this.

This...
…This

Always this.
Always this.

Ending with this.
Followed by this.

Let’s talk about tea now.

Drinking this new acai/blueberry/pomegranate mix on the reg. It’s really good. Has there yet been a decision on the universal pronunciation of acai berry? I hear a mix around town. Let a sister know.

How’s the writing going?

I find a lot of reasons not to, but when I sit down and do it I like what comes out. Most of it’s been happening pen-to-page so I’ve been using up my notebooks, which is good because I have a lot. I’ve been on the lookout for a typewriter, but maybe that’s just another fantasy in the works. This thought that some instrument will encourage more writing instead of the truth which is that real writing just requires sitting down and doing that shit. I’m working on that.

Anything else while you’re out here in Neverland typing to yourself?

Yeah I’m reading like 4 books right now and 1 book of poetry. I don’t think this is how optimal reading was designed, but I find my head a little scattered lately. I’m almost finished with The Rosie Project–really funny, really good. Trying to push through Dance Dance Dance (slower than expected). One Dead in Attic is an easy quick read but dismal of course, you know, post-Katrina stuff. The Four Agreements is sometimes rudimentary in comparison to Tolle and Zukav and Nepo, but almost identical in the message. It’s got good stuff. New American Poetry which is proving what I feared–that I don’t really understand how to read poetry. Do you keep reading until you get it? I guess that’s all in the way of books.

And everything else.

For now the goal is to truly enjoy this time of health, appreciating every second where taking a deep breath is easy and sitting isn’t my only option. I’ve held the door for people these last few weeks. I held the door! These very normal things…they’re feeling very good. Clearly I’ve had a lot of doors held for me in my small life, and it feels nice to return the favor.

One last thing:

I saw The Grand Budapest Hotel. I really liked it. Monsieur Gustave..he sticks with you. I’m still stuck on Moonrise Kingdom though. See them both. Make a whole night of it.

Health, Happiness, HEALTH, HAPPINESS!

 

 

How To Escape a Nightmare?

It is 2:31 in the morning on Thursday, December 12th. I am wide awake, besides being restless in the legs, antsy in my mind, and strangely very hungry. I basically just ate dinner in bed. Monty temporarily lifts his head up from sleep at the foot of my bed and sniffs the air to identify what I’m eating should he decide he wants some. He does not. He plops down his head with an exhausted exhale and his belly falls. It doesn’t take him long to re-enter dream world. Me, I am stuck on this side. Reality in the middle of the night. The same as last night and two nights before that. The last few hours have looked a little like this:

.
.

But lately my problem is not as much my difficulty in sleeping as much as what happens once I finally do fall asleep. I think it might be starting to be a problem. Here’s an except from my notebook from a few weeks ago.

Recently, I took a trip to spend Thanksgiving with my Brother and Company in Miami. I slept in baby Olives room, my one-year old niece. The second night I was there, I had a horrible nightmare. Something I’ve been having more and more of these days. This one wasn’t so much plot based as it was more a series of disturbing images, like those old home movies that play a little choppy from slides. From the start the dream was filled with eerie-ness and unease. I was in a dark place (literally)- similar to a cave but not entirely enclosed. There is nothing pleasant about my surroundings. The aesthetic is dull and drab. I’m walking forward but don’t know where I’m going. I see a full skeleton positioned against a wall, sitting as though it were an alive body, reading or relaxing. As I’m staring at it, suddenly the skull whips its head to turn and look straight at me, and its mouth jolts open. Quickly, harshly, intensely. In a word, it was terrifying. Almost at this same moment,  I realize I am dreaming. I find myself trapped in this nightmare, which has happened before and is now happening frequently. I try to scream in order to wake up my brother or sister-in-law, knowing that if I scream they’ll come to the room and subsequently I’ll wake up, escaping the dream. But when I try to yell, nothing comes out. Not only that, my mouth feels glued shut, as though my upper and lower lip were molded together. Consequently I am voiceless. My next attempt to escape is to physically kick and flail my limbs with such gust that the movements shake me out of it- my equivalent of pinching myself awake. But when I try to kick my legs, they’re stuck. They don’t move. They feel as though I’m standing waist deep in thick, dense mud. When I try to move my arms it feels like I’m in a straight jacket. So there I am; trapped in a scene which appears terrifying to me, and unable to speak or move. The strangest part of it all is knowing that it’s not real. Once I have this realization, the fear should fall away shouldn’t it? At any rate, it’s just a stupid skull head with its mouth open. It’s not the first thing I’d like to see in the morning but still, it could be worse. I try and try to scream and move and kick and flail but I can feel all my attempts failing. Silence, stillness, stuck. It’s stressful. The fear is tiresome. Finally, something from the other side makes a peep into my dream. I hear it once. I hear it again. It’s reality calling. Gradually it grows louder and louder, and I dissolve slowly from the dream. It turns to ash as I slowly wake to the bedroom. The reality calling is baby Olive crying. Finally, my eyes open. I can move my legs. I have a voice. I relish the sound of the baby crying. Never have I been so relieved and so happy to hear that sound. I feel bad because it was probably me squirming and making noise that woke her up–trying to escape the cave with the evil skull! But this is how it goes now. I realize I’m dreaming, often it’s a nightmare, and I can’t get out of it without something from the other side, some external force intervening. My mom saying my name, Monty pawing at me or the bedside, my phone ringing enough times to finally rattle me out of it. But never on my own can I get out. My sister-in-law sneaks through the cracked door stepping lightly, hands Olive a bottle and immediately her crying stops. She lays back down in her crib and soon I can tell by her breathing that she is back to sleep. Me, my heart is still beating fast, and I’m thanking God that Olive cried and got me out of the dream.                                    

                                                                                                                                          11-27-13

So there it is. I went a whole week without a computer! Sometimes you just need to feel a pen glide on paper. Anyway, that’s what happening lately. It’s making my nights quite..adventurous.  I remember learning in a Psych class once that in our dream phase of sleep, the brain temporarily “paralyzes” the body, so that we don’t jump out of windows or act out the weird things we do in our dreams. So there seems to be a miscommunication somewhere, a mis-firing of neurons between my brain and my body. One says I’m awake, the other says I’m asleep, and I’m caught voiceless in the mud, somewhere in the middle.

As dependent and exaggerated as it may sound, Monty has been my life saver lately. Or dream saver I should say. In my last few nightmares, I’ve called out to him (or attempted to) knowing if he made noise in the room I could get out of the dream. Two nights ago was another very scary one where I couldn’t move or scream, but I remember trying so hard to yell Monty’s name. All I could get out was “Mmmmmmm” because once again, my mouth was glued shut. Even without fully saying his name, he came in my room and pawed at my bed, until I woke up and my voice came back. I hugged him really really tight then, and he slept the rest of the night in my room. (Not on the couch, which he apparently finds preferable) Because the dreams are so real, the fear is so tangible and the images so lucid, even after waking up I feel in an eerie haze. Floating in some in-between world. I often need to look at something mindless to get my head out of whatever nightmare I was just trapped in. (Helloooo Facebook at 3 am) There are plenty of distractions to lift the post-nightmare haze, but in the meantime, I’ve got to figure this out. There must be a way for me to get myself out of these dreams once I’m made aware of where I am. And while I admit there are unpleasant and scary moments in all this, it is very interesting. I’ve always been a heavy dreamer, waking every morning  often with detailed streams of dreams playing through my mind. Sometimes I write them down, other times I tell myself I’ll remember and I put it off. But the more I immerse into real life, the faster the dream fades. “Like cotton candy” my mom always says. “Write them down right away!” My mom happens to be a student of Jungian psychology and well versed in the symbols and library of dreams, so since living with her again, she’s been a live in dream-interpreter for me, which is nice. Think about it– there is no clearer or more accessible portal into your subconscious than dreaming. It is hours of our existence that is not interrupted by thought, so I know there are profound answers to be found there. I am her I.T. person and she is my dream analyst. Fair trade.

I’ve learned quite a lot in breaking down the symbols in our dreams. And there is universal meaning to be found there. Do you think it’s a coincidence that many people dream their teeth are falling out? Or that they show up to an event completely naked? Or arrive to take a final for a class they haven’t gone to all semester? Of course each one relates more individually to each person and their life, but this is the human experience. We aren’t so different. I think it’s fair to say there is some objectivity in examining the subconscious without subscribing to some hokey pokey psycho crap. Admitting there is meaning in our dreams isn’t subscribing to witchcraft, as I’ve heard people react when hearing of dream interpretation. We shouldn’t be afraid to go deep for answers. That’s where most of them lie.

I’m going to attempt sleep once again. Monty is here and has been made aware of his duties. “When I start freaking out, you paw at the bed. Got it?” On the next post I’ll have my mom break down some universal dream symbols and go further into these nightmares if they’re still occurring. If anything, it’s another adventure. The riddle now is how to get out.

Accepting any/all suggestions!

Health, Happiness, Dreamworld

The Allure of Alone

I’ll admit, I’ve spent a certain amount of time, perhaps too much, fantasizing about the life I’ll have once I settle down with someone. How nice it will be to call a man my husband. To introduce my “better half” at parties, to have a “plus 1” at weddings and someone to sit around and do nothing with. I’ve even set aside a certain amount of happiness as something that will come once I am married, once I’m with my “soul mate.” Whenever I feel very alone or uneasy, I convince myself that those feelings won’t come once I’m with my Mr. Right. I think now though, having a very large amount of alone time- some of it lonely, but more of it not– I realize that the certain loneliness/angst/unease is something I have felt even when in loving relationships. It’s finally occurring to me that just because you’re in love or committed to life with someone, doesn’t mean all the intimate problems of being human go away. I admit there is at least a small amount of fantasy in my thoughts about what my life will be like once I’m given away and married. Instead now, I am learning to really treasure my solitude. Just like anything else, it won’t last.

I was speaking with a friend recently and we were calculating how much of our lives are spent with another person. Which is wonderful for the most part. Science tells us that those married and with families usually live longer and are often happier than those who are alone. But at the end of our lives, it’s often a very window that we actually have just to ourselves. For most people, the first 18 years are under the rule of parents or parental figures. College years are usually spent living with roommates. In the past most young adults were married or on their way to married by the time college was over. More and more however, it’s becoming common to have a new amount of time in our mid to late twenties where it’s just us. We’ve entered the professional world, but not taken on the role of husband or wife yet. Maybe enough of us saw how detrimental marrying too young could be. Or we witnessed the pain and exhaustion of divorce. We’ve seen or were the products of marriages that didn’t look happy and fun– instead they looked like a lot of work and not much else. Increasingly, I see young adults holding off on rushing down the aisle, which I think is a good sign. Till death do you part is a pretty big line regardless of your faith, age, or morals. Probably now more than ever is a young demographic of people living on their own. It certainly can be lonely at times, but I’ve begun to cherish this time where it’s “me” and not “we.”

It seemed my grand-parents and parents generation married relatively young. (My mom was married with two of her four kids by my age, and my grandmother had 4 of her 6 by now) I couldn’t help comparing my age and progress to theirs for most of my mid to late 20’s– but I’m making a conscious effort to stop doing that. And I’m also beginning to see the value in a young adult life that is spent without a husband or partner. I also realize that finding and being with your “soul mate” or partner doesn’t mean an end to loneliness or angst all together. In fact, in many of my loneliest moments, I’ve actually been in a relationship, but felt completely unseen or misunderstood. One might say that being in a relationship that you want out of is one of the worst versions of angst there is. This is why it’s silly to put all my ‘happiness eggs’ in one marriage basket. A ring and a contract doesn’t equal an end-all to personal struggle, challenges or pain.

I have to remind myself there is no timeline. Some women and men find lasting love at 18. Some at 38. All it takes is a few minutes on Facebook to see that many girls my age have married already and started families of their own. I used to look on with some amount of jealousy– some feeling to rush this chapter of my life so I could start the married one. But I also know you can’t really force falling in love. Or meeting your dream person. I have been in love a few times and met really wonderful people. But I’m not married yet because it hasn’t been right yet. Some say it’s a matter of timing. Some say it’s fate. Some say you’ll meet Mr. or Mrs. Right as soon as you stop looking. (I can testify that it is often when I’m happy and fulfilled on my own that I end up meeting someone who adds significance to my life that I didn’t know I wanted or needed.) At any rate, the goal should always be to find happiness, wholeness, and fulfillment on your own. Putting off your total happiness until someone you’ve deemed the answer to your prayers, i.e. someone you haven’t even met yet, is not only reckless but dangerous. Someone else won’t be able to fill you up if you haven’t learned to do so on your own. I think the healthiest and most romantic of love comes from two people who don’t desperately need each other, but just genuinely love and like each other so much they just want the other around–forever. I know too that knowing yourself well is a huge prerequisite in finding someone to love well. We can’t expect other people to fill up holes within us. When you get down to business, that is up to us.

Looking back at relationships in my life, and also looking at recent time spent alone, I see that sometimes I lose myself in love. I don’t write as much. I don’t seek creative outlets as much. I fall into comfortable habits instead of seeking newness. To specify, there’s nothing wrong with that. I can’t wait until my Saturday nights are spent with my husband in bed, asleep by 11:00 pm. But I also have begun to see the advantage in being alone. I’m more productive in the arts, which is an important realm of my life. For instance, I’ve spent the last few days drawing and making water colors. (Also listening to jazz–my brother Nick’s suggestion) I know that were I in a relationship right now, I wouldn’t have done these. Not that they’re great pieces of art, not that I can’t do them when I’m with someone, but for whatever reason I usually don’t. And I like just allowing my soul to let out whatever it needs to without the interruption or expectations that come when in a relationship.

"headache"
“headache”

"politics"
“politics”

"birds"
“birds”

"dick cheney"
“dick cheney”

Besides setting apart time for art, I spend more time with my parents. I read more. I don’t have to compromise on TV shows I want to watch. (Watching Say Yes to the Dress as speak) I see my brothers and sisters and nieces more often. There’s no argument about where I’m spending Christmas. For the most part, I spend time how I want with who I want and there is a freedom and casual thrill in that. Ultimately, I think human beings are meant to find our counterparts, and still I look forward to meeting my person. Life feels incredible when you find someone who shares your intimate perspective. No one can argue with the pure and ridiculous happiness and high that comes with falling in love. But on the other hand, it’s important to examine the time you have with yourself and you alone. I think of the time I spend daydreaming about marriage and babies and family life. Maybe I’ll always do that. But the other day I had this image: me, married, a house noisy with children, reminiscing about that time I lived in my parents pool house, the days mine to spend how I wanted with my dog Monty. Staying up late, sleeping in, writing, reading, drawing, and creating. I remind myself to be grateful for this time in my young adult life; alone but not really lonely, preparing for what’s next, whatever that might be, whoever it might be with. Time to treasure what I have now– a whole lot of me and Monty time. :)

Health, Happiness, Solitude

Fall Yall.

They say the only thing constant is change itself. And when seasons change, particularly Summer into Fall, I always seem to feel a change on the inside as I watch the atmosphere play out it’s own changes. As if my circadian rhythms, my organs, my soul knows that things are going to change. I’ve always liked the feeling. The transition from Summer into Fall and Fall into Winter has always been the happiest time for me. That first gust of cold air. Pulling out old sweaters and cardigans. Cuddling in close to whoever you’re with. (I’m talking to you mom!) And there’s that slight reminder that the Holiday’s aren’t so far away and if you’re like me and ridiculously elated by Christmas, then it’s a good feeling to pick up on. I’d say if I could choose a season to fall in love, as if you could ever choose these things, I’d pick Fall. It also seems most likely to happen then in my eyes. A girl can dream. I say that a lot.

New Orleans weather is really weird. And by weird I mostly mean crappy. Our summers are long. Just too long really. And unrelentingly hot and humid. It takes your breath sometimes. Every time I fly into Louis Armstrong and exit baggage claim, my lungs get coated with a Southern sheet of bayou film and I have to remind myself how to breathe. It’s all part of the fun of calling Nola home. And I mean that. Our Fall is very short, much like the Spring. And Winter is fickle. A cold day comes. Everyone dresses as if the blizzard of the century is approaching and the cold due to the moisture in our air is penetrating and bitter. And then two days later it’s 70’s degrees and uncomfortably wet. If I could present our seasons through words arrangements it’s like this:

 

S   U   M   M   E   R R R R Fall W I N TER Spring S U M M E RRRRR

 

So maybe the climate isn’t our major selling point, but I also don’t hate it. Cold days are such a novelty here, and the excitement brought on by temperatures allowing boots and a chunky sweater is contagious. Nothing gets a Southern girl excited like Sweater Weather. Just say those two words to one and watch the magic unfold. It’s true we don’t have four equal and distinct seasons; we have summer with a side of spring or winter sometimes. But we still get a taste of everything it could be much worse. We also get extreme thunderstorms, and I truly love rain. And not just the grey drizzly days. I’m talking intense thunder and lights flickering and those storm clouds that somehow turn up in shades in green. I love those days. Monty prefers to spend thunderstorm time in the bathtub, and I say whatever floats your boat homie.

Anyway I’ve been cleaning the leaves out of the pool with a net as Monty swims despite the water temperature having dropped majorly. To me, this is the quintessential image of Fall at home. Brown leaves floating in an empty pool. It’s perfect. I drag the net through the water and I get these bursts–an urge, an inspiration–I’m not sure exactly what it is. But I think maybe if I were a tree, I’d feel like shedding my leaves. And then suddenly, for one brief clear moment, nature makes sense. I continue to sweep the pool for miscellaneous debris including a Gatorade water bottle that monty dropped in and has sunk to the bottom. Since I don’t have leaves to shed, I went with the next best thing. My hair.

Pardon my selfie skillz.
Pardon my selfie skillz.

I chopped it. And got blonde added to it too. Mostly because, I felt that thing, that very internal tinge of electricity. The thing I think trees might feel. And I had to do something with it. I didn’t even care so much about the outcome once I made my decision. I just had to go for it. And leaves grow back in the spring–my hair grows fast. I’m 29 and I’ve never colored it. I’ve had long hair for so long that it was starting to look sad to me–sick even. It was reminding me of being sick. Suddenly I wanted the weight gone. Something lighter. Something new. As the hairdresser snipped my first 6 inches off, I remember my ex-boyfriend telling me he didn’t like my hair short. I shut my eyes and listen to it all come off. It felt good. It felt great. It rejuvenated me somehow. No more sick hair. Sick thoughts. Time to be happy and try new things. Time to act on positive impulses. Time to finish things I started and stick to things that I know are important. The leaves have fallen and my hair has lightened. (See what I did there?) I feel good about things. Good things are in the works. I encourage yall to make a change too. Do it for me. Do it for you. For Fall. Why not?

Report back. And rock on.

 

Health, Happiness, Fall.

WILD FRIDAY NIGHT

This just happened.

That sounds intense and nothing big really happened so maybe that’s a false setup.

It’s Friday night and I am alone and having one of those days. If my disposition were weather it’d be grey and off and on drizzly. If it were a band it’d be Coldplay. If I were a reality show character I’d be Bruce Jenner in those transition lenses he wears. OK so the point is it’s just been kind of a depressing day. For no particular reason but a few small ones and others I can’t pin down. I’ve had this headache which is also all over my face–for a week– and it’s not responsive to pain killers and it’s not a migraine. My whole jaw hurts blah blah blah. It’s been tough trying not to let the pain get me down. I think at some point it’s not the pain anymore that gets to you, it’s just not being able to offer your focus and energy to other things. It’s like a hangnail. Even a small pain just steals your thoughts, and after a while its annoying and exhausting. This is the point where my friends would make a joke about how bad my headache must hurt because I have such a big head. And then I’d say “thanks guys” and then we’d watch The Kardashians.

Anyway, for someone who loves being alone, thrives at being alone…I suddenly had that empty lonely feeling. And I don’t have it a lot. I really treasure solitude. But suddenly I had that feeling that I was the only person at my house at night and the world was at this party the world was partying and I was missing out and it made me a little sad. You know what the worst part of being single is? It’s not having someone to do nothing with. See a Friday night stayed in and watching crappy TV with someone you love is great. Or it feels fine anyway. But alone, crappy TV can get real sad. The other issue I might have is that I have a total addiction to my dog admittedly and I think it might be a problem. I can’t tell if it makes me the most kickass dog owner ever or the worst human being. I hang out with him a LOT and take him basically everywhere. And I worry about him when he’s not around. I wish I could nonchalantly yell “Oh it’s JUST A DOG” like so many people I hear. When does it become concerning? I think I’ve reached the point of concern, I’m not sure though. Although I DID go on a date last week and we ended up at a bar called the Bulldog because they allow dogs there and I definitely took Monty. But come on that’s normal. I’ve always let Monty pick my men. I’ll tell you about that date later. I guess. I just realized I don’t know who you are or if you’re reading and also why I’m writing this blog about absolutely nothing especially on a nothing night like tonight. But I’m in a careless enough mood that I’ll keep going. I mean clearly I have nothing else to do.

So it’s Friday night and I’m sitting on my couch and there is shit on TV. Alaskan Women Seeking Men, I Hate My Butt!, Last Call With Carson Daly. (How is that show still on?) I’m antsy and looking around at the walls of my living room. Disconnected thoughts are filing in and out of my mind. I consider rearranging the pictures I’ve hung. I consider rearranging the furniture in different ways. I wonder how many headache meds I would have to take in order for the pain to go without shutting the rest of my body down. Too many, I’ll try ice. I consider cutting my hair. I wonder what book I’ll read next. I want to read more. I need more books. Then I look at Monty. He was licking his butt. He felt me looking at him and stops and stares. “Monty,” I say. “Am I the most boring person in the world?” I swear to God, he yawned one of those huge yawns that’s like too large for his face and makes it vibrate at the end. Then he looks at me a few seconds more and goes back to licking things. I can’t explain it but I completely busted out loud laughing. Maybe at the tragedy of it all. How pathetic the night is and how even Monty knows it. Monty comes over, jumps up on the couch and laid his head on my lap. It felt awesome. I know I might have a problem with not pushing my boundaries enough socially and being a homebody and yada yada. But sometimes it’s just so nice; just us two. I know I need to try harder, but honestly, this often feels like enough.

PARTY TIME
PARTY TIME

It’s funny how small we can feel sometimes. When you think about the entire earth and how many people are on it and all the important things everyone is doing you start to question if you’re doing enough. Especially when you’re watching Alaskan Women Seeking Men. I don’t think we were put here just to play around. It’s a recreational world too and we shouldn’t forget that either. But I think it’s time for something new. And maybe that just means a haircut or changing my living room furniture or doing something significant like taking a risk and doing things that aren’t comfortable. I don’t know yet. But for real the seasons are turning and something is turning in me. Truly it was an OK week. I got a lot of writing done and  hung out with my dog a lot and I picked flowers when it was nice outside. I am alone on a Friday night. And for a second that felt awful. And then it all felt like enough. And for now, enough is enough.

Health, Happiness, FRIDAY NIGHT BABY!

Prepare Yourself, This Might Get Sappy.

There were a few things I was going to write about this week. One was a response to an article that’s gone viral about why Generation Y is so unhappy. I almost wholeheartedly disagree with it, but I couldn’t finish. The second post was a “Breakup Playlist” that was really just a list of happy songs I composited that get me excited and I can’t help but dance to when they come on. And sadly, yes, a lot of the dancing I do these days is alone. But I enjoy it so lay off! The third was an observational piece about how impersonal life can be in the digital age of social media, where so many things are taken at face value and how someone’s online presence can be so far from the person they actually are yada yada yada. I began writing on all of these topics as my scattered mind couldn’t focus on just one, but there was something more important that kept nagging at me while I worked. Finally, I pulled the plug on these ideas. I’ll work on those later (unless they end up terrible which right now they are), because this post is for you, the reader. Because even though I sometimes have these grand ideas I I can’t wait to unleash, sometimes something else comes knocking and demands to be written. At that point there’s not a lot I can do except listen; type out the words and let my heart do the talking. There’s plenty of time for break-up playlists. This was something I needed to say now.

I’ll be honest, having a chronic illness, especially when it’s at its worst like it was for me most of last year, can be terribly lonely. As much as I love my friendships and romances and strong family bonds, it’s nearly impossible to keep them all up when you’re sick. One but more likely all of them will suffer. Last year the relationship I was in ended and as my health steadily declined, so did my social life. I remember just not answering the phone when it rang. I felt like I didn’t even have the energy to explain my mood, my condition, or apologize yet again for being a crappy friend or sister or whathaveyou. One of the hardest parts of the illness has always been what it’s done to me and the outside world. Last year was a dark one, but I was lucky enough to have family who took me in, and friends who were understanding when we went months without talking. I always liked that definition of a friend- someone who knows you but loves you anyway. :) I’ll say that being sick sort of dwindles down who the key people in your life are. Some survive the storm and some don’t, and it’s not really anything personal. Some people have needs you’re not able to meet with a condition like this, and truly you can’t blame them. I am an admitted flake, terrible at keeping up and correspondence, and I cancel at least half of the plans I make. This is mostly the fault of the illness, and it’s understandable why not many friendships are upheld through it. My circle is small, but I love everyone in it dearly, and they certainly love me back considering what they tolerate.

I think last Fall was one of the hardest times in my life. I was living in my sisters house in California. Home away from home away from home. I initially planned to go there for a month, but when my crash worsened and things like walking became hard, I ended up staying until Christmas, and everything felt out of control. Because it was. I was a difficult person then, and I feel a little bad for my behavior. My sister would always ask me to go eat dinner with her at my brother-in-law’s restaurant, but the thought of small talk with people I didn’t know was overwhelming. Sometimes it put me in a bad mood just thinking about it! I actually preferred being alone. I often felt more alone when surrounded by people but completely isolated on the inside. I hated who I had become–such a solitary hermit. But I truly just didn’t have the energy to even be polite. It was easier, and better I think, for me to just stay home. Which sounds terrible and depressing. Healthy people won’t get it. But truthfully relationships of any kind take work, they are two-sided, and I just didn’t have enough to give at that point. But the real reason I’m writing about this is because, beyond all the crappy days and reclusive tendencies, there was this community built on the blog. People reading it and commenting, people sending emails of gratitude or support or encouragement or all of the above, and it was truly remarkable to receive feedback like that, especially at a time where I felt really alone. I knew there were others like me and I wasn’t suffering alone. And although I didn’t know any of you truly, I knew of you because you reached out and were honest, and I read every word. It meant the world to have complete strangers rooting for me, some in other countries. It felt incredible not purely for personal reasons, but because I saw just how much positivity and love and support could be garnered by so many people who didn’t even know each other. It still gives me chills to this day; it shows what can happen when human beings come together for something good and optimistic. I think we’re all looking for a reason to be good. And while no, it didn’t cure me or fix all the problems, it did give me a real sense of hope that I could get better, that it wouldn’t always be like this, and even at times that if I never got better, this wonderful energy was still created and circling around the world. I didn’t do it, we did it. We put that out into the universe, and there’s something kind of magical about that. We’ve created some good together, and I think it’s something to be proud of.

Last week I posted about a promise I had made to myself years ago: that I would celebrate my 30th birthday in Paris. When I read people’s responses and support and encouragement for me to do something purely because it would make me happy and in turn, them happy, I felt the most love I ever have laying in bed and looking at a computer screen. Strangers telling me to go for it, that they’d donate money for me to do it, and insisting I go regardless of circumstance, was truly inspiring to me. I felt connected and after such a crappy year last year and feeling so far on the outside, watching everyone else live their lives while I felt like I was crumbling internally, that was such a powerful thing for me to feel. And needed to feel I should say. It’s easy to get stuck on your story, to live life from the outside looking in, to let things pass you by. But after seeing such a positive reaction from people, and seeing how me going after my dream and living with purpose was encouraging others too was simply unreal. But mostly, it was an inspiring and and abundant source of love to feel on my end. And that’s stuff you just can’t buy or put an amount on. It is truly priceless.  So for that I want to say thank you. THANK YOU. THANK YOU A LOT. I felt a very long time ago that this blog wasn’t really just about or for me. It was for something greater. And I know that now more than ever. It’s about all of us.

As summer turns into Fall, (unless you’re in New Orleans in which case it’s still 90 degrees and there’s a tropical storm headed our way) I am reflecting on where I was last year at this time. I had no idea that some of the hardest months of my life were about to unfold. And in the darkest of times, moments where I couldn’t find myself in the world, I would always come across the words in a comment or an email from a reader that reminded me of something very simple but very important– I wasn’t alone. And if you’re reading this now, going through a hard time caused by anything- health, heartache, loneliness, insecurity, whatever- I hope you’ll know that you aren’t alone either. It was in those very dark but small moments, that the tiniest crack of light would shine in and let me know, we truly are all in this together. We’ve all got our battles, and we all experience things that make us question who we are and where we’re going and if we’ll ever get out of the hard time we face. I’m here to tell you, you do. I did. Many times actually. And the hard parts aren’t over. I am relatively young and life won’t stop throwing boulders or pebbles across my path. (If you’re listening God, I prefer pebbles. But, you know, do what you gotta do.) I just feel that one of the most important things that could ever so slightly drag me out of the dark, was this interconnectedness I’d feel with humanity, even though I had no social life…at all. Granted my sister tried, but I was mostly a grumpy curmudgeon. Sorry Amelie! Anyway, things have gotten better. My health, while still a major hurdle, is not nearly as bad as it was this time last year. I’ve reunited with friends. I wear pants a lot more now. ;) But it feels good to know that while last Fall was let’s face it, a shit show, I re-emerged. As we all do and will, if we can only hang on, remember that nothing is forever, and as lonely as it can feel, we are never truly alone. I mean it. And I’m alone a lot!

So, that’s it. Among all my other ideas, this one wouldn’t leave me alone. And I want to tell anyone reading, I read every comment on this blog and every email regarding it. I don’t always respond (I told you I’m a flakey friend and terrible with correspondence!) but I honestly take time and read all the feedback sent my way. And I LOVE hearing from everyone. The funny thing is how many emails begin with “I’m sure you get thousands of these but…” I assure you that’s not even close to the case. A few a week at best!! All of you have your own battles and wonderful, sometimes sad, sometimes hilarious, stories of tragedy and triumph, and I relish in reading them. I wish there was a scientific or spiritual way for me to prove or convey this, but all of that positive and loving energy sent my way goes right back into this project and the world at large. It’s such a cool community we’ve set up here. Remember this all started with two followers: my sister and my aunt Amy. And look at us now! :) Thank you for reading, writing, laughing, and crying with me. The community we’ve built is invaluable, and I always turn to it when I feel myself leaning towards seclusion or sadness. I hope you do the same. Because half of writing anything is having someone to read it. I think we’ve done well. Again, a million times over, thank you.

momo
Monty was very excited to take this photo.

Health, Happiness, Merci.

*P.S. On September 26th, this blog turned two years old. Yaaay.

Tiny Little Worlds

Most mornings start out the same for me. My eyes peel open slowly like velcro. My insides feel like they want out. Everything feels out of balance. I throw pills in my mouth, make my pot of coffee, let Monty out, and wait to feel human again. It isn’t the best…mornings have always been the hardest. But roughly an hour later, I start to feel better. The pain subsides. The disoriented, dizzy haze fades, and I sip coffee slowly and let my thoughts organize themselves. Once I’m human again, Monty starts making noises that imply if we don’t go outside and play in the pool soon he is going to explode or implode or something of that nature, so we go. He jumps in immediately, I sit in the water on the first step, and the day really starts. I’ve come to love our routine. It feels good spending so much time outside. Especially after a year of feeling  so imprisoned to the indoors. Lately, the last step of morning involves saving frogs from the pool. They are really tiny; cute actually. Usually there are at least 5 of them. I try to keep them together, like they are some kind of family I’m rescuing and I don’t want the children to get separated. I have no idea why I feel this obligation to save them, but I do, and so I do.

small friends.
small friends.

They are such incredibly small animals, sometimes I just watch them. I feel bad when I find a floater who didn’t make it. I scan the sides of the pool twice where there are usually one or two and then the two round filters that catch the extra debris. I then usually carry them to the nearby ditch so they can hangout in natural water. Last night, Monty was muddy so I walked him out to the pool to clean him off, (this is now what we consider bath time) and when we approached I heard a loud splash of something that jumped in. When I looked in the filter, a huge frog was in there, spinning from the pump circulation. Certainly he would have died in there. The steps are too deep for them to jump back out. I took him from the filter and released him in the garden, and told Monty to be gentle as he sniffed up close after every hop he took. Then I played “Folsom Prison Blues” to him on my guitar because I learned that song recently and it’s really fun to play. And what’s the frog going to do? Walk out on my concert? Come to think of it that is what happened, but you see my point.

Anyway, it’s interesting to look at such physically tiny life that we normally never see. There’s plenty around here. Including wolf spiders that are INSANELY large and terrifying-looking, but ultimately harmless. So when they’re inside I catch them in plastic cups and throw them outside, basically screeching the whole time because if it escaped the cup and crawled on my hand I’m pretty sure I would pee myself.

Dear God.
Dear God.

There is a huge variety of birds; there are mice and turtles, spiders and lizards, and even these tiny bunnies that Monty chases away. I like watching their world. Something about it makes my problems feel smaller, and I don’t know what the explanation is for that.

Snapper?!
Snapper?!

Anyway, I really don’t like killing anything alive. Especially because I don’t feel like they are in my territory but that I am in theirs…and it seems so pointless to kill them. There was a time I wouldn’t mind killing tiny things, I think. But now the idea doesn’t sit right with me. (Except mosquitoes, screw them.) So I catch them and release them. Save them from the filters. If anything, it helps me feel like I’ve done something. There are many stationary days. Sleep filled and cloudy. It makes sense to save something from drowning if only because I haven’t done anything else that day. I don’t have to, but I can. Might as well save a frog or five.

Health and Happiness and Little Tiny Worlds

Frog on Shades.
Frog on Shades.

new frenz.
new frenz.

finger frenz.
finger frenz.

Today Is Wednesday.

Today it is hard to wake up. It is hard to move my fingers and hold this pen. Everything is heavy as though my insides are all made out of lead. If you’ve ever tried running underwater in the deep end of the pool, then you’ve had a glimpse of it. It’s hard to say why my body has backtracked these few days. Last week felt like a good one, more solid than the past, and this week things fell apart. Did I get too sucked in? Did I overindulge in the tasks of the busy world? The fast work. The chattery world. The one that I used to think didn’t have room or time for the sick?  (I’ve changed my mind on that one.)This is often the culprit–engaging in too many things that in the end don’t really matter.

So now I will rest. I will sit in the room with the big windows and let the light in. The dishes will wait. Paperwork will wait. Even Monty will wait. Every once in a while he’ll get a burst. He’ll paw at my chair- but behind his brown eyes, sometimes so deep and intense I wonder where his mind is- but he knows that today will have to be one of rest. He curls into the half moon shape at the base of the chair, back to doggy-chasing rabbits-gratuitous bacon-dream world. I apologize and I don’t know if he understands or cares, but he is a creature of the present and for that fact alone he doesn’t seem to mind. It isn’t in his DNA to mind. When we rest we rest and when we play we play and there’s no good reason to cry or complain when we’re doing one and not the other.

Even though it’s a sick day, a string of sick days that always has the grim potential to turn into months of sicks days, I want the world to know that it doesn’t feel like suffering. It just feels like something the day brought- as though it were sunshine or rain or an LL Bean catalog in the mail. It doesn’t feel personal. I know people who take offense to the rain. How dare it rain on my wedding day! Who cares? Nature is balance, nothing more. I’ve been practicing putting the sickness in the same category as the behavior of nature. It takes the sting of it away. Today is Wednesday. It’s humid and raining off and on. My limbs are heavy and stiff and my fingers don’t fold so easily into my palm. The invisible wet blanket of the illness I carry is extra wet–maybe from the rain! But none of this has anything to do with how happy I can be. How much joy I can find.

The things that thrill me still exist. Monty’s tail still wags when he sleeps. The smell of the magnolia tree outside is heightened from the rain. I have a house for Monty and me. A home base that isn’t impatient at all when my life has to slow down. I don’t have to run from sick days. I can let them come and let them leave and not get upset in the meantime. Simple pleasures still exist. My eyes can still take them in. And even if my eyes give out on me, my heart will still know the joy of it. My soul is learning to open slowly, much like the magnolia I picked that is now wide open at my windowsill. I am hanging on to life’s little treasures and remembering and emphasizing and reminding my busy brain that all of these things exist no matter what condition my body is in or what kind of outlook I have. I can stay closed until I think life is going my way or I can open up wide to the world and the sun and every person and animal I meet. It is in fact, up to me. If it’s left up to anything else, then happiness will be a constant, conditional pursuit and never actually attainable. I think when you’re around happy things enough, you start to see where they have it right. Today is Wednesday. It’s muggy and hot. I am heavy and dragging. It will be a good day.

Mastery of Life is the Opposite of Control. -Tolle

Health, Happiness, Wednesday.

Sixteen Clementines

It is a dreary, rainy day in California today. I love it! It was this way yesterday too. I had been feeling a little home sick lately and now suddenly I have damp Louisiana weather–the in between cold, lonely drizzle outside. It’s superb. It’s so anti-California. Feels like home to me.

When I stepped out into the rain for our morning walk, I was expecting to make it quick since that what’s you do on days like this-stay indoors. But Monty seemed so happy frolicking around and it felt pretty good hanging around out there, that I just let him get wet and play in the mud and people laughed as they walked by. I’ve always let Monty get messy if he really wants to. There’s no real problem with it..dirt washes off! So we got dirty.

Mud.
Mud.

Health-wise I have been improving since the whole too weak to move crash, slowly but surely. My naturpath doctor received some blood work two weeks ago that confirmed I still have lyme disease, as well as two co-infections (one is Bartonella, aka as cat scratch fever..what the hay?!) and one parasite in my gut. All right!! This is good news though because they were definitive results and allowed us to move forward with a treatment plan. Since she is a naturpath she doesn’t use antibiotics to treat things, so combating the lyme this go around will be a little more complex. I could go into the details but I don’t even understand them entirely and it’s pretty boring anyway. It’s a crazy coincidence that my doctor studied a while with one of the top lyme specialists in Northern California, so we’ve got that working for us. If we can’t get it under control with her care, she’ll send me to him.

I forgot to mention that part of seeing the naturpath is going on a major detox where you avoid gluten, dairy, corn and you drink this protein shake all the time which actually tastes decent! After 6 years of convincing me to go gluten-free, my sister can now rest easy knowing I’ve made the step. For now anyway :) The diet actually isn’t so difficult to adhere to but that’s because my sister keeps the house stocked with stuff I can eat and pretty much brings me dinner every night. You may ask yourself, what do you eat? The answer is yams. I eat a lot of yams. Kidding. Well, I did eat a lot of yams in the beginning. But the point is to mostly eat fruits, vegetables, and a lot of protein. So that’s what I’ve been doing. Yesterday I ate sixteen clementines. For real. I can only eat at least four at a time. They’re just so small and addicting. I don’t know that I’ve been able to tell exactly what difference the diet is making since there are so many variables right now, but I do know it’s nice to feel good about what goes into your body. I admit I never felt great mentally after stuffing my face with fudge sickles at 2 am. Mmmm fudge sickles. That sounds so good right now.

Since I’m pretty obsessed with the Holidays and Christmas in particular, I told Amelie and Keegan that since I’m a sick kid they have to grant me a wish like the Make-A-Wish-Foundation advertises in the commercials. (On top of housing, feeding, and caring for me, of course.) My wish was for a real Christmas tree and the day after Thanksgiving, we did it! She’s a real beauty. If she had a name it would be Anastasia. We’ll hang small milk bones on the bottom so that Monty will tug at those and not the real ornaments. There’s nothing like the smell of a real Christmas tree. It’s like Winter, Happiness, Warmth and Love all wrapped up in a smell. On top of that I’ll be blaring Christmas jams and watching Elf on repeat which my brother-in-law is really excited about. What can I say, I’ve always loved Christmas.

Apart from yuletide, I’ve been watching Woody Allen movies, taking pictures of people’s windows, and writing things late night I still don’t entirely understand. I still need to watch Crimes and Misdemeanors which I hear is one of the best..but Annie Hall is so ridiculously lovable it’s been hard to forget.  I loved Manhattan too but it made me nostalgic for Annie Hall. I liked Melinda and Melinda a lot and also Alice. Husbands and Wives may have been a little too neurotic, and Midnight in Paris was the best! I really loved that one, and Owen Wilson’s character. Too good. Tonight I’ll watch Play It Again, Sam and then maybe I’ll get back into reading. Somehow I kind of stopped. Anyhow, I keep taking Monty on walks around our complex and I love seeing people’s windows from the outside. The blinds are always closed but people put little decorative pieces to view from the outside, and I like seeing them. I don’t really know why. So I started photographing them. I also realize it ups my “creeper” level a few notches, but I can’t help it.

Dog. In a Sweater. YES.
Dog. In a Sweater. YES.

Batman? Is that you?
Batman. He lives.

Cups.
Cups.

That cat.
That cat.

 

 

 

 

 

 

 

 

 

 

 

Health, Happiness, Window Shopping.

The Importance of Catching Balls.

The other day I didn’t have a lot of energy (shocker) but Monty did (shocker).  I was throwing the ball for him inside the living room and noting what an expert catcher he is. Like the dude jumps crazy high and catches basically every ball I throw. So I started recording him. Because I have time to do crap like that. Then it was such a beautiful day outside I said screw it, if I can throw a ball in here I can do it outside too. So I brought him outside and recorded all the different ways in which Monty catches a ball. Then I made a movie out of it and put it to some fun music because video editing is another one of those things you can do from bed, and again, I have time to do crap like that. Woo woo. So, below is the result. I guess I realize that Monty makes me happy in so many ways and even watching him jump to catch a ball makes me laugh. Now we all get to watch him. And the angels rejoiced.

Health, Happiness, Monty

*Note, you can’t currently watch this video on a mobile device like your phone because of a third-party licensing issue with youtube…Booo, I know. I’m working on it.