Dog Spelled Backwards

 

Help. I’ve fallen. And I can’t get up.

I have basically been crashed since the day after Christmas. Even before Christmas, my operational value was at maybe 40%. It has steadily gone down. My joints have become cloudier, my muscles weaker and heavier, noise louder than ever, and ordinary light offensively bright. Simply stated, moving has become difficult again, and this is the hardest symptom of all for me to handle. It’s suffocating. I’d prefer pain honestly. My legs are useless. Sometimes I find myself reaching for things across the bed without so much as flinching my legs because it takes an unwarranted amount of energy to move them. I can’t say what is happening to me. Or what has happened to me. I know that every night I pray really really hard that the next day will be better. When I wake up the next morning, and things are the same or worse, I keep going. I take my daily pill cocktail, wait for relief, stare out of windows, and contemplate what a strange and sedentary existence I have. What else can I do but go on? It’s hard. It hurts. When I think about how long it’s been, I fear how long it could last. But I’m not giving up now. I can see the appeal, but I’m not gonna do it.

 

Chronic Fatigue Syndrome doesn’t kill you, directly. It’s rate of mortality comes from a scary little thing called suicide, and having suffered with this since age 9, it’s easy for me to see why that option can feel like it’s all you’ve got. It doesn’t feel like much of a life, laying in bed each day. Only hearing the sounds of life but not actually participating in them. It’s like smelling the aroma of baking bread and never actually getting to eat any. You watch entire seasons change, babies turn into toddlers, this Christmas into next Christmas, and you expected things to be different by now. You’d fantasized a certain life for yourself by the time you got to 25. And when that didn’t happen you said 26. And then 27. And now 28. I’m starting to forget the numbers. They’ve never changed anything before.

It’s really hard to understand God during these times. I grew up Catholic and have always had my relationship with God- but it’s very personal. I even imagine him when I speak to him, in a very specific location, as if a bulleted address on Google Maps. I think of him now, through darker and unhappy times and I think either he trusts me too much, or he forgot about me altogether. But would the master of the Universe forget about someone? So much goes into making a person and a life. I know that I am an incredibly tiny tiny piece of the whole, but still, a piece. And while in the context of eternity and potentially multiple universes we can feel incredibly small, I somehow don’t doubt for a second that my life matters, and so does everyone’s who is alive. I don’t say that with a lot of pride either. I say it because there is something solid and untouchable in me, something unstirred by discouragement, failure, despair, loneliness and tears. It says Keep Going, and so I do. But the truth is I don’t know what for and I don’t even know in what direction. Certainly I am lost. But it’s sort of for my own bitter curiosity that I won’t give up. I want to see what’s at the finish line waiting. I need to know this is not all for nothing.

I must be honest, I think a lot about how stupid I think my life is. I know that seems irreverent at best, but sometimes you just have to laugh about it. Today I was too fatigued to brush my teeth. My God! It’s so stupid! It’s so stupid it’s funny. You should see what I look like these days. Somewhere between Jim Carrey when he visits the Nut House in Ace Ventura wearing brown boots and a pink tutu, and an old senile man in pajamas on his front porch with a cigarette and a shot-gun. Sometimes I stare at myself in the mirror, not quite recognizing what I’ve morphed into. The steroids have puffed my face, my skin is pale and there are dark circles I never had until now. But more than that, it’s like the lights are out. What’s that phrase? A shell of who I used to be? Something like that. I feel like a caged animal and I fear that’s what I’m starting to look like too.

 

All my classy PJ's were in the wash.
Thanks for the clothes Grandpa!

Tonight I cried I guess because it all catches up to me once and a while and feels too heavy to keep in. My mom says we’re all due for a little meltdown now and then. I cried but what I wanted to do was scream, because I am physically nauseous from how sick I’ve been. How relentless it’s been. Day after day, hour after hour. When the weakness makes just standing up a chore that takes energy, my stomach turns. I’m tired of being sick and I’m tired of taking pills. I want to scream but I don’t have the energy for it, so I cry. By default.

 

When I cry I blow my nose really loud, hoping that it’ll wake God up from his sleep. I hear a rustling and when I look up, it’s Monty standing there, wagging his tail at me. He’d snuck in when my head was buried in my hands. Truthfully, I was happy to see him. It then occurred to me that Dog is just God spelled backwards…so maybe he is listening after all. Maybe Monty is God! I don’t know. And that’s the hardest part about moments and times like these. We don’t see how they fit into the grand design of our lives yet. All we see is what’s happening now. For now, there’s pain and suffering, and if God reads blogs, then I guess this is me asking him to take it a little easy. Maybe just for a day. Either way, I will still go to sleep with hope that tomorrow might be better. And if it isn’t, then the next day, or the next day or the next. Keep going something tells me, and since I have nothing else to do, I guess I’ll do that.

Health and Happiness and Keep On Keepin On.

 

A List of Mildly Pleasing Things.

The sound a rotary phone makes
When you hang up the receiver.

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The smell of tires
And how you know before you walk in
the door of the auto shop
that the computer will be old,
and the colors will be red and black.

The sound of ice in a glass
And a something liquid gold
pouring slowly in.

When Monty’s Tail Wags While He’s Sleeping.

Riding in a cab
In New York City,
going anywhere.
The urban slideshow
through a square cracked window
slows down the fast city.
and the driver mumbling
in a quiet language an American girl
who’s pretty
will never need to know.

The way Gwyneth Paltrow smokes cigarettes in The Talented Mr. Ripley.

the-talented-mr-ripley-gwyneth-paltrow-cigarette
.

The second of stillness
When you drive under a bridge in the rain.

New showering products.

A woman tying a man’s tie.

The crinkling of a newspaper
When a man eats his breakfast
With one leg crossed over the other.

Being a woman
Wearing a dress
Smelling romantic
and the clicking of heels
on the old wooden floor
toward whoever spent the time waiting.

A fresh piece of chalk
on school chalkboards.
And the slowness and fragility
of that 90 year old librarian
Who stamps the due date in my book
with her veiny tissue hands.

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That feeling you get
When you kiss someone new.
Like everything is different
Though everything’s the same.

Health, Happiness, and Tiny Little Pleasures.

An Animated Version of My Sick Week.

I’ve finally reemerged out of my latest crash. I’m kind of tired of dedicating words to what being sick is like, so instead I’ll do it with GIF animations. Here’s how it went.

Monday: I tried to get out of bed, but it went something like this.

By Tuesday I was still lifeless and sick, so my mom brought  food to me in bed, which went something like this:

By Wednesday I’m  like this is crap! I’m going outside to play! Which went like this:

So back to bed I went, like this

Then I woke up like 20 hours later like this:

And then someone with enthusiasm calls and says “Hows it going Mary?!?!” and I respond “Great!!!”

Then after a long day of exhaustion, I try to go to sleep, which goes something like this:

Then alas I get to bed, and when I wake up, my body feels like it’s done this to itself all night…

Being awake feels crappy so I go back  to bed, like BYE WORLD!!!

Then I wake up to Bill O’Reilly playing from the living room…

Meanwhile Monty is bored to death with his owner so he decides to go out in the world on his own…

Then finally I wake up with enough energy to get out of bed and be a functional human being!

Which means it’s a PLAY DAY FOR MONTY!!

Woohoo!!

Health, Happiness, Sick Weeks.

White Girls on Facebook: Part 2.

1. Write the name of an alcoholic beverage and a question mark followed by “Don’t Mind If I Do!”

Ahhh much needed.
Ahhh much needed.

2. Talk about how INSANELY busy they are and the massive amount of things they have to do! So much so they spend the next two hours on Facebook talking about it!!

3. Use “LOL” questionably and in an overabundance. “I have cancer lol” “Me too lol”

4. Some version of this picture, allll up in your biz.

My legs enjoying the beach.
The bottom half of my body enjoying the beach.

4. Talk about preparation for tomorrows workout, take a picture of today’s workout, or reflect on the burn from yesterdays workout.

5. Delve into the recent cold they caught, list all the corresponding symptoms of said cold, then tag a photo of Dayquil and Hot Tea. Potential Caption: Yucky sniffles AND a sore throat! :(

6. Take a picture of herself scandalously dressed and tag it with this caption: “Hey you.”

And by you I mean me.
And by you I mean me.

7. “Today I am thankful for gratitude lists.”

8. Attempt a really inspiring, self-written life quote. “Never take advantage of anyone. Life is short but regret is forever. Always thank your lucky stars and never forget to dance. Even in hard times, the sun will shine through the night.”

9. Talk some major smack about football and/or their fantasy team. Then talk some major smack about The Bachelor.

10. Take a picture of basically anything and caption with: LOVE. <3 <3 <3

LOVE.

12. Girls Night Out!! Prepare for pictures, captions and a play-by-play before the night is halfway over.

11. Something borderline horribly offensive followed by “Just Sayin.”

13. Picture of the hubs taking a nap with the baby!

LOVE.
LOVE.

14. Vent a frustration beginning with WOW. “Wow, I was under the impression that a STOP SIGN MEANS STOP.”

15. Duckface. Forever and Ever and Always.

Yall come to the party I'm having by myself in the bathroom!
Yall come to the party I’m having by myself in the bathroom!

Health. Happiness. Facebook. GIRLS.  <3

Snow, Christmas, Crash, Repeat.

I’ve attempted to sit down and write multiple times this week but my eyes continue to grow heavy and I fall asleep with the light of the monitor on my face and an incomplete sentence waiting. Most of the family left to their respective homes on Sunday and it appears my body waited for them to leave to go ahead and crash–which is nice of it actually. I made it through Christmas Eve and Day with adequate enough energy and I was really grateful for that. If being sick now is payment for what I experienced with family this Christmas, then it was well worth it. I just love those crazy animals!

Christmas is by far my favorite Holiday. The lights, the soundtrack, a reason to be kind, the eggnog, the food and the family. I treasure it all. Since we spent this Christmas in Colorado, I began praying weeks in advance for a White Christmas; something I haven’t had in many years. It just makes everything that much more “Christmasy.” When I awoke on Christmas Eve, I saw that my prayers were heard. We had every type of snow that day. In the morning it came down softly. By the afternoon it was big, slow flakes. On the way to Mass it was small gusty snow, fast and twirling. I felt like a kid again. And being that we’re Southerners who are rusty in the art of driving in snow, we went about 15 miles per hour on the way to Church, leaving an impromptu parade of backed up traffic behind us. But you can’t get mad about traffic on Christmas Eve– Not in your Sunday Best while the sky is falling. I received more than I asked for; 6 inches to be exact, which is pretty substantial for this town. It continued to snow into the night, revealing a very real White Christmas the next morning.  My favorite part was taking Monty on a walk that evening. The night sky orange from the clouds reflecting lights, the atmosphere hollowed; a padded cave where your steps crunching the snow is all you really hear. It almost demands that you stand still, that you look up. There is a tangible quietness to snow and it was a real gift to experience it again.

Monty in the Snow, Night.
Monty in the Snow, Night.
Yum.
Yum.

I also really like this time of year because there’s such a sense of hope and possibility with the New Year. On a technical basis, it’s minor. It’s just a change in numbers. A 2 becomes a 3. But for human beings, where space and time matter, it marks an end and a beginning. As the numerical date changes, it’s wise to reflect on the past 365 days and think of what you want the next 365 to look like. Of course, as the mystics would remind us, there is no past or future. A New Years Resolution can only begin and mean something right now. Right now is all there is.

I didn’t make a New Years Resolution specifically, though I love the idea. I reflected on New Years Eve 2010, which I spent at my parents house, and it was Monty who I kissed at midnight. The next few days would involve a heavy crash and a hospital visit and some major contemplation about what to do with my life that I was slowly losing control of to health. I remember that last New Years Eve I thought well, at least the worst year of my life is over. I thought 2011 would be my sickest year, and that I could stuff it far away somewhere. Bury it. Burn it. Just put it out of sight and move on. And then I met 2012. In many ways 2012 ended up being my toughest year. Health-wise it was one of the worst. Emotionally it drained me. Personally it humbled me. You’d think after years of being sick I’d have it all figured it out by now. But I’m still learning. Feeling my way through the dark parts to find meaning, treasuring the good days, and holding out hope that this won’t be my life forever. 2012 was deeply hard, but another way to look at it is this: I survived. I made it. It’s over, but I’m still here. Like Caroline Myss says, “As long as you’re still here, you’ve got purpose.” I may be sickley and often seemingly useless, but I am still here, and I do feel underneath my lifeless body that I still have a lot of work to do. And if most of it comes from bed, so be it.

There’s a few other lessons I’ve learned in 2012 that I’ll take with me into 2013 on my way. Wherever that is.

I’ve learned how to be a house guest: That most people consider themselves clean and organized, and that every person’s definition of those two traits are absolutely different. All in all, people appreciate when you make your bed, so do it whether your hosts do or not.

I’ve learned that old ladies don’t like dogs without leashes.

I’ve learned that violence is not the answer and instead of trying to punch a fly in the face you may benefit from pausing and reflecting instead.

I’ve learned that even if my body is worthless, my mind is not, and it’s still possible to achieve things from a couch, or a bed…in pajamas.

I’ve learned that even if they’re the right thing, breakups hurt. They’re hard. Sometimes it really is time that heals those wounds best.

I’ve learned that every person is fighting a battle. I used to never talk about my issues, or even write in the first person for that matter. Now I have a public blog with everything out on the table and a lot of I, I, I. But most people do not. They keep problems and pain inside, protecting a sore spot somewhere, which is important to remember when they’re flipping you off in traffic or cursing your name from across the street. We all have issues, and it’s all OK. In my darkest times I’ve found reassurance that no one is alone in their pain.

I’ve learned that the best doctor is Dr. Mom.

I’ve begun to learn to swallow my pride. To accept help with grace. To admit when I can’t do it on my own. And that there is much more freedom than pain in those moments. There is real ease in surrender.

I’ve learned that regardless of the question, the answer is protein.

And that out of all 25 pills, nothing makes me feel better than laughter. Mine and others. For real.

I’ll take all of these with me. Into the future, to a galaxy far far away. Or to whatever state I end up in next. I don’t know what 2013 has in store for me. So far, I’ve basically spent it in bed. But that’s OK too. Because regardless of what 2013 brings to the table, I promise to keep on laughing, to keep on joking, and to keep making fun of the tragedy that can be life. In almost every punch life throws, we can laugh or we can cry, and in my experience, it’s just way more fun to laugh at it all. In short, I’ll keep taking 25 pills and making lemonade…or something like that. Happy 2013 yall.

Health, Happiness, 2013

Home Is Where the Holiday Is

A funny thing happens after you leave your parents house and go off to college or out into the world to find whatever needs finding. You start making connections with people and places that aren’t familiar, that aren’t necessarily where you grew up and learned how to be you. Most people go through some sort of transition, often in their twenties, where home base may turn out to be far away from the original. Now more than ever, I don’t have a short answer for where home base is. When people ask me where I’m from, I have no idea where to start. “Well I was born in New Orleans, but I grew up in Colorado until we moved back to Louisiana when I was 16.” “Why did you move back?” “Oh well, my dad died when we were living in Colorado. But then my mom met and fell in love with someone in Louisiana so we moved back. But then THAT GUY died too. *Pause for uncomfortable silence and obligatory “Sorry to hear that.” “Oh my gosh I’m sorry to hear that!” “It’s cool. She ended up falling in love a third time and has remarried again! But lately they’ve been in Colorado, where my moms family is.” “So why are you in California?” “Oh, well I came out here to dog-sit for my sisters in-laws but then I became increasingly ill and have kinda just been living on their couch since September.” “Sick with what?” “How much time do you have?”

My life has never really had a lot of stability. Moving in the middle of high school from Colorado to Louisiana kind of threw everything off. I attended three different high schools and once in college, like most kids, we moved every year. I studied abroad one semester in France where my home was the tiniest room I’d ever lived in, but it was completely comfortable and adequate. I loved it. I spent summers in New York where my brother’s apartment on Lexington was home. After college I moved to New Orleans and got a grown-up job. I finally had an apartment I loved (huge windows) and I lived alone, which I really treasured. But I only had it for 6 months. Getting sick in January, riding in the backseat of my parents car after that day in the hospital, something told me I wouldn’t be in my own home for a long time. And that certainly turned out to be true. Since that night, nearly two years ago, I’ve been living in other people’s houses. I’m lucky I have so many people willing to host me. But truthfully, I dream of the day when I can have home base back. When I can have things the way I want them. When I’m not stepping on anyones toes or breaking whatever house guidelines there are. Living with people is tough at best. And that’s the case with most everyone. If I want the comfort of “home” I have to go inward. Feel who I am, believe in what I’m doing, and trust that I am where I’m supposed to be. Isn’t that the comfort of “home” after all? A place that knows and understands you, a constant among change, a softness where the world is hard.

I remember thinking the universe was playing a cruel joke on me. Finally after years of bouncing around, dealing with the work of roommates and compromise and “Who ate my burrito?!” texts, I had my own place. I was settled. Just me and Monty. I hung curtains and picked out an area rug and was finally living in a space I totally identified with. I remember picking out decorative pillows thinking, “Only an adult buys decorative pillows!” Maybe it’s a desire among the youngest in families, to finally feel like an adult. I don’t know, but I was on my own and that felt really really good. And then, it was gone. As much as I loved the independence, I had to let it go, because being sick didn’t allow me that self-sufficiency I had earned anymore. I would have to learn to rely on others, to ask for help, and to be appreciative even if I felt bitter. It’s been one of the harder lessons to learn among all this–Humbling at best. Turning bitterness into gratitude is like trying to fold a fitted sheet- I’ve heard it’s possible, but I’m rarely able to do it. They’re both art-forms I am still trying to master.

So now here I sit in Colorado, in the town I grew up in, at my grandmas house. It still has the familiar smells (somewhere between a library and church) and familiar sights (the picture of me from kindergarten on the great wall of grand children.) and the same rules (Everyone write your name on your cup and drink out of the same one!) Is this home? Or is it California? Or New Orleans? Well, for the next week or two, it’s here. Where my siblings and nieces will shuffle in from all over America and make lots of noise and pull lots of pranks and inevitably play a game of monopoly that may or may not turn ugly. Where we’ll eat big meals and fight over who my moms favorite is and sing songs off-key around my brother Doug playing piano. There will be dogs and babies and gifts that nobody needs. But the best part about love is, it doesn’t need a certain city or house to flourish. It can grow anywhere. I suppose that’s another art-form I’m attempting to master. And I guess where love grows, is where I’ll call home. This Christmas, it’s Colorado.

Health, Happiness, and Happy Holidays– Wherever Home Is.

For Some Reason, This Gem Is Still on the Wall.
I’m going to use this pose in all my pictures. .

“Home is where you can say whatever you want, because nobody listens to you anyway.” :)

-Joe Moore

Life at the Window.

I spent last Spring in a playground called New York City. My brother and sister-in-law had this great apartment in TriBeCa with huge windows and a doorman. As newly jobless, apartment-less, boyfriend-less- New York City felt like the perfect place to spend some time and  get to know myself again. I had lost all of my “identifiers ” and it was time to get in touch and adapt.  It was truly a treat  staying there while I reconfigured what my life was going to look like. My brother spent most the week in Boston teaching at MIT and Estee worked full-time, so I had this great little cube in the city to myself a lot.

Our cube with the light on.
Our cube with the light on.

My only responsibility as a guest there was to walk the dog, Lilly. Lilly was cool. Sweet and low maintenance, she was happy to spend day after day sitting on top of the heater with me and looking out the window to life below. I wrote, read, and occasionally played music super loud and danced alone in the living room. (One day I danced “the Dougie” too hard and exhausted myself for a week) If anyone were watching from the building across the street, it would have been quite a show. Lilly sometimes barked at a dog below or a UPS man unloading boxes, but mostly we just watched. It was a perfect, small existence for me at that window. New York City had a way of making me feel intricately connected to the pulse of life, even though I was sick and on the outskirts, and my only participation was mostly observation from the 4th floor. I never felt isolated in New York. Sometimes I ended the day feeling like I had interacted with so many people and in fact I hadn’t actually talked to anyone. There’s something so involved there, that even as a spectator I felt implicitly a part. I would watch the people walking their dogs or babies in strollers, laughing or yelling on their cell phones, entering restaurants and hugging friends hello, and it all made me feel incredibly human again. I could watch life from that window all day and never get tired of the sights. And most days, that’s all I did.

Life at the window.
Life at the window.

I really had to get used to the “free time.” I know that sounds like an illegitimate complaint, but going from working to not was hard to navigate. To strangers it sounds fun..”You’re so lucky! You don’t have to work.!”  But that’s kind of like telling someone in a wheelchair “You’re so lucky, you don’t have to walk!” Truthfully it can be extremely lonely and isolating having absolutely nothing but time on your hands, but possessing none of the means in which to do the things you used to. It took me a long time to adjust to not having a typical day schedule to follow. Such is life. We notice things more once they go missing.

It was surprising how responsible I had to be with my free time. You can’t just do nothing. Nothing is the gift you give yourself after you’ve done something. But if you’re not actually doing anything, the nothing part becomes completely sad. You have to be responsible. It occurs to me now how much security and diligence there was in my fulltime job. A schedule is basically simple. Follow the rules 5 days a week, get paid, go home. There are things you say in an office and things you don’t say. Wear and don’t wear. I worked at that gallery because that was the progressive step after college. It was safe there. I knew exactly what was expected of me and I was good at what I did. And on the 1st and 15th of every month I was paid 1,060 dollars for following the rules and doing my work dutifully. There was a time work began and ended. And there were two entire days a week you had to yourself. It didn’t matter what you did on those days. It only mattered that you showed up on the right days and were on time if not early.  Then all that was left was following the rules. Performing tasks. I do miss the stability of that old life. The one where at least I felt  like I knew what I was doing and where I was headed and what was coming my way. Now there is none of that routine or structure. There isn’t really anything expected of me now.  No tasks to check off, no paycheck twice a month. There’s no real order, and it’s a strange thing to very quickly lose something like that. There is ease in order.

As easy as it is to complain about work, to dislike your boss or co-workers, there is something very essential in human beings that gets fulfilled in just getting dressed and going to work every day; contributing  to the “whole” some way and getting paid to do it. Even if the work is  mundane or repetitive. Even if your co-workers are punks or your boss is a turd-sandwich, there’s something gratifying about good old fashioned compensated  labor. Life becomes pretty different without it.

Part of my biggest adjustment in getting sick has been surrendering to a schedule that I can’t control. I don’t know how I’ll feel one day to the next, what I’ll be capable of. I don’t know if Ill sleep at night for 12 hours or 10 minutes. (Or if I’ll be up at 2 am writing this blog like I am now)  So in a very bizarre way, the illness has literally forced me to live one day at a time. One moment at a time. What am I capable of right now? OK, I’ll do that. It has become that specific.  And I think after nearly two years of no “real” job and crashing my siblings couches, I am finally understanding and accepting life without schedule, rules, tasks, and order. Or what I was perceiving to be order. The funny thing is  now I see that even in my highly organized, scheduled life, I still wasn’t in total control. It only felt that way. It looked that way. I still got sick. Life still “got to me.” My life is no more or less in control now than two years ago. It is truly, just perspective.

My brother Nick encouraged me to read while I had so much downtime, and that was good advice.  Here I was writing all the time, but never reading what was done before me. And you need context in everything, especially literature. I still have a ton of reading to do, but I’m really glad I discovered the real joy of it. Growing up it always felt like labor– a requirement that didn’t interest me. Now I find real freedom in it. There is nothing like getting lost in a story. I admit it’s more fun to read than to write. There is anxiety in me sitting down to write. But there is total surrender in sitting down and investing in a story.

Anyway now that I didn’t have a schedule to adhere to or  specific tasks to perform every day,  I was now up to my own devices. I realize that sounds like a really spicy thing to say. But mostly it was  me in and out of dreamworld on the couch or sitting on the heater, looking out that window, and drinking coffee with Lilly.  Every once in a while we mixed it up. Like when I dressed her up in my hat.

Lilly wearing my hat with attached scarf.
Lilly wearing my hat with attached scarf.

Or put her in my laundry basket.

Say cheese!
Why are you doing this.

Or if it was a healthy day we’d walk to the piers and watch the joggers and boats.

..
Contemplation.

As nice as our walks were, I think I was most content at that window. In general, I am happiest by windows. I gravitate in every house to the room with the most light. I like to see outside. Hopefully one day, I won’t be the girl at the window, but the participant outside. The subject of someone else’s observation. But truly, I ‘ve become happy with this spectator form of my life. I don’t think it will always be this way, but it has granted me a unique perspective. It has made me step back and examine. It’s given me stillness in a very fast world. Even sick in bed, I can still examine life, ask my questions, read and write for the answers. None of this could happen in my old busy life. There was simply no time for it. There was work during the week, and sick recovery on the weekends. Now I have a new kind of work. It doesn’t pay well (as in, it doesn’t pay) but my boss is cool (that’s me) and every day is “Bring Your Dog to Work” day. Maybe the best part is, I am never too far from a window. For me, for now, that is enough.

“Participate with joy in the sorrows of the world.” -J Campbell

Health, Happiness, Windows

My friend Gabe took this picture of me at the NY window at night. Thanks Gabe!

Night.
Night.

Sixteen Clementines

It is a dreary, rainy day in California today. I love it! It was this way yesterday too. I had been feeling a little home sick lately and now suddenly I have damp Louisiana weather–the in between cold, lonely drizzle outside. It’s superb. It’s so anti-California. Feels like home to me.

When I stepped out into the rain for our morning walk, I was expecting to make it quick since that what’s you do on days like this-stay indoors. But Monty seemed so happy frolicking around and it felt pretty good hanging around out there, that I just let him get wet and play in the mud and people laughed as they walked by. I’ve always let Monty get messy if he really wants to. There’s no real problem with it..dirt washes off! So we got dirty.

Mud.
Mud.

Health-wise I have been improving since the whole too weak to move crash, slowly but surely. My naturpath doctor received some blood work two weeks ago that confirmed I still have lyme disease, as well as two co-infections (one is Bartonella, aka as cat scratch fever..what the hay?!) and one parasite in my gut. All right!! This is good news though because they were definitive results and allowed us to move forward with a treatment plan. Since she is a naturpath she doesn’t use antibiotics to treat things, so combating the lyme this go around will be a little more complex. I could go into the details but I don’t even understand them entirely and it’s pretty boring anyway. It’s a crazy coincidence that my doctor studied a while with one of the top lyme specialists in Northern California, so we’ve got that working for us. If we can’t get it under control with her care, she’ll send me to him.

I forgot to mention that part of seeing the naturpath is going on a major detox where you avoid gluten, dairy, corn and you drink this protein shake all the time which actually tastes decent! After 6 years of convincing me to go gluten-free, my sister can now rest easy knowing I’ve made the step. For now anyway :) The diet actually isn’t so difficult to adhere to but that’s because my sister keeps the house stocked with stuff I can eat and pretty much brings me dinner every night. You may ask yourself, what do you eat? The answer is yams. I eat a lot of yams. Kidding. Well, I did eat a lot of yams in the beginning. But the point is to mostly eat fruits, vegetables, and a lot of protein. So that’s what I’ve been doing. Yesterday I ate sixteen clementines. For real. I can only eat at least four at a time. They’re just so small and addicting. I don’t know that I’ve been able to tell exactly what difference the diet is making since there are so many variables right now, but I do know it’s nice to feel good about what goes into your body. I admit I never felt great mentally after stuffing my face with fudge sickles at 2 am. Mmmm fudge sickles. That sounds so good right now.

Since I’m pretty obsessed with the Holidays and Christmas in particular, I told Amelie and Keegan that since I’m a sick kid they have to grant me a wish like the Make-A-Wish-Foundation advertises in the commercials. (On top of housing, feeding, and caring for me, of course.) My wish was for a real Christmas tree and the day after Thanksgiving, we did it! She’s a real beauty. If she had a name it would be Anastasia. We’ll hang small milk bones on the bottom so that Monty will tug at those and not the real ornaments. There’s nothing like the smell of a real Christmas tree. It’s like Winter, Happiness, Warmth and Love all wrapped up in a smell. On top of that I’ll be blaring Christmas jams and watching Elf on repeat which my brother-in-law is really excited about. What can I say, I’ve always loved Christmas.

Apart from yuletide, I’ve been watching Woody Allen movies, taking pictures of people’s windows, and writing things late night I still don’t entirely understand. I still need to watch Crimes and Misdemeanors which I hear is one of the best..but Annie Hall is so ridiculously lovable it’s been hard to forget.  I loved Manhattan too but it made me nostalgic for Annie Hall. I liked Melinda and Melinda a lot and also Alice. Husbands and Wives may have been a little too neurotic, and Midnight in Paris was the best! I really loved that one, and Owen Wilson’s character. Too good. Tonight I’ll watch Play It Again, Sam and then maybe I’ll get back into reading. Somehow I kind of stopped. Anyhow, I keep taking Monty on walks around our complex and I love seeing people’s windows from the outside. The blinds are always closed but people put little decorative pieces to view from the outside, and I like seeing them. I don’t really know why. So I started photographing them. I also realize it ups my “creeper” level a few notches, but I can’t help it.

Dog. In a Sweater. YES.
Dog. In a Sweater. YES.
Batman? Is that you?
Batman. He lives.
Cups.
Cups.
That cat.
That cat.

 

 

 

 

 

 

 

 

 

 

 

Health, Happiness, Window Shopping.

You’re Doing It Right.

At one time, each and every human being on the planet was a tiny baby in a mothers arms. In front of him lay a pristine and untouched future, where anything was possible. One thing will shape the direction and vibrancy of that future more than any of other thing; love. From whom he learns it, from whom he does not, how he is taught it, and that he experiences it in its most authentic and pure form- unconditionally. Money is no matter, health is no matter, religion, beauty or brains. Without the message that love sends- the gentle reminder that who you are matters- all of these things are fine but rendered useless if they are anything but anecdotes to a love-filled life.  There are many ways to measure a life, and many definitions to the word success. You don’t have to go far to find the richest people, the famous people, or the ones deemed very important. And they will often gladly share their secrets to what we call success. But behind numbers and cameras and curtains is a very basic human need- not desire- that we all share no matter what characteristics separate us. We have to have love to evolve. And we have to give it to surrender. And we have to lose it, at least once, to really know who we are. And when we find and learn to love ourselves wholly, then might we love others the best possible way. If we haven’t used it to fill holes, if we haven’t given it to get control, then what we’ve done with love, we’ve probably done it right. 

Dude, I love elephants.
Who Doesn’t Love a Tea Party?
The young lovers of Moonrise Kingdom. Have you seen it yet? It’s good.
Bears Love Each Other TOO.
Walrus loves birthday cake.
Monty and Mikey may or may not love when I dress them in towels.

Health, Happiness, Love the Right Way.

We Are the Leaves

I’ve been hanging out with a lot of trees lately. I take Monty on walks in the hills behind our apartment. It’s where we hear the coyotes howl at night. I don’t know where they go during the day. The more I’m around the trees the more picturesque they become. Suddenly I find myself staring at one tree for a really long time. It’s just standing there, its leaves making gentle sounds, and I feel captivated like I’m watching some kind of brilliant theatre. It’s just a tree! But hang out long enough with them, and they share a little wisdom. I started photographing them on my phone because…I felt like it. And my phone is more like a camera with phone capabilities.

When I was a kid I used to think that wind was caused by trees. In fact I may have thought that up to an unforgivable age, but science was never my strong suit. But in my simple brain, since when it was windy I would hear the rustling of branches and leaves, I equated wind with tress. Finally during a dead, wintery day in Colorado, the cold blew against my face and I looked around at the dried up trees around me. There were no leaves rustling, the dried skeletal branches cracked, and it was clear that wind came from somewhere else. Currents cause wind, which in turn rustles the leaves. The real culprit was something invisible yet immensely powerful. So yesterday I sat in the sun and listened to the leaves rustle while Monty chewed a tennis ball to bits. I watched as an invisible current moved through everything and it struck me why I thought the way I did about wind as a kid. It also had me thinking about human beings and our respective passions and purposes. When you’re really excited about something, whether its writing or painting or singing or chemistry…it doesn’t really matter what…there’s something greater moving through you and guiding the art form. In fact I think that’s one way to define genius, or greatness or expertise– opening oneself enough to allow something invisible and quiet to move through you, leaving either art or authenticity in its path, and each time raising the bar. I don’t see being creative as only limited to the arts. I think there are creative ways to do math, and practice politics, and learn history. There are also creative ways to love someone, dress yourself, and give gifts. It hit me there under the sun, that we human beings are the trees. The creative and appeasing truth is the current, and individuals are just the rustling leaves making the noise.

“Art is the lie that enables us to realize the truth.” -Picasso

Health, Happiness, Trees

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My Post Election Facebook Prediction

 

 

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I’m going to briefly talk about two things I love to hate: Facebook and Politics. Bear with me.

Apparently, there’s an election going on. Like right now. You most likely knew that because you’re not an idiot. And you also probably knew that because if you’ve visited Facebook for even a millisecond in the last few months, you’ve seen it–the political outrage, the emotional pleading, angry outbursts, passionate opinions, and my favorite; quoting of the constitution. I have long thought that Facebook and politics go together about as well as pizza and peanut butter. But, we’re still figuring it out. This is the first generation of Facebookers. There’s no precedent. Which is why when Facebook opened the flood gates and allowed anyone to join, college kids ducked in horror as their parents and sometimes even grand-parents had access to a microscope highlighting all of their activity (legal and illegal) for the last year or so. They also laughed as Baby Boomers slowly learned what a poke meant and how to effectively comment on photos and walls. There’s no written etiquette for Facebook  We’re all just a bunch on neophytes figuring it out as we go and hoping not to ruin ourselves in the process. Undoubtedly, the consequences of Facebook activity can be huge, regardless of their intent. There have school expulsions, job firings, missed job opportunities, and countless breakups over this enigmatic social network. But hey, there are pros too. Keeping up with family members and long-lost friends, stalking your ex, knowing what your neighbor from grade school ate for breakfast this morning and that your high school boyfriend and his girlfriend are expecting a baby boy! But I’m getting off topic. There is an election going on. And if you spend any time on Facebook right now, you cannot escape that fact, opinions about that fact, and the ensuing written diatribes about that fact.

Sadly, I admit I have engaged in political debates on Facebook. They were miserable, dirty, and useless. No one walked away with their minds changed or cleared or any more informed than when they began. To be fair, verbal arguments can sometimes be just as messy and ineffective. But a verbal argument seems more tangible and more accountable. It’s much easier to write nasty things than to say it to someones face. There isn’t much accountability on the internet. Facebookers and bloggers have a lot power but not necessarily a lot of accountability.  It’s easy to type what you feel many times anonymously, without being liable for what you submit. On the Internet, we’re all just a bunch of small boxes with a face (or sometimes a picture of a car or a sonogram) and a name, but we seem to lose a large part of our humanness.

As miserable as Facebook political warfare is, we seem to be addicted to it. It’s hard to keep your mouth shut, (or your fingers idle) when you see someone post something you deem ridiculous. And truthfully, Facebook is where a lot of people make their voices heard. So it makes sense that it is on this platform where people express themselves politically. I don’t wonder why politics comes out on Facebook. It’s clear. I only wonder if it’s ever meaningful. It reminds me of a bumper sticker. It’s a tiny little snapshop of your views, but rarely does it encourage an intelligent dialogue or seem to persuade the other side. For all the engaging and speculating on Facebook I’ve done, I have never once witnessed a meaningful political conversation. Inevitably, someone will type something like “Hey screw you you dirty liberal!” or “You conservatives are a bunch of assclowns!” The people who agree with you are already convinced, and the people who don’t will tell you to go Eff yourself.  And then most likely send you a FB invite to their birthday party.

All that being said, my prediction is that we’ll see a large backlash on Facebook  November 7th, regardless of who wins the 2012 presidential election. (Duh) Democrats and Republicans alike are enthused, passionate, and each seem to use a disproportionate amount of explanation points. Here is my prediction:

IF OBAMA WINS:
(Warning of the apocalypse)

Everyone ready for the Socialist States of America?

God is good. God is great. Romney lost. We’ll suffer our fate!

Awesome! Another four more years of bullshit! Can’t wait!!!!

I’m moving to Canada. Eff you America!

Four more years of assclowns to run the White House. GREAT!

IF ROMNEY WINS:
(Emotional Depression Sweeps the Nation)

It’s a sad day for America. I really thought we had this one.

Wahhh. How will I afford my birth control?!?!

God is good. God is great. Obama lost. I wanna shoot myself in the head.

I can’t believe I won’t get healthcare and I’ll be in a binder!

Woah, Romney won. Does anyone wanna get frozen yogurt?

When you sign up for Facebook, you sign up to see and hear a lot of things about about your Facebook friends, which is mostly everyone you have ever known. Sometimes you’ll like it and sometimes you won’t. I always wonder how Facebook will evolve and how its users will change. Regardless of who wins, the world will keep on spinning, (according to most) and Facebook will keep on status-ing all over the place. Whether you like what you see or not, it is great to live in a country where you can say it all. But just because you can, doesn’t mean you should. Most of my recent Facebook activity that deals with the election is linked to The Onion–a satirical newspaper. Because I don’t find that political views on Facebook do very much except attract those who disagree. Which is fine. Maybe that’s even the point. Ranting and bickering can be fun, I guess. But from my seat, it never seems to goes well or end well. If we are to examine our intent, what is it exactly? To change minds? To be heard? To inform? I wonder if Facebook is really the place to do it. I think there may actually be a place for politics on Facebook, somewhere. I just don’t think we’ve found it yet. It is however, the best place for pictures of cats and babies and suggestions for cold remedies. No question.

Maybe it won’t always be that way. Like people, Facebook has continued to grow and change throughout the years. Most would probably not even recognize the user interface of Facebook 1.0. And it will be interesting to see what it will look like in the 2016 election and how people will interact then. My prediction: Still a lot of cats. Still a lot of political warfare.

The world spins on.

Health, Happiness, Politics.

The Day I Tried to Punch a Fly in the Face.

I could tell you a lot of things about my life right now. That once again it’s 4 am and I can’t sleep. That once again Monty has gas but I love him too much to kick him out of the room. That the Chinese doctor told me not to take my pills today and so I haven’t. I feel the effects of it. I have some fear about it. Some hesitation. But I have the same fear of a life dependent on pills, so either way it’s fighting demons. I don’t mind being awake when the world is sleeping. So many days I’ve missed out. Slept through. Called in sick. Night is my time to take life back. I could tell you my music of choice at night when I can’t sleep–lately it’s Tchaikovsky (Swan Lake) but tonight it is Radiohead (In Rainbows) and I’m deciding whether to keep squinting hard and trying to force sleep or to give up. Give in. But since the only cure for insomnia I have found is waking up, I give in.

When I open my computer to begin, a fly immediately lands on the screen, undoubtedly drawn to the light of the monitor. When I scroll the little mouse arrow under him, he jumps. Flies away a second. Then he comes back. I play “tag” with my computer mouse and a fly for probably way too long and smile at this activity. What makes me smile more is that we have this big joke in my family that my dad would be reincarnated as a fly. He used to do this hilarious impression (often at fancy dinners, with no shame) of a fly, rubbing it’s little legs together the way they do. Half of the people laughed because it was funny and the other half probably laughed out of discomfort or something. He was such a nerd. This was his dinner entertainment. I wonder if this fly I am playing computer mouse tag with is my dad. Then it starts rubbing its spidery little legs together the way my dad used to when impersonating them and I smile bigger. Because these are strange anecdotes at 4:14 in the morning and I’d prefer to be getting sleep. But then again I would have missed the fly. The fly and all its mystery.

The Fly.

There are a lot of fly stories concerning my deceased father. Like at his funeral when my sister started crying and one landed on her shoulder. Most people would call these things silly, coincidental, random or meaningless. And that for sure is the easier belief. Faith requires energy. But it almost seems like doubt steals it. Sometimes it appears more attractive to trust nothing and be skeptical of it all. But there are incredibly real moments in my life, where explanation just doesn’t work. It’s beyond science. It’s beyond religion. It’s more along the lines of intuition, instinct, and of course, an awakened state of consciousness. It is really amazing what we can see and access when we are awake. But I think we’re mostly sleeping.

In early September I was  beginning to really resent my situation. I was physically feeling worse and worse. Everyday activities were becoming harder and I was having to rely on people more than ever. I was beginning to resent the fact that I needed help, which is, insane. I should have been thanking every star in the sky that I had help, but I was too busy being upset that my life didn’t look like what I wanted it to. I was really irritable one day. I was short with everyone. I felt angry, sad, and misunderstood. I needed help but I didn’t want to ask for it, so I resented those who tried. Fed up over something stupid, I took Monty on a walk. We walked up “the hill” that presumably was what put me over the edge after walking up it once a day for a week and then facing a monumental crash. Anyway, at the top of the hill was wide open space for Monty to run and for me to think or yell or curse. On that day I let Monty run while I unloaded some words at the universe. I cursed and yelled because no one could hear me. Except maybe some cars that drove by slowly, and at least they had a story to tell later. (Yeah this girl was flipping off the sky and cursing about fibro-vagina or something?) Pretty soon, this fly landed on my face. I swatted it away and it immediately landed back on my nose. Again I swatted. Again, it returned. I was in such an aggravated state, I wanted to punch the fly in the face. I remember thinking those exact words: I want to punch this fly in the face. When I say the fly would not leave me alone, I mean it. For at least five minutes I let Monty run, let my tears fall, and relentlessly swatted away this fly while also trying to punch it in the face. As if that’s even possible. Fed up, I told Monty that due to a CERTAIN INSECT THAT WILL NOT LEAVE ME ALONE, we had to walk home. Monty looked at me like the psycho that I was, and then we started back down the hill. The fly followed.

I started to cry. All I wanted was peace. I was so upset and felt so alone. My life felt out of my hands and I had become completely reliant on others. I’m always the guest on someone else’s couch. When will I sleep on my own couch? I’m always going to be sick and helpless. These were the thoughts that were circulating. As you can see, they are pretty negative. They weren’t helping me. They were the cyclical mental thoughts that dig you deeper in the hole. The fly continued to dart at my face and I continued to flail my arms in what I think were actual attempts at punching it in the face or more simply, just killing it altogether. But to passers-bye, dear God, I must have looked insane. Finally, near our complex I began to calm down. It finally occurred to me; our little joke about my dad returning to earth as a fly. As I remembered I yelled “Seriously dad this is NOT the time!” So now I was punching the air and talking to a fly which I was beginning to believe was my dead father. Want to be friends?

The truth is, that was the time that I needed to be bombarded. The most effective thing that fly did was make me stop. And examine. And get to the truth of my experience. I had been feeling so alone. But the truth was I had love from all sides. I had family to carry me when I couldn’t do it on my own. It was just time for me to humbly accept that not everything was going to be on my terms, and that’s OK. You can still be happy down another path. Once you stop fighting it. That fly relentlessly flew at my face for at least 10 minutes, while I relentlessly tried to kill it. But by the end it had gotten through. Something told me, something from inside, that fly was a reminder. That life wasn’t over. That I wasn’t alone. That I shouldn’t be so irreverent about living. I was still here. Still breathing. And so I still had purpose.

I approached our front door, now smiling at the events of the last 15 minutes. I had tapped into a different energy. A better energy. All thanks to that really, persistent,  annoying fly. Whoever he may be.

Health, Happiness, The Fly.

Meanwhile, on Facebook…

A few of my close friends have taken the plunge off of Facebook. I’d like to show those friends what they’ve been missing. You’re welcome!

At first I was like Woah, too much information. But then I was like what, no pictures?
Thank God!!!!!!!
Yeah!! Wait, I never signed anything.
Thank God for hard hitting local news.
Let’s talk about the definition of ‘literally’…
Totally agree.
Like this status or the kitten gets it!!!!
Thanks!!!
Kids, don’t eat the peeps.
He’ll appreciate this when he’s 20.
I don’t trust this, bro.
Totally. Wait what?
Talking about milk is fun!!!
Something happened to my friend Noah.
This sounds serious.
Health and Happiness.

The Importance of Catching Balls.

The other day I didn’t have a lot of energy (shocker) but Monty did (shocker).  I was throwing the ball for him inside the living room and noting what an expert catcher he is. Like the dude jumps crazy high and catches basically every ball I throw. So I started recording him. Because I have time to do crap like that. Then it was such a beautiful day outside I said screw it, if I can throw a ball in here I can do it outside too. So I brought him outside and recorded all the different ways in which Monty catches a ball. Then I made a movie out of it and put it to some fun music because video editing is another one of those things you can do from bed, and again, I have time to do crap like that. Woo woo. So, below is the result. I guess I realize that Monty makes me happy in so many ways and even watching him jump to catch a ball makes me laugh. Now we all get to watch him. And the angels rejoiced.

Health, Happiness, Monty

*Note, you can’t currently watch this video on a mobile device like your phone because of a third-party licensing issue with youtube…Booo, I know. I’m working on it.

The Story You Tell Yourself

It is sunrise again in California and I am reflecting on the last few months of my life. I just dropped my mom off at the airport to fly home to tend to other business. Newsflash, she has a life outside of nursing Mary back to health! I’m really lucky she was able to come. She did an incredible job as most Dr. Moms do alongside my sister and I am much more functional than when she arrived a few weeks ago. I can climb the stairs easy peasy this week–that is something new.

I feel a lot more at ease since she arrived and helped me to process some pretty heavy thoughts I was having. For one thing, I kind of thought I was dying, because I’d never felt that bad before and I imagine death must feel like something close to that. It’s pretty unsettling feeling like you can’t walk or hold a brush to your head or take a shower. Forget climbing stairs, I was scoring my days on whether I could walk to the bathroom or not. Since then my strength has slowly inched its way back. I still do very little physically throughout the day as to not overdo it, but I can feel some energy where there was none before, and for that I am really grateful. I’ve been drinking protein shakes from the naturopath doctor three times a day along with 12 other supplements alongside my normal pill cocktail. I’ve been drinking Chinese tea from Dr. Xu that tastes like ground up birds nest and getting acupuncture twice a week. My B12 was low so I even learned how to give myself a shot…in the butt. It’s impressive. But anyway, it’s helping. All of it, I think, is working in different ways and putting Humpty Dumpty back together again.

I notice that every day has it challenges. Mine has different uncertainties and struggles. Will I be strong enough to climb the stairs, will I get to shower, will Monty and me save the world?! And the truth is I just don’t know. None of us do. There is no certainty about what will or won’t happen tomorrow. There is just here and now. And I notice that when I examine my life with clear hindsight and an open-minded eye, I see that it’s not bad. Like at all. It’s actually kind of enjoyable! I’ve gotten to spend time with my sister and brother-in-law that I never would have had otherwise. I’m lucky to have a mom who was able to fly out at the drop of a hat and give me some much-needed help. I get to read and write as I please. (Even though it’s mostly from bed.) I get to spend ample time with my favorite person, Monty, and I get to put my very little energy towards something positive–writing, humor, optimism, and good news. There are a lot of outcomes of this seemingly crappy situation that are not themselves crappy. They’re more like great. And that always gives pause for reflection. But trust me, it’s easy to go the other direction. The slightest tip of the scale and I could see things very differently. Darker. And I have those days sometimes. I could say it isn’t fair. I could say this isn’t the life I wanted or signed up for. I could look at all the healthy people with their functional lives and long for that to be mine. But, like Iyanla Vanzant says, that’s a life path that doesn’t belong to me. So it’s important to let it go. As long as I try to get back something that was never mine, I will suffer. As long as I tell myself a sad story, I’ll pay.

What’s your story morning glory?

We tend to think we know best for ourselves. And many times that’s true. But the problem with the human experience is that we are stuck in the mental limitations of space and time, so it’s hard for us to see our lives in the context of eternity. But that’s the truth of existence. We’re just a small part of something much larger, and we aren’t meant to see all of it at one time. I think we’re meant to just hold on and enjoy the ride, and when it’s a shit show, like my life the past year, you hold on tighter. You pull in people to help. You acknowledge there is something bigger than you, and focus your energy on balance. On acceptance. On inner peace.

The thing is, you can’t just tell yourself a happy story about your life and you’ll be happy. You have to believe the story you tell yourself. For some reason it’s like we’re conditioned to believe the sad story more than the happy one. And through the dark times especially, it’s not as easy to find the pretty things, but they are so valuable when you take time to find them. That’s why acceptance is so important. Once I stopped focusing on the happy life I would have once I got better, and instead focused on how to be happy with the life I have now, I found much more success. And it takes work. I have to remind myself everyday of the things that I am lucky for, and most of the time it’s a no-brainer. It’s family. But it’s easy to forget. To slip up. To fall into the humdrum of life and feel like you’re not where you’re supposed to be. And maybe you’re not. But most of the time, life just requires us to be present where we are.  We already have everything we need, we just have to be aware of it. In The Untethered Soul, Singer wrote that “Life is surrounding you with people and situations that stimulate growth.”So before you judge your life and your hardships, try to acknowledge that this is what you need in order to become whole. In order to become who you are– the best possible version of yourself. It sucks sometimes. It’s hard. Don’t I know it. But if in the end it forced you to grow and become awesome and happy, well then, it’s worth it isn’t it? Maybe it isn’t such a sad story after all.

I’m learning I have to be careful about the story I tell myself. Because if it’s a happy one, that will be my life. But if it’s a sad one, that will be my life, too.

Health, Happiness, Stories.

It’s OK To Ask For Help. Help!

It has taken me a long time, a very long time, to admit what I am about to. It’s not a very big deal at all, but I’ve spent a long time fighting the very notion of it, and in the end it’s completely true; I am totally reliant on the help of other people right now. I need help. I can’t do life on my own. It’s been this way for a while and though many times I’ve picked myself up by my own bootstraps as they say, and I’ve done all I could to live a life that is mine and have a struggle that I conquered, it just isn’t the case. And why that would be so hard to admit or accept for me, I have no idea. It must be the ego in me. It doesn’t want to admit I need help, but the simple truth is, I do! A lot of it. It’s all so silly. Sometimes life is hard and sometimes you need help. It’s OK to ask for it. And if someone offers it to you, you should accept. The world is full of good people and many of them are happy to help someone out in need. We’re in this together people! Independence is important. Solitude is a gift. But there are 6 billion people on the planet and I don’t think we were put here to suffer alone. This is where and why love exists, and I am seeing now that I need to channel my old fire for autonomy into pure grace and gratitude that I have people who are willing to help me when I’m down. Even when sometimes I don’t deserve it. When I have nothing to offer back. When I resist it. They give it anyway, and I am incredibly lucky for that, for them. It’s really time for me to let go of the anger that I can’t do it on my own. (I think they call this surrender.) Little by little, I feel my pride give way to acceptance. It hurts. It’s hard. It doesn’t always present me in a very pretty light. But there is freedom in admitting you need others, and I’m getting there; slowly letting go of a life path I had in mind that didn’t work out the way I wanted it to. Well boo hoo. It happens. The universe had other plans and here I sit in California listening to coyote puppies howl outside and trying to understand grace. I know it won’t always be like this. Things don’t stay the same. And the truth is it doesn’t matter whose couch I’m on or which family member I’m bumming off of. The key to my happiness is just being where I am. I really need to let what was, go. Let what could have been, go. There is just this, just where I am now.

The model citizen in this whole experience is easy; It’s Monty. Two years ago he happily rode in the backseat with me after the day at the hospital–let me use him as a pillow on the hour drive home to my parents house. It was a gradual move-in, but Monty seemed like he knew we were there for the long haul and quickly embraced our new house. (He was right.) I remember waking up one morning to find my mom feeding him cantaloupe off of a fork and laughing. Marc took him to the prairies with him and they quickly became partners. When I was too weak to play he slept. When I was sad he would fart or do something equally meaningless but would somehow lighten the mood. When I decided to go to Colorado, he got on a plane with me and we went, and he didn’t lose his temper when we were delayed for 6 hours in the Houston airport. He played fetch with a rubber band and then he waited patiently. When I came to California he came too, swam everyday and had a really good time. When we moved into an apartment with my sister and brother-in-law with not a lot of space, he made himself at home. I’ve always wondered what Monty in a bad mood would be like. I’ve never seen it. Every day is literally the best day of his life. He wakes up so excited. Could I be like that? It seems worth it to try. I’ve never seen Monty stub his toe and then yell “mother fuckerrrr!!!!” like I did the other day. Or complain about the agenda or the situation or his crappy pebbly food. It’s like all he does is love and embrace everything. His energy is really good to be around and I don’t take it lightly. I know I’m a little obsessed with him and people say “It’s just a dog, Mary.” But what does that really mean? I’m just a human. Monty seems to have something figured out that I don’t and I don’t see the problem with learning from another species. Some things, they just get. Anyway, it’s fun having him along.

Model Citizen.

He is just another part of the “Help” I’m receiving. The best part about dog help is that you don’t really have to ask for it, they kind of just know. So whether it’s Monty keeping me company in bed, my sister carrying me up the stairs, my mom counseling me through dark stuff, or a million other ways in which I am being helped by other people, I am finally comfortable admitting that I need it and I need them, and that’s OK! We have a tendency to want to do it on our own, but I promise it will be easier when you don’t go at life alone. Especially through the rough times. Maybe one day I’ll be able to return the favors to my friends and family. Pay it back. Or forward. Technically I’m in debt to a few family members like a jillion dollars but one day I tell them, I’ll pay our bills and take us all to Hawaii. Or I’ll do the house chores for them when I’m on two feet again. Or I’ll just keep being the lifeless girl on the couch who tells jokes every now and then. At any rate, I’ll keep trying, and I’ll continue accepting the help from the troops who were called in.  As hard as things get, it’s nice to recognize that I’m not in it all alone. Dare I quote the Beatles “I get by with a little help from my friends?” Oopse, I just did. Well there you have it.

Health, Happiness, Help!

You Can Make Your Own Cheese?

Good morning world! Guess who’s up at 7 am?! I haven’t been up this early and actually felt alive in a long time. I woke up in pain but I wasn’t weak like I’ve been and the best part was this; I woke up just in time for the sunrise. It’s funny that such a phenomenal event like that happens every, single, day, and how seldom we actually see it. Or stop to watch it. My immobility in the last few weeks has left me observing the worlds tiny gifts that I didn’t used to see before. Like yesterday I watched a spider web glisten in the sun and was like whoa, that’s beautiful dude! Because my life has become so contained, I’ve been seeing the small things surrounding me, and suddenly they seem just as big as the things I used to strive for- independence, health, conquering the world. Those kinds of things. It reminded me of something Mark Nepo said in an interview that I wrote in my notebook. He was talking about finding “the special” in everyday life and how important that is to happiness. “Become easily pleased. Find what’s special in everything. Everything glows. There are more distractions and distortions now than ever. The challenge is how do we balance–how do we hold at bay all the voices that are forever crowding in, and hear the voice of own soul.” The answer, he said, lies in stillness, reflection, and “spiritual aerobics.” I liked hearing that. And I find the special little things often outside when I’m on a walk with Monty. A fallen birds nest or a bright red door or marshmallow clouds, a little kid with a suitcase or an old man with grocery bags. Whatever it is, it’s easy to miss. But I notice that when I’m quiet I am surrounded by extraordinary things. You don’t have to travel across the world to see incredible things. It’s more about a change in perception than location. We have a tendency to think happiness is “just over there,” beyond the next hurdle, over the fence. I keep hearing that happiness is something already within you and I see now, it’s just about accessing it, activating it. It’s gettin deep in here yall!

This week marked the beginning of a new project: GOOD NEWS IN PLAID! Woo woo. This project started pretty unorganized and is still coming together. But I have to say, I feel better after I report good news. I like hearing other people’s good news. And I enjoy avoiding politics, terrorism, disease, and murder. Who knew? In the beginning I was like why am I doing this? I don’t even feel like moving! But then I was like, wait, I have nothing else to do. I might as well report good news. And it’s something I can do from bed, or the floor, or the couch. So I’ve been recording myself (and Monty) everyday reporting a few pieces of positive news from my own life and other people’s. Yesterday, 32 people left comments reporting their good news on Facebook, so I recorded myself reading everyone’s little bits of good news..without reading through them first. Then I showed it to my sister and realized it was a 10 minute long video and one of the more awkward things you’ve ever seen in your life. So she recommended I edit it down to like 5 bits of good news instead which is probably a better idea. I try to disregard the ridiculous parts of the video where I look and sound like a moron–like when I ask “You can make your own cheese??” (You’ll see) My sister laughed for a good ten minutes at me for that one. But it’s just about positive energy and good news, so I’m sticking with it. It’s also really hard to find the music you want on YouTube, so this video ends super cheesy and the music sounds like something that would come at the end of that movie Precious or on a Cadillac commercial. But anyway, Keep the good news coming…I love hearing it and reporting it, and I think everyone agrees that the world could always use more good news. Below is segment 2 and 4. You can see all the videos at goodnewsinplaid.wordpress.com. I’ll continue to post 1 a day.

In other news, I started seeing two new doctors. One is a Chinese doctor who practices traditional Chinese medicine and is the most delightful man you’ve ever met in your life. Doctor Xu (pronounced Sue)It’s a whole different approach to health, but a lot of it makes sense to me. It seems to work with your body instead of just supplementing pills for symptomatic relief. And since this illness manifests itself in entire body system malfunctions, it feels like a good approach to take. After looking at my tongue and nails and asking a few questions he said “OK, I fix you. Two or three months. I fix you.” He makes his own chinese herbs and creates a tea out of them based on getting your body back in balance and “lighting your internal flame.” Haha. Whatever that means, I’m up for it. He also helped my sister out a lot when she was experiencing chronic migraines and often sick after college. So now he gets to try to heal her sister. His Chinese herb teas taste like what I imagine a bird’s nest ground up in a blender with some carrots thrown in would taste like. But if it means getting better, I’ll try anything. He also does acupuncture which I really like and cupping which feels awesome. But it leaves you looking like you’ve been attacked by a circle monster. See?

I know, it looks gross. 

The other doctor I am seeing is a Russian woman who practices naturpathic medicine. She believes that I didn’t get rid of the lyme disease on the first go-round and so I am still fighting that with “co-infections” and that’s most likely why I feel like I’m dying. :) Anyway, she has a plan, and Dr. Xu has a plan, and I’m trying it all. Open to anything. Maybe with a combination of Western, Eastern, and Russian Naturpathic medicine, I will get to feeling like a human being again. As my mom says, “All the kings horses and all the kings men will put Humptey Dumptey back together again.” It all sounds good to me.

Health, Happiness, Humpty Dumpty

Good News.

I never write on Sundays, but I have a little energy today and after a sick and cloudy week, I’m taking advantage of some mental clarity. The truth is I don’t have a lot of news physically. I have been the weakest I’ve been in my life. It’s a little nuts. It feels like trying to move through maple syrup. So life has been in slow motion, literally. But as always, I have help and constantly remind myself how lucky I am for it.

The real challenge with this latest crash has been maintaining emotional resilience. I remind myself of the same idea each time it gets overwhelming; this is only temporary. And when times are golden and everything is going perfectly, that will be only temporary too. The point is to find inner peace and joy that is resilient through circumstance. So just look at the bad times as intense training. Training isn’t forever. At some point you go out into the game and test your skills. And no doubt, the world will always provide you with situations in which to test yourself and what you’ve learned. This year has had a lot of training and a lot of tests, but a part me feels that I am only just beginning to understand any of it.

Since I have a lot of down time, not moving and all, I do a lot of weird things. Like look at nothing out of a window for a long period of time, not really knowing how long has passed when I snap back to present. Sometimes I listen to Debussey’s Claire de Lune over and over and over and just feel the aliveness of a song like that, even though I feel like only a half-alive body. I watch French movies on Fridays because verbally, it sounds nice. French Movie Fridays. Also I love French movies. I write down things in my notebook that I don’t immediately understand or know from where they come; sometimes I just feel like the person holding the pen, channeling something else altogether, something separate from me. Deepak Chopra would say there is no separate, there is no you and no me. Each person manifests the entire universe, all of the people, and the source itself, within themselves– thus separation is just a human illusion. This is why when you hurt someone else, you hurt yourself. This is the oneness found in “waking up.” This is how he explains the part of you that isn’t born and won’t die. It embodies it all, and it is eternal. So I guess some of the things I write down are being pulled from an all-access consciousness that has always existed. I don’t know. Maybe getting sick is what it would take for me to stop and pay attention, to finally write down dormant words, to know what it is to be alive. I just know sometimes I write things that are far more intelligent than I am and I don’t even feel right taking credit for them. Except the White Girls on Facebook post, that was me. :)

There’s a funny phenomena that happens when I’m sick: Once I start to feel better and recover, I can never remember how sick I was or how bad it felt. I can imagine it but I can’t feel it. It’s like my brain deletes the sense memory of it. I have read that this happens to women after childbirth, and I guess it’s an evolutionary survival mechanism. If women remembered how bad it hurt, they’d never have more babies! It’s like the worst hangover you’ve ever had. You swear you won’t do it again, but then the beer tastes so good and the buzz is so nice! I don’t know what the meaning is behind not being able to recall precisely the physical feelings, but being this weak and incapable feels pretty burned in my mind by now. I may not be able to access these feelings again once I’m better, but what I need to remember is that shit, life is fragile. One day you wake up and you’re too weak to walk and your mom and sister have to feed you. It’s not all pretty, but I know there is meaning in it. It’s easy to throw up your arms and scream WELL WOE IS ME,  life is unfair and none of this matters. And I’ve done that some days. The problem in doing this is that the very conclusion leaves your experience meaningless. The suffering is the hard part, but if you can hold on, if you learn to live anyway, then you’ve transcended the pain and evolved and it wasn’t for nothing; growth can never be bad. Following the pain always comes pleasure, even if it’s a simple change in perspective. Plenty of people have experienced far greater tragedies than me and come out on the other side– happy and wise. Like my mom for instance, who survived the death of two husbands, but didn’t succumb to darkness and managed to emerge happy and loving.

The goal in all of this for me is not just to stay positive and hopeful, but also to keep my perspective wide and my problems right-sized. This is just a moment in the context of eternity. It’s still really hard but it’s not forever and I’m not on my own. It’s easy to feel like the world is really big and you are really small and your little problems are terrible but that they don’t really matter. But they do, and you do. The way to make them matter most is to conquer them– with humility, grace, whatever you got. Everyone has their battles and each leads to their own lessons and outcomes, all necessary for the evolution of the world. But we all have to do our part. I don’t pretend to know how it all works, and I don’t think we’re meant to know the whole truth in this limited dimension we live in. That may explain why I had a dream last night that TRANSCENDED TIME AND SPACE and I have no idea how to put it into words. I probably sound like a kid during his first experience of dropping acid, but some things we just can’t fathom on earth. And that’s fine. We just need to do our best.

So I’m going to keep trying. Keep hanging on. Keep reading what the Greats have to say and try to make sense of it all. It’s been a challenge to stay optimistic and happy, but I know it’s necessary and I will work just as hard at that as getting better physically. In that light, I’ll introduce a new project that begins tomorrow. I’m going to report a few minutes of only good news every day for 30 days. I’ll begin with personal good news (like, I had enough energy to take a shower today!) then report national good news and then worldly good news. The idea is simple- I’m too young to be cynical. My situation is depressing enough and I don’t want to keep watching the news to see how crappy the world is and how bad people are. It’s important to stay informed on events, but I think it’s just as important to see the good things people are doing and the positive stories too. So that is the newest project and I will post the first video tomorrow around 6–that seems like a newsy time doesn’t it? I will always wear a plaid shirt because plaid makes me happy and I have a lot of them and we’re striving for good vibes here. To give you an idea of things I won’t be talking about, here is the backdrop to my very high tech news desk.

Watch the good news at goodnewsinplaid.wordpress.com.

**Addendum! I jumped the gun on my 6 o clock timeline. I’m a little behind. But the good news is now up at goodnewsinplaid@wordpress.com. If you have good news you’d like me to read on air, send it to goodnewsinplaid@gmail.com. It can be anything from your little league team won to you’ve been constipated for a week and maybe you finally had a bowel movement. If it’s good, it’s good.

Health, Happiness, Plaid.

How to Hang On.

I came across these words in the middle of the night last week when I was really sick and couldn’t sleep. I was feeling scared and anxious–of what I wasn’t exactly sure, but there was some sort of doom over my head and I didn’t know how to relieve it. This passage helped. Today my mom read to me the same excerpt out loud while discussing life and love and hardship. I figure twice in seven days is enough of a sign for me to pay attention to the words, so I thought I would share them here as well. They are written by the mystic Joseph Cambpell.

The loss of a love and the pain of a broken relationship is an overload of projection. That’s all it is. In youth, your whole life is this wonderful dream that “This is It”: this relationship is the fulfillment of my fantasy and I can’t imagine life otherwise. No argument can quell this feeling of total projection, of everything in the other one. I guess we can all recall an episode of an adolescent relationship that seemed to be the all-in-all and then went to pieces for some reason.

When a relationship breaks off, it takes a person a little while to settle and find a new commitment. It’s after the breakoff, when there is no new commitment and life has been divested of all of its potentials, that this painful reaction takes place. For some people this is a dangerous period.

The psyche knows how to heal, but it hurts. Sometimes the healing hurts more than the initial injury, but if you can survive it, you’ll be stronger, because you’ve found a larger base. Every commitment is a narrowing and when that commitment fails, you have to get back to a larger base and have the strength to hold to it.

Nietzsche was the one who did the job for me. At a certain moment in his life, the idea came to him of what he called “the love of your fate.” Whatever your fate is, whatever the hell happens you say, “This is what I need.” It may look like a wreck, but go at it as though it were an opportunity, a challenge. If you bring love to that moment – not discouragement – you will find the strength is there. Any disaster you can survive is an improvement in your character, your stature, and your life. What a privilege! This is when the spontaneity of your own nature will have a chance to flow.

Then, when looking back at your life, you will see that the moments which seemed to be great failures followed by wreckage were the incidents that shaped the life you have now. You’ll see that this is really true. Nothing that can happen to you is not positive. Even though it looks and feels at the moment like a negative crisis, it is not. The crisis throws you back, and when you are required to exhibit strength, it comes.

The dark night of the soul
comes just before revelation.

When everything is lost,
and all seems darkness,
then comes the new life
and all that is needed.

Health, Happiness, Hang On.

A Call For Positivity.

Good morning world, it’s been a little while. It’s 4 am in California and I have to say I’m OK feeling wide awake despite the indecent hour. I feel like I’ve been in a sedated state, in and out of consciousness for the last week–more out than in– and it feels good to finally feel alert enough to touch base with myself again. I have never been this sick before, at least not for this long. It’s beginning to make my other sick days feel more like mere child’s play. They’re nearly laughable when I think of them now.

I move when I can, which isn’t very often. It’s difficult to do basic things for myself these days and it sucks to have to ask, but that’s where I am, so I’m trying to make peace with it. Walking is really difficult and the weakness gets overwhelming. It sort of feels like trying to walk underwater–like someone smothered all of my joints in honey. Anyway, being stationary for such a long period of time isn’t super fun (for me or for Monty) and sometimes the mental housekeeping can be harder than the physical. It’d be nice to lose myself in the distraction of anything physical…tennis, shopping, drinking with friends, a road trip or camping! But it’s all out of the question, so I am left to my consciousness and the quiet of days as the world around me spins on without pause. I know it’s vital that I stay positive; that I don’t succumb to the fear and despair lingering between wakefulness and sleep, and that I surrender to where my life has me for now, and that I remain precisely clear about the difference between that and giving up. I am always going to pursue the healthiest routes and happiest choices, but I also need to just exist where I am- which right now, is immobilized in my sisters apartment. When I try to move around I am worse the next day, so it’s bed rest for me. Not much of a choice anymore.

The good news is, I have help. My sister has been doctor for a while now, while my brother-in-law insists on eating when I don’t want to. My mom flew in on Thursday so now the help has help and I am lucky for all of it. And Monty too of course. He’s a mental help to us all, and when things get sad or heavy somehow he finds a way to make us all laugh.  I think he’s anxious for me to be back on two feet but he’s patient as always. He’s taken to my sister and brother-in-law, like he knows they’re the ones with the energy. They’re the ones who will throw him the ball. So he plays fetch with them and my mom and when he comes back in he trots straight over to whatever piece of furniture I am using as a bed and curls up next to me; content until the next time he needs to go out. He is a constant reminder to be in the present moment. That is something that dogs just get and humans mostly miss.

I am going to be very honest and say that emotionally I’ve been kind of a wreck. I’m not a huge crier but for some reason when I fall into these weak, dizzy crashes, tears just roll down my face. I don’t even necessarily feel sad when it happens. It’s like this strange cause and effect I don’t feel I can control. So, I let the tears come. I try not to harp long on any negative thoughts or fearful worries; they are not only useless, but detrimental at this point if I give them too much pause. My mom told me “You can’t afford the privilege of a negative thought right now,” so I try to stay away from them. If they come, I let them, and then I let them leave. I am beginning to learn the art of detachment. Or I’m getting a crash course in it. I don’t know that I have another choice, and I must say I’m getting pretty good! I’m writing about this because I know that so many people have felt what I am feeling now, and many of them have not had support systems behind them. I want anyone to know who’s sick or troubled and reading this that it’s OK to want to punch the wall, scream really loud, curse the car door and earth, the universe, or God. I have done all of these things in darker moments, and sometimes a good scream or cry is necessary. It’s OK. Sometimes if I’m too tired to yell, I just flip off the sky. As if the clouds brought me to this point. It’s like the most passive aggressive protest I can demonstrate, but since my arms down to my fingers are weak, I don’t leave it up there very long, which usually leads to cursing. Haha. But what I also know is that anger and screaming and crying and cursing…it just doesn’t get me anywhere in the right direction. It doesn’t move me along. It’s really easy to be mad at a situation; to be pissed off or sad or claim unfairness. But where that gets you is stuck further in the predicament you were already in, just now you’re a miserable person in a shitty situation. It’s just plain more interesting to be a happy person in a shitty situation. Try it! When people ask how I am I say “Terrible! And it’s the best day of my life!”

My goal now is to stay as happy and positive as I can, which so far has been extremely hard. But I’m going to keep at it. I’m letting negative thoughts come and go and I follow them up with something better. Something true. I constantly remind myself of what I have; love, a family that gives a shit, good doctors, good friends, and the best dog in the world.  A few examples; my friend Kaitlin aka Matt Damon texts me our inside jokes throughout the day, often consisting of lines from Billy Madison, Orange County, or philosophical thoughts on the Golden Girls. Sometimes a one word text can make me laugh, and that feels like a step in the right direction. My brother Nick sends me interesting and positive reading material or funny pictures of the baby. My Stupid Friend Jess sends me her favorite facebook statuses of the day, which are always terrible. And hilarious. My mom and sister let me cry when I need to but are always encouraging, reminding me of the truth, and that is so necessary at times like these. And me, I’m kind of just hanging on. I don’t really feel like I’m driving the car to my life right now, but, I can at least control the music. Is this metaphor too much? Anyway, instead of playing like, Coldplay and Radiohead, I’m trying to play happier and motivating things. The Black Keys, Vampire Weekend, The Rolling Stones, and Ke$sha. Come on, that Tic Toc song can make anyone dance. We’re out of the metaphor now, I actually like listening to that song.

So, that’s where I am. It’s a really rough time, but I know it isn’t forever. And I know the answer to it all is not in anger or sadness or self pity, even though these reactions and dispositions are often the easier, default choices. It’s funny how conditioned humans are to respond this way to stress in life–and how absolutely worthless it remains. You’d think after 2000 years of civilization we’d have gotten it by now. Even the dogs get it! Anyway, as I sit immobilized, a heat pack on my muscles and the smell of BenGay circulating in the air, I’m beginning to retrain myself. My body is crazy weak, so I’m going to work on a stronger mind. I know that every situation is an opportunity to grow, and I guess it comes down to whether you want the experience to leave you larger or smaller than you were before. My hope, of course, is to walk away wiser and stronger. And while it’s the harder path to take, I know it’s not impossible, and so many others have endured far worse and done just fine. In the meantime, I gotta stay positive. So send me funny stuff! Among the 25 pills, laughter is still my best and favorite medicine.

Health, Happiness, Hanging On.