You Can Make Your Own Cheese?

Good morning world! Guess who’s up at 7 am?! I haven’t been up this early and actually felt alive in a long time. I woke up in pain but I wasn’t weak like I’ve been and the best part was this; I woke up just in time for the sunrise. It’s funny that such a phenomenal event like that happens every, single, day, and how seldom we actually see it. Or stop to watch it. My immobility in the last few weeks has left me observing the worlds tiny gifts that I didn’t used to see before. Like yesterday I watched a spider web glisten in the sun and was like whoa, that’s beautiful dude! Because my life has become so contained, I’ve been seeing the small things surrounding me, and suddenly they seem just as big as the things I used to strive for- independence, health, conquering the world. Those kinds of things. It reminded me of something Mark Nepo said in an interview that I wrote in my notebook. He was talking about finding “the special” in everyday life and how important that is to happiness. “Become easily pleased. Find what’s special in everything. Everything glows. There are more distractions and distortions now than ever. The challenge is how do we balance–how do we hold at bay all the voices that are forever crowding in, and hear the voice of own soul.” The answer, he said, lies in stillness, reflection, and “spiritual aerobics.” I liked hearing that. And I find the special little things often outside when I’m on a walk with Monty. A fallen birds nest or a bright red door or marshmallow clouds, a little kid with a suitcase or an old man with grocery bags. Whatever it is, it’s easy to miss. But I notice that when I’m quiet I am surrounded by extraordinary things. You don’t have to travel across the world to see incredible things. It’s more about a change in perception than location. We have a tendency to think happiness is “just over there,” beyond the next hurdle, over the fence. I keep hearing that happiness is something already within you and I see now, it’s just about accessing it, activating it. It’s gettin deep in here yall!

This week marked the beginning of a new project: GOOD NEWS IN PLAID! Woo woo. This project started pretty unorganized and is still coming together. But I have to say, I feel better after I report good news. I like hearing other people’s good news. And I enjoy avoiding politics, terrorism, disease, and murder. Who knew? In the beginning I was like why am I doing this? I don’t even feel like moving! But then I was like, wait, I have nothing else to do. I might as well report good news. And it’s something I can do from bed, or the floor, or the couch. So I’ve been recording myself (and Monty) everyday reporting a few pieces of positive news from my own life and other people’s. Yesterday, 32 people left comments reporting their good news on Facebook, so I recorded myself reading everyone’s little bits of good news..without reading through them first. Then I showed it to my sister and realized it was a 10 minute long video and one of the more awkward things you’ve ever seen in your life. So she recommended I edit it down to like 5 bits of good news instead which is probably a better idea. I try to disregard the ridiculous parts of the video where I look and sound like a moron–like when I ask “You can make your own cheese??” (You’ll see) My sister laughed for a good ten minutes at me for that one. But it’s just about positive energy and good news, so I’m sticking with it. It’s also really hard to find the music you want on YouTube, so this video ends super cheesy and the music sounds like something that would come at the end of that movie Precious or on a Cadillac commercial. But anyway, Keep the good news coming…I love hearing it and reporting it, and I think everyone agrees that the world could always use more good news. Below is segment 2 and 4. You can see all the videos at goodnewsinplaid.wordpress.com. I’ll continue to post 1 a day.

In other news, I started seeing two new doctors. One is a Chinese doctor who practices traditional Chinese medicine and is the most delightful man you’ve ever met in your life. Doctor Xu (pronounced Sue)It’s a whole different approach to health, but a lot of it makes sense to me. It seems to work with your body instead of just supplementing pills for symptomatic relief. And since this illness manifests itself in entire body system malfunctions, it feels like a good approach to take. After looking at my tongue and nails and asking a few questions he said “OK, I fix you. Two or three months. I fix you.” He makes his own chinese herbs and creates a tea out of them based on getting your body back in balance and “lighting your internal flame.” Haha. Whatever that means, I’m up for it. He also helped my sister out a lot when she was experiencing chronic migraines and often sick after college. So now he gets to try to heal her sister. His Chinese herb teas taste like what I imagine a bird’s nest ground up in a blender with some carrots thrown in would taste like. But if it means getting better, I’ll try anything. He also does acupuncture which I really like and cupping which feels awesome. But it leaves you looking like you’ve been attacked by a circle monster. See?

I know, it looks gross. 

The other doctor I am seeing is a Russian woman who practices naturpathic medicine. She believes that I didn’t get rid of the lyme disease on the first go-round and so I am still fighting that with “co-infections” and that’s most likely why I feel like I’m dying. :) Anyway, she has a plan, and Dr. Xu has a plan, and I’m trying it all. Open to anything. Maybe with a combination of Western, Eastern, and Russian Naturpathic medicine, I will get to feeling like a human being again. As my mom says, “All the kings horses and all the kings men will put Humptey Dumptey back together again.” It all sounds good to me.

Health, Happiness, Humpty Dumpty

Good News.

I never write on Sundays, but I have a little energy today and after a sick and cloudy week, I’m taking advantage of some mental clarity. The truth is I don’t have a lot of news physically. I have been the weakest I’ve been in my life. It’s a little nuts. It feels like trying to move through maple syrup. So life has been in slow motion, literally. But as always, I have help and constantly remind myself how lucky I am for it.

The real challenge with this latest crash has been maintaining emotional resilience. I remind myself of the same idea each time it gets overwhelming; this is only temporary. And when times are golden and everything is going perfectly, that will be only temporary too. The point is to find inner peace and joy that is resilient through circumstance. So just look at the bad times as intense training. Training isn’t forever. At some point you go out into the game and test your skills. And no doubt, the world will always provide you with situations in which to test yourself and what you’ve learned. This year has had a lot of training and a lot of tests, but a part me feels that I am only just beginning to understand any of it.

Since I have a lot of down time, not moving and all, I do a lot of weird things. Like look at nothing out of a window for a long period of time, not really knowing how long has passed when I snap back to present. Sometimes I listen to Debussey’s Claire de Lune over and over and over and just feel the aliveness of a song like that, even though I feel like only a half-alive body. I watch French movies on Fridays because verbally, it sounds nice. French Movie Fridays. Also I love French movies. I write down things in my notebook that I don’t immediately understand or know from where they come; sometimes I just feel like the person holding the pen, channeling something else altogether, something separate from me. Deepak Chopra would say there is no separate, there is no you and no me. Each person manifests the entire universe, all of the people, and the source itself, within themselves– thus separation is just a human illusion. This is why when you hurt someone else, you hurt yourself. This is the oneness found in “waking up.” This is how he explains the part of you that isn’t born and won’t die. It embodies it all, and it is eternal. So I guess some of the things I write down are being pulled from an all-access consciousness that has always existed. I don’t know. Maybe getting sick is what it would take for me to stop and pay attention, to finally write down dormant words, to know what it is to be alive. I just know sometimes I write things that are far more intelligent than I am and I don’t even feel right taking credit for them. Except the White Girls on Facebook post, that was me. :)

There’s a funny phenomena that happens when I’m sick: Once I start to feel better and recover, I can never remember how sick I was or how bad it felt. I can imagine it but I can’t feel it. It’s like my brain deletes the sense memory of it. I have read that this happens to women after childbirth, and I guess it’s an evolutionary survival mechanism. If women remembered how bad it hurt, they’d never have more babies! It’s like the worst hangover you’ve ever had. You swear you won’t do it again, but then the beer tastes so good and the buzz is so nice! I don’t know what the meaning is behind not being able to recall precisely the physical feelings, but being this weak and incapable feels pretty burned in my mind by now. I may not be able to access these feelings again once I’m better, but what I need to remember is that shit, life is fragile. One day you wake up and you’re too weak to walk and your mom and sister have to feed you. It’s not all pretty, but I know there is meaning in it. It’s easy to throw up your arms and scream WELL WOE IS ME,  life is unfair and none of this matters. And I’ve done that some days. The problem in doing this is that the very conclusion leaves your experience meaningless. The suffering is the hard part, but if you can hold on, if you learn to live anyway, then you’ve transcended the pain and evolved and it wasn’t for nothing; growth can never be bad. Following the pain always comes pleasure, even if it’s a simple change in perspective. Plenty of people have experienced far greater tragedies than me and come out on the other side– happy and wise. Like my mom for instance, who survived the death of two husbands, but didn’t succumb to darkness and managed to emerge happy and loving.

The goal in all of this for me is not just to stay positive and hopeful, but also to keep my perspective wide and my problems right-sized. This is just a moment in the context of eternity. It’s still really hard but it’s not forever and I’m not on my own. It’s easy to feel like the world is really big and you are really small and your little problems are terrible but that they don’t really matter. But they do, and you do. The way to make them matter most is to conquer them– with humility, grace, whatever you got. Everyone has their battles and each leads to their own lessons and outcomes, all necessary for the evolution of the world. But we all have to do our part. I don’t pretend to know how it all works, and I don’t think we’re meant to know the whole truth in this limited dimension we live in. That may explain why I had a dream last night that TRANSCENDED TIME AND SPACE and I have no idea how to put it into words. I probably sound like a kid during his first experience of dropping acid, but some things we just can’t fathom on earth. And that’s fine. We just need to do our best.

So I’m going to keep trying. Keep hanging on. Keep reading what the Greats have to say and try to make sense of it all. It’s been a challenge to stay optimistic and happy, but I know it’s necessary and I will work just as hard at that as getting better physically. In that light, I’ll introduce a new project that begins tomorrow. I’m going to report a few minutes of only good news every day for 30 days. I’ll begin with personal good news (like, I had enough energy to take a shower today!) then report national good news and then worldly good news. The idea is simple- I’m too young to be cynical. My situation is depressing enough and I don’t want to keep watching the news to see how crappy the world is and how bad people are. It’s important to stay informed on events, but I think it’s just as important to see the good things people are doing and the positive stories too. So that is the newest project and I will post the first video tomorrow around 6–that seems like a newsy time doesn’t it? I will always wear a plaid shirt because plaid makes me happy and I have a lot of them and we’re striving for good vibes here. To give you an idea of things I won’t be talking about, here is the backdrop to my very high tech news desk.

Watch the good news at goodnewsinplaid.wordpress.com.

**Addendum! I jumped the gun on my 6 o clock timeline. I’m a little behind. But the good news is now up at goodnewsinplaid@wordpress.com. If you have good news you’d like me to read on air, send it to goodnewsinplaid@gmail.com. It can be anything from your little league team won to you’ve been constipated for a week and maybe you finally had a bowel movement. If it’s good, it’s good.

Health, Happiness, Plaid.

How to Hang On.

I came across these words in the middle of the night last week when I was really sick and couldn’t sleep. I was feeling scared and anxious–of what I wasn’t exactly sure, but there was some sort of doom over my head and I didn’t know how to relieve it. This passage helped. Today my mom read to me the same excerpt out loud while discussing life and love and hardship. I figure twice in seven days is enough of a sign for me to pay attention to the words, so I thought I would share them here as well. They are written by the mystic Joseph Cambpell.

The loss of a love and the pain of a broken relationship is an overload of projection. That’s all it is. In youth, your whole life is this wonderful dream that “This is It”: this relationship is the fulfillment of my fantasy and I can’t imagine life otherwise. No argument can quell this feeling of total projection, of everything in the other one. I guess we can all recall an episode of an adolescent relationship that seemed to be the all-in-all and then went to pieces for some reason.

When a relationship breaks off, it takes a person a little while to settle and find a new commitment. It’s after the breakoff, when there is no new commitment and life has been divested of all of its potentials, that this painful reaction takes place. For some people this is a dangerous period.

The psyche knows how to heal, but it hurts. Sometimes the healing hurts more than the initial injury, but if you can survive it, you’ll be stronger, because you’ve found a larger base. Every commitment is a narrowing and when that commitment fails, you have to get back to a larger base and have the strength to hold to it.

Nietzsche was the one who did the job for me. At a certain moment in his life, the idea came to him of what he called “the love of your fate.” Whatever your fate is, whatever the hell happens you say, “This is what I need.” It may look like a wreck, but go at it as though it were an opportunity, a challenge. If you bring love to that moment – not discouragement – you will find the strength is there. Any disaster you can survive is an improvement in your character, your stature, and your life. What a privilege! This is when the spontaneity of your own nature will have a chance to flow.

Then, when looking back at your life, you will see that the moments which seemed to be great failures followed by wreckage were the incidents that shaped the life you have now. You’ll see that this is really true. Nothing that can happen to you is not positive. Even though it looks and feels at the moment like a negative crisis, it is not. The crisis throws you back, and when you are required to exhibit strength, it comes.

The dark night of the soul
comes just before revelation.

When everything is lost,
and all seems darkness,
then comes the new life
and all that is needed.

Health, Happiness, Hang On.

A Call For Positivity.

Good morning world, it’s been a little while. It’s 4 am in California and I have to say I’m OK feeling wide awake despite the indecent hour. I feel like I’ve been in a sedated state, in and out of consciousness for the last week–more out than in– and it feels good to finally feel alert enough to touch base with myself again. I have never been this sick before, at least not for this long. It’s beginning to make my other sick days feel more like mere child’s play. They’re nearly laughable when I think of them now.

I move when I can, which isn’t very often. It’s difficult to do basic things for myself these days and it sucks to have to ask, but that’s where I am, so I’m trying to make peace with it. Walking is really difficult and the weakness gets overwhelming. It sort of feels like trying to walk underwater–like someone smothered all of my joints in honey. Anyway, being stationary for such a long period of time isn’t super fun (for me or for Monty) and sometimes the mental housekeeping can be harder than the physical. It’d be nice to lose myself in the distraction of anything physical…tennis, shopping, drinking with friends, a road trip or camping! But it’s all out of the question, so I am left to my consciousness and the quiet of days as the world around me spins on without pause. I know it’s vital that I stay positive; that I don’t succumb to the fear and despair lingering between wakefulness and sleep, and that I surrender to where my life has me for now, and that I remain precisely clear about the difference between that and giving up. I am always going to pursue the healthiest routes and happiest choices, but I also need to just exist where I am- which right now, is immobilized in my sisters apartment. When I try to move around I am worse the next day, so it’s bed rest for me. Not much of a choice anymore.

The good news is, I have help. My sister has been doctor for a while now, while my brother-in-law insists on eating when I don’t want to. My mom flew in on Thursday so now the help has help and I am lucky for all of it. And Monty too of course. He’s a mental help to us all, and when things get sad or heavy somehow he finds a way to make us all laugh.  I think he’s anxious for me to be back on two feet but he’s patient as always. He’s taken to my sister and brother-in-law, like he knows they’re the ones with the energy. They’re the ones who will throw him the ball. So he plays fetch with them and my mom and when he comes back in he trots straight over to whatever piece of furniture I am using as a bed and curls up next to me; content until the next time he needs to go out. He is a constant reminder to be in the present moment. That is something that dogs just get and humans mostly miss.

I am going to be very honest and say that emotionally I’ve been kind of a wreck. I’m not a huge crier but for some reason when I fall into these weak, dizzy crashes, tears just roll down my face. I don’t even necessarily feel sad when it happens. It’s like this strange cause and effect I don’t feel I can control. So, I let the tears come. I try not to harp long on any negative thoughts or fearful worries; they are not only useless, but detrimental at this point if I give them too much pause. My mom told me “You can’t afford the privilege of a negative thought right now,” so I try to stay away from them. If they come, I let them, and then I let them leave. I am beginning to learn the art of detachment. Or I’m getting a crash course in it. I don’t know that I have another choice, and I must say I’m getting pretty good! I’m writing about this because I know that so many people have felt what I am feeling now, and many of them have not had support systems behind them. I want anyone to know who’s sick or troubled and reading this that it’s OK to want to punch the wall, scream really loud, curse the car door and earth, the universe, or God. I have done all of these things in darker moments, and sometimes a good scream or cry is necessary. It’s OK. Sometimes if I’m too tired to yell, I just flip off the sky. As if the clouds brought me to this point. It’s like the most passive aggressive protest I can demonstrate, but since my arms down to my fingers are weak, I don’t leave it up there very long, which usually leads to cursing. Haha. But what I also know is that anger and screaming and crying and cursing…it just doesn’t get me anywhere in the right direction. It doesn’t move me along. It’s really easy to be mad at a situation; to be pissed off or sad or claim unfairness. But where that gets you is stuck further in the predicament you were already in, just now you’re a miserable person in a shitty situation. It’s just plain more interesting to be a happy person in a shitty situation. Try it! When people ask how I am I say “Terrible! And it’s the best day of my life!”

My goal now is to stay as happy and positive as I can, which so far has been extremely hard. But I’m going to keep at it. I’m letting negative thoughts come and go and I follow them up with something better. Something true. I constantly remind myself of what I have; love, a family that gives a shit, good doctors, good friends, and the best dog in the world.  A few examples; my friend Kaitlin aka Matt Damon texts me our inside jokes throughout the day, often consisting of lines from Billy Madison, Orange County, or philosophical thoughts on the Golden Girls. Sometimes a one word text can make me laugh, and that feels like a step in the right direction. My brother Nick sends me interesting and positive reading material or funny pictures of the baby. My Stupid Friend Jess sends me her favorite facebook statuses of the day, which are always terrible. And hilarious. My mom and sister let me cry when I need to but are always encouraging, reminding me of the truth, and that is so necessary at times like these. And me, I’m kind of just hanging on. I don’t really feel like I’m driving the car to my life right now, but, I can at least control the music. Is this metaphor too much? Anyway, instead of playing like, Coldplay and Radiohead, I’m trying to play happier and motivating things. The Black Keys, Vampire Weekend, The Rolling Stones, and Ke$sha. Come on, that Tic Toc song can make anyone dance. We’re out of the metaphor now, I actually like listening to that song.

So, that’s where I am. It’s a really rough time, but I know it isn’t forever. And I know the answer to it all is not in anger or sadness or self pity, even though these reactions and dispositions are often the easier, default choices. It’s funny how conditioned humans are to respond this way to stress in life–and how absolutely worthless it remains. You’d think after 2000 years of civilization we’d have gotten it by now. Even the dogs get it! Anyway, as I sit immobilized, a heat pack on my muscles and the smell of BenGay circulating in the air, I’m beginning to retrain myself. My body is crazy weak, so I’m going to work on a stronger mind. I know that every situation is an opportunity to grow, and I guess it comes down to whether you want the experience to leave you larger or smaller than you were before. My hope, of course, is to walk away wiser and stronger. And while it’s the harder path to take, I know it’s not impossible, and so many others have endured far worse and done just fine. In the meantime, I gotta stay positive. So send me funny stuff! Among the 25 pills, laughter is still my best and favorite medicine.

Health, Happiness, Hanging On.

A Sick Kid With Some Questions; The Scandal Behind Chronic Fatigue Syndrome.

It is midnight and I just finished taking a bath. I experienced a really bad crash a few days ago and spent the last two days in bed waiting it out. I am unsure what caused this most recent crash. I have been taking it very easy here but something zapped. A fuse blew. Bye bye Mary. The bath I just took was the first one I’ve taken in four days. I know that this is disgusting. I am someone who prefers to shower everyday, do my hair and makeup everyday, and wear clothes that are coordinated like the commercials tell me; transitional outfits from day to night! It’s no secret that my frequency of showers has lessened in the last two years. But when the simple act of getting up to blow your nose, or reaching for something that is more than an arm’s length away and you return to your position panting, out of breath, heart racing, body weighed down…it sort of leaves showering out of the question for the time being. It’s impossible to stand that long. This is why when I do muster up the energy to get clean, I take a bath, which requires a lot of energy in itself. But I take a sick person bath. I use a water bottle to pour water over my head so I don’t have to sit in weird positions and once I’m in, I’m in for a good hour. I don’t know why, but I often start to feel like a human being late at night. It’s like the clouds part just for a moment. So while I get that small window, I take a bath and tend to personal hygiene; Brush my teeth as hard as I can, because I don’t know if I will have the energy to do those things tomorrow. If today is any indication, then probably not. Monty sleeps, raising his head every now and then at a noise I make, then goes back to dog dream world.

I know this all sounds pretty grim, and it is. This is the ugly part of being sick. The part that people who know me socially don’t ever see. The part that sometimes, like yesterday, become too heavy for me to bear. Not just physically, but mentally. All of the sudden, it weighs too much. I feel stuck. It’s all piled onto my chest to where even my breathing feels labored. I call my mom and she walks me through it. I let the dark thoughts come and leave. They are just thoughts, fleeting and insignificant. I say “I will not lay down and die today.” And then I write it in my notebook. And then I lay down. But I don’t die. (Spoiler alert!)

I survive. Suddenly, I don’t want to write poetry about being sick. I don’t want to find the wisdom in the pain. I don’t want to ask what the lesson is and find how I am a better person because this situation forced me to dig deeper into consciousness. Which is true, it did. But some nights like tonight, I’m just ready for it be over. In my bedridden state the last few days, I’ve been researching the very bizarre and twisted history of this illness, and it’s surprising to say the least. Tragic and appalling to say the most.

I want to know why the National Institute of Health has continuously allotted such low sums towards the research of CFS.  For 2012 it has allocated $6 million, ranking it 220 out of 232 diseases. You can find it at the bottom of the list underneath Psoriasis ($10 million) and Hay Fever ($7 million). To give some context, similar illnesses like MS were given $121 million and Lupus, $105 million, but have less prevalence and a similar level of disability. As a result, countless studies and research efforts in the way of CFS have been put on hold or simply terminated citing funding issues.

It takes money honey.

I want to know why the Center for Disease Control has repeatedly ignored, overlooked, and downplayed this illness for a quarter-century–An illness that the head of the CFS branch himself said left patients as functionally impaired as someone with AIDS or Breast Cancer. The agency not only minimized it’s detriment by calling the thing “Chronic Fatigue Syndrome” (they might as well have called it Lazy Ass Tired Folk Disease) it’s now been documented that the CDC routinely diverted money intended for CFS research to other projects. This is all documented in the book Osler’s Web and this article by David Tuller from November of 2011. A 1999 report from The Department of Health and Human Services found that between 1995 and 1998, at least $8 million was charged to the CFS tab but rerouted to other projects and another $4 million could not be accounted for.

I want to know why the most promising research of CFS is being funded and executed by private institutions and donors, like the Whittemore Peterson Institute or at academic institutions like Columbia and the University of Miami…no where near the CDC, the NIH, or its constituents.

This isn’t just about me or just about other sick people with this illness.  Contested illnesses like this cost the US billions of dollars annually in lost productivity and depletes healthcare resources. Less than 1/5 of patients with CFS work full-time, and more than half receive disability benefits. The estimated cost of lost productivity from CFS annually is $18 billion. Just over two years ago I worked full time, spent my money, paid my taxes and I was happy to do it. Now I am unable to work and unable to receive or afford health insurance. My doctor has suggested I apply for disability. I am 28. I do not want to continue taking 25 pills a day.  I do not want to live off disability. I would actually like to go to work and be a contributing asset to the country. But I know that in order for these things to happen, the dialogue has to change. There are actually people and doctors out there who don’t believe in this illness, as though it were fucking Big Foot.

I know that getting mad and pointing fingers won’t really help me out tonight. I have accepted my life with this illness. I will be OK whether things change or not. I have found ways to be happy given my circumstances and some days are harder than others. I guess you’re catching me on a hard day. I have a family who supports me and was lucky to find a doctor that is a leading researcher of this illness, although her clinic at this point is barely staying afloat. But not everyone has what I do. I have received so many emails from people whose doctors and/or families have dismissed them, not believed them, or just written them off as depressed. This has to change.

I don’t know what the next step is, I just felt the need to get this stuff out in my little corner of the internet. Maybe the right set of eyes will befall on this one day and some real change can take place. Maybe nothing will happen, in which case, nothing was really lost. I’ll be in bed either way. The thing is, I am not a little kid writing to Santa Clause–This is change that is actually possible. I think there are far more important matters in the world than CFS/ME research and I look forward to the day when this is no longer my cause. I know this country can do better, and I have not ever lost hope that with the right people and minds at work, this is something we can fix, even if it’s after I’m gone.

Health, Happiness, Change.

One Thing, Once a Day.

I love getting late birthday presents in the mail. Wait, I love getting mail period. For one thing, I think the art of letter writing is becoming extinct, so it’s always pretty special to get something written in one of a kind hand-writing, written just for you. Dear Mary… Anyway, late birthday presents are like those blooper scenes they show during the credits of a movie you liked. Just when you thought it was over–bam! My brother Nick and his wife Estee sent me two new shirts and a skirt and a necklace with a hand-written card, the best! And my sister brought me shopping at Nordstrom. Her and Keegan have kind of adopted me as their 28-year-old child. Keegan even sent me to my room yesterday. I also unpacked my suitcase at their house two weeks ago, the first time I’ve really not lived out of my suitcase since February. All my siblings are like extra parents, each pitching in to help in their own ways and I am really thankful for that. It’s easy for me to forget that my situation could be a lot worse. They have all encouraged me to visit them, and that is a real gift. Anyway, I love shopping and I love new clothes, but it has turned into such a silly thing for me to love, mostly because I never wear normal clothes anymore. I never really go anywhere and I hardly see people besides Monty and my family. My uniform has evolved into leggings and t-shirts–every guys fantasy.

Last week and all weekend was a sick week. Like a sick day, but you know, times 7. I once wrote that I was the mayor of Migraine City, but I am upgrading myself this week to Governor because my head is super angry about something and apparently wants the world to know. Here’s your shot head, let it all out! Every day I keep telling myself I will get dressed in my new clothes and I will go somewhere and I’ll do my hair and makeup and look like someone who has her shit together. But, that has yet to happen. “Tomorrow” I tell myself. Then the song from Annie starts playing in my mind and I bet my bottom dollar that tomorrow there’ll be sun, and I will go out in it! Since I’m in Cali, there is always sun, but when you have a migraine, it feels like if you were to go outside under that bright sun you’d start melting like the witch from the Wizard of Oz. Anyway, the migraine cycle continues, but why am I talking about migraine cycles? I’m even boring myself.

When I’m in the throes of a sick week, I can start to get down. And also start to go stir crazy. So there are a few things I do and a few things I don’t do. Maybe most importantly, I do not watch TV during the day. There is just something undeniably sad about daytime television, and sunlight coming in through the blinds..maybe reflecting off the TV screen? Yuck. The only time I don’t find a sunlights’ reflection on a TV screen depressing is on the weekends when we’re watching football. Exceptions to every rule.

First, I keep a book on hand and I read. I swear it’s like I’ve discovered the joy of reading only last year..at age 27. Pretty ridiculous since I discovered the joy of writing at around age 9. I feel like I’m catching up on all the years that I began books and never finished them. I always associated reading a book with homework, something I had to do. It never felt like I had a choice in the matter. As soon as book reports became part of my schooling in 6th grade, it became my goal to see how little of the book I could read and how high a grade on the report I could get. Unfortunately, I work really well under pressure–so the night before it was due I’d skim through the book, find the important parts, and write a flowery report. I almost always received A’s on them. I was actually proud of myself for being able to complete the work this way! What an idiot. Anyway, now that I have really experienced what getting lost in a book is like, I feel like I have years of catching up to do. So that’s partly what I’m doing. Especially because it’s not sad at all to read while sunlight is coming through the window. In fact it’s the most fun to go outside and read. Monty and I had been going to the park daily, but I crashed mid-week and we haven’t been back yet. Anyway, right now I’m reading Wild by Cheryl Strayed. A true story about a woman who lost her way and decided to hike the Pacific Crest Trail by herself, with no experience. Truthfully, it’s a little difficult to read because she is in a lot of physical and emotional pain so far, and I like reading to carry me away from real life, so in that light it’s not been as fun to read as Gone Girl but I’m just about 1/3 in, so I’ll see how the next 50 pages go.

The second thing I do is create something. It can be anything from a four line poem to a line drawing. The goal is not to create a masterpiece work of art. The goal is to let your soul do some talking. Sometimes what you make will be crappy and sometimes you’ll surprise yourself. But the thing is, now no matter how sick or worthless I felt today or the fact that I never got dressed in real clothes, at least when someone asks me what I did today I can say “I wrote a poem,” or “I drew a picture of a stupid cat.” So now today was not a complete waste. Here are some simple rhyming poems.

*I am tired
But do not sleep
I am sad
But do not weep
I close my eyes
And count to 10
If I still feel it
I’ll do it again
Until the clouds part
And the dark clears
I’ll think of my loves
And not of my fears.

*In the corners of my mind
In the absence of a dime
I think about home
In a house that isn’t mine.

*At night I roam
through consciousness alone
Would I have chosen this
If I would have known!

*At least at the end of day
Where I never got dressed
I can say I wrote a poem
And that’s something I guess.

Normally I hate rhyming poems, and I don’t necessarily love these. But, they’re what came out. So I let them. Because that’s what my soul had to say today, and it doesn’t really matter whether it’s good or bad. It’s the fear of making something good or bad that is dangerous. Once I let that fear go, I kind of free myself. The worst that can happen is you write a shitty poem or you draw a shitty picture. Certainly there are worse things! Either way, you’ve got something to look back on or laugh at or talk about, and you weren’t completely at the mercy of illness.

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I drew the above drawing a few days ago. It turned out to be one of my favorites…drawn on a sick day where I never got dressed. It started with a very simple shape; a leaf. Then I repeated the pattern and this is what turned up. I had no idea what I was sitting down to draw that day, but it’s another example of letting your soul speak. Or stillness speak. I just know that when I designate time to letting things come through me, I am usually surprised. I end up creating something I never could have thought of myself. It’s strange, the way sometimes your dreams can be insanely more creative or smarter than you are in real life. I guess it’s the subconscious at work. This one is titled “I Don’t Normally Look Like This” and is for sale for $10.

Anyway, that’s been the last 7 days. Fingers crossed that tomorrow is migraine free and filled with more energy and I get to wear some happy clothes and run errands like humans do. If not, well then…it’s back to the drawing board.

Health, Happiness, One Thing a Day.

Sometimes You Gotta Say Yes.

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Even when you don’t feel like it. Even when it hurts. When it would be not just easier or more convenient to say no, but less painful, less exhausting, perhaps even, the healthier option– even then, sometimes, you gotta say yes.

As my role as the “sick girl” has slowly developed over the past few years, I’ve noticed how often and how easily I’ve begun to say no to things. And that’s mostly for the sake of my livelihood. I don’t have the endurance to do the things I once did, nor do I have the resilience to bounce back if I overstep the boundary. There’s an invisible line with illnesses like this; one that not even the sick person can see, and it doesn’t make a sound when you overstep. Not until later, when it’s too late to take anything back. So, you pay for it. And you start to feel your way through it, constantly guessing whether you’ve gone too far or done too much. It’s about as easy as pin the tail on the donkey in the dark, with booze. But this solid body of mine, as broken as it is, it always lets me know if I’ve infringed on that boundary. Always.

The last few days have been crappy. Not Colorado crash crappy, but, crappy. There have been a few 26 and 27 pills a day, days. Which I’m learning how to be OK with. Even sick days, where the most you do is brush your teeth, are OK too. They have to be. It’s interesting what this illness turns you into; a spectator where you once a participant. I often feel the quick pace of the world spinning and everyone rushing by with their busy lives, and then there’s me…just kind of, standing lying there. I miss being busy. There’s something comfortable about always having something to do, someone to see; there’s an importance about it. I notice now how different my to-do lists are verses my to-do lists a few years ago. 1. Wash clothes. 2. Pick up prescriptions. 3. Buy new notebook!

I’ve begun examining my life a little closer lately, and am putting a lot of thought into how I spend my time. It’s really crazy to think that I can sort of do what I want given that I don’t have a full-time job or any REAL responsibility besides my health and my dog Monty. (Although I don’t know, one might call my constant correspondence with the Walgreens pharmacy a full-time job in and of itself. For real though.) The thing is, since I can’t hold a full-time job right now, I don’t have any income. So that’s the first damper on “Doing what I want.” The second damper is, duh, I’m incapacitated most of the time. If I had my way, I’d be going, and doing, and meeting, luncheoning, and painting and creating and…you get it. Saying YES a lot. I’d be one of those busy people with alphabetized spice racks and really organized DVD collections. And I’d run half marathons for fun! BLECH. Scuse me, I just puked thinking about running a half marathon. Anyway, that’s not my life. Most of the time I feel too exhausted for showers and everything I buy at this point is on someone else’s dime…so it’s really teaching me a lesson in humility, appreciation, and grace. Every night I pray that I will be able to pay back everyone who has been so gracious in taking care of me. And I solemnly believe that day will come. One day.

In the meantime, I have a lot of something that many people don’t: free time. And whether I’m sick or not, it’s up to me how I spend my time. I find myself feeling bad a lot about not having a full-time job and not being able to support myself. I was used to having  a job and independence define me. But, I think that’s pride and the ego getting the best of me and I constantly have to remind myself that if I could, I would. But right now, it’s not where I am. So how about instead of feeling shitty on top of feeling shitty, I try to make better use of my time. I decided I’m going to read as much as I can, write as much as I can, and start looking at this free time as a gift instead of something that “happened to me.” A lot of people would love time off from work, to be a spectator, to read for the sake of reading. To be honest, not having something to do is harder than you’d think. We’re kind of a culture that tends to define ourselves by our work. I guess I’m redefining both my purpose and the definition of that word. Is it still considered work if you’re not getting paid?

This week has been rough health wise, but today I was sick and tired of being sick and tired more than I was actually sick and tired. SO, I said, screw it. I took a bath, got dressed, and went to the park with Monty. Not because I felt like it, not because it felt good even, but because I needed to get out. Sometimes I do the things I would do if I weren’t sick, just for a little while. I can go outside. I can throw a ball for Monty and finish reading my book. I felt shitty the whole time, but mentally I needed it. Chances are, I’ll pay for it tomorrow. But it’s one of those weeks where I felt like I would be paying for something tomorrow whether or not I did anything today, so I went for it. Every once in a while, it’s nice to feel like things are on my terms. It’s my way of giving the illness the middle finger. And you know what? It felt good! Screw you sickness. Today, Mary Gelpi SAID YES.

So confident.

OK so maybe I am really over-glorifying my little trip to the park. But, I have to keep myself in check. It would be really easy for me to say no to anything that required leaving the house or socializing with people. I can feel the crotchety 80-year-old inside of me getting way too comfortable. I remind myself that I am 28. I need to stop being so opposed to meeting new people. (Dude, I hate meeting people. Also, I’m terrible at it.) I have to be OK with going places sometimes, because I think our souls like a change of scenery. I need to not automatically say no, even though my experience gives me that tendency. Sometimes I will pay for it, yes. But there’s a price to be paid for constantly saying no, too. So I’ve got to find the middle. I’m still young, and I need to start acting my age. Before I know it I’ll be drinking Ensure and wearing Oopse I Crapped My Pants. And then meeting people will be REALLY hard!

You know what else I did today? Bought a new notebook. That’s my favorite thing to buy. I’m very particular when it comes to notebooks. It takes me a while to pick one out and I sit there in front of the shelf of books running my fingers over pages, opening and closing it, taking measurements and looking like a crazy all the while, but I like to take my time. I can’t have things like paper texture or wide rule lines interfering with my writing. Anyway, I found a good one after going back and forth between two for 10 minutes. This is typically what I do when I buy anything. I’m very indecisive. So I’ll buy one, and then go home and think about the other. It’s terrible. Anyway, I’m trying to work on that. So I’m going to do some writing. And then some reading. And then I’ll do it again tomorrow I guess, in a park, and throw the stick for Monty. Because that’s what my life is right now, and it won’t always be that way. Maybe it’s not about  being important. Maybe it’s just about being.

Health, Happiness, Yes.

*To all my family and homies in New Orleans, my thoughts are with yall. Although I’m pretty sure most of you are drunk and having an OK time. Stay safe.

Is Happiness a Choice? A Book That Challenged All My Notions, and Won.

I think my favorite present to both give and receive is a book. And not an e-book, not a kindle or a tablet thingamajiggy. A real, tangible book with pages to flip through and words that you underline and notes in the margin that you come back to later. There is something necessarily palpable about a book for me. Maybe I just really like turning pages, but I don’t think I’ll ever make the switch to electronic literature. I know it costs us trees, but I kind of feel like a tree would be happy to be a book. If only trees could talk. OK, anyway, I received a book from my mom for my birthday, and I’ve been lost in it for the last 4 days. I kept telling myself I needed to write, but my urge to read was stronger. I had to finish it before I could do anything else. I think it may be one of the most important books I’ve read as of yet.

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“The Untethered Soul” is written by Michael Singer and I’d never heard of it or him until I began reading. The book is 181 pages but is densely written and covers everything from consciousness to identity to happiness to God to death to Christianity to the Tao. I really don’t know how he combined all of these topics so succinctly and covered them with such perfect simplicity, but he did, and it all made perfect sense. Every word. Sometimes I’d read a paragraph over and over, not because I didn’t understand, but because it felt so good to read the words. It was like light would suddenly pour in the room, and with each page (each TANGIBLE page) I felt more clarity, maybe even more happiness. At least more awareness of it. There is such a wide variety of topics he covers and methods associated with them, but he ties them all together seamlessly to teach one huge and vital lesson; to know yourself, and to find bliss. It will be difficult to summarize the whole thing up on just one page..this may need to be a two parter. So I’ll just cover a few topics that really captured me.To begin with, you can’t fix the world. You can’t fix other people, and you shouldn’t try. But you can become the purist and most open version of your Self, and that is your gift to the world. You will be the most successful and biggest help to humanity by knowing yourself truly, and waking up–becoming conscious. So long as you are unconscious, reacting to external factors, hiding behind fears and anxieties, letting that voice in your head dictate important matters, you cannot be of help to the world. You are stuck in your mind, and so you can’t go any further or higher up than that. Not until you wake up.

Like Tolle, Singer writes pretty extensively about how to answer the question “Who am I?” …a question I constantly ponder but feel my answer always comes up short. I am Mary Gelpi. Well no, that’s a label given to me by my parents. Take it away and I’m still here. Who am I? Who is the Self? It was more poignant and enlightening to hear him explain who we are not. Some we’ve been over before. Ready? You are not your thoughts. You are not your emotions. You are not the things that happened to you. You are not a gender role. You’re not even your personality. And here’s the big one: You are not that voice in your head. In fact the journey to discovering your self (which is who you are) involves the attempt to eliminate that voice. In other words: telling it to SHUT. UP. And in the meantime if you can’t get it to, DON’T LISTEN TO IT. For the love of GOD don’t listen to it. Think how many times that voice in your head has been wrong…a lot. But we continue to reach out to it for advice and guidance as though it were an intelligent shrink. It’s not, it’s noise. Just so we’re clear, I’m not talking about voices plural in your head. That’s another disorder altogether and we don’t have time for it. I’m talking about the voice in your head that is constantly chattering. If you stop reading this right now and look around the room, just wait a few seconds and listen. It will begin talking. About anything. Stupid things. Funny things. Memories. To -Do lists. It’s noise. It’s a lot of noise that isn’t really propelling you in any direction on your mission. This attempt was among the original purposes of things like meditation and yoga. It wasn’t to pray or to exercise–it was to find inner stillness, the center. The center is where “You” reside. Behind the chatter, judgments, and noise is your soul or spirit, or whatever you’re comfortable calling it. It’s quiet there. It’s the part that doesn’t die. It’s the center of your consciousness, or what Zukav called The Seat of the Soul. (Also, another awesome book) So this is how the book begins; with the search for the self and a map of where to go to find it. Once you’re able to pull back the curtains on all the things that don’t define you, you begin to feel and hear the real you. Your higher self. Perhaps he puts it most accurately with this definition: the simple awareness of being aware. Or..You are not the thinking mid; you are aware of the thinking mind. 

“When you contemplate the nature of Self, you are meditating. That is why meditation is the highest state. It is the return to the root of your being, the simple awareness of being aware. Once you become conscious of the consciousness itself, you attain a totally different state. You are now aware of who you are. You have become an awakened being. It’s really just the most natural thing in the world. Here I am. Here I always was. It’s like you have been on the couch watching TV, but you were so totally immersed in the show that you forgot where you were. Someone shook you, and now you’re back to the awareness that you’re sitting on the couch watching TV. Nothing else changed. You simply stopped projecting your sense of self onto that particular object of consciousness. You woke up. That is spirituality. That is the nature of Self. That is who you are.”

 There was one chapter that I re-read a few times, because it really challenged my notion of happiness. It asked this question, which I find myself constantly asking: Is happiness a choice? I have always believed that we are susceptible to our circumstances, therefore happiness isn’t really a choice because we aren’t in control. We can’t help it when bad things happen. But Singer absolutely disagreed with that, and I’m pretty sure he beat me. Just because we aren’t in total control doesn’t mean our happiness isn’t in our hands. If our happiness isn’t up to us, who is it up to? Other people? Circumstance? Conditions? No wonder we’re not happy! You can’t rely on anything or anyone else to cause your experience of happiness. It is entirely up to you. If you make the commitment to be happy, it is to be unconditionally happy. But, that means acceptance of the present. That means erasing your version of what you think your life needs to look like in order for you to be happy. That’s something a lot of people don’t want to give up.

I know what you’re thinking: What if my family dies in a plane crash? What if a bird shits on my head on the way to work? I can’t help that! Of course there will be challenging events in your life, you already know that or may have already experienced them. It doesn’t mean you don’t grieve appropriately and process the hard times. But it also doesn’t mean that you stop, that you can’t be happy again and continue to live a  beautiful life. (Just ask my mom, she was widowed twice, but has once again found happiness.) That’s part of the commitment. You have to accept what happens in the present, deal with it accordingly, and release. Keep going. There’s no hanging on to the past allowed. It will never change by you clinging. There’s no cringing about tomorrow allowed either. You’ll deal with tomorrow when tomorrow comes. And think about it. Does you reacting and getting upset and yelling change the fact that a bird shit on your head? No, it doesn’t. Clearly our reactions are not only silly, they’re unintelligent. They serve no purpose. They’re just noise.

Your definitions of desirable and undesirable, good and bad, all come about because you have defined how things need to be in order for you to be okay. We all know we’re doing this, but nobody questions it. We think we’re supposed to figure out how life should be, and then make it that way. Only someone who looks deeper, and questions why we need the events of life to be a particular way, will question this assumption. How did we come up with the notion that life is not okay just the way it is, or that it won’t be okay the way it will be? Who said that the way life naturally unfolds is not all right?

This is still a challenging notion for me to process, but I know it’s right. This is not to say that making unconditional happiness your mission is easy–it isn’t. It’s probably the hardest work you’ll do. But I’ve decided to take this mission on. I certainly have the time, don’t I? Maybe we all do. But we fill it up with a lot of stuff. A lot of Kardashians and O’Reilly Factor and arguments and anger and work and chaos and noise. I think it’s time to slow down. Time to go IN, not out, and find that little nook where our soul is, and try to please it. What more important work could there be? Chopra says that this is a recreational universe and that we were meant to have fun here. We weren’t meant to suffer! So I think it’s time to play. Today is August 22nd. It’s my dad’s death day. Death birthday? I wonder if they celebrate the day you die in Heaven the way we celebrate birthdays here. Anyway, my dad was one of the happiest people I knew, and that’s what everyone else had to say about him–How positive and kind he was. This book reminded me of him and his constant disposition of joy, happiness, and love. I’m going to start my work toward consciousness and inner peace with him in mind and this book as a guide, or at least a solid starting place. I highly recommend The Untethered Soul if you’ve been searching for a deeper purpose or listening for a higher calling and need a little help getting started. This is a really good road map to begin with.

My favorite line from the book: It is actually possible to never have another problem for the rest of your life. 

Health, Happiness, and Real, Tangible Books.

*My favorite underlined phrases from the book. :)

What it means to live spiritually is to not participate in this struggle. It means that the events that happen in the moment belong to the moment. They don’t belong to you.

The only way to inner freedom is through the one that watches the self. 

It’s bad enough that your happiness is conditional upon your own behavior. When you start making it conditional upon other people’s behavior, you’re in serious trouble. 

It is not life’s events that are causing problems or stress. It is your resistance to life’s events that are causing problems or stress. 

If you want to understand stress, begin by realizing that you carry around with you your own set of preconceived notions of how things should be. 

Imagine if you used relationships to get to know other people, rather than to satisfy what is blocked inside of you. 

When a person is dealing with their own fears, anxieties, and desires, how much energy is left for dealing with what’s actually happening?

The truth is, everything will be okay as soon as you are okay with everything. And that’s the only time everything will be okay. 

The Killers Relief

When I wake up
Everything is just how I left it
In between tossing and sheets
sweating and dream world,
the killers wore off
And it’s as though nothing has changed
I still feel everything.

Because the hour is inappropriate
To start a day now,
I re-dose and wait
And this is admittedly exciting for me
That’s what they call
The thrill of relief.
When the killers go to work
I will struggle but win eventually
I’ll go back to dreaming
Where everything is the same.

I heard once
That you don’t feel pain in your dreams
Which makes me wonder
Where I’ve been going every night.

Last night I dreamt of money
And big powerful bankers.
I counted my money repeatedly
And my fingers throbbed
Until I dropped it all
watched it scatter
When I awoke I couldn’t recall the amount
Something had changed
But my fingers ached the same.

When I awake a final time
It will be inappropriately late
To start a day
Everything that once was numbed
Will have seeped back in,
alive and noisy.
The jury is out
On the purpose of pain
But each night it comes
Then the killers kill it
And I return to dream world
Until it comes again.
When I awake,
Everything the same.

Sick and the City

I discovered the cure for insomnia–it’s waking up!  So here I am. Totally tired, but unable to sleep. Go figure.

I’m writing from the luxury of an aerobed in the living room with New York City rain slanting down our windows. There’s something about New York that makes me feel connected–which is funny because it’s a large city of strangers who don’t know or care about me, but on a walk outside I feel like an absolutely intrinsic participant in life and that things are as they should be. Even inside an apartment, on the third floor, behind shades..the pulse beats in. I like watching people walk down the sidewalks, enthralled with their busy lives. I like seeing every breed of dog and owner pass in front of our building. And I like seeing a light go off in one room and on in another. No one seems to notice me at the window, but I smile at them if they do.

It’s funny how at home I feel in NYC. And I sortof cheated at New York. I lived and worked here for two summers and spent a few months here last year when I was sick and jobless. My first job was an unpaid internship at GLASS Magazine in Brooklyn. It was unpaid, so my brother let me stay with him for free, and he gave me the bed. The next summer I came back and served drinks to tourists and New Yorkers on a sailboat called The Shearwater that toured the Hudson River. That job seems way too cool for me to ever have had, but my brothers friend got me the gig and I took it. That job paid but Nick let me live rent free anyway. I say I cheated at New York because as most New Yorkers will tell you, it’s a hard city to sustain in. Not just financially or career wise. It can be a dark city too; isolated, unapologetic and relentless. Most people here have gone through some sort of struggle tied to the city in order to get where they are. I on the other hand never really had a struggle to overcome here, because Nick did that for the both of us. He moved, worked hard, met cool people, found all the best spots, and then just sort of shared them with me when I came. In that way, New York has always been glamorous to me. It’s the New York in the movies. All my attachments here were temporary and I never owed anything to it–except those $600 in parking tickets I accrued that one summer. Shit, I still need to pay those.

I’ve spent the last week making art, listening to music, and wondering what’s in store next. I’ve started to become a lot more comfortable with the uncertainty of my life. There is no plan. There is no “mine.” And there’s not much money or organization. I don’t even unpack my suitcase when I go home anymore. But that’s something I think I needed to go through. There are no certainties in life. Even the most promising plans aren’t resilient to fairness or the universe. As much as I used to think there was, I see now there are no rules, and no fair or unfair. There just is and I just am.

I always have this fear that when I sit down to write or draw that what I create will be terrible. I guess the fear is that if I create something terrible, then I haven’t succeeded with the purpose, and then I’ll be cursed and everything I create from then on will be crap. But I see now that not only is that fear irrational, it’s useless. I know this sounds a lot like an after school special, but the real failure is never sitting down, and never giving voice to the things that move you. When I was here last spring I was strongly considering doing stand-up comedy at a comedy club run by my friend Mark. It’s something I’ve always wanted to try, at least once. Because the thing is, if I bomb, then I’ve got this great story: I did stand up comedy  in NYC when I was 27 and got booed off the stage. WINNER. And if I succeed, then I’ve made real New Yorkers laugh–and that’s a hell of a story too. I was speaking with my mom about it and admitted I was nervous to try and she said “What’s the worst that can happen? You get on stage and no one laughs?” “Uh, right. Yeah. Exactly that.” That was the worst that could happen, and that scenario is kind of a nightmare. But I think going for it is a success in itself. The very act of braving the audience and swallowing the risk of humiliation is half art in itself. One day New York..I’ll tell you jokes one day.

Anyway, I’ve decided I’m just going to keep trying things. I’ll keep drawing even though I’m not very good and I’ll keep writing even though I don’t really know where it’s going. There have been few certainties in my young life so far. But I do know that every person I look up to has continued and persevered  even when they didn’t quite know where they were going. They took risks and they didn’t always play it safe. So I’m going to keep creating. Even when I’m tired, even when I fail, even when I have no idea what in God’s name I’m doing, I’ll just keep going. And hopefully along the way, it will happen one day. Whatever it is I’m looking for, I’ll find it. Something tells me I’m close. Or maybe it’s just begun. Either way- like the struggles and people and persistence of  NYC, I won’t spend so much dissecting everything–I’ll embrace change as it comes and forgive all the plans I had. There’s just no other way to do it.

Here’s the most recent drawing. It’s titled: “As You Can See, I Don’t Have a Job” 8.5 x 11. I’ll post the rest tomorrow.

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Health and Happiness and 

10 Things to Avoid (and Embrace) When You’re Depressed.

10 Things to Avoid…

1. F

2. A

3. C

4. E

5. B

6. O

7. O

8. K

9. Ok 8 things.

10. Oh yeah, and Wal-Mart.

Here is the truth; you’re not missing out on anything if you don’t get on Facebook today. I’ll fill you in: Someone got engaged. Someone had a baby. Someone is angry at Obama. Someone cooked spaghetti. And someone is hung-over after going out big last night. But if you spend the day on Facebook, you’re missing out on all the rest. You know, like on life. So now here’s 10 things you can do instead of get on Facebook, that might actually make you feel better.

1. Forgive somebody. There is probably someone or something from your past that needs to be let go of, moved on from, and it might even be you. Letting go of things in the past opens up room for good stuff in the future. Go!

2. Appreciate who and what ya got. Having a gratitude journal sounds super cheesy I know, but once you start writing down everything you’re thankful for everyday, you’ll see very subtly your whole perception change for the better.

3. Create. Make art! Or a sweater! Or music.Or dinner! You’ll be surprised at what you end up making. And have someone in mind when you create. The best gifts are home-made.

I made you this sweater for your dog!

4.Exercise. Even if it’s just a walk outside or 15 minutes of yoga… exercise releases serotonin and adds years to your life. Imagine if you did 10 sit-ups/push-ups for every 10 minutes you spent on Facebook. Everyone would be all muscley and stuff.

5. Bake a cake for someone. Anyone. Just because you love em. It’ll make their day! Let us eat cake.

Because You’re You and I’m Me

6.Organize your closet, dresser, room, or junk drawer. Cleaning things out just feels good, it’s free, and the end result will make you breathe easier.

Aaah.

7. Occupy Wal-Street. Just kidding. Couldn’t think of a good O verb. Uh, organize your second closet!

8. Kidnap someone and bring them on an awesome adventure. Dont actually blindfold them and throw them in the backseat of your car or anything..just bring them to lunch or something. And then maybe antiquing.

9. Read a book. Remember books? Instead of getting lost in an anonymous persons wedding album on Facebook, (ahem, yeah that’s me) get lost  in a book. It’s such an awesome feeling. And you don’t feel like a creeper by the end.

10. Write and send a letter. Not an email, not a text. A real letter, written in your own special handwriting. Old school mail dude, it’s the best! (May take 2 weeks to arrive though. The post office has had a rough year.)

Health, Happiness, Lifebook. (See what I did there?)

If I Was a Horse, They’d Shoot Me

Maybe that title is a little extreme, but sometimes when I’m counting out my pills in the morning and filling up my coffee mug for the third time, I wonder about my existence. Not in the depressing suicidal way, but more in terms of how such a weak physical specimen as myself has made it this far, it being survival of the fittest and all. I’m far from fit, but I guess I am surviving. But when I see people on facebook climbing mountains and shit I think crap, I can’t even stand the thought of standing in line without needing to faint. What am I doing here?! Then I get off facebook because I’m really starting to believe it is the demise of human beings. I think I’ll post that thought on facebook.

After visiting with the doc in Miami and changing around a few doses of things, we agreed upon my next round of treatment; which is two anti-biotics for the next two years. Woo! Yeah! Apparently, all my liminess isn’t gone, and the 6 month run on those overly priced horse pills didn’t do the trick. SO. Round two. To be honest, I’m fine with this decision. I mean, my pill bag has just enough room for two more bottles, so I’m cool with it spatially. I could look at it and be like waahhh two years of more pills. Or I could look at it as; In two years from now I presume I’ll be alive anyway, so would I like to be full or free of lyme disease? It’s my patriotic duty to choose freedom. And anti-biotics. So here’s to more pills! We’re waiting on the blood work still to finalize decisions but it’s looking like I’m in it for the long haul. Which is fine because, you know, I have the time.

So I’ve been reading A New Earth and it’s really awesome even though I’ve read it before. I think it’s one of those books you could continue to read your whole life and never fall short of gaining incredible meaning. The only other book that has done that for me is The Giving Tree by Shel Silverstein. I love that book.

Aaah Childhood.

So anyway there’s this part in A New Earth where Tolle is talking about human evolution. It reminded me of my first day of my college anthropology class. The teacher brought up evolution and began to talk about the timeline for the semester and then started to give his personal viewpoint on evolution so the class would have a clear direction. Then he asked if there were any questions and a student raised his hand and asked “But if evolution exists, then why have humans stopped evolving?” The teacher smiled big and shouted “Great Question and THANK YOU for asking!” (This was his enthusiastic response to any question a student decided to ask during class.) Then he put his hands together under his chin and answered with “That’s the good news. We haven’t!” He went on to explain that evolution are adapted changes made over a long period of time, and that if we compared modern humans with our counterparts 10,000 years ago, there would be numerous differences. I at least know that in terms of communication even in the last ten years there have been an incredible amount of changes that will forever change the ways humans interact with one another. I’d love to show a caveman Facebook.

Wait why don’t I just actually poke her?

Anyway, back to the book. Soo Tolle is talking about humans and how we’ve evolved and that one of the biggest fundamental differences between human beings and the rest of the animal world is that we are conscious of our consciousness. This kind of awareness is what drives the fundamental questions like “Who Am I?” and “What Is My Purpose Here?” Although these are the kinds of questions that can be terrifying or seemingly impossible to answer, they are what make us uniquely human and for that they should be celebrated! And pursued, too. What he also says is that “The next step in human evolution (enlightenment) is not inevitable, but for the first time in the history of our planet, it can be a conscious choice.” Cool dude!

Along those same lines, I watched a lecture that Deepak Chopra gave a few days ago, and much of what he spoke about correlated with this very concept. (Synchronicity, Yeah!) He talked about the mind, the body, and the soul, but he began by expounding on the intelligence of our human bodies independent of our human minds. For example, our bodies are made up of 100 trillion cells, which is more than all the stars in the Milky Way Galaxy. Each cell is performing roughly 100,000 activities every second and every cell instantly knows what the other cells are doing and correlates its activities respectively. This is how we are capable of thinking, talking, digesting food, playing piano, killing germs and removing toxins all at the same time. “This is the inner intelligence inside of you that mirrors the wisdom of the Universe,” he says. It was cool to hear him speak about this because so many times I’ve laid in bed with my hand on my heart, listening and feeling my heartbeat and thinking “Who’s making it beat?” I guess the answer wasn’t a who, but a what. Or a who-what.

Then he broke down human intelligence into four levels. He said that the highest form of human intelligence is State of Being. He describes this as the ability to observe yourself without judging yourself. The Second highest form is Feeling- our ability to feel compassion, joy, empathy. The 3rd highest form is Reflective Thinking- Who Am I? What Do I want? What will my contribution be? What inspires me? And the 4th highest form is Doing- the ability to create happiness. He also provided a pretty simple but profound definition of the soul- the space between your thoughts. Think about it.

Anyway seeing as how sometimes I’m a worthless physical specimen that doesn’t “do” a whole lot, I liked how doing was last on the list. :) But it was his last thought that was most reassuring to me, since it had been a very sick week and I was feeling a lot like a horse needing to be shot. “The next state of evolution is consciousness. It will be survival of the wisest, not the fittest.”

Health, Happiness, Horses.

A Salute to Step Dads

Interestingly enough, I have celebrated Father’s Day in my 27 years with 3 different father figures; My deceased dad Doug, my deceased step-dad Roger, and now my live and well step-dad Marc. (Don’t get any ideas, Marc.) Each of these figures have witnessed me at a different time in my life. I only had my dad until the age of 12, but I have never felt ‘cheated’ by losing him at a young age. I feel that the first 12 years of a child’s life are critical. My parents taught me from the day I was born what unconditional love looks like, and sometimes that included tough love, but I must say, even that was pretty rare. I learned what a happy marriage looks like, the dynamics of a large family, and that challenging times can be the ones that make you closest. We had our fair share of them. I truly look at my childhood with endearment because while maybe that chapter only lasted 12 years, they were filled with love, happiness and togetherness. I also had my two older brothers, Nick and Doug, both who took on a father role to me in my dads absence, and that has made an incredible difference in my life. To put it simply, I was made to feel that I mattered as a kid, and I think at a fundamental level that is what most children require in order to turn into secure adults. So Happy Fathers Day to Doug, Nick, and to my dad; I guess you knew that 12 years was all I needed and that I’d be left in good hands. You were right!

In chapter 2 comes the introduction of my first step-parent; Roger. Roger didn’t share so many traits with my dad except one vital one- he loved the crap out of my mom. Roger had a difficult life that had its fair share of pain and hurt. I could tell when he spoke about his childhood, it wasn’t the same as mine. I don’t think he was always shown unconditional love or made to feel that he mattered, so when he confronted that kind of love with my mom and her four loving yet obnoxious children, he didn’t always recognize it when it was there. As much as he took warming up to our family, I took warming up to him. It’s always an adjustment when new members join the gang. The whole dynamic shifts. My mom changed, the living situation changed, even our dog Bacchus changed. So it was challenging for me at age 16 to try to plant my feet in something solid. But after two years under his roof, it actually started to feel like home. Underneath his cautiously built walls was an incredibly loving, sensitive and generous person that after a while I was finally able to know and really enjoy. I used to call home during LSU football games and he’d be rooting them on and happy to talk to me. Somehow through all the muck, we were able to find each other, and it turned out to be a pretty great relationship. I would have never, ever, guessed that Roger’s role in our life would be a quick one too. My mom and him were only married 5 years when he died suddenly of a heart attack. I know I know, this sounds depressing. But both my mom and I feel that while we were a part of Roger’s life for such a small stint, it may have been the most vital. We were able to show him some of that unconditional love we’d both been a part of, and I think when he died even though it happened to be alone in his hotel room, it was the least alone period of his life. I feel assured of that. So Happy Father’s Day to you Roger; it wasn’t always easy and it didn’t last long, but I think we both showed each other a thing or two that ended up making a big difference.

Chapter 3; present day. Marc is my 3rd and hopefully my last father figure. When my mom and Marc married a few years ago, I figured we’d get to know each other over the years, but to be honest, since I was older and away from home, I always figured he’d be more my ‘mother’s husband’ than something like a step-dad. But wouldn’t you know it, at age 26, I end up too ill to work, unable to keep my apartment, and move myself and my dog back in with my parents–back to the house I thought I’d never live in again. It was not something I wanted or readily accepted and for that first month or two, I wasn’t exactly joyful to be around. Meanwhile right under my nose, I wasn’t considering that a sick girl and her dog moving back in with her parents wasn’t necessarily easy on them, either. But day after day, I was taken care of there. I wasn’t told that they were doing me a favor, I wasn’t reminded of the gift I was receiving and nothing was ever held over my head. Once again, I was shown how powerful a love like that can be. Marc didn’t owe me anything really, I was his wifes kid after all. But that is not at all how it played out. He turned out to be a lot like a real dad. I found myself saying “my parents house” and really feeling like I had two parents, not a mom and her husband. The point is, terms like “step-dad” and “blended family” have kind of become meaningless for me. It’s simple; blood doesn’t make a family, love does. And there’s plenty of that going around. So, Happy Fathers Day to YOU Marc! Thank you for playing your role so well to me, and being such a great grandpa to Monty. I’ll pay it back when you’re old and can’t feed yourself. ;)

Health, Happiness, and Happy Fathers (or positive male role model) Day!

Hard Knocks Island

If you’re like me, you’ve never heard of a place called Fisher Island. That was true until last January, when my mom found a CFIDS specialist with a clinic in Miami, and my brother happened to be engaged to someone who was from there. Without ever having met my mom or me, the soon-to-be in-laws invited us to stay with them when we came to the clinic for the first time. We would soon learn that they didn’t live in Miami exactly, they lived on Fisher Island; a private, man-made island only accessible by ferry or boat once your name has been added to a list and cleared by the guard. It’s like an exclusive night club but bigger and islandier and your money’s no good here. You buy everything through an account number. Your cash might as well be monopoly money.

It’s a real testament to my brother’s future in-laws that we were welcomed with such open arms. We could have been a bunch of crazies for all they knew. Hadn’t they met my brother? It was pretty immediately a Mi Casa Su Casa situation, accept it was more like My Island Your Island. It is exquisitely clean, beautiful and pristine here. There are pools galore though I never see anybody swimming in them. There is a private beach with a restaurant a few feet away. Theoretically you could effectively choose your own sushi menu right out of the ocean. That tuna there! I want that one! It’s something like Disney World meets the South of France. I’ve never seen or experienced anything like it. Whatever it is, of all the places to be sick, this one ranks in my top 3.

Before my first trip out here in 2011, I had spent most of the month of January in a horizontal position at my mom’s house. I was horribly depressed. I was watching everything familiar to me, all the things I defined myself by, slip slowly away with my health. It wasn’t easy watching or letting any of those things go. But I remember feeling the tiniest bit hopeful when my brother Nick called me the night before I was due to depart. “Dude are you ready for Miami?!” Sometimes even hearing the energy in someone elses voice could exhaust me in its own way. I groaned and said something about needing to pack but not having the energy to do the laundry. I remember he was so cheerful and said “All you need is a bathing suit. There’s a lot of sitting around and doing nothing on Fisher Island.”  I closed my eyes and let those words hang in the air. “Sounds perfect.”

As promised, we were welcomed with enthusiasm as soon as the ferry docked. I remember entering their home and feeling like Little Orphan Annie entering Daddy Warbucks house–which is funny because Estee’s dad slightly resembles Daddy Warbucks.  Every room was beautiful and had what I consider to be the most important detail in any room; large and bright windows–most with a view of the ocean. I suddenly felt really lucky to exist, and that glimmer of hope I had on the phone with Nick came back as I hugged the new members of our family and they insisted we eat dinner even though it was past 10. I remember my doctor’s appointment wasn’t until two days after we arrived, and thank God it wasn’t because most of the next day was spent in bed with a killer migraine and that ever so seductive hit-by-a-truck feeling. The only difference was, this time I woke up in a beautiful room with a breathtaking view. And to some extent, that did make a difference. It at least softened the blow of it all. I remember taking migraine medicine and going back to sleep. And when I did, something happened something that continues to happen. I fell asleep but could hear real life happening outside the door. I would try to yell or move to wake up but felt paralyzed and voiceless. This happens to me often when I take naps and I don’t know if it’s a part of the illness or something separate entirely, but it is unsettling. I finally escaped dream world to find that Nick and Estee brought lunch into my room on a tray and sat with me while I ate. Looking back on that time now, I can’t believe what a fog it was and how bad I felt. I remember Nick trying to convince me to read the book “Freedom” by Jonathan Franzen but any time I would try to begin reading, the words would fall out of chronological order and I’d have to keep re-reading them, or I’d start to feel car sick and put it down after just a few sentences. (Luckily that symptom has mostly passed and 2012 has been filled with books!) I went to bed that night wondering what Dr. Klimas would be like. I prayed hard for two things. I prayed that we would get answers, (real answers) and I prayed that I wouldn’t find out I was crazy. By that time, I really started to question my sanity. If enough people look at you sceptically, express disbelief, or tell you you’re experiencing something psychosomatic and not actual illness, you’re going to start to question yourself, no matter how bad you feel.

To make a long story short, my prayers seemed to have been heard. For one thing, only after Dr. Klimas ran extensive tests and blood work (my initial visit at the clinic lasted seven hours) did we finally get some answers that made sense. Finally, it was explained why I always felt like I was about to faint any time I stood up or any time I had to stay standing. I had Postural Orthostatic Hypotension due to low blood volume. This diagnosis was made in under 30 minutes using a tilt-table test. (You can request this from your doctor.) The best part is, it’s totally fixable. There’s a word we love. I take atenolol in the morning and try to consume 12 ounces of fluid containing electrolytes. Atenolol prevents your heart from jumping up to 140 bpm when standing upright and controls the severe fluctuation of blood pressure. This is what I mean about answers. When these symptoms were told to one of my other doctors he told me to drink more water. She also explained how the chronic migraines are typically a result of brain inflammation (a primary condition of CFS) and how dehydration is one of the biggest triggers for migraines. (And also that prescription migraine medicine tends to dehydrate you) So especially on travel days, you should double your liquids. And you can’t just drink water. You need electrolytes. Probably the biggest diagnosis that came from that first round of tests was news that I had Lyme Disease and we would start aggressive antibiotics to get it under control. But beyond the interview, the tests, the drawing of blood, the explanations in scientific and layman’s terms, stands out one particular moment between Dr. Klimas and me. She had just finished drawing blood when I admitted to her that I had been really worried that I was going to come to the clinic and be told that I was crazy. Then we both kind of laughed and she told me that in all her time working with this illness, there has been one patient who was certifiably crazy, and that was an extreme case. “People who come here aren’t crazy, they mostly just want their lives back.” I exhaled. Finally. Validation. I had never wanted to hug a doctor so much in my life.

I’m going back to Dr. Klimas on Friday, and in the meantime am enjoying Fisher Island with family and as always, working on staying present. You know what helps me stay present? Views like this:

And golf carts like this…

And this…

And babies that pose like this…

And smile like this…

All of those things help, at least a little. I’ll report on the doctors visit next. Until then…

Health, Happiness, and Cadillac Golf Carts.

Go Ahead, Cry It Out.

There there…

You know, you’d think as someone who takes 25 pills a day, I would have a pill for everything. And when it comes to aches and pains, muscle spasms, migraines, restless legs, or insomnia..it’s true. I’ve got a pill for most things. I carry around my pharmacy in a medium-sized black bag with birds on it. It’s like my second purse, but probably more important. But in the depths of that entire bag, among all the bottles of pills of every color and every shape, there is no pill for crying. Sometime’s life is really hard, and you just have to feel it. In two words; it sucks. It’s tiring and seemingly unrelenting and comes and goes in waves but just like everything else, it won’t last. It isn’t forever. And sometimes that’s the only thing to get you past the moment.

Sorry about being all depressing, but I’m going through some hardships right now and I told myself I’d write good, bad or ugly, so here’s sticking to goals. I won’t get into all the details but I am going through a breakup, thus the random waves of crying that come on like sudden nausea. It’s awful! It’s also funny, because truthfully, I was never much of a crier. If I felt the urge to cry I held it back, and I especially didn’t like to do it in front of people. I didn’t cry at my dads funeral. Maybe it’s because I was 12 or maybe it’s because seriously, his funeral was somehow a joyous occasion and I don’t really know how to explain that except that we sang happy music and felt proud that his life filled up an entire church. It wasn’t until my step-dad died, unexpectedly in the middle of college, that I turned into a crier. There was no holding it back anymore. It was tragic and it happened fast and left the family a little lost, especially my mom. It’s funny because my mom was never much of a crier either, but after Roger died, the same thing happened to her too. Sometimes we’d sit in the office, trying to tackle another post-death obstacle like canceling Roger’s phone (which somehow took FOUR MONTHS) and we’d sit there just sniffling and wiping tears away. Truthfully, there wasn’t always something wise to say. A quote about God’s plan or everything happening for a reason really falls short when you’re in the very raw place of grief. Sometimes all there is to do is cry or be a shoulder to cry on and remember that it won’t last. But what I’m trying to get at is this; it’s OK to cry.

I don’t know how our society or culture became this way, but it feels like somehow we view crying as a weakness. And when someone begins to cry our first impulse is to try to get them to stop. “Don’t cry,” we’ll say. Or “It’s OK” or some other vague comment that is usually untrue. The problem is crying makes other people uncomfortable–we’re a people of solutions, and crying means that someone is in pain or hurting some way, and we want them to stop. That’s the nice thing about dogs, they let you cry and cry and they don’t judge you for it. The thing is though, crying is not only natural, it’s good for you. It’s acknowledgment and acceptance that yes, this moment or time is rough. It’s challenging or painful. And the truth is, you just have to feel it. You have to exist in the grit of it. It hurts. But it also means you’re awake. I thought after 2011 that I would literally run out of tears. There was one day that I cried on and off most of the day and finally by 9 I thought wow, I think I’m all cried out! Then a commercial about abandoned dogs in New Orleans came on and I burst into tears. Nope, wasn’t all out after all!

My point is, that instead of telling someone to stop crying or to be strong or to move on, we should try the opposite. We should encourage them to cry. Tell them to go ahead and sob it out. Hold their hand or offer your shoulder or pass the whole stupid box of kleenex if that’s what it’s going to take. But don’t try to stop the process. Sometimes life is sad, and it’s OK to acknowledge that and it’s OK to cry about it. Babies do it. Women do it. Men do it. Even elephants do it. Just like laughter is an expression of something funny or entertaining, crying is an expression of sadness or loss, it is honest, and to repress it is only going to make it hurt more later. Simply put–let it out. Shakespeare said “To weep is to make less the depth of grief.” That being said…Waahhhhhhhh.

Kidding. I’m not crying right now. I’m watching the Golden Girls with Monty and accepting that this is a tough time but I’m going to survive. If I could recommend a new class for college it would be called Breaking Up 101. I have thought this for a long time, because breaking up is one of the hardest experiences and worst pains you can feel, even if it is the right thing to do. But we’re conditioned to think that if you feel this bad, then something’s not right–you shouldn’t do it. So then it follows, if you’re miserable from a breakup, then maybe you made the wrong decision? The truth is, there is never a good time to break up, it hurts like hell whenever it happens, and it’s going to screw with your life for a while. Aka…you might burst into tears while watching Say Yes to the Dress or you might suffer an identity crisis and start wearing brightly colored wigs like Kim Kardashian did. But that’s kind of how it goes. It’s tough, but it won’t last.

Anyway, that’s what’s going on in my life…how are you? Haha. I hope this doesn’t sound too tragic. Everything and everyone will be OK. I am assured. Mostly. But I still get waves of tears and random things that set them off, like an old photo from college or coming across my old business card from when I used to have a real job and my life was more..clear. Sometimes I feel like I’m floating on a raft in the middle of the ocean and am just drifting in no particular direction at all. It’s living in the “grey” of things. But it’s OK. I’m going to cry and then I’m going to stop and then I’m going to pick up the pieces and keep going. Because that’s the thing about life..it goes on.

Health, Happiness, and BOO HOO!

*Photo Credit: Jill Greenberg

Happy Stuff: Making a Bad Day Better.

Yesterday was a tough day. It was one of those days that you sit in a room by yourself in silence and then out of nowhere this question makes itself known; Who am I and what am I doing?

This isn’t such a rare thought for me to sit on, but spend too much time sitting on it and you’ll be no one and do nothing. The question arose in me because this week has been rough for me health-wise. And when it’s your fourth day in pajamas- no matter how awesome your pajama pants are- it makes you consider your existence in that essential kind of way. I’m like, dude, why am I here? And feeling like a human wasteland is just not a good feeling. But also, it’s more a thought derived from our egos and it is mostly untrue. In a clearer head I know that my existence matters and everyone who is alive matters. That is true. One of the shitty goals of the ego is to make you feel separate– from earth, from society, and from God. The truth is that we’re connected to all of these things and that our existence matters.

So there I was feeling all down on myself and I’m like you know what? This is crap. I’m not going to sit here and feel sorry for myself. I’m going to do something happy. And strangely I felt this weird desire to run. Strange because mostly I hate running. But if I had energy, I would have put on those professional looking running clothes that my sister and brother wear when they go jogging and feel the wind in my face. But the truth is, I’d probably tire myself out getting dressed before even getting out the door. Plus it’s so hilly here, I’d probably vomit after the first hill. My fatigue level has been rough this week, which I think contributes to those existential crisis moments of Who Am I and What Am I Doing and Am I Going to Live on my Siblings Couches Forever? But you have to cut life into slices. Sometimes you take it by the week. Sometimes by the day. And yesterday, by the hour.

Sometimes you have to reach out for help, so I texted Gabe “Life is hard!” and he texted back, “Yeah, it is!” And I remembered, oh yeah, everyone’s life is hard. Haha. Then I was like, OK, I need to bring some happy energy into this room. And the quickest way I know how to do that is through music. So I started looking for energetic happy music to start. I was g-chatting with my friend Emily and I was like ‘Dude, I need some good music. Happy stuff. What movie has a great soundtrack?” And Emily responded “Beauty and the Beast.” Which made me 1. Laugh out loud. 2. Play that song “There must be more than this provincial life! and 3. Remember why I love Emily so much. So then I was like OK, more music. And I kept listening to different things and put together a playlist of upbeat stuff. And I don’t know how, but somehow Tom Jones “It’s Not Unusual” made its way onto the playlist, and if you can imagine a scrawny girl in her pajamas blaring the one and only Tom Jones and dancing like an idiot to that weirdly catchy tune, well then, maybe I’ve made you smile. Because soon I was laughing at myself and what a hilariously tragic day it was.

Next, I took out my favorite sharpie pen and decided to do arts and crafts, because it’s fun and, well that’s the only reason. The thing is, I’m pretty terrible at drawing and painting. But, I enjoy the process of creating. And in the last two years there is one thing I discovered I’m decent at; drawing straight lines. So I have all these pictures at my mom’s house, a few in frames and a few in a folder, of white paper with black vertical lines. Mostly because it’s all I can do and also it requires focus and patience and time, not unlike actual good artwork. And there’s something fulfilling about it. The more lines you draw, the more disorienting it becomes on the page as you continue. Like the lines in your peripheral vision become blurry and then start to move on their own. It’s weird. And fun. I show you.

First You Draw a Couple Lines
Then You Draw a Couple More
Then You Draw Them Till You Feel It’s Done

And that is the art of drawing straight lines. If you’re thinking ‘What is this hippie shit?” I hear that. It’s mostly meaningless. But I like how long it takes. And that it’s simple and looks that way but also requires patience and focus and something about it makes me usually feel a little better. SO LAY OFF ME AND MY LINES OKAY?! Jokes. This one is for sale for 1 dollar and is titled “Welcome to America.”

After that, I received an email from a stranger who told me she reads my blog and that it makes her laugh and she felt the need to reach out and tell me that. I was like dude, the Universe works quickly! I was doubting myself and then this stranger writes me and tells me to keep it up? Cray cray. Thank you for that email Annie wherever you are. Whatever convinced you to write me, pay attention to it, because that just happened to be something I needed to hear at the time that you sent it. Yay for serendipitous universal connections!

And then after that, I came across a video of a rather large dog riding a bicycle and I was like, holy cow, dogs are incredible. And if this doesn’t make you smile you may want to check yourself because there is a very real possibility that you are a robot. Not that there’s anything wrong with that, it’s just good information to know about yourself. Just watch.

A Dog Riding a Bicycle

And if that didn’t do it for you, then maybe you’ll appreciate this dog that dances better than you.

And if THAT didn’t make you smile, maybe this picture of a really cute baby I know will.

Dude, just look at her feet.

Something about this photo just makes me happy every time I look at it and I’m pretty sure it’s her feet. But who can say. Anyway, after the drawing, and Tom Jonesing, and dog cycling and baby photos, I felt a little better. Then I thought of the many ways this day could have unfolded; it’s very easy to fall into a sad day and stay that way. It has happened to me countless times. But I am realizing just how big our role is in the outcome of our days. I had a friend in high school say to me once: “Do you the know the difference between a good day and a bad day? ATTITUDE!” And I remember wanting to punch something when I heard that, but also, it’s kind of true isn’t it? Perception plays a huge role in our lives. If we look at life as against us, we’ll find opposition. If we look at life as for us, we’ll find peace. There will be good and bad days for the rest of our lives. There will be reasons to laugh and reasons to cry. But when given the choice on mediocre days, and we do have a choice, choose the laughter. It’s more fun that way. And most importantly, pay attention! The universe gives us signs and symbols all the time. It is up to us to piece it all together.

Health, Happiness, and More Happiness.

Night Life.

Once again, I’ve been up all night unable to fall asleep. Restlessness, achy legs and a moving mind have kept me up. But you know what the best remedy for insomnia is? Waking up! So I’ve been up reading poetry by Rumi and writing a little most the night. Here’s one.

A Still Heart

I have a friend
who closed shop on love.
When asking her what led her here
She placed one hand on her heart
And the stronger hand on her head.
“My memories,” she said. “My protection.”

She couldn’t forget
All the hurt
That broke her
Times before.
So she made up her mind
–eliminated risk,
Climbed in a benign box.

I grabbed her hand
The one on her head
and looked into her
with my third eye.

I have seen what love can do
It had killed me a few times, too.
But what she considers protection
In other light was a prison.
Hadn’t she heard?
The heart will continue to break
Until it breaks open.

All her memories
can do for her now
Is make her heart stand still.
And living things–
they die this way–
We are meant to move.

Health

Happiness

Insomnia.

How To Forgive.

The topic of forgiveness has been making its way into many conversations I’ve been having among friends and family lately. It’s also shown up in my books and things I’ve been watching, and I don’t take signs lightly. I’ve been thinking a lot about forgiveness and also about resentment. These are incredibly strong feelings to hold on to. Whether you know it or not, your willingness to forgive has more to do with you than anyone who has wronged you. The concept is simple; forgive those who have wronged you and free yourself, or stay angry and chain yourself to the past. I can tell you from personal experience that the latter makes life incredibly heavy and mostly uphill. The premise of this idea of forgiveness is one you don’t hear often but as I’ve been confronting this new definition, makes an incredible amount of sense to me albeit at odds with our typical definition in the realm of apologies. Ready? It is this: It is not our job to judge other human beings. Maybe you feel one or both of your parents did a less than adequate job raising you. Maybe you were wronged by a romantic partner or betrayed by a friend. Don’t you think it’s interesting that the wrongdoing could have happened something like 10 years ago, and yet you still feel the pain, hurt or anger as though the wound were made yesterday? This is the ego hanging on for dear life. The ego wants to see the person who wronged you suffer. They want to see them ‘pay’ for their crime. But as many people will tell you, or what you may have experienced yourself, is vengeance is often so exhausting that when you see your perpetrator pay for his crime, you often don’t feel any better. That is because your higher self doesn’t like to see fellow human beings suffer. Your ego does.

What I’ve gathered from recent material, is that forgiveness granted to others is a gift you give yourself. It does not exonerate what the other person did. It does not excuse them from their wrongdoing and it is not a symbol of weakness on your part. It is quite the opposite. If someone has wronged you, they will have to face those demons, the consequences of their actions, on their own. And you have to trust that they will eventually have to confront their behavior. It’s how energy and karma work. But whether you forgive them or not does not determine whether they will have to come face to face with their wrongdoing. It is impossible that they won’t. This is good news for us. This means we don’t have to hold on to what was done to us, we don’t have to take on the task of seeing perpetrators pay, and we don’t even have to wait for them to apologize in order to forgive them. The universe and karma will take care of these things for us. It is only our job to work towards consciousness and becoming a whole human being. And you can become neither of these things if your clawing away at a crime done unto you whether it be yesterday or 10 years ago. The resentment will infect all parts of your life, because it is such a negatively charged emotion, besides draining your positive energy and keeping you halfway in the past. It is impossible to become conscious and live fully in the present if you have one foot in your childhood wagging your finger at your dad. Here is the most relieving and powerful definition of resentment that I heard recently; “Having resentment for someone is like drinking poison and expecting your enemy to die.” Nelson Mandela said that. And I think it’s safe to say that guy has good reason to hang onto resentment, and yet he let it all go. So can we.

So, of course, this is all easier said than done. How do we let go of the past? For one thing, look at the anger or hurt that you are hanging onto. Where is it coming from? First you need to ‘bring it to light’ as they say. Chances are you’re holding onto pain and haven’t even fully acknowledged it. But it’s there. Maybe you are drinking it away, smoking it away, sexing it away, manipulating it away, or betting it away. But once you stop, (try stillness, that is when many answers arise) you will feel those inner parts that are hurting. The next thing to remember is that by letting go of the pain, forgiving what was done to you, you are not excusing wrongdoing. You are freeing yourself. You are feeling the hurt of what was done, maybe even one last time, and then releasing it. You’re saying that you aren’t going to live with the pain, anger, hurt, sadness, exhaustion or judgement anymore. (Keep in mind, the person who needs forgiving may even be yourself.) I know that the word surrender seems to have a weak stigma attached to it, but it is the opposite. Surrender is the brave acceptance of what is and also of what was. Whether you accept the things that have happened in your life or not, the truth remains the same. Your anger at the past won’t change it, so it is time to let it go.

I’ve thought heavily the last few days of what sort of pain I’ve been carrying around with me. After a year and four months, I feel like I have forgiven whoever or whatever I was mad at that I am sick. In fact, I turned that emotion around into gratitude. Of course, I wouldn’t have chosen this. But since when do I know what’s best for me in the context of eternity? I don’t. But intelligent divinity does, and I’ve finally begun to trust that. Last night I tapped into a moment that my deceased step-dad and I shared on New Years Eve one night. He had been in a terrible mood for three days. He would stomp around the house angrily, slam cabinet doors, sigh heavily at small things. Finally he blew up. It was over this: a dryer sheet. There was a dryer sheet on the floor of our laundry room, and it put him over the edge. He reacted, threw his hands in the air, yelled something about respect and consideration and grew red and heated in the face. It was an obvious overreaction and clear to my mom and I that he was dealing with the hurt of something else. How could a dryer sheet make someone so mad? Those things smell awesome! My mom stayed very calm and told him his behavior wasn’t acceptable, and the two of us left for a few hours and allowed him to get his head straight. When we returned, the two of them spoke in our office for a few hours, and I got ready to celebrate the New Year. When I walked into the kitchen, Roger called me into the office where he and my mom were sitting. He was weeping. He told me “I can’t be who your dad was. And I’m sorry.” I remember holding his hand and saying “I don’t need you to be my dad. I just need you to be you.” We looked at each other and for the first time in a long while, I felt that we really saw each other. Each for exactly who the other one was, not who we wished them to be. It was a freeing moment. I learned then the power of forgiveness, and have since (over 8 years ago) tried to constantly look past the external reactions of people, and into what is real. People don’t act in poor ways for no reason. They just don’t.

I’ll leave you with one last quote about forgiveness. It was said by Iyanla Vanzant, a spiritual teacher and author. (Life Class anyone?) Here it is:

Until you heal the wounds of your past, you will continue to bleed. You can bandage the bleeding with food, with alcohol, with drugs, with work, with cigarettes, with sex, but eventually, it will all ooze through and stain your life. You must find the strength to open the wounds, stick your hands inside, pull out the core of the pain that is holding you in your past, the memories, and make peace with them.”

Pretty powerful no? Since I am trying to break the pattern of holding onto pain, or holding onto judgement for others behavior, I find that having a replacement reaction makes it easier. (Sort of like supplementing a cigarette with a cup of tea.) Whenever I feel that judgment stir in me, I take out my gratitude journal, and find something about the person or situation which I find…crappy…to be grateful for. Maybe someone wronging you taught you how to have self worth, how to tell the truth, how to listen, how to set boundaries. There are any number of things. I just know that the people in your life that have caused you pain were not just sent here to mess with you. The universe is not a random kid playing games. Like Nepo says, It is our job to make sense out of pain; there is a lesson in everything. It’s not easy. It’s hard as shit. But the reward of compassion is far greater than the result of resentment. The time has come to free myself this way. I hope you’ll do the same.

Health, Happiness, Freedom.


Right Now O’Clock.

I bought a watch in the airport on my way to New York. The battery in my old watch stopped ticking not too long ago, but to be honest, it mostly served an ornamental purpose anyway. It’s not like I have a real job and am constantly under a time crunch. But after wearing one for a while, I realized how nice it was to flip my wrist and know the time, instead of wondering around the house to find my phone, which was usually dead, plugging it in, and waiting for the numbers to appear. (There are three clocks in our kitchen at home: The one on the stove. The one on the microwave. And an old clock that hangs on the wall. They tell three different times.) Anyway I found this store in the Atlanta airport where everything was ten dollars. This impressed me. It was the equivalent to The Dollar Store with a less than typical airport markup. So I found this basic orange watch and purchased it for $10, which in my opinion is the deal of the century. But now I’ve been doing all this reading and studying about the concept of time and how letting go of the past and future, even immediate pasts and futures, is an important step towards consciousness, presence. Of course the telling of time serves practical purposes. In my case, it helps me know that I am always ten minutes late for everything. Anyway, I was watching Oprah interview Deepak Chopra and he showed her his watch and you know what it had on the face of it? RIGHT NOW. I was like dude, that’s what I’m talking about! I thought about scribbling that on the face of my new watch with a sharpie. That would of course ruin it aesthetically, but hey, it was only 10 bucks. Bargains rock.

I have been practicing presence. Lucky for me, I am so conditioned in slipping out of the present moment that it has become seamless, so each day gives me plenty of practice. I catch myself becoming sad at feeling sick, disappointed in my productivity, jealous of others resilience, or irritated at not feeling understood. I say three words to get me back to the present: Here and Now. The best way to handle these scenarios is first, not to judge yourself for the feelings you have. Just recognizing when these feelings arise and acknowledging that they exist is the beginning of progress. (If I’m understanding what I’m reading correctly) The second step is to not react to these feelings. And that is the harder part. But as soon as you have created a gap, the tinniest of gaps, between your emotions and a typical reaction, be it yelling, throwing, saying something hurtful, manipulating etc., you’ve done it. You’ve conquered that moment. You’re far from done, because your life consists of a gazillion moments that you can accept with grace, or resist and pay the emotional or physical price; pain, in any number of forms. If you’ve done it once, you can do it again. Now the goal becomes to live in the gaps. As Gary Zukav so beautifully puts it: “Live your life like a feather on the breath of God.” Cool!

I have been thinking a lot about the new state of mind I am consciously trying to move toward. And I’ve been thinking about the illness and its role and whether my state of mind makes a difference. Truthfully, I am not incredibly better physically than I was this time last year. Certainly the first few months of 2011 were the worst. I remember before seeing the specialist in Miami, we had to take data a few weeks before going. One of the assignments was to stand for 10 minutes and then have my blood pressure taken. I remember finding this exceptionally difficult. For the last few minutes I had to lean against the couch because I felt too heavy, too weak to stay standing. We found later this was predominantly due to low blood volume among other things, but the point is, while I have made progress, every day is still somewhat of a battle. There are constant symptoms showing their faces, coming and going, almost as though they have a life of their own. As though they make up their minds to visit me, then leave. Like the last two weeks where I had a migraine every day for nine days. I was doing nothing different but my head seemed to… hate me. Anyway, I just try to deal with each day as it comes. But what has shifted more than anything is my personal assessment of where my life is. I’ve let go of a lot of anger and resentment. I had to go through the emotional work of it, grieve the loss of my old self. But in a strange way, I have come to see the illness as a gift; not a hindrance, not an enemy. It is what I needed in order to evolve. This has not resulted in me getting all better. There is a real possibility I could be sick the rest of my life. But that’s not the point. Although if that turns out to be the case, so be it. I’m learning it’s still entirely possible to live well, love well, and find peace–sick or not. It really isn’t up to me to judge these circumstances. It’s only up to me to persevere with what I have and what I am with grace and wisdom. The part of me that wants to call my set of circumstances unfair, unwise, unlucky, or stupid, is only pushing me further out into the ocean of despair. (Haha, ocean of despair. Yessss) I’ve never met a happy or successful person who was working against themselves, against the pulse of life. Everyone I’ve met who is joyous and successful has taken what they’ve been given, and put it to use, not tried to cast it away.

So that is how April 2012 is different from April 2011. In simpler metaphors, I’m like a crappy car. I have this somewhat dysfunctional body, but that is not so serious of an issue in terms of achieving my purpose. The soul is not heavily effected by external circumstances like these; the personality is. And making that distinction is important. Our bodies are just a vehicle. So, my body is like a car that can only go 10 miles at a time and frequently overheats and needs constant oil changes and runs out of gas quickly. But even 10 miles at a time, a car can still get to where it’s going.

We can’t all be Ferraris!

Health and Happiness, 10 Miles at a Time.